Cited by 1,313Mental Health and Patient InvolvementHealth Policy Implementation ScienceCommunity Health and Development

The DOI matches its Crossref record; 54 of the 54 references it cites were found in a registry or an index.

Research co-design in health: a rapid overview of reviews

Open access

Slattery, Peter, Saeri, Alexander K., Bragge, Peter·2020·Health Research Policy and Systems

DOI 10.1186/s12961-020-0528-9PMC PMC7014755

Published version of a preprint

Open this paper in CoChat — free account Open PDF

Abstract

Background: Billions of dollars are lost annually in health research that fails to create meaningful benefits for patients. Engaging in research co-design – the meaningful involvement of end-users in research – may help address this research waste. This rapid overview of reviews addressed three related questions, namely (1) what approaches to research co-design exist in health settings? (2) What activities do these research co-design approaches involve? (3) What do we know about the effectiveness of existing research co-design approaches? The review focused on the study planning phase of research, defined as the point up to which the research question and study design are finalised. Methods: Reviews of research co-design were systematically identified using a rapid overview of reviews approach (PROSPERO: CRD42019123034). The search strategy encompassed three academic databases, three grey literature databases, and a hand-search of the journal Research Involvement and Engagement . Two reviewers independently conducted the screening and data extraction and resolved disagreements through discussion. Disputes were resolved through discussion with a senior author (PB). One reviewer performed quality assessment. The results were narratively synthesised. Results: A total of 26 records (reporting on 23 reviews) met the inclusion criteria. Reviews varied widely in their application of ‘research co-design’ and their application contexts, scope and theoretical foci. The research co-design approaches identified involved interactions with end-users outside of study planning, such as recruitment and dissemination. Activities involved in research co-design included focus groups, interviews and surveys. The effectiveness of research co-design has rarely been evaluated empirically or experimentally; however, qualitative exploration has described the positive and negative outcomes associated with co-design. The research provided many recommendations for conducting research co-design, including training participating end-users in research skills, having regular communication between researchers and end-users, setting clear end-user expectations, and assigning set roles to all parties involved in co-design. Conclusions: Research co-design appears to be widely used but seldom described or evaluated in detail. Though it has rarely been tested empirically or experimentally, existing research suggests that it can benefit researchers, practitioners, research processes and research outcomes. Realising the potential of research co-design may require the development of clearer and more consistent terminology, better reporting of the activities involved and better evaluation.

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Integrity signals

Registry

Crossref · 10.1186/s12961-020-0528-9

Cites

54 of 54 references verified0 citation errors · 0 not checkable

Statistics

Fig. 1 PRISMA flow diagram for rapid overview of reviews in health research co-designCC BY · PubMed Central

Claims the paper makes

The claims and statistics of this paper haven’t been checked yet.

Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Self-check

Percentages, sums and reported differences re-computed from the paper’s own numbers.

The self-check needs the paper’s full text.

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & The PRISMA Group (2009) · PLoS Medicine · doi:10.1371/journal.pmed.1000097 · Cited by 64,042
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859
The behaviour change wheel: A new method for characterising and designing behaviour change interventions
Michie, S., van Stralen, M. M., & West, R. (2011) · Implementation Science · doi:10.1186/1748-5908-6-42 · Cited by 13,697 · cited 1×
“For example, the Fogg Behaviour Model [53] or the COM-B Behaviour Change model [54] could be used to diagnose actors’ capabilities, motivation, and triggers or opportunities.”
Method
Development of AMSTAR: A measurement tool to assess the methodological quality of systematic reviews
Shea, B. J., Grimshaw, J. M., Wells, G. A., Boers, M., Andersson, N., Hamel, C., Porter, A. C., Tugwell, P., Moher, D., & Bouter, L. M. (2007) · BMC Medical Research Methodology · doi:10.1186/1471-2288-7-10 · Cited by 4,374
SANRA—a scale for the quality assessment of narrative review articles
Baethge, C., Goldbeck-Wood, S., & Mertens, S. (2019) · Research Integrity and Peer Review · doi:10.1186/s41073-019-0064-8 · Cited by 3,469
A Systematic Review of Co-Creation and Co-Production: Embarking on the social innovation journey
Voorberg, W., Bekkers, V., & Tummers, L. G. (2014) · Public Management Review · doi:10.1080/14719037.2014.930505 · Cited by 2,700
A behavior model for persuasive design
Fogg, B. (2009) · Proceedings of the 4th International Conference on Persuasive Technology · doi:10.1145/1541948.1541999 · Cited by 2,328
Avoidable waste in the production and reporting of research evidence
Chalmers, I., & Glasziou, P. (2009) · The Lancet · doi:10.1016/s0140-6736(09)60329-9 · Cited by 2,208
GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research
Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D. G., Moher, D., Barber, R., Denegri, S., et al. (2017) · BMJ · doi:10.1136/bmj.j3453 · Cited by 1,983

Show all 54 references

Research works printed but not linked: 6

Oliver S, Gray J. A bibliography of research reports about patients’, clinicians’ and researchers’ priorities for new research. London: James Lind Alliance; 2006.
Tricco AC, Langlois EV, Straus SE. Rapid reviews to strengthen health policy and systems: a practical guide. Geneva: Alliance for Health Policy and Systems Research World Health Organization; 2017.
Veritas health innovation covidence systematic review software. Melbourne.https://www.covidence.org/home. Accessed 31 Jan 2020.
INVOLVE. Guidance on co-producing a research project. Southampton: INVOLVE; 2018.
INVOLVE. Co-production in action: number one. Southampton: INVOLVE; 2019.
Algate F, Gallagher R, Nguyen S, Ruda S, Sanders M (2014) EAST: four simple ways to apply behavioural insights. https://www.bi.team/publications/east-four-simple-ways-to-apply-behavioural-insights/. Accessed 31 Jan 2020.

