A systematic review of interventions for family caregivers who care for patients with advanced cancer at home
Open accessAbstract
Objective To examine the characteristics of interventions to support family caregivers of patients with advanced cancer. Methods Five databases (CINAHL, Medline, PsycINFO, Web of Science, and the Cochrane Library) were searched for English language articles of intervention studies utilizing randomized controlled trials or quasi-experimental designs, reporting caregiver-related outcomes of interventions for family caregivers caring for patients with advanced cancer at home. Results A total of 11 studies met the inclusion criteria. Based on these studies, the types of interventions were categorized into psychosocial, educational, or both. The characteristics of interventions varied. Most interventions demonstrated statistically significant results of reducing psychological distress and caregiving burden and improving quality of life, self-efficacy, and competence for caregiving. However, there was inconsistency in the use of measures. Conclusions Most studies showed positive effects of the interventions on caregiver-specific outcomes, yet direct comparisons of the effectiveness were limited. There is a lack of research aimed to support family caregivers' physical health. Practice implications Given caregivers' needs to maintain their wellbeing and the positive effects of support for them, research examining long-term efficacy of interventions and measuring objective health outcomes with rigorous quality of studies is still needed for better outcomes for family caregivers of patients with advanced cancer.
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Las intervenciones psicosociales y educativas tienen efectos estadísticamente significativos sobre la carga del cuidador, la angustia psicológica, la mejora de la calidad de vida, la competencia de cuidado y la autoeficacia.
“Tanto las intervenciones psicosociales como educativas mostraron efectos significativos estadísticamente sobre la CdC, la angustia psicológica, la mejora de la CdV, la competencia de cuidado y la autoeficacia.”
From Sobrecarga de trabajo en cuidadores de pacientes en cuidados paliativos oncológicos: Una revisión bibliográfica (2023) · cites this paper as Ahn et al., 2020
The Results (Effects of Interventions; page not provided) report significant reductions in caregiving burden in four studies, generally positive effects on psychological distress, and positive effects on self-efficacy and caregiving competence. But only three of six studies assessing quality of life found positive outcomes, and some effects did not persist. The claim omits these qualifications and implies that psychosocial and educational interventions each showed statistically significant effects across all five outcomes. (LLM, conf=0.84)
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Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823 · see citing works
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000097 · Cited by 64,042 · see citing works
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859 · see citing works
The "what" and "why" of goal pursuits: Human needs and the self-determination of behavior
Deci, E. L., & Ryan, R. M. (2000) · Psychological Inquiry · doi:10.1207/s15327965pli1104_01 · Cited by 34,210 · see citing works
The Cochrane Collaboration's tool for assessing risk of bias in randomised trials
Higgins, J. P. T., Altman, D. G., Gotzsche, P. C., Juni, P., Moher, D., Oxman, A. D., Savovic, J., Schulz, K. F., Weeks, L., Sterne, J. A. C., et al. (2011) · BMJ · doi:10.1136/bmj.d5928 · Cited by 33,817 · see citing works
ROBINS-I: a tool for assessing risk of bias in non-randomised studies of interventions
Sterne, J. A., Hernán, M. A., Reeves, B. C., Savović, J., Berkman, N. D., Viswanathan, M., Henry, D., Altman, D. G., Ansari, M. T., Boutron, I., et al. (2016) · BMJ · doi:10.1136/bmj.i4919 · Cited by 20,329 · see citing works
Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857 · see citing works
Bakitas, M., Lyons, K. D., Hegel, M. T., Balan, S., Brokaw, F. C., Seville, J., Hull, J. G., Li, Z., Tosteson, T. D., Byock, I. R., et al. (2009) · JAMA · doi:10.1001/jama.2009.1198 · Cited by 1,726 · see citing works
Place of Care in Advanced Cancer: A Qualitative Systematic Literature Review of Patient Preferences
Higginson, I. J., & Sengupta, G. (2000) · Journal of Palliative Medicine · doi:10.1089/jpm.2000.3.287 · Cited by 907 · see citing works
