The DOI matches its Crossref record; 70 of the 71 references it cites were found in a registry or an index.
Mapping the impact of patient and public involvement on health and social care research: a systematic review
Open accessAbstract
Background: There is an increasing international interest in patient and public involvement ( PPI ) in research, yet relatively little robust evidence exists about its impact on health and social care research. Objective: To identify the impact of patient and public involvement on health and social care research. Design: A systematic search of electronic databases and health libraries was undertaken from 1995 to 2009. Data were extracted and quality assessed utilizing the guidelines of the NHS C entre for R eviews and D issemination 2009 and the C ritical A ppraisal S kills P rogramme ( CASP ). Grey literature was assessed using the D ixon‐ W oods et al . (2005) checklist. Inclusion criteria: All study types that reported the impact PPI had on the health and/or social care research study. Main results: A total of 66 studies reporting the impact of PPI on health and social care research were included. The positive impacts identified enhanced the quality and appropriateness of research. Impacts were reported for all stages of research, including the development of user‐focused research objectives, development of user‐relevant research questions, development of user‐friendly information, questionnaires and interview schedules, more appropriate recruitment strategies for studies, consumer‐focused interpretation of data and enhanced implementation and dissemination of study results. Some challenging impacts were also identified. Conclusion: This study provides the first international evidence of PPI impact that has emerged at all key stages of the research process. However, much of the evidence base concerning impact remains weak and needs significant enhancement in the next decade.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The cited source doesn’t support the claim as written.
In the citing paper
“Data were extracted from 83 papers (the remaining seven were not written in a format suitable for data extraction but were deemed sufficiently important to include within the conceptualisation of PPI).”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
Checked by a reasoning model — may be wrong.
Experimental — accuracy not yet measuredThe cited source says what the claim attributes to it.
In the citing paper
“While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why.”
From GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research (2017) · cites this paper as [2]
The cited source says what the claim attributes to it.
In the citing paper
“Drawing on the findings of the PIRICOM study, 29 a validated online survey tool (Bristol Online Surveys, University of Bristol, Bristol, UK) was designed to collect data to assess how PPI is operationalised and its perceived impact on each study.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“While the original GRIPP checklist represented an important starting point in creating high quality PPI reporting, its development drew on systematic review evidence, without broader input from the international PPI research community [2–4].”
From GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research (2017) · cites this paper as [2]
In the citing paper
“Inadequate reporting can create problems for systematic reviews that attempt to synthesise PPI evidence [2–4].”
From GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research (2017) · cites this paper as [2]
In the citing paper
“While GRIPP2-LF and GRIPP2-SF aim to guide consistent reporting, it is not possible to be prescriptive about the exact content of each item, as the current evidence base is not advanced enough to make this possible [2–4, 21].”
From GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research (2017) · cites this paper as [2]
In the citing paper
“The relatively small amount of empirical evidence on the impact of PPI in research 29 has been criticised as poorly reported 21 and methodologically weak, often failing to fully explore the contextual factors surrounding PPI as a complex intervention.30”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Ninety papers published between 1995 and 2009 were included.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Of the 83 papers, 2 were randomised controlled trials (RCTs), 52 qualitative studies, 15 case study methodology, 4 cross-sectional studies and 10 structured reviews.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“They did not find any evidence around systematic measurement of PPI outcomes, and furthermore found a lack of clarity on the differences between PPI impact and outcomes.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Providing a more robust evidence base for PPI policy requires moving beyond observational evaluations of PPI.29,30”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Hence, while there appears to be a reasonably robust level of evidence around the 'architecture of PPI', reporting of outcomes continues to be poor.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“What evidence there is tends to be descriptive, largely qualitative, often retrospective case studies, 19,29,106 with only a few exceptional prospective longitudinal case studies, 15 comparative multiproject evaluations 107 or studies employing quantitative designs.108”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Brett et al. 29 argue that most studies have attempted to conceptualise PPI mainly around context and process and have not sufficiently theoretically grasped the complexities of PPI.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“As in Staley's review, 19 the papers provided more evidence around the processes of PPI rather than impact and outcomes, and found scant evidence of PPI impact on funding decisions.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
In the citing paper
“Although the PIRICOM study found little evidence of PPI being theoretically conceptualised, there has been some work to develop a consensus on the principles and indicators of successful PPI, 133 and this was used to underpin the survey design.”
