Can an online expressive writing program support people with inflammatory bowel disease? A feasibility randomised controlled trial
Open accessAbstract
Background We explored feasibility, acceptability and preliminary efficacy of an online writing intervention (WriteforIBD) against an active control condition for distress in people with inflammatory bowel disease (IBD) at the time of the COVID-19 pandemic.Methods A feasibility RCT was conducted in 19 adults (89.5% female, aged 20-69 years) with IBD and mild-moderate distress. Participants allocated to the WriteForIBD group completed a 4-day 30-min writing program adapted for IBD. The active control group wrote about trivial topics provided by researchers. Feasibility was established based on the recruitment and retention while acceptability based on completion rates and a numeric rating scale. All participants completed measures of mental health and disease activity before and after the intervention (one week) and at follow-up three months after the study commencement.Results The retention rate in the study was high (100% WriteForIBD; 82% control). All participants attended every session. 84.2% of participants were satisfied with the intervention. All participants reported a significant improvement in IBD-Control immediately after the intervention; F (2, 33.7) = 7.641, p = .002. A significant interaction of group*time for resilience was noted, R 2 = 0.19, p < .001, with the active control group reporting a significant decline in resilience from the first follow-up to three months while no significant change in resilience for the WriteForIBD group was recorded.Conclusions Online expressive writing is potentially feasible and highly acceptable to people with IBD who report distress. Future large-scale trials should explore the intervention that is adapted from this feasibility study.Registration ID: ACTRN12620000448943p.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The recruitment rate is in line with what would be expected from this population, especially compared with similar trials conducted with people diagnosed with IBD.
“This recruitment rate is in line with what we would expect from this population, especially when compared with similar trials conducted with people diagnosed with IBD.24,36”
From Feasibility, Acceptability, and Preliminary Efficacy of Acceptance Commitment Therapy for Adults Living With Inflammatory Bowel Disease and Distress. (2024) · cites this paper as [36]
Retention of the intervention group was better than the 77% reported for a feasibility trial looking at CBT but poorer than the 100% reported in an online writing intervention.
“Retention of the intervention group was better than the 77% reported for a feasibility trial looking at CBT24 but poorer than the 100% reported in an online writing intervention.36”
From Feasibility, Acceptability, and Preliminary Efficacy of Acceptance Commitment Therapy for Adults Living With Inflammatory Bowel Disease and Distress. (2024) · cites this paper as [36]
Cites
The Multidimensional Scale of Perceived Social Support
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988) · Journal of Personality Assessment · doi:10.1207/s15327752jpa5201_2 · Cited by 13,339 · see citing works
KESSLER, R. C., ANDREWS, G., COLPE, L. J., HIRIPI, E., MROCZEK, D. K., NORMAND, S.-L. T., WALTERS, E. E., & ZASLAVSKY, A. M. (2002) · Psychological Medicine · doi:10.1017/s0033291702006074 · Cited by 10,327 · see citing works
An interactive web-based dashboard to track COVID-19 in real time
Dong, E., Du, H., & Gardner, L. (2020) · The Lancet Infectious Diseases · doi:10.1016/s1473-3099(20)30120-1 · Cited by 10,048 · see citing works
The brief resilience scale: Assessing the ability to bounce back
Smith, B. W., Dalen, J., Wiggins, K., Tooley, E., Christopher, P., & Bernard, J. (2008) · International Journal of Behavioral Medicine · doi:10.1080/10705500802222972 · Cited by 6,439 · see citing works
Antony, M. M., Bieling, P. J., Cox, B. J., Enns, M. W., & Swinson, R. P. (1998) · Psychological Assessment · doi:10.1037/1040-3590.10.2.176 · Cited by 4,874 · see citing works
Writing About Emotional Experiences as a Therapeutic Process
Pennebaker, J. W. (1997) · Psychological Science · doi:10.1111/j.1467-9280.1997.tb00403.x · Cited by 2,486 · see citing works
Alatab, S., Sepanlou, S. G., Ikuta, K., Vahedi, H., Bisignano, C., Safiri, S., Sadeghi, A., Nixon, M. R., Abdoli, A., Abolhassani, H., et al. (2020) · The Lancet Gastroenterology & Hepatology · doi:10.1016/s2468-1253(19)30333-4 · Cited by 2,313 · see citing works
Confronting a traumatic event: Toward an understanding of inhibition and disease.
