Mapping the impact of patient and public involvement on health and social care research: a systematic review
Brett, Jo, Staniszewska, Sophie, Mockford, Carole, Herron‐Marx, Sandra, Hughes, John, Tysall, Colin, Suleman, Rashida·2014·Health Expectations
Cited by (1,001)
Items 201–300 of 1,001
- Health for the People, by the PeopleOECD · 2021 · OECD health policy studies
- It’s not evidence, it’s insight: bringing patients’ perspectives into health technology appraisal at NICEKristina Staley, Caroline Lloyd Doherty · 2016 · Research Involvement and Engagement
- A review protocol on research partnerships: a Coordinated Multicenter Team approachFemke Hoekstra, Kelly Mrklas, Kathryn M. Sibley, Tram Nguyen, Mathew Vis‐Dunbar, Christine Joann Neilson, Leah K. Crockett, Heather Louise Gainforth, Ian D. Graham · 2018 · Systematic Reviews
- What makes it work? Exploring experiences of patient research partners and researchers involved in a long-term co-creative research collaborationEmma Hovén, Lars E. Eriksson, Åsa Månsson D’Souza, Johanna Sörensen, David Wilfred Hill, Carolin Viklund, Lena Wettergren, Claudia Lampic · 2020 · Research Involvement and Engagement
- Priority setting in research: user led mental health researchMarjorie Ghisoni, Christine Wilson, K L Morgan, Bethan Mair Edwards, Natalie A. Simon, Emma Langley, Helen Rees, Amanda Wells, Philip John Tyson, Phil Thomas et al. · 2017 · Research Involvement and Engagement
- Applied sports science and sports medicine in women’s rugby: systematic scoping review and Delphi study to establish future research prioritiesOmar W. Heyward, Stacey Emmonds, Gregory A. B. Roe, Sean Scantlebury, Keith Stokes, Ben L. Jones · 2022 · BMJ Open Sport & Exercise Medicine
- Involving pregnant women, mothers and members of the public to improve the quality of women's health researchNgawai Moss, Jahnavi Daru, Doris Lanz, Shakila Thangaratinam, Khalid Saeed Khan · 2016 · BJOG An International Journal of Obstetrics & Gynaecology
- Co-producing a shared understanding and definition of empowerment with people with dementiaTracey McConnell, Tristan Sturm, Mabel Stevenson, Noleen McCorry, Michael Donnelly, Brian John Taylor, Paul Best · 2019 · Research Involvement and Engagement
- Direct and mediated effects of treatment context on low back pain outcome: a prospective cohort studyFelicity L. Bishop, Miznah Al‐Abbadey, Lisa C. Roberts, Hugh MacPherson, Beth L. Stuart, Dawn Carnes, Carol A. Fawkes, Lucy Yardley, Katherine J Bradbury · 2021 · BMJ Open
- Service user involvement in research may lead to contrary rather than collaborative accounts: findings from a qualitative palliative care studyLiz Forbat, Gill Hubbard · 2015 · Journal of Advanced Nursing
- Improving social justice in observational studies: protocol for the development of a global and Indigenous STROBE-equity reporting guidelineSarah Funnell, Janet Jull, Lawrence C. E. Mbuagbaw, Vivian Andrea Welch, Omar Dewidar, Xiaoqin Wang, Miranda Lesperance, Elizabeth Tanjong Ghogomu, Anita Rizvi, Elie A. Akl et al. · 2023 · International Journal for Equity in Health
- Improving recruitment to clinical trials during pregnancy: A mixed methods investigationSofia Strömmer, Wendy T Lawrence, Taylor Rose, Christina Vogel, Daniella Watson, Joanne N. Bottell, Janice Parmenter, Nicholas C. Harvey, Cyrus C. Cooper, Hazel M. Inskip et al. · 2018 · Social Science & Medicine
- Co-design of a school-based physical activity intervention for adolescent females in a disadvantaged community: insights from the Girls Active Project (GAP)McQuinn, Sara, Belton, Sarahjane, Staines, Anthony, Sweeney, Mary Rose · 2022 · BMC Public Health
