Quality of Life in Adults Who Stutter
Abstract
Although persistent developmental stuttering is known to affect daily living, just how great the impact is remains unclear. Furthermore, little is known about the underlying mechanisms which lead to a diminished quality of life (QoL). The primary objective of this study is to explore to what extent QoL is impaired in adults who stutter (AWS). In addition, this study aims to identify determinants of QoL in AWS by testing relationships between stuttering severity, coping, functioning and QoL and by testing for differences in variable scores between two AWS subgroups: receiving therapy versus not receiving therapy. A total of 91 AWS filled in several questionnaires to assess their stuttering severity, daily functioning, coping style and QoL. The QoL instruments used were the Health Utility Index 3 (HUI3) and the EuroQoL EQ-5D and EQ-VAS. The results indicated that moderate to severe stuttering has a negative impact on overall quality of life; HUI3 derived QoL values varied from .91 (for mild stuttering) to .73 (for severe stuttering). The domains of functioning that were predominantly affected were the individual's speech, emotion, cognition and pain as measured by the HUI3 and daily activities and anxiety/depression as measured by the EQ-5D. AWS in the therapy group rated their stuttering as more severe and recorded more problems on the HUI3 speech domain than AWS in the non-therapy group. The EQ-VAS was the only instrument that showed a significant difference in overall QoL between groups. Finally, it was found that the relationship between stuttering severity and QoL was influenced by the individual's coping style (emotion-oriented and task-oriented). These findings highlight the need for further research into stuttering in relation to QoL, and for a broader perspective on the diagnosis and treatment of stuttering, which would take into consideration quality of life and its determinants.
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Stuttering is associated with a decline in quality of life and impacts on social status, mental well-being, self-acceptance, and labor market integration among adults who stutter.
“stuttering is often accompanied by a reduction in the quality of life and has impacts on social status, mental well-being, self-acceptance, and the chances of integration into the labor market.”
From Inquiry based stress reduction (Ibsr) improves overall stuttering experience among adults who stutter: A randomized controlled trial (2021) · cites this paper as [2]
Koedoot et al (2011) described that adults who stutter often experience adverse reactions to stuttering, which may significantly limit their ability to participate in daily activities.
“Koedoot et al (2011) described that AWS often experience adverse reactions to stuttering, which may significantly limit their ability to participate in daily activities [2].”
From Inquiry based stress reduction (Ibsr) improves overall stuttering experience among adults who stutter: A randomized controlled trial (2021) · cites this paper as [2]
Studies have highlighted a number of particularly vulnerable areas for adults who stutter.
“Studies have highlighted a number of particularly vulnerable areas for AWS [2,51,52].”
From Inquiry based stress reduction (Ibsr) improves overall stuttering experience among adults who stutter: A randomized controlled trial (2021) · cites this paper as [2]
Cites
Statistical Power Analysis for the Behavioral Sciences
Muller, K. E., & Cohen, J. (1989) · Technometrics · doi:10.2307/1270020 · Cited by 99,588 · see citing works
Statistical power analysis for the behavioral sciences
Cohen, J. (1990) · Computers Environment and Urban Systems · doi:10.1016/0198-9715(90)90050-4 · Cited by 65,406 · see citing works
Statistical Power Analysis for the Behavioral Sciences (2nd ed.).
Lachenbruch, P. A., & Cohen, J. (1989) · Journal of the American Statistical Association · doi:10.2307/2290095 · Cited by 37,385 · see citing works
Eysenck, H. J. (1985) · Behaviour Research and Therapy · doi:10.1016/0005-7967(85)90087-7 · Cited by 32,026 · see citing works
“Stress: appraisal and coping,”
Folkman, S. (2013) · Encyclopedia of Behavioral Medicine · doi:10.1007/978-1-4419-1005-9_215 · Cited by 27,833 · see citing works
Methods for the Economic Evaluation of Health Care Programmes
Drummond, M. E., Sculpher, M. J., Torrance, G. W., O’Brien, B. J., & Stoddart, G. L. (2005) · doi:10.1093/oso/9780198529446.001.0001 · Cited by 13,648 · see citing works
(1997) · doi:10.1097/00005650-199711000-00002 · Cited by 4,544 · see citing works
Coping theory and research: past, present, and future
Lazarus, R. S. (1993) · Psychosomatic Medicine · doi:10.1097/00006842-199305000-00002 · Cited by 3,253 · see citing works
The estimation of a preference-based measure of health from the SF-36.
