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Data Resource Profile: The Rochester Epidemiology Project (REP) medical records-linkage system
Open accessAbstract
The Rochester Epidemiology Project (REP) medical records-linkage system was established in 1966 to capture health care information for the entire population of Olmsted County, MN, USA. The REP includes a dynamic cohort of 502 820 unique individuals who resided in Olmsted County at some point between 1966 and 2010, and received health care for any reason at a health care provider within the system. The data available electronically (electronic REP indexes) include demographic characteristics, medical diagnostic codes, surgical procedure codes and death information (including causes of death). In addition, for each resident, the system keeps a complete list of all paper records, electronic records and scanned documents that are available in full text for in-depth review and abstraction. The REP serves as the research infrastructure for studies of virtually all diseases that come to medical attention, and has supported over 2000 peer-reviewed publications since 1966. The system covers residents of all ages and both sexes, regardless of socio-economic status, ethnicity or insurance status. For further information regarding the use of the REP for a specific study, please visit our website at www.rochesterproject.org or contact us at info@rochesterproject.org. Our website also provides access to an introductory video in English and Spanish.
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“Age, sex, and ethnic characteristics of Olmsted County residents are similar to those of the state of Minnesota and the Upper Midwest, and these results may not be relevant when compared with results for more ethnically or socioeconomically diverse US populations.32,43”
From Long-Term Risk for Mood and Anxiety Disorders After Pediatric Traumatic Brain Injury: A Population-Based, Birth Cohort Analysis (2023) · cites this paper as [43]
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Citations
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History of the Rochester Epidemiology Project
Melton, L. J. (1996) · Mayo Clinic Proceedings · doi:10.4065/71.3.266 · Cited by 1,443
Self-citationRocca, W. A., Bower, J. H., Maraganore, D. M., Ahlskog, J. E., Grossardt, B. R., de Andrade, M., & Melton, L. J. (2007) · Neurology · doi:10.1212/01.wnl.0000276984.19542.e6 · Cited by 827
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Mielke, M. M., Frank, R. D., Dage, J. L., Jeromin, A., Ashton, N. J., Blennow, K., Karikari, T. K., Vanmechelen, E., Zetterberg, H., Algeciras-Schimnich, A., et al. (2021) · JAMA Neurology · doi:10.1001/jamaneurol.2021.2293 · Cited by 244
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Yadav, S., Dave, M., Edakkanambeth Varayil, J., Harmsen, W. S., Tremaine, W. J., Zinsmeister, A. R., Sweetser, S. R., Melton, L. J., Sandborn, W. J., & Loftus, E. V. (2015) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2014.07.061 · Cited by 164
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Myers, S. M., Voigt, R. G., Colligan, R. C., Weaver, A. L., Storlie, C. B., Stoeckel, R. E., Port, J. D., & Katusic, S. K. (2019) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-018-3834-0 · Cited by 87
Juhn, Y. J., Ryu, E., Wi, C.-I., King, K. S., Malik, M., Romero-Brufau, S., Weng, C., Sohn, S., Sharp, R. R., & Halamka, J. D. (2022) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocac052 · Cited by 83
Seol, H. Y., Shrestha, P., Muth, J. F., Wi, C.-I., Sohn, S., Ryu, E., Park, M., Ihrke, K., Moon, S., King, K., et al. (2021) · PLOS ONE · doi:10.1371/journal.pone.0255261 · Cited by 82
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Comparison of CSF phosphorylated tau 181 and 217 for cognitive decline
Mielke, M. M., Aakre, J. A., Algeciras‐Schimnich, A., Proctor, N. K., Machulda, M. M., Eichenlaub, U., Knopman, D. S., Vemuri, P., Graff‐Radford, J., Jack, C. R., et al. (2022) · Alzheimer's & Dementia · doi:10.1002/alz.12415 · Cited by 55
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“Further detailed information about the Olmsted County population is reported elsewhere.(23,24,34,35) Information about the different types of overt alpha-synucleinopathy and the clinical and pathological characteristics of this cohort is also reported elsewhere.”
BackgroundNODDI in gray matter is a sensitive marker of aging and early AD changes
Yu, X., Przybelski, S. A., Reid, R. I., Lesnick, T. G., Raghavan, S., Graff‐Radford, J., Lowe, V. J., Kantarci, K., Knopman, D. S., Petersen, R. C., et al. (2024) · Alzheimer's & Dementia: Diagnosis, Assessment & Disease Monitoring · doi:10.1002/dad2.12627 · Cited by 23
Carlson, L. A., Jeffery, M. M., Fu, S., He, H., McCoy, R. G., Wang, Y., Hooten, W. M., St Sauver, J., Liu, H., & Fan, J. (2020) · JMIR Medical Informatics · doi:10.2196/18659 · Cited by 11
Esterov, D., Witkowski, J., McCall, D. M., Weaver, A. L., & Brown, A. W. (2023) · Journal of Head Trauma Rehabilitation · doi:10.1097/htr.0000000000000825 · Cited by 3
Metadata
- Authors
- St Sauver, J. L., Grossardt, B. R., Yawn, B. P., Melton, L. J., Pankratz, J. J., Brue, S. M., & Rocca, W. A.
- Venue
- International Journal of Epidemiology
- Publisher
- Oxford University Press (OUP)
- Published
- 2012-11-18
- Volume
- 41
- Issue
- 6
- Pages
- 1614-1624
- ISSN
- 0300-5771 (ISSN-L)
- 1464-3685
- OpenAlex
- W2137389079
- Cited by
- 613
- References
- 2
- FWCI
- 42.87
- Type
- journal article
- Language
- en
- Open access
- bronze
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