Sorted by citations

Items 201–300 of 1,000

The development of a family-led novel intervention for delirium prevention and management in the adult intensive care unit: A co-design qualitative study
Johnson, G. U., Towell‐Barnard, A., McLean, C., & Ewens, B. A. (2024) · Australian Critical Care · doi:10.1016/j.aucc.2024.07.076 · Cited by 15
Towards theoretically understanding how long-term memory semantics can support working memory performance
Hart, R., Logie, R. H., & Brown, L. A. (2024) · Quarterly Journal of Experimental Psychology · doi:10.1177/17470218241284414 · Cited by 15
The lived experience of co-production: Reflective accounts from the InCLUDE project
Izzidien, S., Stemp, R., Akram, S., Ahmed, M. S., Rangel-Cristales, A., Irvine, K., Sharma, S., & Midgley, N. (2024) · Research Involvement and Engagement · doi:10.1186/s40900-024-00639-2 · Cited by 15
A systematic review of features and content quality of Arabic mental mHealth apps
Alnaghaimshi, N. I. S., Awadalla, M. S., Clark, S. R., & Baumert, M. (2024) · Frontiers in Digital Health · doi:10.3389/fdgth.2024.1472251 · Cited by 15
Urban Furniture Design Strategies to Build Healthy and Inclusive Neighborhoods
Rinaldi, A., Viviani, S., & Busciantella-Ricci, D. (2025) · Sustainability · doi:10.3390/su17030859 · Cited by 15
Stakeholder Generated Ideas for Alternative School Food Provision Models in Australia Using the Nominal Group Technique
Johnson, B. J., Zarnowiecki, D. M., Hutchinson, C. L., & Golley, R. K. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17217935 · Cited by 15
Methodological Insights From a Virtual, Team-Based Rapid Qualitative Method Applied to a Study of Providers’ Perspectives of the COVID-19 Pandemic Impact on Hospital-To-Home Transitions
Singh, H., Tang, T., Thombs, R., Armas, A., Nie, J. X., Nelson, M. L. A., & Gray, C. S. (2022) · International Journal of Qualitative Methods · doi:10.1177/16094069221107144 · Cited by 15
The person-based approach to intervention development: A scoping review of methods and applications
Holt, L., Denford, S., Bowers, H. M., Kuberka, P., Müller, I., Amlôt, R., & Yardley, L. (2025) · Digital Health · doi:10.1177/20552076241305934 · Cited by 14
Acceptable standards for clinic‐based digital cognitive assessments: Recommendations from the Global CEO Initiative on Alzheimer's Disease
Thompson, L. I., Gaster, B., Hammers, D. B., Fittipaldi, S., Barrett, A. M., Partrick, K. A., Scholler, E., Tiede, B., Butler, C., & Workgroup, T. C. D. C. A. (2025) · Alzheimer s & Dementia · doi:10.1002/alz.70966 · Cited by 14
The development of an electronic geriatric assessment tool: Comprehensive health assessment for my plan (CHAMP)
Cook, S., Munteanu, C., Papadopoulos, E., Abrams, H. B., Stinson, J., Pitters, E., Stephens, D., Lumchick, M., Emmenegger, U., Koneru, R., et al. (2022) · Journal of Geriatric Oncology · doi:10.1016/j.jgo.2022.09.013 · Cited by 14
Developing a Digital Health Intervention for Conversation Skills After Brain Injury (convers-ABI-lity) Using a Collaborative Approach: Mixed Methods Study
Avramović, P., Rietdijk, R., Kenny, B., Power, E., & Togher, L. (2023) · Journal of Medical Internet Research · doi:10.2196/45240 · Cited by 14
Key Considerations When Developing and Implementing Digital Technology for Early Detection of Dementia-Causing Diseases Among Health Care Professionals: Qualitative Study
Wilson, S., Tolley, C. L., Ardle, R. M., Beswick, E., & Slight, S. P. (2023) · Journal of Medical Internet Research · doi:10.2196/46711 · Cited by 15
Engaging Industry in Health Professions’ Education: Benefits and Challenges
Kenny, B., O'Connor, D., Sugden, E., Tang, C. Y., Tannous, C., & Thyer, L. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20126131 · Cited by 14
Community garden developed by refugees from Syria—A sanctuary and a space for learning and empowerment
Storm, H., Nielsen, N. O., Andersen, J., Præstegaard, J., Kjærsgaard, H., Petersen, B., Sønderskov, A. J., Rafn, J., & Lindahl, M. (2023) · Wellbeing Space and Society · doi:10.1016/j.wss.2023.100162 · Cited by 14
Applying the theoretical domains framework and behavior change wheel to inform interventions for food and food-related waste audits in hospital foodservices
Cook, N., Collins, J., Porter, J. A., & Goodwin, D. M. (2023) · Frontiers in Nutrition · doi:10.3389/fnut.2023.1204980 · Cited by 14
What do we not know (yet) about recovery colleges? A study protocol on their (cost-)effectiveness, mechanisms of action, fidelity and positioning
van Wezel, M. M. C., Muusse, C., van de Mheen, D., Wijnen, B. F. M., den Hollander, W., & Kroon, H. (2023) · BMC Psychiatry · doi:10.1186/s12888-023-05293-8 · Cited by 14
Development of the EVIBEC Learning Outcomes Framework to support the delivery of evidence-based practice curricula in health care professional programmes: a codesign approach
Redmond, C., Farrell, R. M., Cunningham, C., Dineen, A., Foley, S. J., O’Donnell, D., O'Reilly, S. L., Stokes, D., & O’Neill, E. J. (2024) · BMC Medical Education · doi:10.1186/s12909-023-04972-0 · Cited by 14