Brazier, J., Roberts, J., & Deverill, M. (2002) · Journal of Health Economics · doi:10.1016/s0167-6296(01)00130-8 · Cited by 3,164 · see citing works
Wilson, I. B. (1995) · JAMA · doi:10.1001/jama.1995.03520250075037 · Cited by 3,027 · see citing works
Why Does Social Exclusion Hurt? The Relationship Between Social and Physical Pain.
MacDonald, G., & Leary, M. R. (2005) · Psychological Bulletin · doi:10.1037/0033-2909.131.2.202 · Cited by 1,712 · see citing works
Multiattribute and Single-Attribute Utility Functions for the Health Utilities Index Mark 3 System
Feeny, D. F., Furlong, W. J., Torrance, G. W., Goldsmith, C. H., Zhu, Z., Depauw, S., Denton, M. A., & Boyle, M. (2002) · Medical Care · doi:10.1097/00005650-200202000-00006 · Cited by 1,333 · see citing works
Measuring and Valuing Health Benefits for Economic Evaluation
Brazier, J. E., Ratcliffe, J., Salomon, J. A., & Tsuchiya, A. (2016) · Oxford University Press eBooks · doi:10.1093/med/9780198725923.001.0001 · Cited by 1,051 · see citing works
Bloodstein, O. (1969) · Cited by 1,017 · see citing works
A Comparative Review of Generic Quality-of-Life Instruments
Coons, S. J., Rao, S. R., Keininger, D. L., & Hays, R. D. (2000) · PharmacoEconomics · doi:10.2165/00019053-200017010-00002 · Cited by 813 · see citing works
Psychological adjustment to chronic disease
de Ridder, D., Geenen, R., Kuijer, R., & van Middendorp, H. (2008) · The Lancet · doi:10.1016/s0140-6736(08)61078-8 · Cited by 759 · see citing works
Yaruss, J. S., & Quesal, R. W. (2006) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2006.02.002 · Cited by 523 · see citing works
Coping with coping assessment: A critical review
Parker, J. D. A., & Endler, N. S. (1992) · European Journal of Personality · doi:10.1002/per.2410060502 · Cited by 496 · see citing works
The Impact of Stuttering on the Quality of Life in Adults Who Stutter
Craig, A., Blumgart, E., & Tran, Y. (2009) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2009.05.002 · Cited by 490 · see citing works
Measuring and Valuing Health Benefits for Economic Evaluation
Brazier, J. E., Ratcliffe, J., Salomon, J. A., & Tsuchiya, A. (2007) · OUP Catalogue · Cited by 439 · see citing works
Measuring quality of life in clinical trials: a taxonomy and review.