From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [29]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Systematic reviews: CRD's guidance for undertaking reviews in health care
Tacconelli, E. (2010) · The Lancet Infectious Diseases · doi:10.1016/s1473-3099(10)70065-7 · Cited by 3,270
Community-based participatory research: assessing the evidence.
Viswanathan, M., Ammerman, A., Eng, E. M., Garlehner, G., Lohr, K. N., Griffith, D. M., Rhodes, S. D., Samuel‐Hodge, C. D., Maty, S. C., Lux, L. J., et al. (2004) · PubMed Central · Cited by 959
Nilsen, E. S., Myrhaug, H. T., Johansen, M., Oliver, S. R., & Oxman, A. D. (2006) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd004563.pub2 · Cited by 565
Lay perspectives: advantages for health research
Entwistle, V. A., Renfrew, M. J., Yearley, S., Forrester, J. M., & Lamont, T. (1998) · BMJ · doi:10.1136/bmj.316.7129.463 · Cited by 376
Staniszewska, S., Brett, J., Mockford, C., & Barber, R. (2011) · International Journal of Technology Assessment in Health Care · doi:10.1017/s0266462311000481 · Cited by 369
Self-citationCashman, S. B., Adeky, S., Allen, A. J., Corburn, J., Israel, B. A., Montaño, J., Rafelito, A., Rhodes, S. D., Swanston, S., Wallerstein, N. B., et al. (2008) · American Journal of Public Health · doi:10.2105/ajph.2007.113571 · Cited by 347
Benefits of and barriers to involving users in medical device technology development and evaluation
Shah, S. G. S., & Robinson, I. (2007) · International Journal of Technology Assessment in Health Care · doi:10.1017/s0266462307051677 · Cited by 299
From passive subjects to equal partners
Trivedi, P., & Wykes, T. (2002) · The British Journal of Psychiatry · doi:10.1192/bjp.181.6.468 · Cited by 281
Patients and professionals as research partners: Challenges, practicalities, and benefits
HEWLETT, S. E., de Wit, M. P. T., Richards, P., Quest, E. M., Hughes, R., Heiberg, T., & Kirwan, J. (2006) · Arthritis Care & Research · doi:10.1002/art.22091 · Cited by 272
Abelson, J., Giacomini, M. K., Lehoux, P., & Gauvin, F. (2006) · Health Policy · doi:10.1016/j.healthpol.2006.07.009 · Cited by 251
Research works printed but not linked: 12
- Dixon P, 1999, A Database of Examples of Consumer Involvement in Research
- Blaxter M, 1995, Consumer Issues Within the NHS: An R & D Contribution to Consumer Involvement in the NHS
- Brett J, 2010, Systematic Review of the Conceptualization, Measurement, Impact and Outcomes of Patient and Public Involvement in Health and Social Care Research
- Dixon‐Woods M, 2005, Vulnerable Groups and Access, to Health Care: A Critical Interpretative Review
- Popay J, 2005, Developing guidance on conduct of narrative synthesis in systematic reviews, Journal of Epidemiology and Community Health, 59, A7
- UKCRC & TwoCan Associates, 2009, An Evaluation of the Process and Impact of Patient and Public Involvement in the Advisory Groups of the UK Clinical Research Collaboration
- Faulkner A, 2006, Beyond our Expectations: A Report of the Experiences of Involving Service Users in Forensic Mental Health Research
- Sainsbury Centre for Mental Health, 2008, A Review of Service User Involvement in Prison Mental Health Research
- Kelson M, 1999, National Sentinel Audits Involving Older People: A Guide to Involving Older People in Local Audit Activity
- 10.1080/13561820400011792 · DOI
- Rose D, 2004, Telling different stories: user involvement in mental health research, Research and Policy Planning, 22, 23
- Faulkner A, 2004, Capturing the Experiences of those Involved in the TRUE Project. A Story of Colliding Worlds
Cited by
Sorted by citations
Items 301–400 of 1,001
Patient and public involvement in health literacy interventions: a mapping review
Wilsher, S. H., Brainard, J. S., Loke, Y. K., & Salter, C. (2017) · Research Involvement and Engagement · doi:10.1186/s40900-017-0081-z · Cited by 31