Co‐production of health and social science research with vulnerable children and young people: A rapid review
Erwin, J., Burns, L., Devalia, U., Witton, R., Shawe, J., Wheat, H. C., Axford, N., Doughty, J., Kaddour, S., Nelder, A., et al. (2024) · Health Expectations · doi:10.1111/hex.13991 · Cited by 14
A design thinking‐led approach to develop a responsive feeding intervention for Australian families vulnerable to food insecurity: Eat, Learn, Grow
Baxter, K. A., Kerr, J. T., Nambiar, S., Gallegos, D., Penny, R. A., Laws, R., & Byrne, R. (2024) · Health Expectations · doi:10.1111/hex.14051 · Cited by 16
Digital, co-created implementation of communication partner training programs for stroke, brain injury, and dementia: Past, present, and future
Power, E., & Morrow, R. (2024) · International Journal of Speech-Language Pathology · doi:10.1080/17549507.2024.2362856 · Cited by 14
Health system foundations for Sláintecare implementation in 2020 and beyond – co-producing a Sláintecare Living Implementation Framework with Evaluation: Learning from the Irish health system’s response to COVID-19. A mixed-methods study protocol
Burke, S., Thomas, S., Stach, M., Kavanagh, P. M., Magahy, L., Johnston, B. M., & Barry, S. (2020) · HRB Open Research · doi:10.12688/hrbopenres.13150.1 · Cited by 14
Co‐designing Being Your Best program—A holistic approach to frailty in older community dwelling Australians
Green, M. M., Meyer, C., Hutchinson, A. M., Sutherland, F., & Lowthian, J. A. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13636 · Cited by 14
Understanding the hidden epidemic of metabolic syndrome in people accessing community rehabilitation: a cross-sectional study of physical activity, dietary intake, and health literacy
Peiris, C. L., Harding, K. E., Porter, J. A., Shields, N., Gilfillan, C. P., & Taylor, N. F. (2022) · Disability and Rehabilitation · doi:10.1080/09638288.2022.2065540 · Cited by 14
Interventions for youth suicide and suicide-related behaviour: An update to a systematic review
Bailey, E., Robinson, J., & Witt, K. (2023) · Australasian Psychiatry · doi:10.1177/10398562231187972 · Cited by 14
Smart health technologies used to support physical activity and nutritional intake in fall prevention among older adults: A scoping review
Wegener, E. K., & Kayser, L. (2023) · Experimental Gerontology · doi:10.1016/j.exger.2023.112282 · Cited by 14
“A place to be safe, feel at home and get better”: including the experiential knowledge of potential users in the design of the first wet service in Montreal, Canada
Motta‐Ochoa, R., Incio-Serra, N., Poliquin, H., MacDonald, S.-A., Huỳnh, C., Côté, P.-B., Fallu, J., & Flores-Aranda, J. (2022) · Harm Reduction Journal · doi:10.1186/s12954-022-00616-6 · Cited by 13
Osteoarthritis consumers as co-researchers: identifying consumer insights to improve osteoarthritis management by co-designing translational research solutions
BRAITHWAITE, F., Arnold, J. B., Davis, A., Gwilt, I., MacIntyre, E., Morris, S., James, K. R., Lee, K., Marshall, H., Ninnes, P., et al. (2023) · Osteoarthritis and Cartilage · doi:10.1016/j.joca.2023.03.004 · Cited by 14
The co‐design of an online support programme with and for informal carers of people with heart failure: A methodological paper
Allemann, H., Andréasson, F., Hanson, E. J., Magnusson, L., Jaarsma, T., Thylén, I., & Strömberg, A. (2023) · Journal of Clinical Nursing · doi:10.1111/jocn.16856 · Cited by 13
Tackling diet inequalities in the UK food system: is food insecurity driving the obesity epidemic? (The FIO Food project)
Johnstone, A. M., & Lonnie, M. (2023) · Proceedings of The Nutrition Society · doi:10.1017/s0029665123004871 · Cited by 16
Multi-country collaborative citizen science projects to co-design cardiovascular disease prevention strategies and advocacy: findings from Ethiopia, Malawi, Rwanda, and South Africa
Okop, K., Kedir, K., Kasenda, S., Niyibizi, J. B., Chipeta, E. K., Getachew, H., Sell, K., Lambert, E. V., Puoane, T. R., Rulisa, S., et al. (2023) · BMC Public Health · doi:10.1186/s12889-023-17393-x · Cited by 13
MAJOR CORPORATIONS AND ENVIRONMENTAL ADVOCACY: EFFORTS IN REDUCING ENVIRONMENTAL IMPACT IN OIL EXPLORATION
Banso, A. A., Ofonagoro, K. A., Olurin, J. O., Ayodeji, S. A., Ehiaguina, V. E., Ndiwe, T. C., & Daraojimba, C. (2023) · Engineering Heritage Journal · doi:10.26480/gwk.01.2023.49.59 · Cited by 13
Vulnerability Revisited
Schroeder, D., Chatfield, K., Chennells, R. S., Partington, H., Kimani, J., Thomson, G., Odhiambo, J. A., Snyders, L., & Louw, C. (2024) · SpringerBriefs in research and innovation governance · doi:10.1007/978-3-031-57896-0 · Cited by 13
Co-designing Entrustable Professional Activities in General Practitioner’s training: a participatory research study
Andreou, V., Peters, S., Eggermont, J., & Schoenmakers, B. (2024) · BMC Medical Education · doi:10.1186/s12909-024-05530-y · Cited by 13