Guyatt, G. H., van Zanten, S. J. V., Feeny, D. H., & Patrick, D. L. (1989) · Europe PMC (PubMed Central) · Cited by 408 · see citing works
Users' Guides to the Medical Literature
Guyatt, G. H. (1997) · JAMA · doi:10.1001/jama.1997.03540390062037 · Cited by 399 · see citing works
Klompas, M., & Ross, E. (2004) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2004.10.001 · Cited by 311 · see citing works
The Impact of Stuttering on Employment Opportunities and Job Performance
Klein, J. F., & Hood, S. B. (2004) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2004.08.001 · Cited by 280 · see citing works
Guyatt, G. H. (1997) · JAMA · doi:10.1001/jama.277.15.1232 · Cited by 277 · see citing works
A comparative review of four preference-weighted measures of health-related quality of life
Kopec, J. A. (2003) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(02)00609-1 · Cited by 216 · see citing works
Assessing quality of life in stuttering treatment outcomes research
Yaruss, J. S. (2010) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2010.05.010 · Cited by 212 · see citing works
Cognitive Behavior Therapy for Adults Who Stutter: A Tutorial for Speech-Language Pathologists
Menzies, R. G., Onslow, M., Packman, A., & O’Brian, S. (2009) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2009.09.002 · Cited by 202 · see citing works
Social anxiety in stuttering: measuring negative social expectancies
Messenger, M., Onslow, M., Packman, A., & Menzies, R. G. (2004) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2004.06.002 · Cited by 190 · see citing works
Coping responses by adults who stutter: Part I. Protecting the self and others
Plexico, L. W., Manning, W. H., & Levitt, H. (2009) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2009.06.001 · Cited by 182 · see citing works
Communicating in the real world: accounts from people who stammer
Crichton‐Smith, I. (2002) · Journal of Fluency Disorders · doi:10.1016/s0094-730x(02)00161-4 · Cited by 178 · see citing works
Stammering and Therapy Views of People Who Stammer
Hayhow, R., Cray, A. M., & Enderby, P. (2002) · Journal of Fluency Disorders · doi:10.1016/s0094-730x(01)00102-4 · Cited by 159 · see citing works
Comparison of EQ-5D and SF-6D utilities in mental health patients
Lamers, L. M., Bouwmans, C. A. M., van Straten, A., Donker, M. C. H., & Hakkaart, L. (2006) · Health Economics · doi:10.1002/hec.1125 · Cited by 145 · see citing works
Self-citationKraaimaat, F. W., Vanryckeghem, M., & van Dam‐Baggen, R. (2002) · Journal of Fluency Disorders · doi:10.1016/s0094-730x(02)00160-2 · Cited by 140 · see citing works
Using rank data to estimate health state utility models
McCabe, C. J., Brazier, J. E., Gilks, P., Tsuchiya, A., Roberts, J., O’Hagan, A., & Stevens, K. J. (2006) · Journal of Health Economics · doi:10.1016/j.jhealeco.2005.07.008 · Cited by 130 · see citing works
Coping responses by adults who stutter: Part II. Approaching the problem and achieving agency
Plexico, L. W., Manning, W. H., & Levitt, H. M. (2009) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2009.06.003 · Cited by 127 · see citing works
The EQ-5D and the Health Utilities Index for permanent sequelae after meningitis
Oostenbrink, R., Moll, H. A., & Essink‐Bot, M. (2002) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(02)00448-1 · Cited by 119 · see citing works
Torrance, G. W., Furlong, W. J., & Feeny, D. H. (2002) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1586/14737167.2.2.99 · Cited by 109 · see citing works
Self-Rating of Stuttering Severity as a Clinical Tool
O’Brian, S., Packman, A., & Onslow, M. (2004) · American Journal of Speech-Language Pathology · doi:10.1044/1058-0360(2004/023 · Cited by 99 · see citing works
Quality of Life in Short Adults
Busschbach, J. J. V., Rikken, B., Grobbee, D. E., de Charro, F., & Wit, J. M. (1997) · Hormone Research in Paediatrics · doi:10.1159/000023123 · Cited by 87 · see citing works
Vanryckeghem, M., Brutten, G. J., Uddin, N., et al. (2004) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2004.07.001 · Cited by 69 · see citing works