Interventions with Family Caregivers of Cancer Patients: Meta-Analysis of Randomized Trials
Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., & Mood, D. W. (2010) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.20081 · Cited by 857 · see citing works
Gomes, B., Calanzani, N., Curiale, V., McCrone, P., Higginson, I. J., & de Brito, M. F. (2013) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007760.pub2 · Cited by 797 · see citing works
Epidemiology of Psychological Distress
Drapeau, A., Marchand, A., & Beaulieu‐Prévost, D. (2012) · InTech eBooks · doi:10.5772/30872 · Cited by 555 · see citing works
Psychosocial Care for Family Caregivers of Patients With Cancer
Northouse, L., Williams, A.-L., Given, B., & McCorkle, R. (2012) · Journal of Clinical Oncology · doi:10.1200/jco.2011.39.5798 · Cited by 527 · see citing works
Hidden morbidity in cancer: spouse caregivers
Braun, M., Mikulincer, M., Rydall, A., Walsh, A., & Rodin, G. (2007) · Journal of Clinical Oncology · doi:10.1200/jco.2006.10.0909 · Cited by 526 · see citing works
Dionne-Odom, J. N., Azuero, A., Lyons, K. D., Hull, J. G., Tosteson, T. D., Li, Z., Li, Z., Frost, J., Dragnev, K. H., Akyar, İ., et al. (2015) · Journal of Clinical Oncology · doi:10.1200/jco.2014.58.7824 · Cited by 500 · see citing works
Racial and Ethnic Disparities in Palliative Care
Johnson, K. S. (2013) · Journal of Palliative Medicine · doi:10.1089/jpm.2013.9468 · Cited by 483 · see citing works
Harding, R., & Higginson, I. J. (2003) · Palliative Medicine · doi:10.1191/0269216303pm667oa · Cited by 398 · see citing works
Northouse, L., Mood, D., Schafenacker, A., Kalemkerian, G. P., Zalupski, M. M., LoRusso, P. M., Hayes, D. F., Hussain, M., RUCKDESCHEL, J. C., Fendrick, A. M., et al. (2012) · Psycho-Oncology · doi:10.1002/pon.3036 · Cited by 236 · see citing works
Badr, H., Smith, C. B., Goldstein, N. E., Gomez, J. E., & Redd, W. H. (2014) · Cancer · doi:10.1002/cncr.29009 · Cited by 214 · see citing works
Hudson, P., Remedios, C., Zordan, R., Thomas, K., Clifton, D., Crewdson, M., Hall, C., Trauer, T., Bolleter, A., Clarke, D. M., et al. (2012) · Journal of Palliative Medicine · doi:10.1089/jpm.2011.0466 · Cited by 207 · see citing works
Positive aspects and challenges associated with caring for a dying relative at home
Hudson, P. (2004) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2004.10.2.12454 · Cited by 205 · see citing works
Haley, W. E., LaMonde, L. A., Han, B., Narramore, S., & Schonwetter, R. S. (2000) · The Hospice Journal · doi:10.1080/0742-969x.2000.11882959 · Cited by 204 · see citing works
McDonald, J. C., Swami, N., Hannon, B. L., Lo, C., Pope, A. J., Oza, A., Leighl, N. B., Krzyzanowska, M. K., Rodin, G., Le, L. W., et al. (2016) · Annals of Oncology · doi:10.1093/annonc/mdw438 · Cited by 172 · see citing works
Distinguishing Perceived Competence and Self-Efficacy: An Example From Exercise
Rodgers, W. M., Markland, D. A., Selzler, A., Murray, T. C., & Wilson, P. M. (2014) · Research Quarterly for Exercise and Sport · doi:10.1080/02701367.2014.961050 · Cited by 169 · see citing works
Hudson, P., Trauer, T., Kelly, B. J., O’Connor, M., Thomas, K., Zordan, R., & Summers, M. P. (2014) · Psycho-Oncology · doi:10.1002/pon.3610 · Cited by 168 · see citing works
Lengacher, C. A., Kip, K. E., Barta, M., Post-White, J., Jacobsen, P. B., Groer, M., Lehman, B., Moscoso, M. S., Kadel, R., Le, N., et al. (2012) · Journal of Holistic Nursing · doi:10.1177/0898010111435949 · Cited by 163 · see citing works
Harding, R., List, S., Epiphaniou, E., & Jones, H. (2012) · Palliative Medicine · doi:10.1177/0269216311409613 · Cited by 160 · see citing works
Haley, W. E. (2001) · The Hospice Journal · doi:10.1300/j011v15n04_01 · Cited by 148 · see citing works
Woodman, C., Baillie, J., & Sivell, S. (2015) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2014-000794 · Cited by 143 · see citing works
CHESS improves cancer caregivers’ burden and mood: Results of an eHealth RCT.
DuBenske, L. L., Gustafson, D. H., Namkoong, K., Hawkins, R. P., Atwood, A. K., Brown, R., Chih, M., Mctavish, F. M., Carmack, C. L., Buss, M. K., et al. (2013) · Health Psychology · doi:10.1037/a0034216 · Cited by 138 · see citing works
Sun, V. C.-Y., GRANT, M. M., Koczywas, M., Freeman, B. M., Zachariah, F. J., Fujinami, R., Ferraro, C. D., Uman, G. C., & FERRELL, B. R. (2015) · Cancer · doi:10.1002/cncr.29567 · Cited by 137 · see citing works
