A systematic review of psychological interventions for adolescents and young adults living with chronic illness
Abstract
OBJECTIVE: There is increasing recognition that adolescents and young adults (AYAs) with chronic illnesses experience common psychological challenges. This article reviewed published psychological interventions for AYAs with cancer, diabetes, juvenile idiopathic arthritis, sickle cell disease, and asthma. Common, efficacious intervention components were examined to generate clearer recommendations for future age-appropriate, evidence-based intervention development. METHODS: Five databases including MEDLINE, MEDLINE In Process & Non-Indexed Citations, PsycINFO, EMBASE, and CINAHL, were searched for studies involving AYAs aged 10-30 years, using quantitative two-group methods, published from 1979-2010. Of 1,233 abstracts, 87 were extracted for further analysis and a final 25 studies were eligible for inclusion. Thirteen of these studies included AYAs with diabetes, 7 studies involved AYAs with cancer, and 5 included AYAs with other illnesses. RESULTS: Educational interventions showed some significant positive results, particularly when targeted knowledge outcomes were measured. Several skills-based programs, some including parents, showed positive results, with moderate effect sizes. Interventions which taught communication skills, incorporated practical components (e.g., role-plays, homework), involved ≥6 sessions, and spanned at least 3 months in length, appeared more likely to achieve positive outcomes. CONCLUSIONS: Skills-based interventions delivered over multiple sessions may yield the most positive results in AYAs with chronic illness. Given the few peer-support groups eligible for review, their efficacy remains unclear. This review points to the need for intervention development that teaches adaptive coping skills, is grounded in theoretical frameworks, and adheres to strict randomization and independent assessments to evaluate efficacy in assisting AYAs adjust to chronic illness.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Our inclusion of an attention control (the peer-support group) was novel and aligned with recent calls in the field.
“Our inclusion of an attention control (the peer-support group) was novel and aligned with recent calls in the field [81].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [81]
Cites
Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gotzsche, P. C., Ioannidis, J. P. A., Clarke, M., Devereaux, P. J., Kleijnen, J., & Moher, D. (2009) · BMJ · doi:10.1136/bmj.b2700 · Cited by 17,648 · see citing works
CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials
the CONSORT Group, Schulz, K. F., Altman, D. G., & Moher, D. (2010) · BMC Medicine · doi:10.1186/1741-7015-8-18 · Cited by 13,371 · see citing works
Pharmacological interventions for somatoform disorders in adults
Kleinstäuber, M., Witthöft, M., Steffanowski, A., van Marwijk, H., Hiller, W., & Lambert, M. J. (2014) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd010628.pub2 · Cited by 11,361 · see citing works
(2000) · Cited by 9,198 · see citing works
Publication bias in clinical trials due to statistical significance or direction of trial results
Hopewell, S., Loudon, K., Clarke, M. J., Oxman, A. D., & Dickersin, K. (2009) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.mr000006.pub3 · Cited by 898 · see citing works
Varni, J. W., Limbers, C. A., & Burwinkle, T. M. (2007) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-5-43 · Cited by 892 · see citing works
Kato, P. M., Cole, S. W., Bradlyn, A. S., & Pollock, B. H. (2008) · Pediatrics · doi:10.1542/peds.2007-3134 · Cited by 802 · see citing works
Adolescents with a chronic condition: challenges living, challenges treating
Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007) · The Lancet · doi:10.1016/s0140-6736(07)60370-5 · Cited by 656 · see citing works
How to calculate effect sizes from published research: A simplified methodology
Thalheimer, W., & Cook, S. (2002) · Cited by 571 · see citing works
Mohr, D. C., Spring, B., Freedland, K. E., Beckner, V., Arean, P., Hollon, S. D., Ockene, J., & Kaplan, R. (2009) · Psychotherapy and Psychosomatics · doi:10.1159/000228248 · Cited by 565 · see citing works
Interventions for the Treatment and Management of Chronic Fatigue Syndrome: A Systematic Review
Whiting, P., Bagnall, A.-M., Sowden, A. J., Cornell, J. E., Mulrow, C. D., & Ramírez, G. (2001) · JAMA · doi:10.1001/jama.286.11.1360 · Cited by 509 · see citing works
Kazak, A. E. (2004) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsh022 · Cited by 505 · see citing works
Grey, M. J., Boland, E. A., Davidson, M., Ju, L., & Tamborlane, W. V. (2000) · The Journal of Pediatrics · doi:10.1067/mpd.2000.106568 · Cited by 504 · see citing works
A Multicenter Randomized Controlled Trial of Motivational Interviewing in Teenagers With Diabetes
Channon, S., Huws-Thomas, M. V., Rollnick, S., Hood, K., Cannings-John, R. L., Rogers, C. E., & Gregory, J. W. (2007) · Diabetes Care · doi:10.2337/dc06-2260 · Cited by 338 · see citing works
Kazak, A. E., Alderfer, M. A., Streisand, R., Simms, S., Rourke, M. T., Barakat, L. P., Gallagher, P., & Cnaan, A. (2004) · Journal of Family Psychology · doi:10.1037/0893-3200.18.3.493 · Cited by 303 · see citing works
Wysocki, T., Harris, M. A., Buckloh, L. M., Mertlich, D., Lochrie, A. S., Taylor, A., Sadler, M., Mauras, N., & White, N. H. (2006) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsj098 · Cited by 299 · see citing works
Eccleston, C., Morley, S., Williams, A. C. D. C., Yorke, L., & Mastroyannopoulou, K. (2002) · Pain · doi:10.1016/s0304-3959(02)00072-6 · Cited by 295 · see citing works
Cancer peer support programs—do they work?