Pennebaker, J. W., & Beall, S. K. (1986) · Journal of Abnormal Psychology · doi:10.1037/0021-843x.95.3.274 · Cited by 1,898 · see citing works
Experimental disclosure and its moderators: A meta-analysis.
Frattaroli, J. (2006) · Psychological Bulletin · doi:10.1037/0033-2909.132.6.823 · Cited by 1,502 · see citing works
Written emotional expression: Effect sizes, outcome types, and moderating variables
Smyth, J. M. (1998) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.66.1.174 · Cited by 1,294 · see citing works
Written emotional expression: Effect sizes, outcome types, and moderating variables.
Smyth, J. M. (1998) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.66.1.174 · Cited by 1,290 · see citing works
Osman, A., Wong, J. L., Bagge, C. L., Freedenthal, S. L., Gutierrez, P. M., & Lozano, G. (2012) · Journal of Clinical Psychology · doi:10.1002/jclp.21908 · Cited by 1,097 · see citing works
Firth, J., Torous, J., Nicholas, J., Carney, R., Pratap, A., Rosenbaum, S., & Sarris, J. (2017) · World Psychiatry · doi:10.1002/wps.20472 · Cited by 1,097 · see citing works
Mikocka-Walus, A., Knowles, S. R., Keefer, L., & Graff, L. (2016) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000620 · Cited by 567 · see citing works
Depression and anxiety in patients with Inflammatory Bowel Disease: a systematic review
Neuendorf, R., Harding, A., Stello, N., Hanes, D., & Wahbeh, H. (2016) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2016.06.001 · Cited by 561 · see citing works
Clinical stress assessment using a visual analogue scale
Lesage, F. X., Berjot, S., & Deschamps, F. (2012) · Occupational Medicine · doi:10.1093/occmed/kqs140 · Cited by 505 · see citing works
Richardson, J., Iezzi, A., Khan, M. A., & Maxwell, A. (2014) · The Patient - Patient-Centered Outcomes Research · doi:10.1007/s40271-013-0036-x · Cited by 504 · see citing works
Bi-directionality of brain–gut interactions in patients with inflammatory bowel disease
Gracie, D. J., Guthrie, E. A., Hamlin, P. J., & Ford, A. C. (2018) · Gastroenterology · doi:10.1053/j.gastro.2018.01.027 · Cited by 408 · see citing works
Gracie, D. J., Hamlin, P. J., & Ford, A. C. (2019) · The Lancet. Gastroenterology & hepatology · doi:10.1016/s2468-1253(19)30089-5 · Cited by 358 · see citing works
Bennett, A. A., Campion, E. D., Keeler, K. R., & Keener, S. K. (2021) · Journal of Applied Psychology · doi:10.1037/apl0000906 · Cited by 328 · see citing works
Gracie, D. J., Irvine, A. J., Sood, R., Mikocka-Walus, A., Hamlin, P. J., & Ford, A. C. (2017) · The Lancet Gastroenterology & Hepatology · doi:10.1016/s2468-1253(16)30206-0 · Cited by 271 · see citing works
Sheridan, R., Martin-Kerry, J., Hudson, J., Parker, A., Bower, P., & Knapp, P. (2020) · Trials · doi:10.1186/s13063-020-4197-3 · Cited by 223 · see citing works
Bodger, K., Ormerod, C., Shackcloth, D., Harrison, M., & Collaborative, O. B. O. T. I. C. (2013) · Gut · doi:10.1136/gutjnl-2013-305600 · Cited by 194 · see citing works
Wynne, B., McHugh, L., Gao, W., Keegan, D., Byrne, K., Rowan, C., Hartery, K., Kirschbaum, C., Doherty, G., Cullen, G., et al. (2019) · Gastroenterology · doi:10.1053/j.gastro.2018.11.030 · Cited by 188 · see citing works
Psychological interventions for treatment of inflammatory bowel disease
Timmer, A., Preiss, J. C., Motschall, E., Rücker, G., Jantschek, G., & Moser, G. (2011) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006913.pub2 · Cited by 187 · see citing works
Abautret-Daly, Á., Dempsey, E., Parra‐Blanco, A., Medina, C., & Harkin, A. (2017) · Acta Neuropsychiatrica · doi:10.1017/neu.2017.3 · Cited by 185 · see citing works
Adaptation and validation of an estonian version of the general self-efficacy scale (ESES)
