Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website
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Abstract
Background: Digital interventions offer an innovative way to make the experiences of people living with mental illness available to others. As part of the Self-Management And Recovery Technology (SMART) research program on the use of digital resources in mental health services, an interactive website was developed including videos of people with lived experience of mental illness discussing their recovery. These peer videos were designed to be watched on a tablet device with a mental health worker, or independently. Objective: Our aim was to explore how service users experienced viewing the lived experience videos on this interactive website, as well as its influence on their recovery journey. Methods: In total, 36 service users with experience of using the website participated in individual semistructured qualitative interviews. All participants had experience of psychosis. Data analysis occurred alongside data collection, following principles of constructivist grounded theory methodology. Results: According to participants, engaging with lived experience videos was a pivotal experience of using the website. Participants engaged with peers through choosing and watching the videos and reflecting on their own experience in discussions that opened up with a mental health worker. Benefits of seeing others talking about their experience included “being inspired,” “knowing I’m not alone,” and “believing recovery is possible.” Experiences of watching the videos were influenced by the participants’ intrapersonal context, particularly their ways of coping with life and use of technology. The interpersonal context of watching the videos with a worker, who guided website use and facilitated reflection, enriched the experience. Conclusions: Engaging with lived experience videos was powerful for participants, contributing to their feeling connected and hopeful. Making websites with lived experience video content available to service users and mental health workers demonstrates strong potential to support service users’ recovery.
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Intervention normalizing people's experiences (e.g., by providing examples of other people with similar experiences) is a facilitating factor.
“Another facilitating factor was whether the intervention normalized people’s experiences [79,139,157,190,201], for instance, by providing examples of other people with similar experiences.”
From Barriers to and facilitators of user engagement with digital mental health interventions: Systematic review (2021) · cites this paper as [201]
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- Authors
- Williams, A., Fossey, E., Farhall, J., Foley, F., & Thomas, N.
- Affiliations
- La Trobe University (AU)
- Swinburne University of Technology (AU)
- The Alfred Hospital (AU)
- Corresponding author
- Williams, Anne
- Venue
- JMIR Mental Health
- Publisher
- JMIR Publications Inc.
- Published
- 2018-05-08
- Volume
- 5
- Issue
- 2
- Pages
- e37
- ISSN
- 2368-7959 (ISSN-L)
- PMC
- PMC5964305
- OpenAlex
- W2801646458
- Cited by
- 76
- References
- 40
- Citations by year
- 2026: 4 · 2025: 6 · 2024: 8 · 2023: 8 · 2022: 10 · 2021: 15 · 2020: 9 · 2019: 15 · 2018: 1
- FWCI
- 15.27
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- JMIR Mental Health (publishedVersion, cc-by)
- Europe PMC (PubMed Central) (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Swinburne figshare (Swinburne University of Technology) (acceptedVersion, other-oa)
- Monash University Research Portal (Monash University) (submittedVersion, other-oa)
- Figshare (submittedVersion, cc-by)
- Swinburne figshare (Swinburne University of Technology) (submittedVersion, cc-by)
- Journal of Medical Internet Research (cc-by)
- Swinburne figshare (Swinburne University of Technology)
- La Trobe University (cc-by)
- Funders
- Northwestern University
- Australian Government
- Swinburne University of Technology
- State Government of Victoria (MIRF33)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Keywords
- psychosis, recovery, digital interventions, service user experiences, peer support, mental health professionals, tablet-based intervention, self-management, hope, social connectedness
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