Development and Evaluation of a Framework for Authentic Online Co‐Design: Partnership‐Focussed Principles‐Driven Online Co‐Design
Coulston, F., Spittle, A. J., McDonald, C. E., Toovey, R. A. M., Cameron, K. L., Attard, K., Binstock, L., Fletcher, I., Delaney, A., Murphy, T., et al. (2024) · Health Expectations · doi:10.1111/hex.14138 · Cited by 13
History, Hype, and Responsible Psychedelic Medicine: A Qualitative Study of Psychedelic Researchers
Barber, M., Gardner, J., & Carter, A. (2024) · Journal of Bioethical Inquiry · doi:10.1007/s11673-024-10386-4 · Cited by 13
A qualitative study of perceived barriers and facilitators to point-of-care ultrasound use among Veterans Affairs Emergency Department providers
Theophanous, R. G., Tupetz, A., Ragsdale, L. C., Krishnan, P., Vigue, R., Herman, C., White, J., Staton, C. A., & Eucker, S. A. (2024) · PLoS ONE · doi:10.1371/journal.pone.0310404 · Cited by 13
Not Well Enough to Attend Appointments: Telehealth Versus Health Marginalisation
de Plaza, M. A. P., Beleigoli, A. M. R., Mudd, A., Tieu, M., McMillan, P., Lawless, M., Feo, R., Archibald, M. M., & Kitson, A. A. (2021) · Studies in health technology and informatics · doi:10.3233/shti210013 · Cited by 13
LifeLab: Co-Design of an Interactive Health Literacy Intervention for Socioeconomically Disadvantaged Adolescents’
Smith, C. W., Goss, H. R., Issartel, J., Meegan, S., & Belton, S. (2022) · Children · doi:10.3390/children9081230 · Cited by 13
Enhancing Exposure Treatment for Youths With Chronic Pain: Co-design and Qualitative Approach
Schemer, L., Hess, C. W., Orden, A. R. V., Birnie, K. A., Harrison, L. E., Glombiewski, J. A., & Simons, L. E. (2023) · Journal of Participatory Medicine · doi:10.2196/41292 · Cited by 14
Codesigning a social prescribing pathway to address the social determinant of health concerns of children with cerebral palsy and their families in Australia: a protocol for a mixed-methods formative research study
Ostojic, K., Paget, S., Martin, T., Dee-Price, B.-J. M., McIntyre, S. J., Smithers‐Sheedy, H., Mimmo, L., Burnett, H., Scott, T. R. D., Berg, A., et al. (2023) · BMJ Open · doi:10.1136/bmjopen-2022-066346 · Cited by 13
Scoping Review of Co-Design in Mental Health Research: Essential Elements and Recommendations
Roennfeldt, H., Stewart, V., Wyder, M., Fawcett, T., Robertson, C. V., Soole, R., Siskind, D. J., Wheeler, A., & Chapman, J. (2025) · OTJR Occupational Therapy Journal of Research · doi:10.1177/15394492251367259 · Cited by 14
Platforms, risk perceptions, and reporting: the impact of illicit drug advertisements on social media among UK secondary students
Fuller, A., Vasek, M., Mariconti, E., & Johnson, S. D. (2025) · Harm Reduction Journal · doi:10.1186/s12954-025-01299-5 · Cited by 12
Multidimensional prognostic risk stratification of COPD exacerbations: the baseline, acuity, and trigger (BAt) model
Aung, H., Vermeersch, K., McAuley, H., Ramakrishnan, S., Abdo, M., Beersaerts, A., Cass, S. P., Smallcombe, N., Gyselinck, I., Pott, H., et al. (2025) · The Lancet Respiratory Medicine · doi:10.1016/s2213-2600(25)00362-5 · Cited by 12
Establishing fundamental co-design principles and strategies for public health research practice
Vargas, C., Longworth, G. R., Zorbas, C., Needham, C., Ugalde, A., & Allender, S. E. (2026) · CoDesign · doi:10.1080/15710882.2026.2626736 · Cited by 12
Using codesign focus groups to develop an online COmmunity suPporting familiEs after Sudden Cardiac Death (COPE-SCD) in the young
Yeates, L., Gardner, K., Do, J., van den Heuvel, L. M., Fleming, G., Semsarian, C., McEwen, A., Adlard, L., & Ingles, J. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-053785 · Cited by 12
“This group… I felt like I was medicating myself from this cyberscam illness that was living with me.” A qualitative evaluation of co-designing cybersafety training resources with and for people with acquired brain injury
Carminati, J.-Y. J., Ponsford, J. L., & Gould, K. R. (2022) · Disability and Rehabilitation · doi:10.1080/09638288.2022.2139418 · Cited by 12
Co-designing with adults with acquired neurological disability in the community: a scoping review protocol
D’Cruz, K., Antonopoulos, S., Rothman, R., Douglas, J. M., Winkler, D., & Oliver, S. (2022) · BMJ Open · doi:10.1136/bmjopen-2022-064921 · Cited by 12
Nurse-Led Physical Health Interventions for People with Mental Illness: A Scoping Review of International Literature
Happell, B., Furness, T., Jacob, A. M., Stimson, A., Curtis, J., Watkins, A., Platania‐Phung, C., Scholz, B., & Stanton, R. (2023) · Issues in Mental Health Nursing · doi:10.1080/01612840.2023.2212772 · Cited by 12
Cognitive Remediation for Impulsivity in Addictive Disorders: Review of Current Evidence and Future Directions
Anderson, A. C., & Verdejo‐García, A. (2023) · Current Addiction Reports · doi:10.1007/s40429-023-00504-4 · Cited by 12
Community Engagement in Research: An Updated Systematic Review of Quantitative Engagement Measurement Scales for Health Studies
