A community‐based trial of a psychosocial eHealth intervention for parents of children with cancer
Abstract
Background: The Electronic Surviving Cancer Competently Intervention Program (eSCCIP), a psychosocial eHealth intervention for parents and caregivers of children with cancer (parents), was delivered in a community‐based psychosocial oncology center. Primary endpoints were intervention acceptability, feasibility, and accessibility, with a secondary exploratory focus on psychosocial outcomes. Procedure: Oncology therapists in a psychosocial oncology center were trained in eSCCIP delivery. Participants were eligible for participation if they were the primary caregiver of a child with cancer between the ages 0 and 17, could read and write in English, and had reliable internet access to complete eSCCIP. Surveys were administered electronically at baseline and post intervention to evaluate study endpoints. Effect sizes (Cohen's d ) were computed for exploratory psychosocial outcomes. Nineteen parents completed the intervention. Results: Parents rated eSCCIP as highly acceptable, feasible, and accessible. A large clinical effect was detected for acute distress ( d = 0.79). Moderate clinical effects were reported for overall posttraumatic stress disorder (PTSD) symptoms ( d = 0.37), negative mood/cognitions ( d = 0.59), and symptoms of anxiety ( d = 0.48). Conclusions: Results indicate that eSCCIP is an acceptable, feasible, and accessible psychosocial intervention for parents. Exploratory analyses suggest that participation in eSCCIP may contribute to decreases in acute distress, symptoms of anxiety, and symptoms of PTSD.
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With the exception of the eSCCIP, most interventions are implemented face-to-face, limiting benefits to rural-remote families.
“With the exception of the eSCCIP [23], most interventions are also implemented face-to-face, limiting benefits to rural-remote families [7,25,27,33].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [23]
Psychological interventions can be effective for parents of children with cancer and other serious illnesses, yielding small-moderate improvements in QOL, anxiety, and other outcomes.
“Psychological interventions can be effective for parents of children with cancer and other serious illnesses [22,23], yielding small–moderate improvements in QOL, anxiety, and other outcomes [23,24,25,26,27,28,29].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [23]
We experienced significant challenges with recruitment.
“Aligning with other studies in the field [23], we experienced significant challenges with recruitment.”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [23]
Many participating parents actually reported good HRQL and low depression/anxiety at baseline and may have had a low need for further help, limiting the relative improvement that could be achieved.
“Aligning with parents in other studies [23,72,73,74], many of our participating parents actually reported good HRQL and low depression/anxiety at baseline (Q1) and may have had a low need for further help, limiting the relative improvement that could be achieved.”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [23]
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- Authors
- Canter, K. S., McIntyre, R., Babb, R., Ramirez, A. P., Vega, G., Lewis, A., Bottrell, C., Lawlor, C., & Kazak, A. E.
- Affiliations
- Thomas Jefferson University (US)
- Inova Schar Cancer Institute Life with Cancer Fairfax Virginia USA
- Inova Fairfax Hospital (US)
- Nemours Center for Healthcare Delivery Science Wilmington Delaware USA
- Children's National (US)
- ORCID
- Venue
- Pediatric Blood & Cancer
- Publisher
- Wiley
- Published
- 2021-09-17
- Volume
- 69
- Issue
- 1
- Pages
- e29352-e29352
- ISSN
- 1545-5009 (ISSN-L)
- 1545-5017
- OpenAlex
- W3199038173
- Cited by
- 35
- References
- 45
- Citations by year
- 2026: 1 · 2025: 12 · 2024: 7 · 2023: 6 · 2022: 7 · 2021: 2
- FWCI
- 5.44
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Pediatric Blood & Cancer (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- parents of children with cancer, childhood cancer, caregiver distress, post-traumatic stress disorder, anxiety, negative mood, treatment acceptability, feasibility, psycho-oncology, community-based intervention
- MeSH terms
- Psychosocial Intervention, Adolescent, Child, Child, Preschool, Humans, Infant, Infant, Newborn, Neoplasms, Parents, Caregivers, Telemedicine
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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