Moore, R. C., Chattillion, E. A., Ceglowski, J., Ho, J., von Känel, R., Mills, P. J., Ziegler, M. G., Patterson, T. L., Grant, I., & Mausbach, B. T. (2013) · Behaviour Research and Therapy · doi:10.1016/j.brat.2013.07.005 · Cited by 128 · see citing works
The psychosocial, endocrine and immune consequences of caring for a child with autism or ADHD
Lovell, B., Moss, M. C., & Wetherell, M. A. (2011) · Psychoneuroendocrinology · doi:10.1016/j.psyneuen.2011.08.003 · Cited by 114 · see citing works
Hudson, P., Trauer, T., Kelly, B. J., O’Connor, M., Thomas, K., Summers, M. P., Zordan, R., & WHITE, V. M. (2013) · Psycho-Oncology · doi:10.1002/pon.3242 · Cited by 107 · see citing works
Predictors of caregiver burden across the home-based palliative care trajectory in Ontario, Canada
Guerriere, D., Husain, A., Zagorski, B., Marshall, D., Seow, H., Brazil, K., Kennedy, J., Burns, S., Brooks, H., & Coyte, P. C. (2016) · Health & Social Care in the Community · doi:10.1111/hsc.12219 · Cited by 107 · see citing works
Sharma, R. K., Cameron, K. A., Chmiel, J. S., Roenn, J. H. V., Szmuilowicz, E., Prigerson, H. G., & Penedo, F. J. (2015) · Journal of Clinical Oncology · doi:10.1200/jco.2015.61.6458 · Cited by 106 · see citing works
Advanced cancer caregiving as a risk for major depressive episodes and generalized anxiety disorder
Trevino, K. M., Prigerson, H. G., & Maciejewski, P. K. (2018) · Psycho-Oncology · doi:10.1002/pon.4441 · Cited by 106 · see citing works
Reducing emotional distress in people caring for patients receiving specialist palliative care
Walsh, K., Jones, L., Tookman, A. J., Mason, C., McLoughlin, J., Blizard, R., & King, M. (2007) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.106.023960 · Cited by 104 · see citing works
Quality of Life of Caregivers of Older Patients with Advanced Cancer
Kehoe, L. A., Xu, H., Duberstein, P., Loh, K. P., Culakova, E., Canin, B., Hurria, A., Dale, W., Wells, M., Gilmore, N., et al. (2019) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15862 · Cited by 94 · see citing works
Holm, M., Årestedt, K., Goliath, I., Fürst, C.-J., Wengström, Y., Öhlén, J., & Alvariza, A. (2015) · Psycho-Oncology · doi:10.1002/pon.4004 · Cited by 91 · see citing works
Kenny, P. M., King, M. T., & Hall, J. P. (2014) · Health & Social Care in the Community · doi:10.1111/hsc.12136 · Cited by 90 · see citing works
Interventions to Facilitate Family Caregiving at the End of Life
McMillan, S. C. (2005) · Journal of Palliative Medicine · doi:10.1089/jpm.2005.8.s-132 · Cited by 86 · see citing works
Hudson, P., Thomas, T., Quinn, K., Cockayne, M., & Braithwaite, M. (2009) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2008.08.010 · Cited by 81 · see citing works
Ugalde, A., Krishnasamy, M., & Schofield, P. E. (2014) · Journal of Palliative Medicine · doi:10.1089/jpm.2013.0338 · Cited by 62 · see citing works
Family Carers in Palliative Care: A Guide for Health and Social Care Professionals
Goldberg, J. H. (2010) · Journal of Palliative Medicine · doi:10.1089/jpm.2010.9860 · Cited by 61 · see citing works
Expectations to and evaluation of a palliative home-care team as seen by patients and carers
Goldschmidt, D., Schmidt, L., Krasnik, A., Christensen, U., & Groenvold, M. (2006) · Supportive Care in Cancer · doi:10.1007/s00520-006-0082-1 · Cited by 61 · see citing works
Caregiving, bereavement and complicated grief
Boerner, K., & Schulz, R. (2009) · Bereavement Care · doi:10.1080/02682620903355382 · Cited by 60 · see citing works
Behavioral and Educational Interventions to Support Family Caregivers in End-of-Life Care
Chi, N., Demiris, G., Lewis, F. M., Walker, A. J., & Langer, S. L. (2015) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909115593938 · Cited by 59 · see citing works
Leow, M. Q. H., Chan, S. W., & Chan, M. F. (2015) · Oncology nursing forum · doi:10.1188/15.onf.e63-e72 · Cited by 59 · see citing works
Risks for Complicated Grief in Family Caregivers
Ghesquiere, A., Haidar, Y. M. M., & Shear, M. K. (2011) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2011.593158 · Cited by 56 · see citing works
Lohne, V., Miaskowski, C. A., & Rustøen, T. (2011) · Cancer Nursing · doi:10.1097/ncc.0b013e31821e9a02 · Cited by 51 · see citing works
Improving support for family carers: Key implications for research, policy and practice
Hudson, P. (2013) · Palliative Medicine · doi:10.1177/0269216313488855 · Cited by 46 · see citing works
Massage as a respite intervention for primary caregivers
MacDonald, G. (1998) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/104990919801500109 · Cited by 37 · see citing works