- Patient and researcher experiences of patient engagement in primary care health care research: A participatory qualitative studySophie Béland, Mireille Lambert, Alannah Delahunty‐Pike, Dana Howse, Charlotte M. Schwarz, Maud‐Christine Chouinard, Kris Aubrey‐Bassler, Fred Burge, Shelley Anne Doucet, Alya Danish et al. · 2022 · Health Expectations
- International Society for Quality of Life Research commentary on the draft European Medicines Agency reflection paper on the use of patient-reported outcome (PRO) measures in oncology studiesDerek G. Kyte, Bryce B. Reeve, Fabio Efficace, Kirstie L. Haywood, Rebecca Mercieca‐Bebber, Madeleine Trudy King, Josephine M. Norquist, William R. Lenderking, Claire Frances Snyder, Lena Ring et al. · 2015 · Quality of Life Research
- Research priority setting in organ transplantation: a systematic reviewAllison Tong, Bénédicte Sautenet, Jeremy Robert Chapman, Claudia Harper, Peter S Macdonald, Nicholas Adam Shackel, Sally Crowe, Camilla S. Hanson, Sophie Hill, Anneliese Synnot et al. · 2017 · Transplant International
- The Maudsley Biomedical Research Centre (BRC) data linkage service user and carer advisory group: creating and sustaining a successful patient and public involvement group to guide research in a complex areaAmelia Jewell, Megan Pritchard, Katherine Barrett, Patrick A. Green, Sarah Markham, Sharon McKenzie, Roger Oliver, Maria Wan, Johnny M. Downs, Robert J. Stewart · 2019 · Research Involvement and Engagement
- Exploring, measuring and enhancing the coproduction of health and well-being at the national, regional and local levels through comparative case studies in Sweden and England: the ‘Samskapa’ research programme protocolSofia Kjellström, Kristina Areskoug Josefsson, Boel Andersson Gäre, Ann‐Christine Andersson, Marlene Ockander, Jacob Käll, Jane McGrath, Sara Donetto, Glenn Robert · 2019 · BMJ Open
- Public and patient participation in health policy, care and researchCláudia de Freitas · 2017 · Porto Biomedical Journal
- Development of a self-help web-based intervention targeting young cancer patients with sexual problems and fertility distress in collaboration with patient research partnersWinterling, Jeanette, Wiklander, Maria, Obol, Claire Micaux, Lampic, Claudia, Eriksson, Lars E, Pelters, Britta, Wettergren, Lena · 2016 · JMIR Research Protocols
- From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism researchJacquiline den Houting, Julianne M. Higgins, Kathy Isaacs, Joanne Mahony, Elizabeth Pellicano · 2022 · Frontiers in Psychology
- Patient engagement in designing, conducting, and disseminating clinical pain research: IMMPACT recommended considerationsSimon Haroutounian, Katherine J. Holzer, Robert D. Kerns, Christin Veasley, Robert H. Dworkin, Dennis C. Turk, Kristin L. Carman, Christine T. Chambers, Penney Cowan, Robert Randolph Edwards et al. · 2023 · Pain
- How Best to Engage Users of Forensic Services in Research: Literature Review and RecommendationsBirgit Vӧllm, Sheena Foster, Peter Bates, Nick Huband · 2017 · International Journal of Forensic Mental Health
- Framework for Advancing the Reporting of Patient Engagement in Rheumatology Research ProjectsClayon B. Hamilton, Jenny Leese, Alison M. Hoens, LINDA C. LI · 2017 · Current Rheumatology Reports
- What makes someone choose cochlear implantation? An exploration of factors that inform patient decision makingBriony Dillon, Helen Pryce · 2019 · International Journal of Audiology