Tunnicliffe, D. J., Singh‐Grewal, D., Craig, J. C., Howell, M., Tugwell, P., Mackie, F., Lin, M.-W., O'Neill, S. G., Ralph, A. F., & Tong, A. (2017) · The Journal of Rheumatology · doi:10.3899/jrheum.160720 · Cited by 30
Reflections and experiences of a co-researcher involved in a renal research study
Marks, S. A., Mathie, E., Smiddy, J., Jones, J., & Silva‐Gane, M. D. (2018) · Research Involvement and Engagement · doi:10.1186/s40900-018-0120-4 · Cited by 30
A co-produced method to involve service users in research: the SUCCESS model
Evans, B. A., Porter, A. M., Snooks, H. A., & Burholt, V. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0671-6 · Cited by 30
Bell, C., Appel, C., Frølich, A., Prior, A., & Vedsted, P. (2022) · International Journal of Integrated Care · doi:10.5334/ijic.6013 · Cited by 30
Harmsen, S., Pittens, C. A. C. M., Vroonland, E., van Rensen, A. J. M. L., & Broerse, J. E. W. (2022) · Science and Public Policy · doi:10.1093/scipol/scac024 · Cited by 30
Patient Science: Citizen Science Involving Chronically Ill People as Co-Researchers
Heyen, N. B., Gardecki, J., Eidt‐Koch, D., Schlangen, M., Pauly, S., Eickmeier, O., Wagner, T. O. F., & Bratan, T. (2022) · Journal of Participatory Research Methods · doi:10.35844/001c.35634 · Cited by 30
Patient engagement in health implementation research: A logic model
Bisson, M., Aubrey‐Bassler, K., Chouinard, M., Doucet, S. A., Ramsden, V. R., Dumont‐Samson, O., Howse, D., Lambert, M., Schwarz, C. M., Luke, A., et al. (2023) · Health Expectations · doi:10.1111/hex.13782 · Cited by 31
the D1 Now Type 1 Diabetes Young Adult Study Group, O’Hara, M. C., Cunningham, Á., Keighron, C. N., Allen, G., Caulfield, A., Duffy, C., Long, M., Mallon, M., Mullins, M., et al. (2017) · Research Involvement and Engagement · doi:10.1186/s40900-017-0068-9 · Cited by 30
Civil society stakeholder views on forensic DNA phenotyping: Balancing risks and benefits
Samuel, G. N., & Prainsack, B. (2019) · Forensic Science International Genetics · doi:10.1016/j.fsigen.2019.102157 · Cited by 30
Embracing dissensus in lived experience research: the power of conflicting experiential knowledge
Speyer, H., & Ustrup, M. (2025) · The Lancet Psychiatry · doi:10.1016/s2215-0366(25)00003-3 · Cited by 29
The ultimate power play in research - partnering with patients, partnering with power
Richards, D. P., Bowden, J., Gee, P. O., Haagaard, A., Kothari, A. R., McKinnon, A., Primeau, C. A., Tricco, A. C., Wang, E., Woolley, K. L., et al. (2025) · Research Involvement and Engagement · doi:10.1186/s40900-025-00745-9 · Cited by 29
Rapaport, P., Webster, L., Horsley, R., Kyle, S. D., Kinnunen, K. M., Hallam, B., Pickett, J., Cooper, C., Espie, C. A., & Livingston, G. (2018) · Dementia · doi:10.1177/1471301218789559 · Cited by 29
Jacklin, S., Maskrey, N., & Chapman, S. (2018) · JMIR Medical Education · doi:10.2196/10088 · Cited by 29
Meaningful Patient Engagement in Research: Lessons From Retinoblastoma
White, E., Baddeliyanage, R., Shaikh, F., & Dimaras, H. (2019) · PEDIATRICS · doi:10.1542/peds.2018-2166 · Cited by 29
LaFond, A., & Cherney, M. (2021) · Global Health Science and Practice · doi:10.9745/ghsp-d-21-00334 · Cited by 29
Alsaeed, D., Furniss, D. J., BLANDFORD, A. E., Smith, F. J., & Orlu, M. (2018) · Journal of Clinical Pharmacy and Therapeutics · doi:10.1111/jcpt.12664 · Cited by 29
Kelemen, M., Surman, E., & Dikomitis, L. (2018) · Health Expectations · doi:10.1111/hex.12677 · Cited by 29
Gliklich, R. E., Dreyer, N. A., Leavy, M. B., & Christian, J. B. (2018) · doi:10.23970/ahrqregistriesebook · Cited by 29
Snow, R., Crocker, J. C., & Crowe, S. (2015) · Research Involvement and Engagement · doi:10.1186/s40900-015-0007-6 · Cited by 28