Campbell, H. S., Phaneuf, M. R., & Deane, K. A. (2004) · Patient Education and Counseling · doi:10.1016/j.pec.2003.10.001 · Cited by 288 · see citing works
Framework for identifying children who have chronic conditions: The case for a new definition
Stein, R. E. K., Bauman, L. J., Westbrook, L. E., Coupey, S. M., & Ireys, H. T. (1993) · The Journal of Pediatrics · doi:10.1016/s0022-3476(05)83414-6 · Cited by 282 · see citing works
Review of Adherence-Related Issues in Adolescents and Young Adults With Cancer
Butow, P. N., Palmer, S., Pai, A. L. H., Goodenough, B., Luckett, T., & King, M. T. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.22.2802 · Cited by 257 · see citing works
Perrin, E. C., Stein, R. E. K., & Drotar, D. (1991) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/16.4.411 · Cited by 247 · see citing works
A systematic review of decision support needs of parents making child health decisions
Jackson, C., Cheater, F., & Reid, I. (2008) · Health Expectations · doi:10.1111/j.1369-7625.2008.00496.x · Cited by 242 · see citing works
de Wit, M., de Waal, H. A. D., Bokma, J. A., Haasnoot, K., Houdijk, M., Gemke, R. J. B. J., & Snoek, F. J. (2008) · Diabetes Care · doi:10.2337/dc08-0394 · Cited by 236 · see citing works
Chronic illness and disability
Yeo, M., & Sawyer, S. M. (2005) · BMJ · doi:10.1136/bmj.330.7493.721 · Cited by 228 · see citing works
Sex, Drugs, and Rock ‘n’ Roll: Caring for Adolescents and Young Adults With Cancer
Morgan, S., Davies, S., Palmer, S., & Plaster, M. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.22.5474 · Cited by 226 · see citing works
Taylor, R. M., Gibson, F., & Franck, L. S. (2008) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2008.02629.x · Cited by 216 · see citing works
Stinson, J., McGrath, P. J., HODNETT, E. D., Feldman, B. M., Duffy, C. M., Huber, A. M., Tucker, L. B., Hetherington, C. R., Tse, S. M. L., Spiegel, L. R., et al. (2010) · The Journal of Rheumatology · doi:10.3899/jrheum.091327 · Cited by 209 · see citing works
What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhood
Stein, R. E. K., & Jessop, D. J. (1989) · Social Science & Medicine · doi:10.1016/0277-9536(89)90157-3 · Cited by 204 · see citing works
Evidence-Based Interventions for Survivors of Childhood Cancer and Their Families
Kazak, A. E. (2004) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsi013 · Cited by 204 · see citing works
Behavior Therapy for Families of Adolescents With Diabetes
Wysocki, T., Greco, P., Harris, M. A., Bubb, J., & White, N. H. (2001) · Diabetes Care · doi:10.2337/diacare.24.3.441 · Cited by 191 · see citing works
Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer.
Alderfer, M. A., Navsaria, N., & Kazak, A. E. (2009) · Journal of Family Psychology · doi:10.1037/a0015996 · Cited by 178 · see citing works
Attrition in Randomized Controlled Trials for Pediatric Chronic Conditions
Karlson, C. W., & Rapoff, M. A. (2009) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsn122 · Cited by 162 · see citing works
Diabetes in Adolescence: Effects of Multifamily Group Intervention and Parent Simulation of Diabetes
Satin, W., Greca, A. M. L., Zigo, M. A., & Skyler, J. S. (1989) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/14.2.259 · Cited by 162 · see citing works
Wakefield, C. E., McLoone, J. K., Goodenough, B., Lenthen, K., Cairns, D. R., & Cohn, R. J. (2009) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsp056 · Cited by 161 · see citing works
Self-citationTreadgold, C., & Kuperberg, A. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2009.23.0516 · Cited by 148 · see citing works
Carpentier, M. Y., & Fortenberry, J. D. (2010) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2010.04.005 · Cited by 140 · see citing works
Transition from pediatric to adult services: are we getting it right?
Kennedy, A. D. M., & Sawyer, S. M. (2008) · Current Opinion in Pediatrics · doi:10.1097/mop.0b013e328305e128 · Cited by 134 · see citing works
Stress Management Training for Adolescents with Diabetes
Boardway, R. H., Delamater, A. M., Tomakowsky, J., & Gutai, J. P. (1993) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/18.1.29 · Cited by 131 · see citing works
Rait, D. S., Ostroff, J. S., Smith, K., Cella, D. F., TAN, C. T. C., & Lesko, L. M. (1992) · Family Process · doi:10.1111/j.1545-5300.1992.00383.x · Cited by 126 · see citing works
Review of Group Interventions for Pediatric Chronic Conditions
Plante, W. A. (2001) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/26.7.435 · Cited by 124 · see citing works
Ireys, H. T., Sills, E. M., Kolodner, K. B., & Walsh, B. B. (1996) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/21.5.633 · Cited by 115 · see citing works
To foster healing among adolescents and young adults with cancer: What helps? What hurts?
Zebrack, B., Chesler, M. A., & Kaplan, S. L. (2009) · Supportive Care in Cancer · doi:10.1007/s00520-009-0719-y · Cited by 112 · see citing works
Psychosocial implications of chronic illness in adolescence
Orr, D. P., Weller, S. C., Satterwhite, B. B., & Pless, I. B. (1984) · The Journal of Pediatrics · doi:10.1016/s0022-3476(84)80616-2 · Cited by 108 · see citing works
Hinds, P. S., Quargnenti, A. G., Bush, A. J., Pratt, C. B., Fairclough, D. L., Rissmiller, G., Betcher, D. L., & Gilchrist, G. S. (2000) · European Journal of Oncology Nursing · doi:10.1054/ejon.1999.0051 · Cited by 107 · see citing works
Sexual health and self-esteem in adolescents and young adults with cancer
Evan, E. E., Kaufman, M. E., Cook, A. B., & Zeltzer, L. K. (2006) · Cancer · doi:10.1002/cncr.22101 · Cited by 96 · see citing works
Developmental Issues Influencing Guidelines for Adolescent Health Research: A Review
Petersen, A. C., & Leffert, N. (1995) · Journal of Adolescent Health · doi:10.1016/1054-139x(95)00184-t · Cited by 95 · see citing works
Psychosocial interventions for adolescent cancer patients: a systematic review of the literature
Seitz, D. C. M., Besier, T., & Goldbeck, L. (2009) · Psycho-Oncology · doi:10.1002/pon.1473 · Cited by 91 · see citing works
Adolescent and Young Adult Oncology Training for Health Professionals: A Position Statement
Hayes‐Lattin, B., Mathews-Bradshaw, B., & Siegel, S. E. (2010) · Journal of Clinical Oncology · doi:10.1200/jco.2010.30.5508 · Cited by 82 · see citing works
Development of an Internet Coping Skills Training Program for Teenagers With Type 1 Diabetes
Whittemore, R., Grey, M. J., Lindemann, E., Ambrosino, J. M., & Jaser, S. S. (2010) · CIN Computers Informatics Nursing · doi:10.1097/ncn.0b013e3181cd8199 · Cited by 81 · see citing works
