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Cited by 1,505Autism Spectrum Disorder ResearchGenetics and Neurodevelopmental DisordersChild Nutrition and Feeding Issues

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Epidemiological Surveys of Autism and Other Pervasive Developmental Disorders: An Update

Fombonne, Eric·2003·Journal of Autism and Developmental Disorders
DOI 10.1023/a:1025054610557
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Abstract

This paper was commissioned by the committee on the Effectiveness of Early Education in Autism of the National Research Council (NRC). It provides a review of epidemiological studies of pervasive developmental disorders (PDD) which updates a previously published article (The epidemiology of autism: a review. Psychological Medicine 1999; 29: 769-786). The design, sample characteristics of 32 surveys published between 1966 and 2001 are described. Recent surveys suggest that the rate for all forms of PDDs are around 30/10,000 but more recent surveys suggest that the estimate might be as high as 60/10,000. The rate for Asperger disorder is not well established, and a conservative figure is 2.5/10,000. Childhood disintegrative disorder is extremely rare with a pooled estimate across studies of 0.2/10,000. A detailed discussion of the possible interpretations of trends over time in prevalence rates is provided. There is evidence that changes in case definition and improved awareness explain much of the upward trend of rates in recent decades. However, available epidemiological surveys do not provide an adequate test of the hypothesis of a changing incidence of PDDs.

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Research works printed but not linked: 14

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Metadata

Authors
Fombonne, E.
Affiliations
Montreal Children's Hospital (CA)
Corresponding author
Fombonne, Eric
ORCID
Fombonne, Eric
Venue
Journal of Autism and Developmental Disorders
Publisher
Springer Science and Business Media LLC
Published
2003-08
Volume
33
Issue
4
Pages
365-382
ISSN
  • 0162-3257 (ISSN-L)
  • 1573-3432
DOI
10.1023/a:1025054610557
OpenAlex
W1555175985
Cited by
1,505
References
86
Citations by year
2026: 8 · 2025: 25 · 2024: 27 · 2023: 27 · 2022: 31 · 2021: 41 · 2020: 46 · 2019: 46 · 2018: 53 · 2017: 67 · 2016: 58 · 2015: 74 · 2014: 103 · 2013: 109 · 2012: 90
FWCI
33.41
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Journal of Autism and Developmental Disorders (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Genetics and Neurodevelopmental Disorders
  • Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords
autism spectrum disorder, pervasive developmental disorders, prevalence, epidemiological survey, Asperger syndrome, childhood disintegrative disorder, incidence trends, case definition, diagnostic awareness
MeSH terms
Adolescent, Autistic Disorder, Child, Child Development Disorders, Pervasive, Child, Preschool, Cross-Sectional Studies, Cross-Cultural Comparison, Female, Health Services Needs and Demand, Health Surveys, Humans, Infant, Male, Early Intervention, Educational

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