Boyko, J. A., Riley, B., Willis, C. D., Stockton, L. D., Zummach, D., Kerner, J. F., Robinson, K. L., & Chia, M. C. (2018) · Health Research Policy and Systems · doi:10.1186/s12961-018-0374-1 · Cited by 30
Hoekstra, F., Pereira, F. T., Sibley, K. M., Graham, I. D., Kennefick, M., Mrklas, K., Nguyen, T., Vis‐Dunbar, M., Panel, S. I. G. P. C., & Gainforth, H. L. (2022) · Journal of Spinal Cord Medicine · doi:10.1080/10790268.2022.2033578 · Cited by 28
Pratte, M.-M., Audette-Chapdelaine, S., Auger, A.-M., Wilhelmy, C., & Brodeur, M. (2023) · Research Involvement and Engagement · doi:10.1186/s40900-023-00431-8 · Cited by 28
Carter, P., Beech, R., Coxon, D., Thomas, M. J., & Jinks, C. (2013) · Contemporary Social Science · doi:10.1080/21582041.2013.767468 · Cited by 28
Nickel, S., Trojan, A., & Kofahl, C. (2016) · Health Expectations · doi:10.1111/hex.12455 · Cited by 28
iCAN: Providing a Voice for Children and Families in Pediatric Research
Thompson, H., Frederico, N., Smith, S. R., Chowdhury, M., Dicks, P., Preston, J., & Thompson, C. A. H. (2015) · Therapeutic Innovation & Regulatory Science · doi:10.1177/2168479015601344 · Cited by 28
Bolger, L. E., McFerran, K. S., & Stige, B. (2018) · Music Therapy Perspectives · doi:10.1093/mtp/miy002 · Cited by 28
Synnot, A., Cherry, C. L., Summers, M. P., Stuckey, R., Milne, C. A., Lowe, D. B., & Hill, S. (2018) · Australian Journal of Primary Health · doi:10.1071/py17107 · Cited by 28
Matthews, R., Kaur, M., French, C. E., Baker, A., & Reed, J. E. (2019) · Research Involvement and Engagement · doi:10.1186/s40900-019-0164-0 · Cited by 28
Gilfoyle, M., Melro, C. M., Koskinas, E., & Salsberg, J. (2023) · BMJ Open · doi:10.1136/bmjopen-2023-072918 · Cited by 29
Halvorsrud, K., Rhodes, J., Webster, G., Francis, J., Haarmans, M., Dawkins, N., Nazroo, J. Y., & Bhui, K. S. (2019) · BMJ Open Quality · doi:10.1136/bmjoq-2019-000665 · Cited by 27
Hype, evidence gaps and digital divides: Telehealth blind spots in rural Australia
Warr, D. J., Luscombe, G. M., & Couch, D. (2021) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/13634593211060763 · Cited by 27
Micsinszki, S. K., Tanel, N. L., Kowal, J., King, G. A., Menna‐Dack, D., Chu, A., & Phoenix, M. P. (2022) · Research Involvement and Engagement · doi:10.1186/s40900-022-00398-y · Cited by 27
What researchers think of involving consumers in health research
Lawn, S. (2016) · Australian Journal of Primary Health · doi:10.1071/py15089 · Cited by 27
Scott, J., Heavey, E., Waring, J. J., Jones, D. E., & Dawson, P. (2016) · BMJ Open · doi:10.1136/bmjopen-2016-011222 · Cited by 27
Priority setting in paediatric preventive care research
Lavigne, M., Birken, C., Maguire, J., Straus, S., & Laupacis, A. (2017) · Archives of Disease in Childhood · doi:10.1136/archdischild-2016-312284 · Cited by 22
Public involvement in health research systems: a governance framework
Miller, F., Patton, S. J., Dobrow, M., & Berta, W. (2018) · Health Research Policy and Systems · doi:10.1186/s12961-018-0352-7 · Cited by 28
Haywood, C., Martinez, G., Pyatak, E. A., & Carandang, K. M. (2019) · American Journal of Occupational Therapy · doi:10.5014/ajot.2019.731001 · Cited by 27
Bridging epistemologies—Identifying uniqueness of lay and expert knowledge for agenda setting
Gudowsky, N., & Rosa, A. B. (2019) · Futures · doi:10.1016/j.futures.2019.04.003 · Cited by 28
Bennett, A., Shaver, N., Vyas, N., Almoli, F., Pap, R., Douglas, A. I., Kibret, T. C., Skidmore, B., Yaffe, M., Wilkinson, A. N., et al. (2024) · Systematic Reviews · doi:10.1186/s13643-024-02700-3 · Cited by 26
Allanson, E., Tunçalp, Ö., Vogel, J. P., Khan, D. N., Oladapo, O. T., Long, Q., & Gülmezoglu, A. M. (2017) · BMJ Global Health · doi:10.1136/bmjgh-2016-000266 · Cited by 29
Public involvement could usefully inform ethical review, but rarely does: what are the implications?