Family carers in palliative care : a guide for health and social care professionals
Hudson, P., & Payne, S. A. (2009) · Lancaster EPrints (Lancaster University) · Cited by 35 · see citing works
Chen, X., Gelaye, B., Vélez, J. C., Barbosa, C., Pepper, M., Andrade, A., Gao, W., Kirschbaum, C., & Williams, M. A. (2015) · BMC Pediatrics · doi:10.1186/s12887-015-0322-y · Cited by 32 · see citing works
Worster, B. K., Bell, D. K., Roy, V., Cunningham, A., LaNoue, M. D., & Parks, S. M. (2017) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909116686733 · Cited by 26 · see citing works
The Past and Future of Palliative Care
Foley, K. M. (2005) · The Hastings Center Report · doi:10.1353/hcr.2005.0092 · Cited by 22 · see citing works
Barrett, M., Wheatland, B., Haselby, P., Larson, A., Kristjanson, L. J., & Whyatt, D. (2009) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2009.15.8.43798 · Cited by 21 · see citing works
Structured palliative care program found to be helpful for caregivers of patients with lung cancer
Barton, M. K. (2015) · CA A Cancer Journal for Clinicians · doi:10.3322/caac.21297 · Cited by 4 · see citing works
Flagged first, then by citations
1 of the 60 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Patient and Family Preferences About Place of End-of-Life Care and Death: An Umbrella Review
Pinto, S. M. O., Lopes, S., de Sousa, A. B., Delalibera, M., & Gomes, B. (2024) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2024.01.014 · Cited by 139 · see citing works
Cui, P., Yang, M., Hu, H., Cheng, C., Chen, X., Shi, J., Li, S., Chen, C., & Zhang, H. (2024) · BMC Public Health · doi:10.1186/s12889-024-18321-3 · Cited by 118 · see citing works
Interventions to improve outcomes for caregivers of patients with advanced cancer: a meta-analysis
Chow, R., Mathews, J. J., Cheng, E. Y., Lo, S., Wong, J., Alam, S., Hannon, B., Rodin, G., Nissim, R., Hales, S., et al. (2023) · JNCI: Journal of the National Cancer Institute · doi:10.1093/jnci/djad075 · Cited by 98 · see citing works
Nysaeter, T. M., Olsson, C., Sandsdalen, T., Hov, R., & Larsson, M. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01350-5 · Cited by 60 · see citing works
Supportive interventions for family caregivers of patients with advanced cancer: A systematic review
Becqué, Y. N., van der Wel, M., Arslan, M., van Driel, A. G., Rietjens, J. A. C., van der Heide, A., & Witkamp, E. (2023) · Psycho-Oncology · doi:10.1002/pon.6126 · Cited by 54 · see citing works
Caregiver burden in caregivers of patients with advanced stage cancer: A concept analysis
Morgan, S. P., Lengacher, C. A., & Rodriguez, C. S. (2022) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2022.102152 · Cited by 42 · see citing works
Alfaro-Díaz, C., Svavarsdottir, E. K., Esandi, N., Klinke, M. E., & Canga-Armayor, A. (2022) · Journal of Family Nursing · doi:10.1177/10748407211068816 · Cited by 36 · see citing works
Zhang, Y., Tang, R., Bi, L., Wang, D., Li, X., Gu, F., Han, J., & Shi, M. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-023-08053-2 · Cited by 31 · see citing works
Yan, Q., Zhu, C., Li, L., Li, Y., Chen, Y., & Hu, X. (2024) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2024.104895 · Cited by 30 · see citing works
Salikhanov, I., Katapodi, M., Kunirova, G., & Crape, B. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1186107 · Cited by 24 · see citing works
Lim, C. Y. S., Laidsaar‐Powell, R., Young, J. M., Solomon, M. J., Steffens, D., Blinman, P. L., O’Loughlin, S., Zhang, Y., Butow, P. N., & The advanced-CRC survivorship authorship group (2022) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221121493 · Cited by 28 · see citing works
Models of support to family members during the trajectory of cancer: A scoping review
Samuelsson, M., Wennick, A., Jakobsson, J., & Bengtsson, M. (2021) · Journal of Clinical Nursing · doi:10.1111/jocn.15832 · Cited by 27 · see citing works
Dealing with Family Conflicts in Decision-making in End-of-Life Care of Advanced Cancer Patients
Laryionava, K., & Winkler, E. C. (2021) · Current Oncology Reports · doi:10.1007/s11912-021-01122-x · Cited by 24 · see citing works
Laranjeira, C., Dixe, M. D. A., Martinho, R., Rijo, R., & Querido, A. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.862347 · Cited by 21 · see citing works
Soto-Guerrero, S., Palacios, J., Langer, P. D., Carrasco, C., Tupper-Satt, L., Otaiza, M. G., Rodríguez-Núñez, A., & Perez‐Cruz, P. E. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523000834 · Cited by 20 · see citing works