Rimm, H., & Jerusalem, M. (1999) · Anxiety Stress & Coping · doi:10.1080/10615809908250481 · Cited by 163 · see citing works
Hetrick, S. E., Robinson, J., Burge, E., Blandon, R., Mobilio, B., Rice, S. M., Simmons, M. B., Alvarez-Jimenez, M., Goodrich, S., & Davey, C. G. (2018) · JMIR Mental Health · doi:10.2196/mental.9041 · Cited by 151 · see citing works
Torres, J., Ellul, P., Langhorst, J., Mikocka‐Walus, A. A., Acosta, M. B., Basnayake, C., Ding, N. S., Gilardi, D., Katsanos, K. H., Moser, G., et al. (2019) · Journal of Crohn s and Colitis · doi:10.1093/ecco-jcc/jjz051 · Cited by 138 · see citing works
The Manitoba IBD Index: Evidence for a New and Simple Indicator of IBD Activity
Clara, I., Lix, L. M., Walker, J. R., Graff, L. A., Miller, N., Rogala, L., Rawsthorne, P., & Bernstein, C. N. (2009) · The American Journal of Gastroenterology · doi:10.1038/ajg.2009.197 · Cited by 119 · see citing works
Psychotherapy for inflammatory bowel disease: a review and update
McCombie, A. M., Mulder, R. T., & Gearry, R. B. (2013) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2013.02.004 · Cited by 105 · see citing works
Knowles, S. R., Monshat, K., & Castle, D. J. (2013) · Inflammatory Bowel Diseases · doi:10.1097/mib.0b013e318296ae5a · Cited by 102 · see citing works
Zachariae, R., & O'Toole, M. S. (2015) · Psycho-Oncology · doi:10.1002/pon.3802 · Cited by 88 · see citing works
Views of patients with inflammatory bowel disease on the COVID-19 pandemic: a global survey
D’Amico, F., Rahier, J., Leone, S., Peyrin‐Biroulet, L., & Danese, S. (2020) · The Lancet. Gastroenterology & hepatology · doi:10.1016/s2468-1253(20)30151-5 · Cited by 69 · see citing works
Araki, M., Shinzaki, S., Yamada, T., Arimitsu, S., Komori, M., Shibukawa, N., Mukai, A., Nakajima, S., Kinoshita, K., Kitamura, S., et al. (2020) · PLOS ONE · doi:10.1371/journal.pone.0233365 · Cited by 65 · see citing works
Cheema, M., Mitrev, N., Hall, L., Tiongson, M., Ahlenstiel, G., & Kariyawasam, V. C. (2021) · BMJ Open Gastroenterology · doi:10.1136/bmjgast-2020-000581 · Cited by 59 · see citing works
Procaccia, R., Segre, G., Tamanza, G., & Manzoni, G. M. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.624176 · Cited by 57 · see citing works
Expressive Writing Is a Promising Therapeutic Modality for the Management of IBS: A Pilot Study
Halpert, A. D., Rybin, D. V., & Doros, G. D. (2010) · The American Journal of Gastroenterology · doi:10.1038/ajg.2010.246 · Cited by 56 · see citing works
Marković, M. V., Bjekić, J., & Priebe, S. (2020) · Frontiers in Psychology · doi:10.3389/fpsyg.2020.587282 · Cited by 56 · see citing works
Massuger, W., Moore, G. T., Andrews, J. M., Kilkenny, M. F., Reyneke, M., Knowles, S. R., Purcell, L., Alex, G., Buckton, S., Page, A. T., et al. (2018) · Internal Medicine Journal · doi:10.1111/imj.14187 · Cited by 54 · see citing works
Tarricone, I., Regazzi, M. G., Bonucci, G., Rizzello, F., Carini, G., Muratori, R., Poggioli, G., & Campieri, M. (2017) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2017.07.001 · Cited by 53 · see citing works
Zhou, C., Wu, Y., An, S., & Li, X. (2015) · PLOS ONE · doi:10.1371/journal.pone.0131802 · Cited by 48 · see citing works
Artom, M., Czuber-Dochan, W., Sturt, J., Proudfoot, H., Roberts, D., & Norton, C. (2019) · Pilot and Feasibility Studies · doi:10.1186/s40814-019-0538-y · Cited by 48 · see citing works
The effect of psychotherapy on quality of life in IBD Patients: A systematic review
Paulides, E., Boukema, I., van der Woude, C. J., & de Boer, N. K. H. (2021) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izaa144 · Cited by 47 · see citing works
Effects of expressive writing on depressive symptoms—A meta‐analysis.