A pilot intervention to enhance psychosexual development in adolescents and young adults with cancer
Canada, A. L., Schover, L. R., & Li, Y. (2007) · Pediatric Blood & Cancer · doi:10.1002/pbc.21130 · Cited by 80 · see citing works
Barakat, L. P., Schwartz, L. A., Salamon, K. S., & Radcliffe, J. (2010) · Journal of Pediatric Hematology/Oncology · doi:10.1097/mph.0b013e3181e793f9 · Cited by 77 · see citing works
Thompson, R. J. (2002) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/28.1.59 · Cited by 76 · see citing works
Improved glycemic control in adolescents with type 1 diabetes mellitus who attend diabetes camp
Wang, Y.-C. A., Stewart, S. M., Tuli, E., & White, P. C. (2008) · Pediatric Diabetes · doi:10.1111/j.1399-5448.2007.00285.x · Cited by 73 · see citing works
Fischl, A. F. R., Herman, W. H., Sereika, S. M., Hannan, M. F., Becker, D. J., Mansfield, M. J., Freytag, L. L., Milaszewski, K., Botscheller, A. N., & Charron‐Prochownik, D. (2010) · Diabetes Care · doi:10.2337/dc09-1821 · Cited by 70 · see citing works
Adolescents’ Psychosocial Experiences Living with Asthma: A Focus Group Study
Rhee, H., Wenzel, J. A., & Steeves, R. H. (2007) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2006.04.005 · Cited by 64 · see citing works
Development and evaluation of an educational interactive CD‐ROM for teens with cancer
Jones, J. K., Kamani, S., Bush, P. J., Hennessy, K., Marfatia, A. A., & Shad, A. T. (2010) · Pediatric Blood & Cancer · doi:10.1002/pbc.22608 · Cited by 55 · see citing works
Adolescent Chronic Illness: A Qualitative Study of Psychosocial Adjustment
Olsson, C. A., Bond, L. M., Johnson, M., Forer, D., Boyce, M. W., & Sawyer, S. M. (2003) · Annals of the Academy of Medicine Singapore · doi:10.47102/annals-acadmedsg.v32n1p43 · Cited by 51 · see citing works
Adolescents with chronic disease--the double whammy.
Sawyer, S. M., Drew, S. E., & Duncan, R. E. (2007) · PubMed · Cited by 49 · see citing works
HAZZARD, A. P., Celano, M., Collins, M. H., & Markov, Y. (2002) · Children s Health Care · doi:10.1207/s15326888chc3101_5 · Cited by 48 · see citing works
Adolescents’ experience of living with diabetes
Huus, K. (2007) · Nursing Children and Young People · doi:10.7748/paed.19.3.29.s24 · Cited by 44 · see citing works
Internet use among adolescent and young adults (AYA) with cancer
Schiffman, J. D., Csongradi, E., & Suzuki, L. K. (2008) · Pediatric Blood & Cancer · doi:10.1002/pbc.21616 · Cited by 44 · see citing works
Chronically Connected? Internet Use Among Adolescents With Chronic Conditions
Surı́s, J.-C., Akré, C., Berchtold, A., Bélanger, R. E., & Michaud, P. (2009) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2009.07.008 · Cited by 36 · see citing works
The Effects of Group Therapy on Adolescents with Cancer
Heiney, S. P., Ruffin, J. E., Ettinger, R. S., & Ettinger, S. (1988) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345428800500305 · Cited by 34 · see citing works
Sponsorship for Adolescents with Diabetes
Daley, B. J. (1992) · Health & Social Work · doi:10.1093/hsw/17.3.173 · Cited by 25 · see citing works
Johnson, R. (1988) · PubMed · Cited by 23 · see citing works
Psychosocial impact of cystic fibrosis in adolescence
Harrop, M. (2007) · Nursing Children and Young People · doi:10.7748/paed2007.12.19.10.41.c6432 · Cited by 16 · see citing works
Education in the management of juvenile chronic arthritis
Marie Andre, S. H. (2001) · Scandinavian Journal of Rheumatology · doi:10.1080/030097401317148507 · Cited by 14 · see citing works
Experiences with a group intervention for adolescents with type 1 diabetes and their parents
Løding, R., Wold, J., & Skavhaug, Å. (2008) · European Diabetes Nursing · doi:10.1002/edn.96 · Cited by 11 · see citing works
Potential Pitfalls of Using Illness-Specific Measures
Dongen-Melman, J. E. W. M. V., Groot, A. D., Hählen, K., & Verhulst, F. C. (1996) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/21.1.103 · Cited by 10 · see citing works
A Family Care Approach for Managing Childhood Asthma
Horner, S. D. (1995) · Journal of the American Academy of Nurse Practitioners · doi:10.1111/j.1745-7599.1995.tb01145.x · Cited by 7 · see citing works
What can we learn from other illnesses?
Eiser, C. (2003) · Journal of Cystic Fibrosis · doi:10.1016/s1569-1993(03)00002-x · Cited by 6 · see citing works
Flagged first, then by citations
1 of the 73 references couldn’t be matched to a known paper.
Cited by
Sorted by citations
Psychological interventions for parents of children and adolescents with chronic illness
Eccleston, C., Palermo, T. M., Fisher, E., & Law, E. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009660.pub2 · Cited by 378 · see citing works
The Development of Coping: Implications for Psychopathology and Resilience
Zimmer‐Gembeck, M. J., & Skinner, E. A. (2016) · Wiley eBooks · doi:10.1002/9781119125556.devpsy410 · Cited by 286 · see citing works
Close relationships and the management of chronic illness: Associations and interventions.
Martire, L. M., & Helgeson, V. S. (2017) · American Psychologist · doi:10.1037/amp0000066 · Cited by 257 · see citing works
Zebrack, B. J., Corbett, V., Embry, L., Aguilar, C., Meeske, K. A., Hayes‐Lattin, B., Block, R., Zeman, D. T., & Cole, S. (2014) · Psycho-Oncology · doi:10.1002/pon.3533 · Cited by 255 · see citing works
Adolescent and young adult oncology—past, present, and future
Close, A. G., Dreyzin, A., Miller, K. D., Seynnaeve, B. K. N., & Rapkin, L. B. (2019) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.21585 · Cited by 225 · see citing works
Psychological interventions for parents of children and adolescents with chronic illness
Eccleston, C., Fisher, E., Law, E., Bartlett, J., & Palermo, T. M. (2015) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009660.pub3 · Cited by 216 · see citing works
Psychological interventions for parents of children and adolescents with chronic illness
Law, E., Fisher, E., Eccleston, C., & Palermo, T. M. (2019) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009660.pub4 · Cited by 207 · see citing works
Health Literacy in Adolescents and Young Adults: An Updated Review
Sansom‐Daly, U. M., Lin, M., Robertson, E. G., Wakefield, C. E., McGill, B. C., Girgis, A., & Cohn, R. J. (2016) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2015.0059 · Cited by 176 · see citing works
“3 Due to the recent focus on the AYA population within health settings, 32 and the growing role of online health information, this review provides a more relevant overview of health literacy for AYAs.”
