Chronic pain and its impact on quality of life in adolescents and their families
Open accessAbstract
OBJECTIVE: To study chronic pain not caused by somatic disease in adolescents and the effect of pain on the quality of life of the adolescents and their families. METHODS: One hundred twenty-eight youngsters (12-18 years) who had reported chronic pain kept a 3-week diary of their pain and completed a questionnaire on quality of life. Their mothers completed a questionnaire on the impact of their youngster's pain on the family. RESULTS: The most prevalent pains were limb pain, headache, abdominal, and back pain. The pain increased during the day, with the highest frequency around dinner time and the highest intensity around bedtime. Girls reported more intense and more frequent pain than boys. The higher the intensity and frequency of the pain, the lower the self-reported quality of life of the female or male adolescent, especially regarding psychological functioning (e.g. feeling less at ease), physical status (a greater incidence of other somatic complaints), and functional status (more impediments to leisure and daily activities). Chronic pain also had a negative impact on family life. The mothers reported restrictions, particularly in social life, and problems dealing with the stress of the adolescent's pain. CONCLUSIONS: Chronic pain, not caused by somatic disease, was present to a higher degree in girls; the pain increased during the day and had a negative impact on quality of life of the adolescents and the family. There is a need for future research aimed at identifying risk factors for chronic pain and pain-associated quality of life in children and adolescents.
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Parents of children with chronic pain experience emotional difficulties (anxiety, depression, adjustment challenges, parenting stress) and social difficulties (poorer family functioning, restrictions in social life), as well as physical symptoms, financial difficulties, and poor overall quality of life.
“Studies indicate that parents of children with chronic pain experience emotional difficulties, including anxiety, depression, adjustment challenges, and parenting stress, and social difficulties, including poorer family functioning and restrictions in social life, as well as physical symptoms, financial difficulties, and poor overall quality of life (Campo et al., 2007;Eccleston et al., 2004;Hunf”
From Psychosocial Functioning of Parents of Youth Receiving Intensive Interdisciplinary Pain Treatment (2024) · cites this paper as Hunfeld et al., 2001
Split into 2 atoms — 0 confirmed, 2 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measuredCurrent parent interventions do not address the unique needs and challenges of parents of youth with pain, including their own emotional distress, changes in day-to-day schedule and roles, limitations in personal lives, poorer overall quality of life, and potentially their own history of chronic pain.
“Unfortunately, this does not address the unique needs and challenges of parents of youth with pain, including their own emotional distress, changes in their day-to-day schedule and roles, limitations in personal lives, poorer overall quality of life (Hunfeld et al., 2001), and potentially their own history of chronic pain.”
From Psychosocial Functioning of Parents of Youth Receiving Intensive Interdisciplinary Pain Treatment (2024) · cites this paper as Hunfeld et al., 2001
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Psychosocial Functioning of Parents of Youth Receiving Intensive Interdisciplinary Pain Treatment
Christofferson, J., Scheurich, J. A., Black, W. R., Hoffart, C. M., & Wallace, D. P. (2024) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsad092 · Cited by 3 · see citing works
- Authors
- Hunfeld, J. A. M.
- Affiliations
- Erasmus MC (NL)
- Corresponding author
- Hunfeld, J. A. M.
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 2001-04-01
- Volume
- 26
- Issue
- 3
- Pages
- 145-153
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W2096565249
- Cited by
- 421
- References
- 30
- Citations by year
- 2026: 7 · 2025: 14 · 2024: 6 · 2023: 10 · 2022: 15 · 2021: 20 · 2020: 28 · 2019: 21 · 2018: 21 · 2017: 24 · 2016: 18 · 2015: 19 · 2014: 16 · 2013: 29 · 2012: 23
- FWCI
- 7.32
- Type
- journal article
- Language
- en
- Open access
- green
- pure.eur.nl
- Licence
- other-oa
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion, other-oa)
- RePub (Erasmus University Rotterdam) (submittedVersion, other-oa)
- RePub (Erasmus University Rotterdam) (submittedVersion)
- Data Archiving and Networked Services (DANS) (submittedVersion)
- Funders
- Erasmus Universiteit Rotterdam
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
- Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
- Keywords
- chronic pain, adolescents, quality of life, family impact, pain diary, sex differences, limb pain, headache, back pain, abdominal pain, functional status, psychological functioning, maternal stress
- MeSH terms
- Adolescent, Analysis of Variance, Child, Chronic Disease, Female, Humans, Male, Netherlands, Nuclear Family, Pain, Quality of Life, Linear Models
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