Staley, K., & Elliott, J. (2017) · Research Involvement and Engagement · doi:10.1186/s40900-017-0080-0 · Cited by 26
Cadogan, C. A., Dharamshi, R., Fitzgerald, S. T., Corish, C. A., Castro, P. D., & Ryan, C. A. (2019) · Clinical Nutrition · doi:10.1016/j.clnu.2019.03.003 · Cited by 26
Ogourtsova, T., O’Donnell, M., Filliter, J., Wittmeier, K. D. M., BRIGHT Coaching Group, & Majnemer, A. (2021) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.14810 · Cited by 26
Miah, J., Sheikh, S., Francis, R. C., Nagarajan, G., Antony, S., Tahir, M., Sattar, R., Naz, A., Tofique, S., Billah, M., et al. (2021) · Frontiers in Neurology · doi:10.3389/fneur.2021.637000 · Cited by 26
Cartwright, C., Rahman, A., Islam, S., Lockyer, B., Roper, E., Worcester, M., Zarate, M., McEachan, R., on behalf of the Happy and Healthy Children Steering Group, Amini, N., et al. (2023) · International Journal for Equity in Health · doi:10.1186/s12939-023-01881-y · Cited by 26
Collins, K., Boote, J. D., Ardron, D., Gath, J., Green, T., & Ahmedzai, S. H. (2014) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2014-000750 · Cited by 26
Partnering with parents to advance child health research
Curran, J., Bishop, A., Chorney, J. M. L., MacEachern, L., & Mackay, R. (2018) · Healthcare Management Forum · doi:10.1177/0840470417744568 · Cited by 26
Flygare, O., Andersson, E., Ringberg, H., Hellstadius, A.-C., Edbacken, J., Enander, J., Dahl, M., Aspvall, K., Windh, I., Russell, A., et al. (2020) · Autism · doi:10.1177/1362361319856974 · Cited by 25
Vickrey, B. G., Brott, T. G., & Koroshetz, W. J. (2013) · Stroke · doi:10.1161/strokeaha.113.001196 · Cited by 25
Richardson, C., Akhtar, I., Smith, C., Edmondson, A., Morris, A., Hargreaves, J., Rhodes, C., & Taylor, J. (2019) · Research Involvement and Engagement · doi:10.1186/s40900-019-0151-5 · Cited by 25
Brady, L., & Preston, J. (2020) · Research for All · doi:10.14324/rfa.04.2.05 · Cited by 25
Sherman, K., Pehlivan, M. J., Singleton, A., Hawkey, A., Redfern, J., Armour, M., Dear, B., Duckworth, T., Ciccia, D., Cooper, M., et al. (2022) · JMIR Formative Research · doi:10.2196/40837 · Cited by 17
Mrklas, K., Merali, S., Khan, M., Shergill, S., Boyd, J. M., Nowell, L. S., Pfadenhauer, L. M., Paúl, K., Goertzen, A., Swain, L. A., et al. (2022) · Health Research Policy and Systems · doi:10.1186/s12961-022-00938-8 · Cited by 25
Mannell, J., Washington, L., Khaula, S., Khoza, Z., Mkhwanazi, S., Burgess, R. A., Brown, L. J., Jewkes, R. K., Shai, N., Willan, S., et al. (2023) · BMJ Global Health · doi:10.1136/bmjgh-2022-011463 · Cited by 25
Menzies, J. C., Morris, K., Duncan, H. P., & Marriott, J. F. (2016) · Research Involvement and Engagement · doi:10.1186/s40900-016-0046-7 · Cited by 25
Giebel, C. M., Roe, B. H., Hodgson, A. M., Britt, D. P., Clarkson, P., & Members of the HoST-D (Home Support in Dementia) Programme Management Group and Patient Public and Carer Involvement Groups (2017) · Dementia · doi:10.1177/1471301216687698 · Cited by 25
Evans, J., & Papoulias, C. (2020) · Research Involvement and Engagement · doi:10.1186/s40900-020-00185-7 · Cited by 25
Moving beyond project-specific patient and public involvement in research