Self-citationChronic illness and disordered eating: a discussion of the literature
Quick, V. M., Byrd-Bredbenner, C., & Neumark-Sztainer, D. (2013) · Advances in Nutrition · doi:10.3945/an.112.003608 · Cited by 171 · see citing works
The Resilience in Illness Model, Part 1
Haase, J. E., Kintner, E. K., Monahan, P. O., & Robb, S. L. (2013) · Cancer Nursing · doi:10.1097/ncc.0b013e31828941bb · Cited by 155 · see citing works
Richter, D., Koehler, M., Friedrich, M., Hilgendorf, I., Mehnert, A., & Weißflog, G. (2015) · Critical Reviews in Oncology/Hematology · doi:10.1016/j.critrevonc.2015.04.003 · Cited by 146 · see citing works
Bennett, S. D., Shafran, R., Coughtrey, A. E., Walker, S., & Heyman, I. (2015) · Archives of Disease in Childhood · doi:10.1136/archdischild-2014-307474 · Cited by 136 · see citing works
“We also excluded chronic pain (including headache), in line with previous reviews 23 and as this has been the topic of a recent distinct Cochrane review.”
ResultKent, E. E., Smith, A. W., Keegan, T. H. M., Lynch, C. F., Wu, X., Hamilton, A. S., Kato, I., Schwartz, S. M., & Harlan, F. T. A. H. S. G. L. C. (2013) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2012.0029 · Cited by 135 · see citing works
How I treat acute lymphoblastic leukemia in older adolescents and young adults
Curran, E. K., & Stock, W. (2015) · Blood · doi:10.1182/blood-2014-11-551481 · Cited by 124 · see citing works
Stinson, J., Kohut, S. A., Forgeron, P. A., Amaria, K., Bell, M. J., Kaufman, M. E., Luca, N. J. C., Luca, S., Harris, L., Victor, C. J., et al. (2016) · Pediatric Rheumatology · doi:10.1186/s12969-016-0108-2 · Cited by 123 · see citing works
“However a systematic review on interventions to improve psychological adaptation to chronic disease by adolescents concluded that the efficiency of peer support groups requires more research; in particular how to achieve greater reach and adoption using novel information and communication technologies [16].”
BackgroundEducational and vocational goal disruption in adolescent and young adult cancer survivors
Vetsch, J., Wakefield, C. E., McGill, B. C., Cohn, R. J., Ellis, S. J., Stefanic, N., Sawyer, S. M., Zebrack, B., & Sansom‐Daly, U. M. (2017) · Psycho-Oncology · doi:10.1002/pon.4525 · Cited by 99 · see citing works
“A previous systematic review suggested that structured coping skills were effective in improving AYAs' psychological and quality of life outcomes.(43) Supporting AYAs to develop adaptive coping and problem‐solving skills around challenges to their imagined future goals may form part of future educational/vocational in…”
BackgroundSelf-citationSansom‐Daly, U. M., & Wakefield, C. E. (2013) · PubMed Central · doi:10.3978/j.issn.2224-4336.2013.10.06 · Cited by 100 · see citing works
“, cognitive-behavioral therapy, mindfulness) (87).”
BackgroundSelf-citationMoore, D. A., Nunns, M., Shaw, L., Rogers, M., Walker, E., Ford, T. J., Garside, R., Ukoumunne, O. C., Titman, P., Shafran, R., et al. (2019) · Health Technology Assessment · doi:10.3310/hta23220 · Cited by 97 · see citing works
Sansom-Daly, U. M., Wakefield, C. E., Bryant, R. A., Butow, P., Sawyer, S., Patterson, P., Anazodo, A., Thompson, K., & Cohn, R. J. (2012) · BMC Cancer · doi:10.1186/1471-2407-12-339 · Cited by 94 · see citing works
“Although research suggests that teaching AYAs CBTbased coping skills is likely to reduce their post-cancer distress [29], it is possible that some participants will experience increased short-term distress.”
BackgroundMethodInfluentialSelf-citationPsychological interventions for individuals with cystic fibrosis and their families
Goldbeck, L., Fidika, A., Herle, M., & Quittner, A. L. (2014) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd003148.pub3 · Cited by 94 · see citing works
iPeer2Peer program: A pilot feasibility study in adolescents with chronic pain
Ahola Kohut, S., Stinson, J. N., Ruskin, D., Forgeron, P., Harris, L., van Wyk, M., Luca, S., & Campbell, F. (2016) · Pain · doi:10.1097/j.pain.0000000000000496 · Cited by 89 · see citing works
Haase, J. E., Kintner, E. K., Robb, S. L., Stump, T. E., Monahan, P. O., Phillips, C. R., Stegenga, K. A., & Burns, D. S. (2016) · Cancer Nursing · doi:10.1097/ncc.0000000000000450 · Cited by 75 · see citing works
“Between 1988 and 2015, only 12 controlled intervention studies targeting AYA were reported, and of these, only 7 were guided by an explicit theoretical framework.(9,10) In addition to the unmet needs of AYA with cancer, there are few empirically derived and tested models to guide research for this population.”
BackgroundSickle Cell Disease: A Review of Nonpharmacological Approaches for Pain
Williams, H., & Tanabe, P. J. (2015) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2015.10.017 · Cited by 69 · see citing works
Sansom‐Daly, U. M., Wakefield, C. E., Ellis, S. J., McGill, B. C., Donoghoe, M. W., Butow, P. N., Bryant, R. A., Sawyer, S. M., Patterson, P., Anazodo, A. C., et al. (2021) · Cancers · doi:10.3390/cancers13102460 · Cited by 67 · see citing works
“Parents and caregivers play an important role in assisting AYAs to negotiate the disruption caused by cancer [121,122], and their inclusion in skills-based programs appears to enhance AYAs’ own psychological outcomes [19].”