Gordon, B., Griend, K. M. V. D., Scharp, V. L., Ellis, H., & Nies, M. A. (2023) · Evaluation & the Health Professions · doi:10.1177/01632787231203346 · Cited by 12
Intersecting identities, diverse masculinities, and collaborative development: Considerations in creating online mental health interventions that work for men
Opozda, M. J., Galdas, P., Watkins, D. C., & Smith, J. A. (2023) · Comprehensive Psychiatry · doi:10.1016/j.comppsych.2023.152443 · Cited by 12
Co-designing a nature-based intervention to promote postnatal mental health for mothers and their infants: a complex intervention development study in England
Hall, K., Evans, J., Roberts, R., Brown, R., Duggan, L., Williamson, M., Moran, P., Turner, K. M., & Barnes, C. R. (2023) · BMJ Open · doi:10.1136/bmjopen-2023-075366 · Cited by 13
A qualitative study of physical activity drivers in autistic individuals using COM-B. Autistic and non-autistic perspectives
Parsons, K., Payne, S. M., Holt, N., & Wallace, J. (2024) · Research in Autism · doi:10.1016/j.rasd.2024.102331 · Cited by 12
Codesign in Indigenous education policy and practice—A systematic literature review
Shay, M., Sarra, G., Lampert, J., Jeong, D., Thomson, A., & Miller, J. (2024) · Australian Journal of Social Issues · doi:10.1002/ajs4.320 · Cited by 12
Collaborating with cancer patients and informal caregivers in a European study on quality of life: protocol to embed patient and public involvement within the EUonQoL project
Engelaar, M., Bos, N., van Schelven, F., Sunyer, N. L. I., Couespel, N., Apolone, G., Brunelli, C., Caraceni, A. T., Ferrer, M., Grøenvold, M., et al. (2024) · Research Involvement and Engagement · doi:10.1186/s40900-024-00597-9 · Cited by 12
A framework for remotely enabled co-design with young people: its development and application with neurodiverse children and their caregivers
Morris, A. C., Douch, S., Popnikolova, T., McGinley, C., Matcham, F., Sonuga-Barke, E. J. S., & Downs, J. M. (2024) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2024.1432620 · Cited by 15
Digital behavioral dietary interventions to promote a healthy diet among children and adolescents: a scoping review of technologies, design, behavioral theory, and assessed outcomes
van der Heijden, Z. S., Lucassen, D. A., Faessen, J. P. M., Camps, G., Lü, Y., Schipper, H. S., Nijhof, S. L., & Brouwer-Brolsma, E. M. (2024) · Health Psychology and Behavioral Medicine · doi:10.1080/21642850.2024.2430965 · Cited by 12
Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review
Nissen, S., Karlsson, A. W., & Nørgaard, B. (2025) · Patient · doi:10.1007/s40271-025-00765-3 · Cited by 12
Principles and related strategies for spinal cord injury research partnership approaches: a qualitative study
Hoekstra, F., Gainforth, H. L., & _, _. (2021) · Evidence & Policy · doi:10.1332/174426421x16161715996124 · Cited by 12
Improving mental health care transitions through information capture during admission to inpatient mental health services: a quality improvement study
Tyler, N., Wright, N., Gregoriou, K., & Waring, J. J. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-07136-2 · Cited by 12
Engaging Healthcare Staff and Stakeholders in Healthcare Simulation Modeling to Better Translate Research Into Health Impact: A Systematic Review
Zabell, T., Long, K. M., Scott, D. A., Hope, J., McLoughlin, I. P., & Enticott, J. (2021) · Frontiers in Health Services · doi:10.3389/frhs.2021.644831 · Cited by 12
User-centered development of a digitally-delivered dietary intervention for adults with type 2 diabetes: The T2Diet study
Dening, J., George, E. S., Ball, K., & Islam, S. M. S. (2022) · Internet Interventions · doi:10.1016/j.invent.2022.100505 · Cited by 12
Designing an online intervention for adults with addictive eating: a qualitative integrated knowledge translation approach
Leary, M., Pursey, K., Verdejo‐García, A., Skinner, J. A., Whatnall, M. C., Hay, P., Collins, C. E., Baker, A., & Burrows, T. L. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-060196 · Cited by 14
Reimagining consumer involvement: Resilient system indicators in the COVID‐19 pandemic response in New South Wales, Australia
Shih, P., Hallam, L., Clay‐Williams, R., Carter, S. M., & Brown, A. S. (2022) · Health Expectations · doi:10.1111/hex.13556 · Cited by 12
Scaling up the task-sharing of psychological therapies: A formative study of the PEERS smartphone application for supervision and quality assurance in rural India
Singla, D. R., Fernandes, L., Savel, K. A., Shah, A. V., Agrawal, R., Bhan, A., Nadkarni, A., Sharma, A., Khan, A., Lahiri, A., et al. (2024) · Cambridge Prisms Global Mental Health · doi:10.1017/gmh.2024.11 · Cited by 12
A theoretical explanation for how a nutrition counseling and medically tailored meal delivery program benefitted participants living with lung cancer
Rothpletz‐Puglia, P., Smith, J., Pavuk, C., Leotta, J., Pike, K., Presley, C. J., Krok‐Schoen, J. L., Braun, A. C., Cohen, M. K., Rogers, G. T., et al. (2024) · Supportive Care in Cancer · doi:10.1007/s00520-024-08616-x · Cited by 13
