Cited by 1,313Mental Health and Patient InvolvementHealth Policy Implementation ScienceCommunity Health and Development

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Research co-design in health: a rapid overview of reviews

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Slattery, Peter, Saeri, Alexander K., Bragge, Peter·2020·Health Research Policy and Systems

DOI 10.1186/s12961-020-0528-9PMC PMC7014755

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Abstract

Background: Billions of dollars are lost annually in health research that fails to create meaningful benefits for patients. Engaging in research co-design – the meaningful involvement of end-users in research – may help address this research waste. This rapid overview of reviews addressed three related questions, namely (1) what approaches to research co-design exist in health settings? (2) What activities do these research co-design approaches involve? (3) What do we know about the effectiveness of existing research co-design approaches? The review focused on the study planning phase of research, defined as the point up to which the research question and study design are finalised. Methods: Reviews of research co-design were systematically identified using a rapid overview of reviews approach (PROSPERO: CRD42019123034). The search strategy encompassed three academic databases, three grey literature databases, and a hand-search of the journal Research Involvement and Engagement . Two reviewers independently conducted the screening and data extraction and resolved disagreements through discussion. Disputes were resolved through discussion with a senior author (PB). One reviewer performed quality assessment. The results were narratively synthesised. Results: A total of 26 records (reporting on 23 reviews) met the inclusion criteria. Reviews varied widely in their application of ‘research co-design’ and their application contexts, scope and theoretical foci. The research co-design approaches identified involved interactions with end-users outside of study planning, such as recruitment and dissemination. Activities involved in research co-design included focus groups, interviews and surveys. The effectiveness of research co-design has rarely been evaluated empirically or experimentally; however, qualitative exploration has described the positive and negative outcomes associated with co-design. The research provided many recommendations for conducting research co-design, including training participating end-users in research skills, having regular communication between researchers and end-users, setting clear end-user expectations, and assigning set roles to all parties involved in co-design. Conclusions: Research co-design appears to be widely used but seldom described or evaluated in detail. Though it has rarely been tested empirically or experimentally, existing research suggests that it can benefit researchers, practitioners, research processes and research outcomes. Realising the potential of research co-design may require the development of clearer and more consistent terminology, better reporting of the activities involved and better evaluation.

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Fig. 1 PRISMA flow diagram for rapid overview of reviews in health research co-designCC BY · PubMed Central

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Authors: Slattery, P., Saeri, A. K., & Bragge, P.
Affiliations: Monash University (AU)
Corresponding author: Slattery, Peter
ORCID: Slattery, Peter
Saeri, Alexander K.
Bragge, Peter
Venue: Health Research Policy and Systems
Publisher: Springer Science and Business Media LLC
Published: 2020-02-11
Volume: 18
Issue: 1
Pages: 17-17
ISSN: 1478-4505 (ISSN-L)
DOI: 10.1186/s12961-020-0528-9
PMC: PMC7014755
OpenAlex: W3008652539
Cited by: 1,313
References: 54
Citations by year: 2026: 259 · 2025: 311 · 2024: 315 · 2023: 188 · 2022: 132 · 2021: 97 · 2020: 10
FWCI: 20.43
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0/ (tdm)
creativecommons.org/licenses/by/4.0/ (vor)
Locations: Health Research Policy and Systems (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
Monash University Research Portal (Monash University) (submittedVersion, cc-by)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Funders: Transport Accident Commission
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Keywords: research co-design, end-user involvement, patient and public involvement, research waste, learning planning, research engagement
MeSH terms: Systematic Reviews as Topic, Humans, Interinstitutional Relations, Research Design, Biomedical Research, Community-Based Participatory Research

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