Ways of Knowing When Research Subjects Care
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This paper investigates a hidden dimension of research with real world stakes: research subjects who care -- sometimes deeply -- about the topic of the research in which they participate. They manifest this care, we show, by managing how they are represented in the research process, by exercising politics in shaping knowledge production, and sometimes in experiencing trauma in the process. We draw first-hand reflections on participation in diversity research on Wikipedia, transforming participants from objects of study to active negotiators of research process. We depict how care, vulnerability, harm, and emotions shape ethnographic and qualitative data. We argue that, especially in reflexive cultures, research subjects are active agents with agendas, accountabilities, and political projects of their own. We propose ethics of care and collaboration to open up new possibilities for knowledge production and socio-technical intervention in HCI.
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The study treated interviewees not as merely subjects of research but as "active agents and knowledge producers", creating space for them to articulate priorities in their own terms.
“During data collection, we sought to treat interviewees not as merely subjects of our research but as “active agents and knowledge producers” [62], creating space for them to articulate priorities in their own terms.”
From 'The plan is just survival': Data Work in Kenya and the Regime of Entrapment (2026) · cites this paper as [62]
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Griggio, C. F., Machuca, M. D. B., Wong-Villacrés, M., Gaytan-Lugo, L. S., Badillo-Urquiola, K. A., Garcia, A. A., Perusquía-Hernández, M., Felice, M. C., Cibrian, F. L., Thomas, M., et al. (2024) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/3678884.3681904 · Cited by 4 · see citing works
Fuchsberger, V., Smit, D., França, N. C., Gerdenitsch, C., Jaques, O., Kowolik, J., Regal, G., & Roodbergen, E. (2023) · Frontiers in Human Dynamics · doi:10.3389/fhumd.2022.1070376 · Cited by 4 · see citing works
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“During data collection, we sought to treat interviewees not as merely subjects of our research but as “active agents and knowledge producers” [62], creating space for them to articulate priorities in their own terms.”
Landström, C., Peters, H., Hughes, A. G., Jackson, C., McKenzie, A., Spencer, L., Turnpenney, R., & Bryden, J. (2025) · Environmental Science & Policy · doi:10.1016/j.envsci.2025.104226 · Cited by 2 · see citing works
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Factors of Trust for Successfully Adopting Social Robots on the Campus
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Green, T., & Ploderer, B. (2020) · Journal of the Australasian Rehabilitation Nurses Association · doi:10.33235/jarna.23.1.4-6 · Cited by 1 · see citing works
Making It Work—Experiences of Women Who Engage in Technological Making at Home
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Careful STS Interventions in Transdisciplinary Environmental Research
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Airing Data through Materiality: a Situated Design Approach to Data Physicalization
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Amplifying Global Voices: Building a Localized Data Platform for Globalized AI
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Kollig, F., Puttipongkawin, P., & Fiesler, C. L. (2026) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/3785651.3831531
- Authors
- Howard, D., & Irani, L.
- Affiliations
- University of California San Diego (US)
- Venue
- Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems
- Publisher
- ACM
- Published
- 2019-05-02
- Pages
- 1-16
- OpenAlex
- W2940962650
- Cited by
- 70
- References
- 162
- Citations by year
- 2026: 3 · 2025: 9 · 2024: 14 · 2023: 6 · 2022: 14 · 2021: 15 · 2020: 6 · 2019: 3
- FWCI
- 27.08
- Type
- conference paper
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- CHI Conference on Human Factors in Computing Systems (publishedVersion, public-domain)
- eScholarship (California Digital Library) (submittedVersion)
- Funders
- University of California, San Diego
- Topics
- Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
- Physical Sciences › Computer Science › Human-Computer Interaction › Innovative Human-Technology Interaction
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Keywords
- care ethics, collaboration, knowledge production, Wikipedia, diversity research, participant agency, reflexivity, vulnerability, harm, emotions, trauma, socio-technical interventions, research ethics
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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