BackgroundInfluentialSelf-citationTailored patient therapeutic educational interventions: A patient‐centred communication model
Ricci, L., Villegente, J., Loyal, D., Ayav, C., Kivits, J., & Rat, A. (2021) · Health Expectations · doi:10.1111/hex.13377 · Cited by 64 · see citing works
“The importance of social workers or psychologists is also highlighted.(22,23) For individualization, professionals should have precise and up‐to‐date medical knowledge of the illness and high communication skills reinforced by training courses.”
BackgroundWakefield, C. E., Sansom-Daly, U. M., McGill, B. C., Ellis, S. J., Doolan, E. L., Robertson, E. G., Mathur, S., & Cohn, R. J. (2016) · Supportive Care in Cancer · doi:10.1007/s00520-016-3077-6 · Cited by 61 · see citing works
“Including additional sessions can increase intervention efficacy [43].”
BackgroundClark, J. K., & Fasciano, K. M. (2013) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909113510394 · Cited by 59 · see citing works
“The YAs may also benefit from psychological interventions that promote awareness of coping styles and increased coping skills including strategies for problem solving and communication.(58) Coping skills for emotional distress are often successfully addressed with principles from cognitive behavioral therapy including…”
BackgroundFardell, J. E., Patterson, P., Wakefield, C. E., Signorelli, C., Cohn, R. J., Anazodo, A. C., Zebrack, B., & Sansom‐Daly, U. M. (2018) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2017.0100 · Cited by 57 · see citing works
Self-citationHaase, J. E., Robb, S. L., Burns, D. S., Stegenga, K. A., Cherven, B. O., Hendricks‐Ferguson, V. L., Roll, L., Docherty, S. L., & Phillips, C. R. (2019) · Journal of Music Therapy · doi:10.1093/jmt/thz014 · Cited by 57 · see citing works
Traino, K. A., Bakula, D. M., Sharkey, C. M., Roberts, C. M., Ruppe, N. M., Chaney, J. M., & Mullins, L. L. (2019) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2019.02.035 · Cited by 49 · see citing works
Karekla, M., Karademas, E. C., & Gloster, A. T. (2019) · Health Psychology Review · doi:10.1080/17437199.2018.1437550 · Cited by 56 · see citing works
Husson, O., & Zebrack, B. (2016) · Psycho-Oncology · doi:10.1002/pon.4300 · Cited by 46 · see citing works
“Programs and services that offer opportunities for AYAs to tell their stories and share their challenges, struggles, and successes with others have already proven to be powerful interventions that promote the quality of AYAs lives.(31) These opportunities, coming in the form of oncology camps or retreats and social me…”
BackgroundWalker, E., Martins, A., Aldiss, S., Gibson, F., & Taylor, R. M. (2016) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2016.0025 · Cited by 45 · see citing works
“11,13 If the intervention involved children or older adults, studies could be included in the review if the AYA data were presented separately.”
InfluentialRiemann, L., Lubasch, J. S., Heep, A., & Ansmann, L. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182312464 · Cited by 43 · see citing works
“This is in line with previous studies in adult populations, which did not show strong evidence with regard to health literacy and treatment adherence [70,71].”
ResultHerts, K. L., Khaled, M., & Stanton, A. L. (2016) · Health Psychology · doi:10.1037/hea0000446 · Cited by 43 · see citing works
Holley, S., Walker, D., Knibb, R. C., Latter, S. M., Liossi, C., Mitchell, F., Radley, R., & Roberts, G. C. (2018) · Clinical & Experimental Allergy · doi:10.1111/cea.13141 · Cited by 43 · see citing works
Malboeuf‐Hurtubise, C., Achille, M. A., Muise, L., Beauregard-Lacroix, R., Vadnais, M., & Lacourse, É. (2015) · Journal of Child and Family Studies · doi:10.1007/s10826-015-0299-z · Cited by 41 · see citing works
Depression Screening in Pediatric Inflammatory Bowel Disease Clinics
Mackner, L. M., Whitaker, B. N., Maddux, M. H., Thompson, S., Hughes-Reid, C. L., Drovetta, M., & Reed, B. (2019) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000002499 · Cited by 41 · see citing works
Lundberg, T., Lindström, A., Roen, K., & Hegarty, P. V. (2016) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsw001 · Cited by 39 · see citing works
The lived experiences of adolescents with sickle cell disease in Kingston, Jamaica
Forrester, A. B., Barton‐Gooden, A., Pitter, C. P., & Lindo, J. (2015) · International Journal of Qualitative Studies on Health and Well-Being · doi:10.3402/qhw.v10.28104 · Cited by 38 · see citing works
Keerthy, D., Youk, A. O., Srinath, A. I., Malas, N., Bujoreanu, S. I., Bousvaros, A., Keljo, D. J., DeMaso, D. R., & Szigethy, E. (2016) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000001207 · Cited by 36 · see citing works
“Previous work has shown that depression in youth with IBD is highly responsive to psychotherapy (27,28).”
BackgroundWakefield, C. E., Sansom-Daly, U. M., McGill, B. C., McCarthy, M., Girgis, A., Grootenhuis, M., Barton, B., Patterson, P., Osborn, M., Lowe, C., et al. (2015) · Trials · doi:10.1186/s13063-015-0681-6 · Cited by 35 · see citing works
“However, generic psychological measures facilitate comparison to healthy norms, which can be clinically and empirically advantageous [56].”
BackgroundSelf-citationPsychosocial Developmental Trajectory of Adolescents With Inflammatory Bowel Disease
Hummel, T., Tak, E., Maurice‐Stam, H., Benninga, M. A., Kindermann, A., & Grootenhuis, M. A. (2013) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0b013e3182935474 · Cited by 36 · see citing works
Friendship Quality and Health-Related Outcomes Among Adolescents With Cystic Fibrosis
Helms, S. W., Dellon, E. P., & Prinstein, M. J. (2014) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsu063 · Cited by 36 · see citing works
Adolescents and Young Adults With Cancer: CNS Tumors
Wu, J., Heidelberg, R. E., & Gajjar, A. J. (2023) · Journal of Clinical Oncology · doi:10.1200/jco.23.01747 · Cited by 35 · see citing works
The Effects of Introducing Peer Support to Young People with a Chronic Illness
Lewis, P., Klineberg, E., Towns, S. J., Moore, K., & Steinbeck, K. S. (2016) · Journal of Child and Family Studies · doi:10.1007/s10826-016-0427-4 · Cited by 35 · see citing works
“Peer support groups generally aim to provide emotional and informational support to people with a chronic illness in order to promote illness self-management, health, and well-being (Dennis 2003; Sansom-Daly et al. 2012).”