- Multidisciplinary Tinnitus Research: Challenges and Future Directions From the Perspective of Early Stage ResearchersJorge Piano Simoes, Elza Daoud, Maryam Shabbir, Sana Amanat, Kelly K. S. Assouly, Roshni Biswas, Chiara Casolani, Albi Dode, Falco Enzler, Laure Jacquemin et al. · 2021 · Frontiers in Aging Neuroscience
- The Impact of Patient and Family Engagement in Child Health Research: A Scoping ReviewShelley M. Vanderhout, Manav Bhalla, A.C. Berkel van, Dean A. Fergusson, Beth K. Potter, Aliza Karoly, Valentina Ly, Colin Macarthur · 2022 · The Journal of Pediatrics
- Applying Patient and Public Involvement in preclinical research: A co‐created scoping reviewPádraig Carroll, Adrian G. Dervan, Anthony Maher, Ciarán McCarthy, Ian Woods, Rachel Kavanagh, Cliff Beirne, Geoff Harte, Dónal O’Flynn, Cian O’Connor et al. · 2022 · Health Expectations
- A review of reviews exploring patient and public involvement in population health research and development of tools containing best practice guidanceSoo Vinnicombe, Mayara S. Bianchim, Jane Noyes · 2023 · BMC Public Health
- Understanding self-harm in older adults: A qualitative studyMaria Isabela Troya, Lisa Dikomitis, Opeyemi O. Babatunde, Bernadette Bartlam, Carolyn Anne Chew-Graham · 2019 · EClinicalMedicine
- Measuring impacts of patient and public involvement and engagement (PPIE): a narrative review synthesis of review evidenceWilliam Lammons, Anne L. Buffardi, Dalya Marks · 2025 · Research Involvement and Engagement
- Patient, caregiver and clinician views on engagement in comparative effectiveness researchLaura Pence Forsythe, Lori B. Frank, Thomas A Workman, Tandrea S. Hilliard, Daniel Harwell, Lauren Fayish · 2017 · Journal of Comparative Effectiveness Research
- Involving the public in mental health and learning disability research: Can we, should we, do we?C. Paul, Janet Holt · 2017 · Journal of Psychiatric and Mental Health Nursing
- Involving minority ethnic communities and diverse experts by experience in dementia research: The Caregiving HOPE StudySahdia Parveen, Sandra B. Barker, Ripaljeet Kaur, Fionnuala Kerry, Wendy A. Mitchell, Alex Happs, Gary Fry, Val L Morrison, Richard H. Fortinsky, Jan Rachel Oyebode · 2018 · Dementia
- Giving patients a voice: a participatory evaluation of patient engagement in Newfoundland and Labrador Health ResearchLidewij Eva Vat, Mike Warren, Susan Dorr Goold, Everard Davidge, Nicole Porter, Tjerk Jan Schuitmaker‐Warnaar, Jacqueline E. W. Broerse, Holly Etchegary · 2020 · Research Involvement and Engagement
- Impact of involving people with dementia and their care partners in research: a qualitative studyJahanara Miah, Suzanne Parsons, Karina Lovell, Bella Starling, Iracema Leroi, Piers Dawes · 2020 · BMJ Open
- What has the COVID-19 pandemic taught us about conducting patient and public involvement remotely? Insights from a series of digital meeting observationsElin Lampa, Björn Sonnentheil, A Tökés, Georgina Warner · 2021 · Research Involvement and Engagement
- Care home residents’ quality of life and its association with CQC ratings and workforce issues: the MiCareHQ mixed-methods studyAnn‐Marie Towers, Nick Smith, Stephen Allan, Florin P. Vãdean, Grace Collins, Stacey E. Rand, Jennifer Bostock, Helen Ramsbottom, Julien Forder, Stefania Lanza et al. · 2021 · Health Services and Delivery Research
- Methodological approaches to study context in intervention implementation studies: an evidence gap mapJuliane Mielke, Thekla Brunkert, Franziska Zúñiga, Michael Simon, Leah L. Zullig, Sabina De Geest · 2022 · BMC Medical Research Methodology
- Learning from patient involvement in a clinical study analyzing PET/CT in women with advanced breast cancerMarianne Vogsen, Susanne Geneser, Marie Lykke Rasmussen, Mogens Hørder, Malene Grubbe Hildebrandt · 2020 · Research Involvement and Engagement