Alshakhs, S., Park, T., McDarby, M., Reid, M. C., Czaja, S. J., Adelman, R. D., Sweet, E., Jedlicka, C. M., Delgado, D., & Phongtankuel, V. (2023) · Journal of Palliative Medicine · doi:10.1089/jpm.2023.0160 · Cited by 20 · see citing works
Soikkeli‐Jalonen, A., Mishina, K. E., Virtanen, H., Charalambous, A., & Haavisto, E. (2021) · Journal of Clinical Nursing · doi:10.1111/jocn.15725 · Cited by 19 · see citing works
A Systematic Review of Dietary Interventions for Cancer Survivors and Their Families or Caregivers
Xu, J., Hoover, R. L., Woodard, N., Leeman, J., & Hirschey, R. (2023) · Nutrients · doi:10.3390/nu16010056 · Cited by 19 · see citing works
Liu, H., LOU, V. W. Q., & Xu, S. (2024) · BMC Geriatrics · doi:10.1186/s12877-023-04614-6 · Cited by 19 · see citing works
LeBaron, V. T. (2022) · Innovation in Aging · doi:10.1093/geroni/igac057 · Cited by 18 · see citing works
Tibell, L. H., Årestedt, K., Holm, M., Wallin, V. B., Steineck, G., Hudson, P., Kreicbergs, U. C., & Alvariza, A. (2023) · Death Studies · doi:10.1080/07481187.2023.2231388 · Cited by 18 · see citing works
McGuigan, K., Laurente, G., Christie, A., Carswell, C., Moran, C., Yaqoob, M. M., Bolton, S. J., Mullan, R. N., Rej, S., Gilbert, P., et al. (2024) · Systematic Reviews · doi:10.1186/s13643-024-02641-x · Cited by 18 · see citing works
Haan, M. M., Olthuis, G. J., & van Gurp, J. L. P. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00868-2 · Cited by 17 · see citing works
Positive Psychology Approaches to Interventions for Cancer Dyads: A Scoping Review
Otto, A. K., Ketcher, D., Reblin, M., & Terrill, A. L. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph192013561 · Cited by 17 · see citing works
Caregiver burden interventions in speech–language pathology: A systematic review
Badesha, M., Thayanantha, A., Shune, S., & Namasivayam-MacDonald, A. M. (2023) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12856 · Cited by 17 · see citing works
Ongko, E., Philip, J. A. M., & Zomerdijk, N. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523001013 · Cited by 17 · see citing works
Acquati, C., Head, K. J., Rand, K. L., Alwine, J. S., Short, D. N., Cohee, A. A., Champion, V. L., & Draucker, C. B. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20042786 · Cited by 16 · see citing works
An Evaluation of Interactive mHealth Applications for Adults Living with Cancer
Wasserman, S., Ould Brahim, L., Attiya, A., Belzile, E., & Lambert, S. D. (2023) · Current Oncology · doi:10.3390/curroncol30080518 · Cited by 15 · see citing works
Spiritual quality of life in family carers of patients with advanced cancer—a cross-sectional study
Røen, I., Brenne, A., Brunelli, C., Stifoss‐Hanssen, H., Grande, G., Solheim, T. S., Kaasa, S., & Knudsen, A. K. (2021) · Supportive Care in Cancer · doi:10.1007/s00520-021-06080-5 · Cited by 15 · see citing works
Mooney, K. H., Coombs, L. A., Whisenant, M., Wilson, C. M., Moraitis, A. M., Steinbach, M. N., Sloss, E. A., Lloyd, J. L. E., Alekhina, N., Berry, P. H., et al. (2023) · Cancer · doi:10.1002/cncr.35131 · Cited by 15 · see citing works
Liu, Q., Ye, F., Jiang, X.-L., Zhong, C., & Zou, J. (2023) · Heliyon · doi:10.1016/j.heliyon.2023.e13715 · Cited by 10 · see citing works
Pask, S., Okwuosa, C., Mohamed, A. A., Price, R., Young, J., Curtis, T., Henderson, S., Winter-Luke, I., Sunny, A., Chambers, R. L., et al. (2025) · Palliative Medicine · doi:10.1177/02692163251362567 · Cited by 13 · see citing works
Expressive Arts Interventions to Improve Psychosocial Well-Being in Caregivers: A Systematic Review
Phillips, C. S., Hebdon, M., Cleary, C., Ravandi, D., Pottepalli, V., Siddiqi, Z., Rodríguez, E. M., & Jones, B. L. (2023) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2023.11.026 · Cited by 11 · see citing works
Home care practices of cancer caregivers and the effect of perceived social support on care burden
Ulgen, T., & Uğur, Ö. (2022) · Supportive Care in Cancer · doi:10.1007/s00520-022-07266-1 · Cited by 10 · see citing works
Zhou, S., Wang, Y., Wang, Q., Yang, G., Ren, H., & Bao, Y. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.979158 · Cited by 10 · see citing works
Kristanti, M. S., Hidayati, N. W., & Maryadi, M. (2023) · Belitung Nursing Journal · doi:10.33546/bnj.2713 · Cited by 10 · see citing works
Bauman, C., Årestedt, K., Wallin, V. B., Tibell, L. H., Fürst, P., Hudson, P., Kreicbergs, U. C., & Alvariza, A. (2025) · Psycho-Oncology · doi:10.1002/pon.70202 · Cited by 10 · see citing works