Turner, G., Aiyegbusi, O. L., Price, G. W., Skrybant, M., & Calvert, M. (2020) · Journal of the Royal Society of Medicine · doi:10.1177/0141076819890551 · Cited by 25
Mockford, C. (2015) · Journal of Healthcare Leadership · doi:10.2147/jhl.s70020 · Cited by 24
Self-citationJørgensen, C. H. R. (2019) · Social Sciences · doi:10.3390/socsci8050149 · Cited by 24
Roberts, J. L., Onuegbu, C. M., Harris, B., Clark, C. C. A., Griffiths, F. E., Seers, K., Aktas, P., Staniszewska, S. H., & Boardman, F. (2025) · International Journal of Qualitative Methods · doi:10.1177/16094069251316745 · Cited by 24
Self-citationPatient involvement in research priorities (PIRE): a study protocol
Piil, K., & Jarden, M. (2016) · BMJ Open · doi:10.1136/bmjopen-2015-010615 · Cited by 24
Stocker, R., Brittain, K., Spilsbury, K., & Hanratty, B. (2021) · Health Expectations · doi:10.1111/hex.13269 · Cited by 24
Soneson, E., Burn, A., Anderson, J., Humphrey, A., Jones, P. B., Fazel, M. S., Ford, T. J., & Howarth, E. (2022) · Journal of School Psychology · doi:10.1016/j.jsp.2022.01.008 · Cited by 24
Moltrecht, B., Patalay, P., Bear, H. A., Deighton, J., & Edbrooke-Childs, J. H. (2021) · JMIR Formative Research · doi:10.2196/28300 · Cited by 24
Research integrity in clinical trials: innocent errors and spin versus scientific misconduct
Núñez‐Núñez, M., Andrews, J. C., Fawzy, M. M., Bueno‐Cavanillas, A., & Khan, K. S. (2022) · Current Opinion in Obstetrics & Gynecology · doi:10.1097/gco.0000000000000807 · Cited by 24
Involvement of stakeholders in determining health priorities of adolescents in rural South Africa
Twine, R., Kahn, K., Scholtz, A., & Norris, S. A. (2016) · Global Health Action · doi:10.3402/gha.v9.29162 · Cited by 24
Alderson, H., Brown, R., Smart, D., Lingam, R., & Dovey‐Pearce, G. (2019) · Health Expectations · doi:10.1111/hex.12904 · Cited by 27
Artom, M., Czuber‐Dochan, W., Sturt, J. A., & Norton, C. S. (2017) · Trials · doi:10.1186/s13063-017-1926-3 · Cited by 24
Evans, D., Bird, E. L., Gibson, A., Grier, S., Chin, T. L., Stoddart, M., MacGowan, A. P., & Panel, T. N. B. M. P. (2017) · Health Expectations · doi:10.1111/hex.12587 · Cited by 23
MacQueen, K. M., & Auerbach, J. D. (2018) · Journal of the International AIDS Society · doi:10.1002/jia2.25179 · Cited by 23
Kendall, C., Fitzgerald, M., Kang, R. S., Wong, S. T., Katz, A., Fortin, M., Dionne, É., Kuluski, K., O’Brien, M. A., Ploeg, J., et al. (2018) · Research Involvement and Engagement · doi:10.1186/s40900-018-0132-0 · Cited by 23
Natafgi, N., Tafari, A. T., Chauhan, C., Bekelman, J. E., & Mullins, C. D. (2019) · Journal of Comparative Effectiveness Research · doi:10.2217/cer-2018-0129 · Cited by 23
The impact of Patient and Public Involvement in the SlowMo study: Reflections on peer innovation
Greenwood, K., Robertson, S., Vogel, E., Vella, C., Ward, T., McGourty, A., Sacadura, C., Hardy, A., Rus‐Calafell, M., Collett, N., et al. (2021) · Health Expectations · doi:10.1111/hex.13362 · Cited by 23
Co-design of Guidance for Patient and Public Involvement in Psychedelic Research
Close, J. B., Bornemann, J., Piggin, M., Jayacodi, S., Luan, L., Carhart-Harris, R. L., & Spriggs, M. J. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.727496 · Cited by 25
