How patients’ use of social media impacts their interactions with healthcare professionals
Abstract
Introduction Patients are increasingly accessing online health information and have become more participatory in their engagement with the advent of social media (SM). This study explored how patients' use of SM impacted their interactions with healthcare professionals (HCPs).Methods Focus groups (n=5) were conducted with 36 patients with chronic conditions and on medication who used SM for health-related purposes. The discussions lasted 60-90min, were audio-recorded, transcribed verbatim, and thematically analysed.Results Participants did not interact with HCPs on SM and were not expecting to do so as they used SM exclusively for peer interactions. Most reported improvement in the patient-HCP relationship due to increased knowledge, better communication, and empowerment. Participants supplemented HCP-provided information with peer interactions on SM, and prepared themselves for consultations. They shared online health information with HCPs, during consultations, to validate it and to actively participate in the decision-making. Although some participants reported HCP support for their online activities, most perceived overt or tacit opposition.Conclusion Participants perceived that their SM use positively impacted relationships with HCPs. They felt empowered and were more assertive in participating in decision-making.Practice implications HCPs should be aware of patients' activities and expectations, and support them in their online activities.
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Social media empowers patients to be more informed and involved in their own care.
“social media empowers patients to be more informed and involved in their own care”
From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [12]
Physicians often react negatively to discussions involving information sourced from social media.
“however, physicians often react negatively to discussions involving information sourced from social media [11-13].”
From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [12]
Most patients discuss information they have found online with their health care provider.
“Most patients discuss information they have found online with their health care provider”
From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [12]
Social media allows for improved communication with medical professionals.
“allowing for improved communication with medical professionals [11,12].”
From Social Media Use Among Parents and Caregivers of Children With Rare Genetic Diseases: Scoping Review (2025) · cites this paper as [12]
Some patients did not bring up their research during consultations because there was not enough time.
“Others found that there was not enough time to bring up their research during consultations [32, 45].”
Seeking health information online allowed patients to communicate and interact better based on their increased background knowledge of the health conditions involved.
“It also allowed them to communicate and interact better based on their increased background knowledge of the health conditions involved [27, 45].”
Some patients felt that sharing health information they found online with their HCPs could show that they had invested time and energy into the consultation; these respondents hoped this would promote them and their problems being taken more seriously.
“In contrast to these perceptions of negative reactions, some patients felt that sharing health information they found online with their HCP’s could show that they had invested time and energy into the consultation; these respondents hoped this would promote them and their problems being taken more seriously [27, 45].”
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- Authors
- Benetoli, A., Chen, T. F., & Aslani, P.
- Affiliations
- The University of Sydney (AU)
- Corresponding author
- Benetoli, A.
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2018-03
- Volume
- 101
- Issue
- 3
- Pages
- 439-444
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W2753913077
- Cited by
- 185
- References
- 43
- Citations by year
- 2026: 13 · 2025: 21 · 2024: 25 · 2023: 22 · 2022: 31 · 2021: 27 · 2020: 22 · 2019: 14 · 2018: 8 · 2017: 2
- FWCI
- 20.39
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Young Pharmacist Group (YPG)
- Brazilian Government/National Council for Scientific and Technological Development (CNPq)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Social Sciences › Health › Social Media in Health Education
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Keywords
- social media use, physician-patient relationship, patient engagement, chronic disease, online health information, peer interaction, shared decision-making, patient empowerment, medication use
- MeSH terms
- Adult, Aged, Chronic Disease, Communication, Decision Making, Female, Health Personnel, Humans, Male, Middle Aged, Patient Participation, Perception, Power, Psychological, Professional-Patient Relations, Referral and Consultation, Focus Groups, Internet, Qualitative Research, Social Media
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