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Support for mothers, fathers and families after perinatal death
Open accessAbstract
BACKGROUND: Provision of an empathetic, sensitive, caring environment and strategies to support mothers, fathers and their families experiencing perinatal death are now an accepted part of maternity services in many countries. Interventions such as psychological support or counselling, or both, have been suggested to improve outcomes for parents and families after perinatal death. OBJECTIVES: To assess the effect of any form of intervention (i.e. medical, nursing, midwifery, social work, psychology, counselling or community-based) on parents and families who experience perinatal death. SEARCH METHODS: We searched the Cochrane Pregnancy and Childbirth Group's Trials Register (28 January 2013) and article bibliographies. SELECTION CRITERIA: Randomised trials of any form of support aimed at encouraging acceptance of loss, bereavement counselling, or specialised psychotherapy or counselling for mothers, fathers and families experiencing perinatal death. DATA COLLECTION AND ANALYSIS: Two review authors independently assessed eligibility of trials. MAIN RESULTS: No trials were included. AUTHORS' CONCLUSIONS: Primary healthcare interventions and a strong family and social support network are invaluable to parents and families around the time a baby dies. However, due to the lack of high-quality randomised trials conducted in this area, the true benefits of currently existing interventions aimed at providing support for mothers, fathers and families experiencing perinatal death is unclear. Further, the currently available evidence around the potential detrimental effects of some interventions (e.g. seeing and holding a deceased baby) remains inconclusive at this point in time. However, some well-designed descriptive studies have shown that, under the right circumstances and guided by compassionate, sensitive, experienced staff, parents' experiences of seeing and holding their deceased baby is often very positive. The sensitive nature of this topic and small sample sizes, make it difficult to develop rigorous clinical trials. Hence, other research designs may further inform practice in this area. Where justified, methodologically rigorous trials are needed. However, methodologically rigorous trials should be considered comparing different approaches to support.
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“However, despite shifting recommendations or lack of empirical evidence, hospital perinatal bereavement guidelines in Western cultures typically involve interdisciplinary support (social workers, chaplains, nurses), encouraging parents to choose to see and hold their baby, build attachment, and make meaning by keeping mementos.28–30”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
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“Fifty reports pertaining to good communication reported parents’ mental health outcomes to include coping, depression, anxiety, emotional distress, frustration, and anger.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
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“The use of sedation or tranquilizers was identified in older literature, although this practice was also identified in a few more recent sources.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
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“The possibility of PTG in the aftermath of pregnancy loss has received limited attention, with most studies grouping different types of perinatal losses together, resulting in calls for more research in this area [55,56].”
BackgroundCOMUNICAÇÃO DA NOTÍCIA DE MORTE E SUPORTE AO LUTO DE MULHERES QUE PERDERAM FILHOS RECÉM-NASCIDOS
Pereira, M. U. L., Gonçalves, L. L. M., Loyola, C. M. D., da Anunciação, P. S., Días, R. D. S., Reis, I. N., Pereira, L. A. S., & Lamy, Z. C. (2018) · Revista Paulista de Pediatria · doi:10.1590/1984-0462/;2018;36;4;00013 · Cited by 18
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Zhuang, S., Chen, M., Ma, X., Jiang, J., Xiao, G., Zhao, Y., Hou, J., & Wang, Y. (2023) · Women and Birth · doi:10.1016/j.wombi.2023.03.007 · Cited by 19
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Mothers’ experience of maternity and neonatal care when babies die: A quantitative study
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Bereaved parents’ experience of care and follow‐up after stillbirth in Sydney hospitals
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“Previous research indicates that social support is of importance following a prenatal diagnosis [24, 33] and perinatal loss [34, 35].”
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Self-citationMemory making in critical care: A qualitative thematic synthesis
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“, hypervigilance, intrusion, avoidance) and the underlying emotional etiology [19, 31].”
BackgroundSelf-citationAddressing Stillbirth in India Must Include Men
Roberts, L., Montgomery, S., Ganesh, G., Kaur, H. P., & Singh, R. (2017) · Issues in Mental Health Nursing · doi:10.1080/01612840.2017.1294220 · Cited by 14
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“HIC studies report that the use of photos, mementos, and spending time sitting with or holding the deceased infant can help create a lasting sense of identity for the deceased (59), mitigate parental psychological distress, and influence the resolution of grief (63, 64).”
BackgroundA qualitative study of bereaved parents and healthcare professionals on perinatal loss
Jansens, J., Faes, K., Coninck, M. D., Gilissen, J., & kelst, L. V. (2024) · European Journal of Midwifery · doi:10.18332/ejm/194159 · Cited by 13
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Metadata
- Authors
- Koopmans, L., Wilson, T., Cacciatore, J., & Flenady, V.
- Affiliations
- Mater Health Services (AU)
- Mater Mothers' Hospital (AU)
- Arizona State University (US)
- Venue
- Cochrane Database of Systematic Reviews
- Publisher
- Wiley
- Published
- 2013-06-19
- Volume
- 2013
- Issue
- 6
- Pages
- CD000452-CD000452
- ISSN
- 1361-6137 (ISSN-L)
- 1465-1858
- PMC
- PMC7086381
- OpenAlex
- W1902716212
- Cited by
- 216
- References
- 117
- Citations by year
- 2026: 7 · 2025: 13 · 2024: 9 · 2023: 27 · 2022: 12 · 2021: 20 · 2020: 14 · 2019: 13 · 2018: 17 · 2017: 19 · 2016: 15 · 2015: 19 · 2014: 13 · 2013: 3
- FWCI
- 2.46
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cochrane Database of Systematic Reviews (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute for Health and Care Research (10/4001/02, SRP/10/4001/02)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Maternal and Neonatal Healthcare
- Keywords
- perinatal death, parental bereavement, psychological support, counseling, psychotherapy, family support, acceptance of loss, obstetric care, social support networks
- MeSH terms
- Bereavement, Counseling, Death, Humans, Infant, Newborn, Life Change Events, Nuclear Family, Social Support
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