BackgroundInfluentialChallenges in educating patients and parents about differences in sex development
McCauley, E. (2017) · American Journal of Medical Genetics Part C Seminars in Medical Genetics · doi:10.1002/ajmg.c.31563 · Cited by 35 · see citing works
Knight, A., Vickery, M. E., Faust, L., Muscal, E., Davis, A. M., Harris, J. G., Hersh, A. O., Rodriguez, M. M., Onel, K. B., Rubinstein, T. B., et al. (2018) · Arthritis Care & Research · doi:10.1002/acr.23683 · Cited by 32 · see citing works
“They could provide coping skills training for adjustment/coping/distress issues, focusing on cognitive restructuring and problemsolving, which has been shown to have positive effects on adjustment outcomes for youth with chronic conditions (28).”
BackgroundCamp experiences in the lives of adolescents with serious illnesses
Gillard, A., & Allsop, J. (2016) · Children and Youth Services Review · doi:10.1016/j.childyouth.2016.04.001 · Cited by 31 · see citing works
Lathren, C., Bluth, K., Campo, R., Tan, W., & Futch, W. (2018) · Self and Identity · doi:10.1080/15298868.2018.1451363 · Cited by 30 · see citing works
E-Mentoring to Address Youth Health: A Systematic Review
Kaufman, M. R., Levine, D., Casella, A., & DuBois, D. L. (2021) · Adolescent Research Review · doi:10.1007/s40894-021-00172-3 · Cited by 30 · see citing works
“Such mentoring support has shown to be effective in improving health outcomes when conducted in in-person settings but with limited reach and adoption (Dennis, 2003; Kohut et al., 2018; Sansom-Daly et al., 2012).”
Wakefield, C. E., Sansom-Daly, U. M., McGill, B. C., Hetherington, K., Ellis, S. J., Robertson, E. G., Donoghoe, M. W., McCarthy, M., Kelada, L., Girgis, A., et al. (2021) · Cancers · doi:10.3390/cancers13225597 · Cited by 28 · see citing works
“Our inclusion of an attention control (the peer-support group) was novel and aligned with recent calls in the field [81].”
ResultSelf-citationFinlay‐jones, A. L., Parkinson, A., Sirois, F. M., Perry, Y., Boyes, M. E., & Rees, C. S. (2023) · Journal of Medical Internet Research · doi:10.2196/44016 · Cited by 28 · see citing works
“Prior reviews have consistently highlighted the need for developmentally appropriate interventions that promote better psychological functioning among youth with chronic illness [13,14].”
BackgroundHamall, K. M., Heard, T. R., Inder, K., McGill, K., & KAY‐LAMBKIN, F. J. (2014) · BMC Psychology · doi:10.1186/2050-7283-2-5 · Cited by 28 · see citing works
“Interventions aimed at improving the mental health and wellbeing of families living with childhood illness provide evidence that helping families to identify positive coping skills (Barrera et al. 2002; Sahler et al. 2013; Sansom-Daly et al. 2012; Scholten et al. 2013), enhance family functioning (Hocking & Lochman 20…”
BackgroundPsychosocial Support in Adolescents and Young Adults With Cancer
Penn, A., & Kuperberg, A. (2018) · The Cancer Journal · doi:10.1097/ppo.0000000000000339 · Cited by 27 · see citing works
Robertson, E. G., Wakefield, C. E., Marshall, K. H., & Sansom‐Daly, U. M. (2015) · Clinical Oncology in Adolescents and Young Adults · doi:10.2147/coaya.s85988 · Cited by 27 · see citing works
“Search terms were adapted from previous research 37,60 to ensure the most complete and accurate coverage of the literature.”
Self-citationPsychological interventions for people with hemophilia.
Palareti, L., Melotti, G., Cassis, F., Nevitt, S., & Iorio, A. (2020) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd010215.pub2 · Cited by 29 · see citing works
“Previous systematic reviews have shown a good capacity for this type of intervention in improving the QoL of chronically ill individuals (ECing 2007; Gibson 2002), one has given more discordant results (Sansom-Daly 2012), while the last has not been able to perform meta-analysis (Savage 2014).”
BackgroundResultInfluentialImpact of warm mindfulness on emotion regulation: a randomized controlled effectiveness trial
Gawande, R., Smith, L., Comeau, A., Creedon, T. B., Wilson, C. L., Griswold, T., Cook, B. L., Loucks, E. B., & Schuman-Olivier, Z. (2023) · Health Psychology · doi:10.1037/hea0001303 · Cited by 24 · see citing works
Callinan, J., & Coyne, I. (2018) · Chronic Illness · doi:10.1177/1742395318782370 · Cited by 24 · see citing works
“They found that interventions which taught communication skills, utilising practical components such as role-plays over at least three months appeared more likely to achieve positive outcomes.(22) Clark(23) found that children with severe asthma and diabetes used imaginative means to cope on their own initiative.”
BackgroundKrockow, E. M., Riviere, E., & Frosch, C. A. (2018) · Patient Education and Counseling · doi:10.1016/j.pec.2018.11.017 · Cited by 24 · see citing works
A Mindful Approach to Chronic Illness
Phillips, D., & Pagnini, F. (2014) · doi:10.1002/9781118294895.ch43 · Cited by 24 · see citing works
Kay, J., Juth, V., Silver, R. C., & Sender, L. S. (2016) · Journal of Health Psychology · doi:10.1177/1359105316676629 · Cited by 23 · see citing works
“Psychosocial interventions addressing family and peer relationships among AYAs with chronic illnesses, although less common than interventions addressing education or individual coping, tend to be effective (Sansom-Daly et al., 2012; Zebrack and Isaacson, 2012).”
BackgroundFisher, P., McNicol, K., Young, B., Smith, E., & Salmon, P. (2015) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2014.0046 · Cited by 23 · see citing works
“8 Therefore, a trans-diagnostic model and intervention that identifies and modifies a set of core psychological processes that underpin multiple forms of emotional distress may be most suitable for AYAC survivors.”