- Patient and public involvement in researchPeter Beresford, Jasna Russo · 2020 · Cambridge University Press eBooks
- Towards epistemic justice doing: Examining the experiences and shifts in knowledge of lived experience researchers over the course of a mental health research training programmeBrett Bellingham, Holly Kemp, Katherine Boydell, Sophie Isobel, Katherine H. Gill, Jo River · 2021 · International Journal of Mental Health Nursing
- Towards reproducible and respectful autism research: Combining open and participatory autism research practicesHannah Hobson, Audrey Helen Linden, Laura Crane, Tamara Kalandadze · 2023 · Research in Autism
- Active involvement of people with lived experience of suicide in suicide research: a Delphi consensus studyKarolina E. Krysinska, Ingrid Ozols, Anna Ross, Karl Andriessen, Michelle Banfield, Martina Odette McGrath, Bronwen Edwards, Jacinta L. Hawgood, Kairi Kõlves, Victoria L. Ross et al. · 2023 · BMC Psychiatry
- Perspectives and Experiences with Engaging Youth and Families in ResearchTram Nguyen, Robert J. Palisano, Ian D. Graham · 2018 · Physical & Occupational Therapy In Pediatrics
- TORPEdO – A Phase III Trial of Intensity-modulated Proton Beam Therapy Versus Intensity-modulated Radiotherapy for Multi-toxicity Reduction in Oropharyngeal CancerJames Price, Emma Hall, Catharine West, David J Thomson · 2019 · Clinical Oncology
- Identification and Reporting of Patient and Public Partner Authorship on Knowledge Syntheses: Rapid ReviewUrsula M. Ellis, Vanessa Kitchin, Mathew Vis‐Dunbar · 2021 · Journal of Participatory Medicine
- Sustaining patient and public involvement in research: A case study of a research centreClare Jinks, Pam Carter, Carol Rhodes, Roger Beech, Krysia Dziedzic, Rhian W Hughes, Steven J. Blackburn, Bie Nio Ong · 2013 · Journal of Care Services Management
- Impairment or difference? The case of Theory of Mind abilities and pragmatic competence in the Autism SpectrumEleonora Marocchini · 2023 · Applied Psycholinguistics
- Co-designing a Lifestyle-Focused Text Message Intervention for Women After Breast Cancer Treatment: Mixed Methods StudyAnna C. Singleton, Rebecca Raeside, Stephanie Ruth Partridge, Molly Hayes, Katherine Maka, Karice K. Hyun, Aravinda Thiagalingam, Clara Kayei Chow, Kerry Anne Sherman, Elisabeth Edström Elder et al. · 2021 · Journal of Medical Internet Research
- Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapistsMadeline N. Cruice, Sukhpreet Aujla, J. Bannister, Nicola Botting, Mary Boyle, Nicole Charles, V. Dhaliwal, S. Grobler, Deborah Hersh, Jane Marshall et al. · 2021 · Aphasiology
- Diagnosis of a severe congenital anomaly: A qualitative analysis of parental decision making and the implications for healthcare encountersRobyn R Lotto, Lucy K Smith, Natalie Armstrong · 2018 · Health Expectations
- Involving young people in drug and alcohol researchLouca‐Mai Brady, Lorna J. Templeton, Paul Toner, Judith M. Watson, David Evans, Barry Percy‐Smith, Alex G. Copello · 2018 · Drugs and Alcohol Today
- Involving young people in cyberbullying research: The implementation and evaluation of a rights‐based approachRebecca Dennehy, Mary E. Cronin, Ella Arensman · 2018 · Health Expectations
- Is Co-production Just a Pipe Dream for Applied Health Research Commissioning? An Exploratory Literature ReviewDoreen Tembo, Elizabeth M. Morrow, Louise Worswick, Debby Lennard · 2019 · Frontiers in Sociology