Patients as research partners in preference studies: learnings from IMI-PREFER
Smith, M. Y., Janssens, R., Jimenez‐Moreno, C., Cleemput, I., Muller, M., Oliveri, S., Simons, G., Strammiello, V., Huys, I., & Falahee, M. (2023) · Research Involvement and Engagement · doi:10.1186/s40900-023-00430-9 · Cited by 23
Nielssen, I., Santana, M., Pokharel, S., Strain, K., Kiryanova, V., Zelinsky, S., Khawaja, Z., Khanna, P., Rychtera, A., & Ambasta, A. (2023) · Health Expectations · doi:10.1111/hex.13909 · Cited by 23
River, J., Bellingham, B., Isobel, S., Gill, K. H., Boydell, K., Conlon, L., Goodhew, M., Cutler, N. A., & Kemp, H. (2023) · International Journal of Qualitative Methods · doi:10.1177/16094069231213268 · Cited by 23
Learmonth, Y. C., Adamson, B., Balto, J. M., Chiu, C., Molina-Guzmán, I., Finlayson, M. L., Riskin, B. J., & Motl, R. W. (2017) · Health Expectations · doi:10.1111/hex.12541 · Cited by 23
Patient participation in ERS guidelines and research projects: the EMBARC experience
Chalmers, J. D., Timothy, A., Polverino, E., Almagro, M., Ruddy, T., Powell, P., & Boyd, J. (2017) · Breathe · doi:10.1183/20734735.009517 · Cited by 23
Qualitative research on community experiences in large HIV research trials: what have we learned?
Camlin, C. S., & Seeley, J. (2018) · Journal of the International AIDS Society · doi:10.1002/jia2.25173 · Cited by 23
Skilton, A., Boswell, E. J., Prince, K., Francome-Wood, P., & Moosajee, M. (2018) · Research Involvement and Engagement · doi:10.1186/s40900-018-0124-0 · Cited by 23
Allen, K., Needham, C. E., Hall, K., & Tanner, D. (2018) · Social Policy and Administration · doi:10.1111/spol.12468 · Cited by 23
Gutman, T., Tong, A., Howell, M., Dansie, K. B., Hawley, C. M., Craig, J. C., Jesudason, S., Chapman, J. R., Johnson, D. W., Murphy, L., et al. (2019) · Nephrology Dialysis Transplantation · doi:10.1093/ndt/gfz076 · Cited by 22
Dahm, M. R., Brown, A. S., Martin, D., Williams, M., Osborne, B., Basseal, J. M., Potter, M., Hardie, R., Li, J., Thomas, J., et al. (2019) · BMJ Open · doi:10.1136/bmjopen-2019-031555 · Cited by 23
Learmonth, Y. C., Chan, Z., Correia, H., Hathorn, D., Kermode, A. G., Smith, C., & Walker, D. (2020) · Disability and Rehabilitation · doi:10.1080/09638288.2020.1743778 · Cited by 24
Youth engagement in child maltreatment research: Gaps, barriers, and approaches
Racine, N. M., Greer, K., Dimitropoulos, G., Collin‐Vézina, D., Henderson, J. L., & Madigan, S. L. (2023) · Child Abuse & Neglect · doi:10.1016/j.chiabu.2023.106127 · Cited by 22
Our greatest untapped resource: our patients
Bolz-Johnson, M., Kenny, T., Cam, Y. L., & Hernando, I. (2021) · Journal of Community Genetics · doi:10.1007/s12687-021-00524-5 · Cited by 22
Kirk, S. A., Fraser, C., Evans, N., Lane, R., Crooks, J., Naughton, G., & Pryjmachuk, S. (2023) · BMC Health Services Research · doi:10.1186/s12913-023-09300-2 · Cited by 22
Working with children and young people in research: Supportive practices and pathways to impact
Thomas, C., Cockcroft, E., Jenkins, G., & Liabo, K. (2023) · Journal of Child Health Care · doi:10.1177/13674935231171451 · Cited by 22