Finlay‐jones, A. L., Boyes, M. E., Perry, Y., Sirois, F. M., Lee, R. K., & Rees, C. S. (2020) · BMC Public Health · doi:10.1186/s12889-020-8226-7 · Cited by 23 · see citing works
Addressing Mental Health in Pediatric Rheumatology
Rubinstein, T. B., Davis, A. M., Rodriguez, M. M., & Knight, A. (2018) · Current Treatment Options in Rheumatology · doi:10.1007/s40674-018-0092-4 · Cited by 21 · see citing works
Health Care Utilization, Transition Readiness, and Quality of Life: A Latent Class Analysis
Traino, K. A., Sharkey, C. M., Perez, M. N., Bakula, D. M., Roberts, C. M., Chaney, J. M., & Mullins, L. L. (2020) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsaa099 · Cited by 20 · see citing works
Nursing young people with cancer: What is “different” about it?
Morgan, S. J., & Soanes, L. (2016) · Bulletin du Cancer · doi:10.1016/j.bulcan.2016.10.007 · Cited by 18 · see citing works
“Having cancer as an AYA has implications for their growth and development and adjustment in their future life [37] and frontline nurses can help to make this a positive and supported experience.”
BackgroundDattilo, T. M., Roberts, C. M., Fisher, R. S., Traino, K. A., Edwards, C. S., Pepper-Davis, M., Chaney, J. M., & Mullins, L. L. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.04.006 · Cited by 18 · see citing works
Zhang, Y., Gutman, T., Tong, A., Craig, J. C., Sinha, A. P., Dart, A. B., Eddy, A. A., Gipson, D. S., Böckenhauer, D., Yap, H., et al. (2022) · Pediatric Nephrology · doi:10.1007/s00467-022-05551-z · Cited by 18 · see citing works
“Our results support previous findings that psychosocial wellbeing is particularly thwarted by threats to a child’s sense of normality in terms of their identity, acceptance by others, participation with their peers, and limitations on future opportunities [5, 15, 19].”
BackgroundResultA new Australian online and phone mental health support service for young people living with cancer
Patterson, P., McDonald, F. E. J., & Orchard, P. (2014) · Australasian Psychiatry · doi:10.1177/1039856213519144 · Cited by 18 · see citing works
Adolescent and young adult neuro-oncology: a comprehensive review
Yeo, K. K., Burgers, D. E., Brodigan, K., Fasciano, K. M., Frazier, A. L., Warren, K. E., & Reardon, D. A. (2021) · Neuro-Oncology Practice · doi:10.1093/nop/npab001 · Cited by 20 · see citing works
Baumeister, H. (2014) · Psychologische Rundschau · doi:10.1026/0033-3042/a000217 · Cited by 16 · see citing works
Relationships Between Adolescents with Cancer and Healthy Peers: A Qualitative Study
Fladeboe, K., Walker, A. J., Rosenberg, A. R., & Katz, L. F. (2020) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2020.0133 · Cited by 17 · see citing works
Devine, K. A., Monaghan, M. C., & Schwartz, L. A. (2017) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsx101 · Cited by 17 · see citing works
Psychosocial Issues in Adolescent and Young Adult Patients and Survivors
Penn, A., Kuperberg, A., & Zebrack, B. (2016) · Pediatric oncology · doi:10.1007/978-3-319-33679-4_23 · Cited by 16 · see citing works
McDonnell, G. A., Pope, A. W., & Ford, J. S. (2020) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2020.0111 · Cited by 16 · see citing works
“AYAs with cancer and AYA cancer survivors may also benefit from targeted interventions to teach problem solving and develop skills relevant to managing cancer-related concerns.(53) A recent multicenter randomized controlled trial is assessing the efficacy and feasibility of an online cognitive behavioral group interve…”
BackgroundMay, E., McGill, B. C., Robertson, E. G., Anazodo, A. C., Wakefield, C. E., & Sansom‐Daly, U. M. (2017) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2017.0015 · Cited by 16 · see citing works
“16 This lack of interventions extends to families, who show a number of unmet needs in the survivorship period.”
Self-citationPromoting Emotional Well-being in Hospitalized Children and Adolescents With Virtual Reality
Flujas-Contreras, J. M., Ruiz-Castañeda, D., & Becerra, I. G. (2019) · CIN Computers Informatics Nursing · doi:10.1097/cin.0000000000000586 · Cited by 16 · see citing works
Chadi, N., Kaufman, M. E., Weisbaum, E., Malboeuf‐Hurtubise, C., Kohut, S. A., Viner, C., Locke, J. J., & Vo, D. X. (2017) · JMIR Research Protocols · doi:10.2196/resprot.7700 · Cited by 15 · see citing works
“For example, a recent systematic review of psychological interventions for adolescents and young adults living with chronic illnesses emphasizes the importance of conducting high-quality randomized studies exploring new ways to support young people with chronic health conditions [30].”
BackgroundNgai, S. S., Cheung, C., Ng, Y., Shang, L., Tang, H.-Y., Ngai, H.-L., & Wong, K. H.-C. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18063061 · Cited by 15 · see citing works
“Young PCHC face many personal challenges in daily life, including demanding treatment regiments, treatment side effects, and in some cases, the prospect of a shortened future [4].”
BackgroundEmpowering Young Persons During the Transition to Adulthood
Mora, M. A., Sparud‐Lundin, C., Bratt, E., & Moons, P. (2019) · Springer eBooks · doi:10.1007/978-3-030-23384-6_2 · Cited by 14 · see citing works
Ahn, H. S., Lee, M. H., Broadbent, E., & MacDonald, B. A. (2017) · IEEE International Conference on Robotic Computing (IRC) · doi:10.1109/irc.2017.48 · Cited by 14 · see citing works
“Some research has already been conducted with Nao robot in children with diabetes in a Wizard of Oz scenario [47], with promising results.”
O‘Sullivan, G., O’Higgins, S., Caes, L., Saetes, S., McGuire, B. E., & Stinson, J. (2018) · Pediatric Rheumatology · doi:10.1186/s12969-018-0287-0 · Cited by 13 · see citing works
Donisi, V., Poli, S., Mazzi, M. A., Gobbin, F., Schena, F. F., Piccolo, L. D., Bigardi, V., Gajofatto, A., & Rimondini, M. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1042234 · Cited by 12 · see citing works
McKelvey, E. R., Zelikovksy, N., & Psihogios, A. M. (2023) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsad066 · Cited by 12 · see citing works
Pérez, A. B., & Verdet, H. M. (2015) · Psicooncología · doi:10.5209/rev_psic.2015.v12.n1.48909 · Cited by 10 · see citing works
“En consonancia con esto, una revisión reciente de las intervenciones con adolescentes con enfermedades crónicas, (incluyendo cáncer) basadas en competencias altamente eficaces en el tratamiento de problemas emocionales o conductuales, muestran que producen un efecto de mediano a grande(71).”