Co-design and feasibility of a pharmacist-led minor ailment service
Dineen‐Griffin, S., Benrimoj, S. I., Williams, K. A., & García‐Cárdenas, V. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06076-1 · Cited by 13
EVITA 2.0, an updated framework for understanding evidence-based mental health policy agenda-setting: tested and informed by key informant interviews in a multilevel comparative case study
Votruba, N., Grant, J., & Thornicroft, G. (2021) · Health Research Policy and Systems · doi:10.1186/s12961-020-00651-4 · Cited by 12
Evaluating a web-based computer-tailored physical activity intervention for those living with and beyond lung cancer (ExerciseGuide UK): protocol for a single group feasibility and acceptability study
Curry, J., Lind, M., Short, C. E., Vandelanotte, C., Evans, H. E. L., Pearson, M., & Forbes, C. C. (2022) · Pilot and Feasibility Studies · doi:10.1186/s40814-022-01129-6 · Cited by 11
The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments
Gilbert, A. S., Antoniades, J., Hwang, K., González, E., Hlavač, J., Enticott, J., Lin, X., Woodward‐Kron, R. E., Low, L., LoGiudice, D., et al. (2023) · Dementia · doi:10.1177/14713012231190578 · Cited by 11
Utilizing virtual reality for gender-affirming voice training: surveying the attitudes and perspectives of potential consumers
Smith, C., Gregory, C., & Bryant, L. (2024) · International Journal of Language & Communication Disorders · doi:10.1111/1460-6984.12968 · Cited by 11
Leveraging human-centered design and causal pathway diagramming toward enhanced specification and development of innovative implementation strategies: a case example of an outreach tool to address racial inequities in breast cancer screening
Marcotte, L. M., Langevin, R., Hempstead, B. H., Ganguly, A., Lyon, A. R., Weiner, B. J., Akinsoto, N., Houston, P. L., Fang, V., & Hsieh, G. (2024) · Implementation Science Communications · doi:10.1186/s43058-024-00569-w · Cited by 11
The All Together Group: Co‐Designing a Toolkit of Approaches and Resources for End‐of‐Life Care Planning With People With Intellectual Disabilities in Social Care Settings
Bruun, A., Cresswell, A., Jeffrey, D. K., Jordan, L., Keagan‐Bull, R., Giles, J., Swindells, S., Wilding, M., Payne, N., Gibson, S. L., et al. (2024) · Health Expectations · doi:10.1111/hex.14174 · Cited by 11
Co-Designing Dynamic Mixed Reality Drill Positioning Widgets: A Collaborative Approach with Dentists in a Realistic Setup
Dastan, M., Fiorentino, M., Walter, E., Diegritz, C., Uva, A. E., Eck, U., & Navab, N. (2024) · IEEE Transactions on Visualization and Computer Graphics · doi:10.1109/tvcg.2024.3456149 · Cited by 11
Claimant and clinician perspectives on sources of claimant distress in interactions with Australian compensation schemes: a qualitative study
Sim, A., McNeilage, A. G., Rebbeck, T. J., & Ashton-James, C. E. (2024) · Disability and Rehabilitation · doi:10.1080/09638288.2024.2419448 · Cited by 11
The implementation and evaluation of a family‐led novel intervention for delirium prevention and management in adult critically ill patients: A mixed‐methods pilot study
Johnson, G. U., Towell‐Barnard, A., McLean, C., & Ewens, B. A. (2024) · Nursing in Critical Care · doi:10.1111/nicc.13210 · Cited by 11
Co-designing conversational agents with older people: A scoping review of methods, challenges, and a way forward
Salomé, S., du Bousquet, L., & Monfort, E. (2025) · Computers in Human Behavior Reports · doi:10.1016/j.chbr.2025.100606 · Cited by 13
Advancing occupational therapy scoping reviews: Recommendations to enhance quality and methodological rigour
Brown, T., Gustafsson, L. A., McKinstry, C., & Robinson, L. (2025) · Australian Occupational Therapy Journal · doi:10.1111/1440-1630.70003 · Cited by 13
An Ongoing Teacher Professional Development Programme to Enhance Critical Health Literacy Pedagogies and Assessment
Peralta, L. R., Marvell, C. L., Barkell, J. F., Burns, K., & Otten, C. (2025) · Health Promotion Journal of Australia · doi:10.1002/hpja.70016 · Cited by 11
Processes Underpinning Successful Co‐Design: Lessons From a Digital Health Project
Burns, C., Kilkenny, M. F., Purvis, T. L., Gall, S., Farmer, C., Barker, S., Booth, B. E., Bray, J., Cadilhac, D. A.-M., Cameron, J., et al. (2025) · Health Expectations · doi:10.1111/hex.70272 · Cited by 11
Increasing Engagement for Breast Cancer Screening and Treatment: The “ICANTREAT” Community of Expertise Initiative
Kathrikolly, T., Nair, S., Poobalan, A. S., Shetty, R. S., Tripathee, S., & MacLennan, S. J. (2020) · Asian Pacific Journal of Cancer Prevention · doi:10.31557/apjcp.2020.21.12.3655 · Cited by 11
Development of Training in Problem Solving for Caregivers of Childhood Brain Tumor Survivors
Deatrick, J. A., Knafl, K. A., Knafl, G. J., Hammer, S. N., Stevens, E. M., Hoeve, E. S. V., Zukin, H. N., Rhodes, G., Leri, D., Hobbie, W. L., et al. (2021) · Cancer Nursing · doi:10.1097/ncc.0000000000001041 · Cited by 11
Ethical Issues to Consider in Designing Suicide Prevention Studies: An Expert Consensus Study