Taylor, J., Fradgley, E. A., Clinton-McHarg, T., Byrnes, E., & Paul, C. L. (2021) · Journal of Psychosocial Oncology Research & Practice · doi:10.1097/or9.0000000000000047 · Cited by 10 · see citing works
The use of music therapy to address psychosocial needs of informal caregivers: An integrative review
Steiner, A. C. (2023) · The Arts in Psychotherapy · doi:10.1016/j.aip.2023.102036 · Cited by 10 · see citing works
Norinder, M., Axelsson, L., Årestedt, K., Grande, G., Ewing, G., & Alvariza, A. (2022) · Journal of Clinical Nursing · doi:10.1111/jocn.16577 · Cited by 9 · see citing works
Sharma, A., Sriyuktasuth, A., Phligbua, W., & Vongsirimas, N. (2023) · Cancer Research Statistics and Treatment · doi:10.4103/crst.crst_175_23 · Cited by 9 · see citing works
A care ethical perspective on family caregiver burden and support
Haan, M. M., van Gurp, J. L. P., Boenink, M., & Olthuis, G. J. (2025) · Nursing Ethics · doi:10.1177/09697330251324294 · Cited by 8 · see citing works
Sevillano‐Garayoa, L., Olano‐Lizarraga, M., & Martín‐Martín, J. (2025) · Nursing and Health Sciences · doi:10.1111/nhs.70196 · Cited by 8 · see citing works
Tibell, L. H., Alvariza, A., Kreicbergs, U. C., Wallin, V. B., Steineck, G., & Holm, M. (2022) · Palliative & Supportive Care · doi:10.1017/s1478951522001602 · Cited by 8 · see citing works
Improving Breast Cancer Family Caregivers’ Palliative Care Literacy: A Pilot Randomized Trial
Schulman‐Green, D., Linsky, S., Blatt, L., Jeuland, J., Kapo, J. M., & Jeon, S. (2022) · Journal of Family Nursing · doi:10.1177/10748407221099541 · Cited by 8 · see citing works
Valero-Cantero, I., Casals, C., Corral‐Pérez, J., Barón-López, F. J., Wärnberǵ, J., & Vázquez‐Sánchez, M. Á. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20010179 · Cited by 7 · see citing works
Haan, M. M., van Gurp, J. L. P., Knippenberg, M. L., & Olthuis, G. J. (2022) · Palliative Medicine · doi:10.1177/02692163221093513 · Cited by 7 · see citing works
Midlöv, E. M., Lindberg, T., & Skär, L. (2024) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.13239 · Cited by 7 · see citing works
Momeni, P., Årestedt, K., Alvariza, A., Winnberg, E., Goliath, I., Kneck, Å., Leksell, J. K., & Ewertzon, M. (2022) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.13096 · Cited by 7 · see citing works
Chow, A. Y. M., Zhang, A. Y., Chan, I. K. N., Fordjour, G. A., Lui, J. N. M., LOU, V. W. Q., & Chan, C. (2023) · Journal of Palliative Care · doi:10.1177/08258597231215137 · Cited by 6 · see citing works
Cerutti, J., Lent, M. C., Holcombe, R. F., & Reblin, M. (2025) · Cancer Medicine · doi:10.1002/cam4.70488 · Cited by 7 · see citing works
Home-based physical symptom management for family caregivers: systematic review and meta-analysis
Schoth, D. E., Holley, S., Johnson, M., Stibbs, E., Renton, K., Harrop, E. J., & Liossi, C. (2025) · BMJ Supportive & Palliative Care · doi:10.1136/spcare-2024-005246 · Cited by 6 · see citing works
Christodoulou, L., Parpottas, P., & Petkari, E. (2024) · Journal of Health Psychology · doi:10.1177/13591053241236254 · Cited by 7 · see citing works
van der Wel, M., van der Smissen, D., Dierickx, S., Cohen, J., Hudson, P., Vleminck, A. D., Tutt, L., Scott, D. A., Leo, S. D., Arnfeldt, C. M., et al. (2022) · Supportive Care in Cancer · doi:10.1007/s00520-022-07391-x · Cited by 6 · see citing works
Ko, S., Park, S., Kim, J., Subramanian, S. V., & Kim, R. (2023) · GeroScience · doi:10.1007/s11357-023-00822-5 · Cited by 5 · see citing works
Martindale-Adams, J. L., Clark, C. D., Martin, J. R., Henderson, C. R., & Nichols, L. O. (2022) · Journal of Participatory Medicine · doi:10.2196/35318 · Cited by 6 · see citing works
Midlöv, E. M., Porter, S. V., Sterner, T., Forss, K. S., & Lindberg, T. (2025) · BMC Palliative Care · doi:10.1186/s12904-025-01744-z · Cited by 5 · see citing works
Demetz, M., Krigers, A., Klingenschmid, J., Thomé, C., Freyschlag, C. F., & Kerschbaumer, J. (2025) · Acta Neurochirurgica · doi:10.1007/s00701-025-06594-5 · Cited by 5 · see citing works
Monemian, S., Sharbafchi, M. R., & Taleghani, F. (2024) · Journal of Education and Health Promotion · doi:10.4103/jehp.jehp_1636_22 · Cited by 5 · see citing works
Reblin, M., Iacob, E., Tay, D. L., Li, H., Hebdon, M., Beck, A. C., Donaldson, G. W., Cloyes, K. G., & Ellington, L. (2022) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/10499091221108119 · Cited by 5 · see citing works