Reinhold, M., Bürkner, P., & Holling, H. (2018) · Clinical Psychology Science and Practice · doi:10.1037/h0101749 · Cited by 40 · see citing works
Inflammatory Bowel Disease Patient Experiences with Psychotherapy in the Community
Craven, M. R. A., Quinton, S., & Taft, T. (2018) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-018-9576-5 · Cited by 35 · see citing works
Davis, S. P., Bolin, L. P., Crane, P. B., & Crandell, J. (2020) · Frontiers in Psychology · doi:10.3389/fpsyg.2020.538741 · Cited by 32 · see citing works
Li, C., Hou, Z., Liu, Y., Ji, Y.-N., & Xie, L. (2018) · International Journal of Nursing Practice · doi:10.1111/ijn.12699 · Cited by 31 · see citing works
The Effects of Expressive Writing Interventions for Patients With Cancer: A Meta-Analysis
Oh, P. J., & Kim, S. H. (2016) · Oncology nursing forum · doi:10.1188/16.onf.468-479 · Cited by 27 · see citing works
Bechard, E. M., Evans, J., Cho, E., Lin, Y., Kozhumam, A. S., Jones, J. K., Grob, S. T., & Glass, O. (2021) · Complementary Therapies in Clinical Practice · doi:10.1016/j.ctcp.2021.101460 · Cited by 22 · see citing works
Paquin, V., Bick, J. R., Lipschutz, R. S., Elgbeili, G., Laplante, D. P., Biekman, B. D., Brunet, A., King, S., & Olson, D. M. (2021) · Psychological Medicine · doi:10.1017/s003329172100074x · Cited by 18 · see citing works
Psychometric Validity and the AQoL-8D Multi Attribute Utility Instrument
Richardson, J. R. J. (2011) · Cited by 16 · see citing works
Mikocka‐Walus, A. A., OLIVE, L. S., Skvarc, D., Beswick, L., Massuger, W., Raven, L., Emerson, C., & Evans, S. (2020) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2020.110286 · Cited by 13 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Romano, D., Chesterman, S., Fuller-Tyszkiewicz, M., Evans, S., Dober, M., Gearry, R., Gibson, P. R., Knowles, S., McCombie, A., O, E., et al. (2024) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izad122 · Cited by 19 · see citing works
Psychological interventions for treatment of inflammatory bowel disease
Tiles-Sar, N., Neuser, J., de Sordi, D., Baltes, A., Preiß, J., Moser, G., & Timmer, A. (2025) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006913.pub3 · Cited by 12 · see citing works
Expressive narrative writing therapy with inflammatory bowel disease patients
Gerson, J. (2024) · Human Systems Therapy Culture and Attachments · doi:10.1177/26344041241229221 · Cited by 1 · see citing works
- Authors
- Skvarc, D., Evans, S., Cheah, S., Cranney, M., German, B., Orr, R., Emerson, C., Olive, L., Beswick, L., Massuger, W., Raven, L., & Mikocka-Walus, A.
- Affiliations
- Deakin University (AU)
- Barwon Health (AU)
- Crohn's & Colitis Australia (AU)
- ORCID
- Venue
- Complementary Therapies in Clinical Practice
- Publisher
- Elsevier BV
- Published
- 2022-08
- Volume
- 48
- Pages
- 101616
- ISSN
- 1744-3881 (ISSN-L)
- OpenAlex
- W4281660707
- Cited by
- 4
- References
- 53
- Citations by year
- 2025: 1 · 2024: 2 · 2023: 1
- FWCI
- 0.94
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Licence
- Locations
- Complementary Therapies in Clinical Practice (publishedVersion)
- SSRN Electronic Journal (publishedVersion)
- PubMed (publishedVersion)
- Adelaide Research & Scholarship (AR&S) (University of Adelaide) (submittedVersion)
- Figshare (submittedVersion, cc-by)
- Funders
- Deakin University
- National Health and Medical Research Council (APP1158487)
- Topics
- Social Sciences › Psychology › Social Psychology › Mental Health via Writing
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
- Keywords
- inflammatory bowel disease, expressive writing, psychological distress, resilience, COVID-19 pandemic, feasibility, acceptability, mental health, disease activity
- MeSH terms
- COVID-19, Adult, Chronic Disease, Feasibility Studies, Female, Humans, Male, Writing, Inflammatory Bowel Diseases, Pandemics
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review