- Developing a Canadian evaluation framework for patient and public engagement in research: study protocolAudrey L’Espérance, Nadia O’Brien, Alexandre Grégoire, Julia Abelson, Carolyn Canfield, Claudio Del Grande, Maman Joyce Dogba, Carol A. Fancott, Mary Anne Levasseur, Christine Loignon et al. · 2021 · Research Involvement and Engagement
- Evaluation of a patient and public involvement training programme for researchers at a large biomedical research centre in the UKRosamund Yu, Bec Hanley, Simon Denegri, Jaber Ahmed, Nick McNally · 2021 · BMJ Open
- Developing and evaluating guidelines for patient and public involvement (PPI) in researchKatherine C. Pollard, Anne‐Laure Donskoy, Pamela Moule, Christine Donald, Michelle Mara de Oliveira Lima, Cathy Rice · 2015 · International Journal of Health Care Quality Assurance
- “We know that our voices are valued, and that people are actually going to listen”: co-producing an evaluation of a young people’s research advisory groupLouca‐Mai Brady, Jacqueline Miller, Eleri Mcfarlane-Rose, Jasmine Noor, Rhianne Noor, Annegret Hella Dahlmann-Noor · 2023 · Research Involvement and Engagement
- Defining the benefits and challenges of stakeholder engagement in systematic reviewsMakalapua L. Motu’apuaka, Evelyn P Whitlock, Elisabeth Uphoff Kato, Stacey Uhl, Suzanne Belinson, Christine Chang, Ties Hoomans, David Meltzer, Hussein Z Noorani, Karen A. Robinson et al. · 2015 · Comparative Effectiveness Research
- Cocreated Smartphone App to Improve the Quality of Life of Adolescents and Young Adults with Cancer (Kræftværket): Protocol for a Quantitative and Qualitative EvaluationAbbey Elsbernd, Maiken Hjerming, Camilla Louise Visler, Lisa Lyngsie Hjalgrim, Carsten Utoft Niemann, Kirsten Arntz Boisen, Helle Pappot · 2018 · JMIR Research Protocols
- Patient and Caregiver Experiences and Attitudes about Their Involvement in Research in Chronic Kidney DiseaseTalia Gutman, Ayano Kelly, Nicole Jane Scholes-Robertson, Jonathan C. Craig, Shilpanjali Jesudason, Allison Tong · 2022 · Clinical Journal of the American Society of Nephrology
- Supporting wellbeing in motor neurone disease for patients, carers, social networks, and health professionals: A scoping review and synthesisMelanie Harris, Geoff Thomas, Mary Thomas, Paul Cafarella, Allegra Stocks, Julia Greig, R. Doug McEvoy · 2017 · Palliative & Supportive Care
- A home for patient-oriented researchKirsten L. Patrick, Maryam Kebbe, Diane Aubin · 2018 · Canadian Medical Association Journal
- Priorities to improve cancer caregiving: report of a caregiver stakeholder workshopThomas, Teresa Hagan, Campbell, Grace B., Lee, Young Ji, Roberge, Mary C., Kent, Erin E., Steel, Jennifer L., Posluszny, Donna M., Arida, Janet A., Belcher, Sarah M., Sherwood, Paula R. et al. · 2021 · Supportive Care in Cancer
- Preferences for engagement in health technology assessment decision-making: a nominal group technique with members of the publicSally Wortley, Allison Tong, Kirsten Howard · 2016 · BMJ Open
- Patient and public involvement in hospital policy-making: Identifying key elements for effective participationSimon Malfait, Ann Van Hecke, Griet De Bodt, N. Palsterman, Kristof Eeckloo · 2018 · Health Policy
- Public and patient involvement in quantitative health research: A statistical perspectiveAilish Hannigan · 2018 · Health Expectations
- User involvement in a Danish project on the empowerment of cancer patients – experiences and early recommendations for further practiceClara Helene Rübner Jørgensen, Nanna Bjerg Eskildsen, Anna Thit Johnsen · 2018 · Research Involvement and Engagement