Cloyes, K. G., Hebdon, M., Vega, M., Rosenkranz, S. J., Tay, D. L., Reblin, M., Mooney, K. H., & Ellington, L. (2022) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2022.11.023 · Cited by 5 · see citing works
Redefining caregiver strain for family caregivers in end-of-life care in Hong Kong
Chow, A. Y. M., Fordjour, G. A., Jiao, K., Jung, N., Chan, I. K. N., & Kuok, C. N. (2023) · Palliative & Supportive Care · doi:10.1017/s1478951523000020 · Cited by 5 · see citing works
Ullrich, A., Wortberg, E., Bokemeyer, C., & Oechsle, K. (2025) · Supportive Care in Cancer · doi:10.1007/s00520-025-10072-0 · Cited by 4 · see citing works
Iskandar, A., Buchholz, M., Blotenberg, I., Schmitz‐Hübsch, T., Faber, J., Jacobi, H., Xie, F., Grobe‐Einsler, M., Klockgether, T., Michalowsky, B., et al. (2025) · Journal of Neurology · doi:10.1007/s00415-025-13024-0 · Cited by 4 · see citing works
Laranjeira, C., Dixe, M. D. A., Coelho, A., Reigada, C., Carneiro, R., & Querido, A. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1596657 · Cited by 4 · see citing works
Lu, S.-H., Yiin, J.-J., Lin, Y.-P., & Lee, K.-C. (2024) · Cancer Nursing · doi:10.1097/ncc.0000000000001387 · Cited by 5 · see citing works
Nguyen, H. T., Tsai, H., Huynh, H. T. P., Tran, T. K. L., Le, T. A., Weng, L., Cheng, C., Tsay, P., Shieh, W., & Liu, C.-Y. (2025) · BMC Nursing · doi:10.1186/s12912-025-02965-6 · Cited by 4 · see citing works
Pérez-Núñez, P., O'Callaghan, C., López-Paz, J. F., de Lazcano, A. R., Rodríguez, A. A., & Amayra, I. (2024) · Frontiers in Psychology · doi:10.3389/fpsyg.2024.1334875 · Cited by 4 · see citing works
Easpaig, B. N. G., Newman, B., Johnson, J., Laidsaar‐Powell, R., Sansom‐Daly, U. M., Jones, L., Hofstätter, L., Robertson, E. G., Mears, S. R., Sattarshetty, K., et al. (2025) · Journal of Cancer Survivorship · doi:10.1007/s11764-025-01802-8 · Cited by 3 · see citing works
Takei, M., Inoue, M., & Takahashi, K. (2023) · Global Health & Medicine · doi:10.35772/ghm.2023.01016 · Cited by 3 · see citing works
Ogunjesa, B. A., Leão, O. A. D. A., Aguiñaga, S., Schwingel, A., & Raj, M. (2024) · American Journal of Health Promotion · doi:10.1177/08901171241302019 · Cited by 3 · see citing works
Spirituality, Social Support, and Adjustment Among Parents of Children With Advanced Cancer
Stanek, C. J., Olsavsky, A. L., Hill, K. N., Kenney, A. E., Himelhoch, A. C., Humphrey, L. H., Olshefski, R. S., Nahata, L., & Gerhardt, C. A. (2024) · Clinical Practice in Pediatric Psychology · doi:10.1037/cpp0000520 · Cited by 3 · see citing works
Xu, T., Chen, C., Liu, C., & Rose, G. M. (2025) · Geriatric Nursing · doi:10.1016/j.gerinurse.2025.03.016 · Cited by 3 · see citing works
Family Caregivers in Palliative Care in the Hospital Setting
Haavisto, E., Saarinen, J., & Soikkeli‐Jalonen, A. (2023) · Springer eBooks · doi:10.1007/978-3-031-16745-4_8 · Cited by 3 · see citing works
Bayrak, B., Özkan, Ç., & Demirbağ, B. (2023) · Nigerian Journal of Clinical Practice · doi:10.4103/njcp.njcp_1352_21 · Cited by 3 · see citing works
Caregivers’ mental health in cancer journey: A Review
Mithesh, M., & Sheelam, P. K. (2023) · World Journal of Advanced Research and Reviews · doi:10.30574/wjarr.2023.20.3.2443 · Cited by 3 · see citing works
Jiménez-Sánchez, S., Fernández-Rodríguez, E. J., García-Martín, A., Sánchez-Gómez, C., & Rihuete-Galve, M. I. (2024) · Enfermería Clínica · doi:10.1016/j.enfcli.2024.05.003 · Cited by 3 · see citing works
Zhu, S., Yang, C., Bai, Y., Kang, L., Li, T., Yang, X., Chen, S., & Li, J. (2025) · BMC Nursing · doi:10.1186/s12912-025-02857-9 · Cited by 3 · see citing works
Telehealth applications in home health services: A bibliometric analysis
Güdük, Ö. (2025) · Turkish Journal of Family Practice · doi:10.54308/turkjfampract.2025.811 · Cited by 3 · see citing works
Lu, P., Liu, I. F., Chang, A., & LOU, V. W. Q. (2025) · Geriatric Nursing · doi:10.1016/j.gerinurse.2025.103428 · Cited by 3 · see citing works
Toor, H., Barrett, R., Myers, J., & Parry, N. (2021) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/10499091211051669 · Cited by 3 · see citing works
Caring for a Parent With a Blood Cancer: Sibling Communication Challenges and Psychosocial Outcomes
Wright, K. B., Bylund, C. L., Bagautdinova, D., Hampton, C. N., Campbell‐Salome, G., Weiss, E. S., Sae‐Hau, M., & Fisher, C. L. (2024) · Families in Society The Journal of Contemporary Social Services · doi:10.1177/10443894241249775 · Cited by 2 · see citing works