Dempster, G., Ozols, I., Krysinska, K. E., Reifels, L., Schlichthorst, M., Pirkis, J., & Andriessen, K. (2022) · Archives of Suicide Research · doi:10.1080/13811118.2021.2022553 · Cited by 11
Funders' Perspectives on Supporting Implementation Research in Low- and Middle-Income Countries
Cardoso-Weinberg, A., Alley, C., Kupfer, L. E., Aslanyan, G., Makanga, M. M., Zicker, F., & Olesen, O. F. (2022) · Global Health Science and Practice · doi:10.9745/ghsp-d-21-00497 · Cited by 11
Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review
Røssvoll, T. B., Hanssen, T. A., Rosenvinge, J. H., Liabo, K., & Pettersen, G. (2022) · OTJR Occupational Therapy Journal of Research · doi:10.1177/15394492221096058 · Cited by 12
Development of a behavioural support intervention for e-bike use in Australia
McVicar, J., Nourse, R. A., Keske, M. A., & Maddison, R. (2022) · BMC Public Health · doi:10.1186/s12889-022-14693-6 · Cited by 11
Creating a consumer-driven global community of practice to support action within environmental design with people living with dementia: assistive technology challenges and opportunities
Ong, E., Frost, D., Kuliga, S., Layton, N. A., & Liddle, J. (2023) · Brain Impairment · doi:10.1017/brimp.2023.4 · Cited by 11
Co-designing with engineers for community engagement in rural Uganda
White, P. J., Okello, D., Casey, B. P., Najjuuko, C., & Lukanga, R. (2023) · Design Science · doi:10.1017/dsj.2023.10 · Cited by 11
In-Depth Co-Design of Mental Health Monitoring Technologies by People with Lived Experience
Patrickson, B., Musker, M., Thorpe, D., van Kasteren, Y., Bidargaddi, N. P., & The Consumer and Carer Advisory Group (CCAG) (2023) · Future Internet · doi:10.3390/fi15060191 · Cited by 11
Co‐designing resources to support older people with intellectual disabilities and their families plan for parental death and transitions in care
Anderson, R., Keagan‐Bull, R., Giles, J., & Tuffrey‐Wijne, I. (2024) · Health Expectations · doi:10.1111/hex.14000 · Cited by 11
Seven lessons from the field: Research on transformation of health systems for older adults
Stolee, P., MacNeil, M., Elliott, J. B., Tong, C., & Kernoghan, A. (2020) · Healthcare Management Forum · doi:10.1177/0840470420915229 · Cited by 11
Improving Health for People Living With Heart Failure: Focus Group Study of Preconditions for Co-Production of Health and Care
Suutari, A., Thor, J., Nordin, A. M. M., Kjellström, S., & Josefsson, K. A. (2021) · Journal of Participatory Medicine · doi:10.2196/27125 · Cited by 11
A Rapid Review of the Factors That Influence Service User Involvement in Interprofessional Education, Practice, and Research
Sy, M., Panotes, A., Cho, D., Pineda, R. C., & Martin, P. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph192416826 · Cited by 11
Voices of women in homelessness during the outbreak of the COVID-19 pandemic: a co-created qualitative study
Mattsson, E., Lindblad, M., Kneck, Å., Salzmann‐Erikson, M., Klarare, A., & Women Advisory Board for Inclusion Health (2023) · BMC Women s Health · doi:10.1186/s12905-023-02157-x · Cited by 10
Developing relevant community mental health programmes in North India: five questions we ask when co-producing knowledge with experts by experience
Pillai, P., Rawat, M., Jain, S., Martin, R., Shelly, K., & Mathias, K. R. (2023) · BMJ Global Health · doi:10.1136/bmjgh-2022-011671 · Cited by 10
Co‐design of the EMBED‐Care Framework as an intervention to enhance shared decision‐making for people affected by dementia and practitioners, comprising holistic assessment, linked with clinical decision support tools: A qualitative study
Aworinde, J., Evans, C., Gillam, J., Ramsenthaler, C., Davies, N., Ellis-Smith, C. I., & EMBED‐Care Programme (2024) · Health Expectations · doi:10.1111/hex.13987 · Cited by 10
Chinese‐Australian carers' perceived needs and preferences in planning to embed an iSupport for Dementia program in aged care services
Yu, Y., Xiao, L. D., Cheng, A., Wang, I., Chiu, K., Chan, E., Xie, C., Zhou, Y., Zhuang, Z., & Wang, J. (2024) · Australian Journal on Ageing · doi:10.1111/ajag.13287 · Cited by 10
Adapting a group-based, multimodal aphasia treatment for telehealth – co-design of M-MAT Tele
Pierce, J. E., Hill, A. J., Wong, D. K., Pitt, R., & Rose, M. L. (2024) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2024.2366423 · Cited by 10
Implementing a gerontological nursing competencies programme in aged care: Participant experiences
Traynor, V., Britten, N., Gibson, D. M., Munk, S., Chenoweth, L., Stokes, J. F., Moroney, T. L., Strickland, K., Donaghy, T., & Bail, K. S. (2024) · International Nursing Review · doi:10.1111/inr.13034 · Cited by 10
Does technology-based non-interactive teaching enhance students’ learning in the classroom?
Sibley, L., Russ, H., Ahmad, G., Baumgärtner, B., Bräutigam, D., Brümmer, S., Bussmann, H., Erb, N., Evans, L., Fischer, S., et al. (2024) · Computers and Education Open · doi:10.1016/j.caeo.2024.100233 · Cited by 10