- Whose perspective is it anyway? Dilemmas of patient involvement in the development of a randomized clinical trial – a qualitative studyBeverley Lim Høeg, Tine Tjørnhøj‐Thomsen, Julie Alling Skaarup, Henriette Langstrup, Vibeke Zoffmann, Lena Saltbæk, Randi V. Karlsen, Susanne Oksbjerg Dalton, Christoffer Johansen, Pernille Envold Bidstrup · 2019 · Acta Oncologica
- Research priorities of women at risk for preterm birth: findings and a call to actionLinda Sturla Franck, Monica R. McLemore, Shanell Williams, Kathryn Millar, Anastasia Y. Gordon, Schyneida Williams, Nakia Woods, Lisa Edwards, Tania Pacheco, Artie Padilla et al. · 2020 · BMC Pregnancy and Childbirth
- Priorities of patients, caregivers and health‐care professionals for health research – A systematic reviewMichael Levelink, Mona Voigt‐Barbarowicz, Anna Levke Brütt · 2020 · Health Expectations
- Evaluating the Impacts of Patient Engagement on Health Services Research Teams: Lessons from the Veteran Consulting NetworkVanessa L. Merker, Justeen K. Hyde, Abigail N. Herbst, Amanda K. Solch, David C. Mohr, Lauren Gaj, Kelly Dvorin, Eileen M. Dryden · 2022 · Journal of General Internal Medicine
- Broadening public participation in systematic reviews: a case example involving young people in two configurative reviewsKathryn A. Oliver, Rebecca W. Rees, Louca‐Mai Brady, Josephine Kavanagh, Sandy R. Oliver, James Thomas · 2015 · Research Synthesis Methods
- Partners in projects: Preparing for public involvement in health and social care researchJacqueline H. Parkes, Michelle Pyer, Paula Wray, Jane Taylor · 2014 · Health Policy
- Participatory research with carers: A systematic review and narrative synthesisBryher Bowness, Claire Henderson, Samia C. Akhter‐Khan, Mia Akiba, Vanessa C. Lawrence · 2023 · Health Expectations
- The use of patient and public involvement and engagement in the design and conduct of implementation research: a scoping reviewAmy Mathieson, Lisa Brunton, Paul M Wilson · 2025 · Implementation Science Communications
- Chasing cures: Rewards and risks for rare disease patient organisations involved in researchDeirdre Pinto, Dominique Martin, Richard Dean Chenhall · 2017 · BioSocieties
- ‘I felt like a human being’—An exploratory, multi‐method study of refugee involvement in the development of mental health intervention researchGeorgina Warner, Zaruhi Baghdasaryan, Fatumo A. Osman, Elin Lampa, Anna Sarkadi · 2019 · Health Expectations
- A protocol for the establishment and evaluation of an older adult stakeholder panel for health services researchMairéad Conneely, Pauline Boland, Aoife O’Neill, David Byrne, Sinéad Cronin, Dominic Quinn, Dominic Trépel, Siobhán Leahy, Jon Salsberg, Rose Galvin et al. · 2020 · HRB Open Research
- The nature and impact of patient and public involvement in cancer prevention, screening and early detection research: A systematic reviewRebecca J. Bergin, Camille E. Short, Nikki Davis, Julie Marker, María Teresa Dawson, Shakira Milton, Mairead McNamara, Paige Druce, Kristi M. Milley, Napin Karnchanachari et al. · 2022 · Preventive Medicine
- Patient and public involvement in emergency care researchEnid Hirst, Andy Irving, Steve W. Goodacre · 2016 · Emergency Medicine Journal
- Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to ResearchKatrina Hutchison, Wendy Rogers, Vikki Ann Entwistle · 2016 · Health Care Analysis
- Patient engagement in patient-centered outcomes research: challenges, facilitators and actions to strengthen the fieldLauren E. Ellis, NANCY E. KASS · 2017 · Journal of Comparative Effectiveness Research