BackgroundGender influences on the health of adolescents with sickle cell disease
Barton‐Gooden, A., Grindley, M., Knight‐Madden, J., & Asnani, M. (2018) · Psychology Health & Medicine · doi:10.1080/13548506.2018.1533985 · Cited by 10 · see citing works
Youth with chronic health problems: how do they fare in main-stream mentoring programs?
Lipman, E. L., DeWit, D. J., DuBois, D. L., Larose, S., & Erdem, G. (2018) · BMC Public Health · doi:10.1186/s12889-017-5003-3 · Cited by 9 · see citing works
“Samson-Daly and colleagues reviewed psychological interventions for individuals with chronic illness [13].”
BackgroundAmbrosio, L., Pérez-Manchón, D., Carrascal, G. C., Fuentes-Ramírez, A., Caparros, N., Armentia, M. I. R. D. O., Timonet-Andreu, E. M., Sánchez, M. V. N., & Rodríguez‐Blázquez, C. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18020572 · Cited by 9 · see citing works
“Although results emerged in this study should be taken with caution, the LW-CI-HF scale could be used by cardiovascular healthcare practitioners as a complement to conventional generic health-related quality of life measures, as a basis for evaluation where interventions may affect both health and social care outcomes…”
COPING IN YOUNG PEOPLE WITH CHRONIC KIDNEY DISEASE (CKD)
Muhammad, S. N., Milford, D. V., Carson, A., Young, H., & Martin, C. R. (2015) · Journal of Renal Care · doi:10.1111/jorc.12131 · Cited by 8 · see citing works
Staal, D. P., Vlooswijk, C. C. P., Mols, F., Lidington, E. K., van der Graaf, W. T. A., Bijlsma, R. M., & Husson, O. (2020) · Supportive Care in Cancer · doi:10.1007/s00520-020-05502-0 · Cited by 8 · see citing works
“Developmentally appropriate psychological interventions, for example skill-based interventions with a focus on adaptive coping styles, could be offered to help forming realistic attributions and potentially reduce distress [38, 39].”
BackgroundÇağlar, E. Ç., Ceylan, L., Ermiş, S. A., Çamiçi, F., Eliöz, M., Uzun, R. N., Çiçek, G., Kusan, M., Bayraktar, M. T., Şahin, F. N., et al. (2025) · Frontiers in Psychology · doi:10.3389/fpsyg.2025.1545048 · Cited by 6 · see citing works
Peer Support for Young People with Chronic Conditions
Kirk, S. A., & Milnes, L. J. (2021) · Springer eBooks · doi:10.1007/978-3-030-64293-8_7 · Cited by 6 · see citing works
Dattilo, T. M., Fisher, R. S., Roberts, C. M., Sharkey, C. M., Clawson, A. H., Chaney, J. M., & Mullins, L. L. (2022) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2022.07.008 · Cited by 6 · see citing works
Loyal, D., Ricci, L., Villegente, J., Ayav, C., Kivits, J., & Rat, A. (2021) · Chronic Illness · doi:10.1177/17423953211058411 · Cited by 6 · see citing works
“Studies including parents might lead to more frequent significant results regarding TPE efficacy in adolescents and young adults.(50) Patients who are accompanied by loved ones during TPE sessions might benefit from more knowledge acquisition and real-life application.”
ResultTezol, Ö., Karahan, F., & Ünal, S. (2021) · Turkish Archives of Pediatrics · doi:10.5152/turkarchpediatr.2021.20270 · Cited by 6 · see citing works
“4 Total difficulties score 11 (2-23) 10 (2-18) 9 (1-30) .”
Friendship in Adolescents and Young Adults With Experience of Cancer
Evered, J. A. (2018) · Cancer Nursing · doi:10.1097/ncc.0000000000000686 · Cited by 6 · see citing works
“From this developmental perspective, distress in adolescents and young adults with cancer stems from the inability to continue achieving developmental tasks.(38) Helping youth with cancer stay on track is thus thought to improve distress.”
BackgroundCOX, E. D., Palta, M., Lasarev, M. R., Binder, A. T., Connolly, J. R., & Flynn, K. E. (2021) · Quality of Life Research · doi:10.1007/s11136-020-02737-6 · Cited by 6 · see citing works
Li, J., Li, Y., Mei, X., He, H. G., Yu, L., Ho, G. W. K., & Chan, E. A. (2024) · International Journal of Mental Health Nursing · doi:10.1111/inm.13391 · Cited by 7 · see citing works
Psychosocial considerations in pediatric autoimmune liver disease
Wellen, B. C. M., Lin, H. C., & Stellway, J. E. (2022) · Clinical Liver Disease · doi:10.1002/cld.1238 · Cited by 5 · see citing works
- Authors
- Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J.
- Affiliations
- UNSW Sydney (AU)
- Sydney Children's Hospital (AU)
- Venue
- Health Psychology
- Published
- 2012
- Volume
- 31
- Issue
- 3
- Pages
- 380-393
- ISSN
- 0278-6133 (ISSN-L)
- 1930-7810
- OpenAlex
- W1979918262
- Cited by
- 157
- References
- 73
- Citations by year
- 2026: 5 · 2025: 12 · 2024: 3 · 2023: 9 · 2022: 7 · 2021: 20 · 2020: 8 · 2019: 11 · 2018: 17 · 2017: 9 · 2016: 18 · 2015: 14 · 2014: 11 · 2013: 9 · 2012: 4
- FWCI
- 17.99
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Keywords
- adolescents and young adults, chronic disease, psychological intervention, cancer, diabetes mellitus, juvenile idiopathic arthritis, sickle cell disease, asthma, skills-based intervention, communication skills training, coping strategies, peer support groups, educational intervention, intervention efficacy
- MeSH terms
- Adaptation, Psychological, Adolescent, Chronic Disease, Humans, Male, Parents, Patient Education as Topic, Peer Group, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