Aghajani, A., Khanjani, M. S., Younesi, J., Bahmani, B., & Azkhosh, M. (2025) · International Journal of Cancer Management · doi:10.5812/ijcm-151451 · Cited by 2 · see citing works
Qualitative study of spousal emotional experiences of taking care of dying patients
Wu, W., You, N., Lin, S., lin, H., Zhang, J., Zhou, X.-B., & Yang, W. (2025) · BMC Nursing · doi:10.1186/s12912-025-02848-w · Cited by 2 · see citing works
Huber, B., Röderer, N., Fliedner, M., & Wünsch, A. (2025) · Swiss Medical Weekly · doi:10.57187/s.4089 · Cited by 2 · see citing works
Breaking Silos in Caregiving Research: Toward Unified Measures Across the Lifespan
Perepezko, K. M., Avery, A., Little, L. M., Dionne, T. P., & Fields, B. (2025) · Social Sciences · doi:10.3390/socsci14110646 · Cited by 2 · see citing works
Coughlin, S. S., & Datta, B. K. (2021) · Supportive Care in Cancer · doi:10.1007/s00520-021-06635-6 · Cited by 2 · see citing works
Haan, M. M., Olthuis, G. J., Boenink, M., & van Gurp, J. L. P. (2024) · Medical Humanities · doi:10.1136/medhum-2023-012750 · Cited by 2 · see citing works
Kheibar, N., Pakpour, V., Rahmani, A., Rassouli, M., & Sadeghi‐Ghyassi, F. (2025) · BMJ Open · doi:10.1136/bmjopen-2024-089349 · Cited by 2 · see citing works
Ghavami, S. B., Zarani, F., Fata, L., Sharbafchi, M. R., & Bender, J. L. (2025) · Palliative & Supportive Care · doi:10.1017/s1478951525100618 · Cited by 2 · see citing works
Palliative Care Needs of Families of Adults With Advanced Cancer
Rojas-Garcia, C., Vargas-Escobar, L. M., & Giraldo-Castro, M. (2023) · Journal of Hospice and Palliative Nursing · doi:10.1097/njh.0000000000000954 · Cited by 2 · see citing works
Tenzek, K. E., Lattimer, T. A., Levy, K., Grant, P. C., Depner, R. M., Pailler, M. E., & Beaupin, L. K. (2024) · Journal of Applied Communication Research · doi:10.1080/00909882.2024.2376039 · Cited by 1 · see citing works
Schleef, T., Schrader, S., van Baal, K., Schneider, N., Afshar, K., & Müller-Mundt, G. (2024) · Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen · doi:10.1016/j.zefq.2024.06.005 · Cited by 1 · see citing works
Prehabilitation for surgical cancer patients: an active role for the caregiver?
Liu, T., Balde, D., Edgar, L., & Carli, F. (2025) · European Journal of Surgical Oncology · doi:10.1016/j.ejso.2025.110391 · Cited by 1 · see citing works
Yurt, N. Ş., & Yavuz, E. (2025) · Revista da Escola de Enfermagem da USP · doi:10.1590/1980-220x-reeusp-2024-0380pt · Cited by 1 · see citing works
Service Delivery Models of Respite Care for Adults with Cancer: A Scoping Review
Kheibar, N., Rahmani, A., Pakpour, V., Rassouli, M., & Sadeghi‐Ghyassi, F. (2025) · Seminars in Oncology Nursing · doi:10.1016/j.soncn.2025.152089 · Cited by 1 · see citing works
Retnaningsih, D., Nursalam, Efendi, F., Nihayati, H., Kristiawati, & Triharini, M. (2025) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2025.103092 · Cited by 1 · see citing works
Caregivers’ Perceptions of the Impact of Palliative Care: A Qualitative Study
Catarina, V., Barbosa, M., & Marina, S. (2026) · Cureus · doi:10.7759/cureus.100828 · Cited by 1 · see citing works
Sun, J., Xue, J., & Li, X. (2026) · BMC Nursing · doi:10.1186/s12912-026-04410-8 · Cited by 1 · see citing works
Midlöv, E. M., Sterner, T., Porter, S. V., Lindberg, T., & Forss, K. S. (2026) · BMC Palliative Care · doi:10.1186/s12904-026-02021-3 · Cited by 1 · see citing works
- Authors
- Ahn, S., Romo, R. D., & Campbell, C. L.
- Affiliations
- University of Virginia (US)
- Dominican University of California (US)
- Corresponding author
- Ahn, Soojung
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2020-08
- Volume
- 103
- Issue
- 8
- Pages
- 1518-1530
- ISSN
- 0738-3991 (ISSN-L)
- PMC
- PMC7311285
- OpenAlex
- W3011452769
- Cited by
- 155
- References
- 60
- Citations by year
- 2026: 26 · 2025: 37 · 2024: 31 · 2023: 32 · 2022: 21 · 2021: 8
- FWCI
- 3.74
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Dominican Scholar (Dominican University of California) (submittedVersion, cc-by-nc-nd)
- Funders
- National Institute on Aging
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- family caregivers, advanced cancer, home care, caregiver interventions, psychosocial interventions, educational intervention, caregiver burden, psychological distress, quality of life, self-efficacy, caregiver competence, caregiver well-being
- MeSH terms
- Adaptation, Psychological, Family, Humans, Neoplasms, Palliative Care, Quality of Life, Social Support, Stress, Psychological, Terminal Care, Caregivers
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