- Patient involvement in developing a patient‐targeted feedback intervention after depression screening in primary care within the randomized controlled trial GET.FEEDBACK.GPSeeralan, Tharanya, Härter, Martin, Koschnitzke, Cornelia, Scholl, Michael, Kohlmann, Sebastian, Lehmann, Marco, Eisele, Marion, Braunschneider, Lea‐Elena, Marx, Gabriella, Scherer, Martin et al. · 2021 · Health Expectations
- The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health ResearchHeather Mah, Ruth Dobson, Alison Thomson · 2025 · Health Expectations
- A taxonomy of impacts on clinical and translational research from community stakeholder engagementSarah Stallings, Alaina P. Boyer, Yvonne A. Joosten, Laurie Lovett Novak, Al Richmond, Yolanda C. Vaughn, Consuelo Hopkins Wilkins · 2019 · Health Expectations
- Engaging indigenous patient partners in patient-oriented research: lessons from a one-year initiativeMarie‐Claude Tremblay, Maude Bradette-Laplante, Danielle Bérubé, Élaine Brière, Nicole Moisan, Daniel Niquay, Maman-Joyce Dogba, France Légaré, Alex M. McComber, Jonathan McGavock et al. · 2020 · Research Involvement and Engagement
- “An Active, Productive Life”: Narratives of, and Through, Participation in Public and Patient Involvement in Health ResearchJoanna Reynolds, Ruth Beresford · 2020 · Qualitative Health Research
- Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort StudyGloria Aguayo, Catherine Goetzinger, Renza Scibilia, Aurélie Fischer, Till Seuring, Viet-Thi Tran, Philippe Ravaud, Tamás Bereczky, Laëtitia Huiart, Guy Fagherazzi · 2021 · Journal of Medical Internet Research
- Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons LearnedJennifer Preston, Begonya Nafría, AMY L. OHMER, Ségolène Gaillard, Pamela Dicks, Leanne L. West, Mark A. Turner · 2022 · Therapeutic Innovation & Regulatory Science
- Capturing Public Opinion on Public Health Topics: A Comparison of Experiences from a Systematic Review, Focus Group Study, and Analysis of Online, User-Generated ContentEmma L. Giles, Jean M Adams · 2015 · Frontiers in Public Health
- Research with and about user participation: potentials and challengesMarianne Kylberg, Maria Haak, Susanne Iwarsson · 2017 · Aging Clinical and Experimental Research
- Embedding research codesign knowledge and practice: Learnings from researchers in a new research institute in AustraliaSara Javanparast, Sally Robinson, Alison A. Kitson, Joanne Arciuli · 2022 · Research Involvement and Engagement
- Combating stigma in autism research through centering autistic voices: a co-interview guide for qualitative researchElizabeth A. Kaplan‐Kahn, Reid Caplan · 2023 · Frontiers in Psychiatry
- Interventions to reduce gender-based violence among young people living with or affected by HIV/AIDS in low-income and middle-income countriesFranziska Meinck, Marija Pantelic, Thees F. Spreckelsen, Luisa Orza, Madison T. Little, Vasileios Nittas, Vanessa Picker, Amy Bustamam, Rocio Herrero Romero, Eric P. Diaz Mella et al. · 2019 · AIDS
- Lessons learned from participatory research to enhance client participation in long-term care research: a multiple case studyAukelien Scheffelaar, Nanne Bos, Marjan de Jong, Mattanja Triemstra, Sandra van Dulmen, Katrien Ger Luijkx · 2020 · Research Involvement and Engagement
- No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesisErin Walker, Elizabeth J. Shaw, Michael Nunns, Darren A. Moore, Jo Thompson Coon · 2020 · Health Expectations
- Utilising Patient and Public Involvement in Stated Preference Research in Health: Learning from the Existing Literature and a Case StudyGemma Shields, Lindsey Brown, Adrian Wells A, Lora Capobianco, Caroline Vass · 2020 · Patient
- Health care: Bring on the evidenceSophie Petit-Zeman, Louise Locock · 2013 · Nature