Franic, D. M., & Bothe, A. K. (2008) · American Journal of Speech-Language Pathology · doi:10.1044/1058-0360(2008/006 · Cited by 69 · see citing works
Evidence-based treatment of stuttering: I. Definition and application
Ingham, J. C. (2003) · Journal of Fluency Disorders · doi:10.1016/s0094-730x(03)00038-x · Cited by 59 · see citing works
Cruice, M. N., Worrall, L. E., & Hickson, L. M. H. (2010) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2010.05.008 · Cited by 59 · see citing works
Schneier, F. R., Wexler, K. B., & Liebowitz, M. R. (1997) · American Journal of Psychiatry · doi:10.1176/ajp.154.1.131 · Cited by 44 · see citing works
Health Utility Bias: A Systematic Review and Meta-Analytic Evaluation
Doctor, J. N., Han Bleichrodt, A., & Lin, H. J. (2008) · Medical Decision Making · doi:10.1177/0272989x07312478 · Cited by 40 · see citing works
Koedoot, C., Versteegh, M., & Yaruss, J. S. (2011) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2011.03.002 · Cited by 34 · see citing works
Self-citationThe association between quality of life and stuttering
Craig, A. R. (2010) · Journal of Fluency Disorders · doi:10.1016/j.jfludis.2010.08.002 · Cited by 33 · see citing works
Using Preference-Based Measures to Assess Quality of Life in Stuttering
Bramlett, R. E., Bothe, A. K., & Franic, D. M. (2006) · Journal of Speech Language and Hearing Research · doi:10.1044/1092-4388(2006/030 · Cited by 33 · see citing works
Coping inventory for stressful situations. CISS Handleiding
de Ridder, D. T. D., & van Heck, G. L. (2004) · Research portal (Tilburg University) · Cited by 28 · see citing works
The Validity of a Simple Outcome Measure to Assess Stuttering Therapy
Huinck, W. J., & Rietveld, T. C. M. (2007) · Folia Phoniatrica et Logopaedica · doi:10.1159/000098342 · Cited by 26 · see citing works
Qualidade de vida em indivíduos com gagueira desenvolvimental persistente
de Andrade, C. R. F., Sassi, F. C., Juste, F. S., & Ercolin, B. (2008) · Pró-Fono Revista de Atualização Científica · doi:10.1590/s0104-56872008000400003 · Cited by 19 · see citing works
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Adriaensens, S., Beyers, W., & Struyf, E. (2015) · Journal of Communication Disorders · doi:10.1016/j.jcomdis.2015.10.003 · Cited by 50 · see citing works
Feldman, O., Goldstien, E., Rolnik, B., Ganz, A. B., & Lev-Ari, S. (2021) · Journal of Clinical Medicine · doi:10.3390/jcm10102187 · Cited by 13 · see citing works
“Koedoot et al (2011) described that AWS often experience adverse reactions to stuttering, which may significantly limit their ability to participate in daily activities [2].”
Background
- Authors
- Koedoot, C., Bouwmans, C., Franken, M.-C., & Stolk, E.
- Affiliations
- Erasmus University Rotterdam (NL)
- Erasmus MC (NL)
- Venue
- Journal of Communication Disorders
- Publisher
- Elsevier BV
- Published
- 2011-07
- Volume
- 44
- Issue
- 4
- Pages
- 429-443
- ISSN
- 0021-9924 (ISSN-L)
- OpenAlex
- W2021694086
- Cited by
- 127
- References
- 52
- Citations by year
- 2026: 5 · 2025: 11 · 2024: 7 · 2023: 10 · 2022: 14 · 2021: 6 · 2020: 12 · 2019: 8 · 2018: 7 · 2017: 9 · 2016: 8 · 2015: 14 · 2014: 4 · 2013: 4 · 2012: 7
- FWCI
- 5.52
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Communication Disorders (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Stuttering Research and Treatment
- Health Sciences › Medicine › Physiology › Voice and Speech Disorders
- Social Sciences › Psychology › Clinical Psychology › Obsessive-Compulsive Spectrum Disorders
- Keywords
- adults who stutter, quality of life, stuttering severity, coping styles, emotion-focused coping, task-oriented coping, speech therapy, EQ-5D, EQ-VAS, daily functioning, anxiety and depression, pain, emotions, cognition, Wilson and Cleary model, health-related quality of life
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adult, Female, Humans, Male, Psychological Tests, Quality of Life, Surveys and Questionnaires, Severity of Illness Index, Stuttering
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