Authors: Slattery, P., Saeri, A. K., & Bragge, P.
Affiliations: Monash University (AU)
Corresponding author: Slattery, Peter
ORCID: Slattery, Peter
Saeri, Alexander K.
Bragge, Peter
Venue: Health Research Policy and Systems
Publisher: Springer Science and Business Media LLC
Published: 2020-02-11
Volume: 18
Issue: 1
Pages: 17-17
ISSN: 1478-4505 (ISSN-L)
DOI: 10.1186/s12961-020-0528-9
PMC: PMC7014755
OpenAlex: W3008652539
Cited by: 1,313
References: 54
Citations by year: 2026: 259 · 2025: 311 · 2024: 315 · 2023: 188 · 2022: 132 · 2021: 97 · 2020: 10
FWCI: 20.43
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0/ (tdm)
creativecommons.org/licenses/by/4.0/ (vor)
Locations: Health Research Policy and Systems (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
Monash University Research Portal (Monash University) (submittedVersion, cc-by)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: Transport Accident Commission
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Keywords: research co-design, end-user involvement, patient and public involvement, research waste, learning planning, research engagement
MeSH terms: Systematic Reviews as Topic, Humans, Interinstitutional Relations, Research Design, Biomedical Research, Community-Based Participatory Research

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

Research co-design in health: a rapid overview of reviews

Abstract

Overview

Integrity signals

Figures

Verification

Claims the paper makes

Claims other papers make about this one

Self-check

Citations

Cites

Cited by

Related

Metadata

Record

About these checks