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Caring for Others: Internet Video-Conferencing Group Intervention for Family Caregivers of Older Adults With Neurodegenerative Disease
Abstract
PURPOSE: The aim of this pilot feasibility study was to evaluate the effects of an innovative, Internet-based psychosocial intervention for family caregivers of older adults with neurodegenerative disease. DESIGN AND METHODS: After receiving signed informed consent from each participant, we randomly assigned 66 caregivers to an Internet-based intervention or to a no-intervention control group. The intervention group received computers and training in order to access a password-protected Web site with links to information, e-mail, and threaded discussion. Unique to the Web site was a video-conferencing link that supported caregivers' participation in a 10-session, manual-guided psychosocial support group, followed by 12 additional online sessions facilitated by a group member. Participants completed health-status and stress-response measures at baseline and 6-month follow-up. RESULTS: Content analysis of archived video sessions showed (a) reliable adherence to the manual-guided support-group intervention and (b) online group discussion themes similar to those in face-to-face caregiver support groups. Analyses of stress-response outcome data showed significant between-group differences, with the intervention group experiencing a decline in stress compared with an escalation in stress for the control group. IMPLICATIONS: Despite the limitations of this pilot study in terms of limited sample size and 54% dropout of control participants at 6-month follow-up, the results provide preliminary supportive evidence for a technology-based psychosocial intervention for family caregivers of individuals with neurodegenerative disease.
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“All studies included results on feasibility, acceptability, and effectiveness, and some reported issues connected with implementation [33,36-38,40-44,47].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
In the citing paper
“A common feature of low-quality studies was the use of mixed-methods with small sample sizes and limited detail on the method of integration of quantitative and qualitative data [31,32,37,40,46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
In the citing paper
“Overall, inexperience did not appear to be a major problem as the majority of studies reported that, over time, participants found the technology easy to use [32-35,40-42,46] and found videoconferencing enjoyable [42,44-46].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
In the citing paper
“Bonding and cohesiveness were reported in all high-quality studies and in one low-quality study [40,41].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
In the citing paper
“Validity was demonstrated through the analysis of discussion themes such as cohesiveness, empathic support, problem solving, or issues in disease-specific caregiver literature and was consistent with the face-to-face groups [36,38,40-42].”
From Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review (2018) · cites this paper as [40]
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Metadata
- Authors
- Marziali, E., & Donahue, P.
- Affiliations
- University of Toronto (CA)
- Corresponding author
- Marziali, Elsa
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2006-06
- Volume
- 46
- Issue
- 3
- Pages
- 398-403
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W2171211918
- Cited by
- 185
- References
- 28
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 5 · 2023: 10 · 2022: 9 · 2021: 13 · 2020: 10 · 2019: 7 · 2018: 22 · 2017: 12 · 2016: 8 · 2015: 11 · 2014: 13 · 2013: 12 · 2012: 8
- FWCI
- 16.88
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Geriatrics and Gerontology › Technology Use by Older Adults
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Keywords
- family caregivers, neurodegenerative diseases, older adults, videoconferencing, online support groups, psychosocial interventions, caregiver stress, technology-based interventions, caregiver support
- MeSH terms
- Aged, Feasibility Studies, Female, Humans, Male, Telecommunications, Caregivers, Neurodegenerative Diseases, Internet
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