Burnley, A., Clair, M. S., Dack, C., Thompson, H., & Wren, Y. E. (2023) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-023-05946-3 · Cited by 25
Michalak, E. E., Cheung, I. W., Willis, E., Hole, R., Pomeroy, B., Morton, E. E., Kanani, S. S., & Barnes, S. J. (2023) · Research Involvement and Engagement · doi:10.1186/s40900-023-00455-0 · Cited by 22
PPI in psychiatry and the problem of knowledge
Rose, D. S., & Beresford, P. (2024) · BMC Psychiatry · doi:10.1186/s12888-023-05398-0 · Cited by 24
Lane, B., Fowler, K., Eaton, G., Chalifour, K., & Garland, S. N. (2020) · Supportive Care in Cancer · doi:10.1007/s00520-020-05785-3 · Cited by 23
Walsh, M., Harman, I., Manning, P., Ponza, B., Wong, S., Shaw, B., Sellwood, D., Anderson, K. L. M., Reddihough, D. S., & Wallen, M. A. (2024) · International Journal of Qualitative Methods · doi:10.1177/16094069241234190 · Cited by 24
Hiltensperger, R., Ryan, G. K., Ben-Dor, I. A., Charles, A., Epple, E., Kalha, J., Korde, P., Kotera, Y., Mpango, R. S., Moran, G. S., et al. (2024) · BMC Health Services Research · doi:10.1186/s12913-024-10990-5 · Cited by 21
Reflexive and iterative thematic analysis (RITA): A design-framework for qualitative research
Udayanga, S. (2025) · Qualitative Research · doi:10.1177/14687941251377282 · Cited by 31
Laterza, V., Evans, D., Davies, R., Donald, C., & Rice, C. (2016) · Research Involvement and Engagement · doi:10.1186/s40900-016-0033-z · Cited by 21
Pollock, J., Raza, K., Pratt, A. G., Hanson, H., Siebert, S., Filer, A. D., Isaacs, J. D., Buckley, C. D., McInnes, I. B., & Falahee, M. (2016) · Musculoskeletal Care · doi:10.1002/msc.1171 · Cited by 21
Metadata
- Authors
- Brett, J., Staniszewska, S., Mockford, C., Herron‐Marx, S., Hughes, J., Tysall, C., & Suleman, R.
- Affiliations
- University of Warwick (GB)
- Royal College of Nursing Research Institute, School of Health and Social Studies, University of Warwick Coventry UK
- United Kingdom Clinical Research Collaboration (GB)
- Corresponding author
- Brett, Jo
- Venue
- Health Expectations
- Publisher
- Wiley
- Published
- 2012-07-19
- Volume
- 17
- Issue
- 5
- Pages
- 637-650
- ISSN
- 1369-6513 (ISSN-L)
- 1369-7625
- PMC
- PMC5060910
- OpenAlex
- W2049504028
- Cited by
- 1,598
- References
- 71
- Citations by year
- 2026: 140 · 2025: 167 · 2024: 201 · 2023: 171 · 2022: 151 · 2021: 154 · 2020: 158 · 2019: 133 · 2018: 119 · 2017: 78 · 2016: 55 · 2015: 39 · 2014: 15 · 2013: 16
- FWCI
- 3.41
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Health Expectations (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Open Research Online - ORO (The Open University) (submittedVersion)
- Funders
- London School of Hygiene and Tropical Medicine
- United Kingdom Clinical Research Collaboration
- University of Warwick
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Keywords
- patient and public involvement, health research, social care research, research quality, research questions, research recruitment, research dissemination, implementation of research findings, research stages
- MeSH terms
- Health Services Research, Humans, Patient Participation, Social Welfare, Community-Based Participatory Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
