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Cited by 31Mobile Health and mHealth ApplicationsMental Health Research TopicsDigital Mental Health Interventions

Internet and smartphone-based ecological momentary assessment and personalized advice (PROfeel) in adolescents with chronic conditions: a feasibility study

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Nap-van der Vlist, Merel M., Houtveen, Jan, Dalmeijer, Geertje W., Grootenhuis, Martha A., van der Ent, Cornelis K., van Grotel, Martine, Swart, Joost F., van Montfrans, Joris M. +2 more·2021·Internet Interventions
DOI 10.1016/j.invent.2021.100395PMC PMC8131314
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Abstract

OBJECTIVE: Growing up with a chronic disease comes with challenges, such as coping with fatigue. Many adolescents are severely fatigued, though its associated factors exhibit considerable interpersonal and longitudinal variation. We assessed whether PROfeel, a combination of a smartphone-based ecological momentary assessment (EMA) method using the internet, followed by a face-to-face dialogue and personalized advice for improvement of symptoms or tailor treatment based on a dynamic network analysis report, was feasible and useful. STUDY DESIGN: Feasibility study in fatigued outpatient adolescents 12-18 years of age with cystic fibrosis, autoimmune disease, post-cancer treatment, or with medically unexplained fatigue. Participants were assessed at baseline to personalize EMA questions. EMA was conducted via smartphone notifications five times per day for approximately six weeks. Hereby, data was collected via the internet. The EMA results were translated into a personalized report, discussed with the participant, and subsequently translated into a personalized advice. Afterwards, semi-structured interviews on feasibility and usefulness were held. RESULTS: Fifty-seven adolescents were assessed (mean age 16.2 y ± 1.6, 16% male). Adolescents deemed the smartphone-based EMA feasible, with the app being used for an average of 49 days. Forty-two percent of the notifications were answered and 85% of the participants would recommend the app to other adolescents. The personalized report was deemed useful and comprehensible and 95% recognized themselves in the personalized report, with 64% rating improved insight in their symptoms and subsequent steps towards an approach to reduce one's fatigue as good or very good. CONCLUSIONS: PROfeel was found to be highly feasible and useful for fatigued adolescents with a chronic condition. This innovative method has clinical relevance through bringing a patient's daily life into the clinical conversation.

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  • The widespread use of smartphones and other portable devices has rendered experiential sampling a particularly advantageous procedure in clinical studies.

    “The widespread use of smartphones and other portable devices has rendered ES a particularly advantageous procedure in clinical studies (Bell et al., 2018; Nap-van der Vlist et al., 2021).”

    From Online ACT intervention for fibromyalgia: An exploratory study of feasibility and preliminary effectiveness with smartphone-delivered experiential sampling assessment (2022) · cites this paper as Nap-van der Vlist et al., 2021

    The Discussion (Strengths and limitations; page unavailable) describes advantages of internet- and smartphone-delivered ecological momentary assessment and calls it promising for clinical practice. The paper does not establish that widespread use of smartphones or other portable devices made experiential sampling advantageous across clinical studies; its evidence concerns adolescents with chronic conditions. (LLM, conf=0.82)

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Authors
Nap-van der Vlist, M. M., Houtveen, J., Dalmeijer, G. W., Grootenhuis, M. A., van der Ent, C. K., van Grotel, M., Swart, J. F., van Montfrans, J. M., van de Putte, E. M., & Nijhof, S. L.
Affiliations
  • Utrecht University (NL)
  • Princess Máxima Center (NL)
ORCID
Venue
Internet Interventions
Publisher
Elsevier BV
Published
2021-09
Volume
25
Pages
100395
ISSN
2214-7829 (ISSN-L)
DOI
10.1016/j.invent.2021.100395
PMC
PMC8131314
OpenAlex
W3154082622
Cited by
31
References
52
Citations by year
2026: 4 · 2025: 8 · 2024: 3 · 2023: 5 · 2022: 9 · 2021: 2
FWCI
5.34
Type
journal article
Language
en
Open access
Licence
Locations
  • Internet Interventions (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • Pure Amsterdam UMC (submittedVersion, cc-by)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
  • Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
Funders
  • Vertex Pharmaceuticals Inc
  • Nederlandse Federatie van Universitair Medische Centra
Topics
  • Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
  • Social Sciences › Psychology › Experimental and Cognitive Psychology › Mental Health Research Topics
  • Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
Keywords
ecological momentary assessment, smartphone-based assessment, adolescents, chronic disease, fatigue, individual guidance, dynamic network analysis, cystic fibrosis, autoimmune disease, feasibility

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