Exploring the perspectives of people whose lives have been affected by depression
Abstract
OBJECTIVES: To describe the experiences of people whose lives have been affected by depression. DESIGN, SETTING AND PARTICIPANTS: Thematic review of data collected from 21 community meetings (1529 people, providing 911 evaluation forms) and nine focus groups (69 individuals) held nationally, and written feedback and website-based interactions with beyondblue: the national depression initiative between April and December 2001. MAIN OUTCOME MEASURES: Barriers to social participation experienced by people whose lives have been affected by depression, and their interactions with the healthcare system. RESULTS: The key theme was the experience of stigma, which was evident in healthcare settings and in barriers to social participation, particularly regarding employment. Inadequacies of primary care and specialist treatment systems were highlighted. Particular emphasis was placed on limited access to high-quality primary care and non-pharmacological care. The stigmatising attitudes of many healthcare providers were notable. Within society, lack of access to knowledge and self-care or mutual support services was evident. Lack of support both from and for people in caring roles was also emphasised. CONCLUSIONS: People with depression are subject to many of the same attitudes, inadequate healthcare and social barriers reported by people with psychotic disorders. Consumers and carers prioritise certain notions of illness, recovery and quality of healthcare, and expect healthcare providers to respond to these concerns.
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Depression and anxiety disorders are notably undertreated due to barriers such as lack of access to treatments and reluctance to get treatments because of social stigma and unawareness of symptoms.
“Yet, depression and anxiety disorders are notably undertreated due to a variety of barriers, such as lack of access to treatments and reluctance to get treatments because of social stigma and unawareness of symptoms [3].”
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Tieu, L., Walton, Q. L., Sherbourne, C. D., Miranda, J. M., Wells, K. B., Tang, L., Williams, P., Anderson, G. L., Booker-Vaughns, J., Pulido, E., et al. (2022) · The Journal of Nervous and Mental Disease · doi:10.1097/nmd.0000000000001496 · Cited by 5 · see citing works
Reavley, N. J., & Jorm, A. F. (2013) · Cited by 5 · see citing works
Isaac, F., Greenwood, K. M., & Benedetto, M. D. (2012) · Patient Preference and Adherence · doi:10.2147/ppa.s26783 · Cited by 4 · see citing works
The First Ten Minutes: Clinicians' Perspectives on Engaging Adolescents in Therapy
Keating, V., & Cosgrave, E. (2006) · Australian Journal of Guidance and Counselling · doi:10.1375/ajgc.16.2.141 · Cited by 4 · see citing works
Antidepressant Use Amongst College Students: Findings of a Phenomenological Study
Singh, R. L., Schommer, J. C., Worley, M. M., & Peden‐McAlpine, C. (2012) · INNOVATIONS in pharmacy · doi:10.24926/iip.v3i2.259 · Cited by 4 · see citing works
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Commentary on 'Evaluating treatments for the mood disorders: time for the evidence to get real'
Hickie, I. B. (2004) · Australian & New Zealand Journal of Psychiatry · doi:10.1111/j.1440-1614.2004.01387.x · Cited by 4 · see citing works
Self-citationDepressive symptoms in individuals with overweight and obesity. Results from the LIFE-adult-study
Jung, F. U. C. E., Bleck, F., Pabst, A., Schladitz, K., Luppa, M., Hussenoeder, F. S., Engel, C., Loeffler, M., Hinz, A., Glaesmer, H., et al. (2025) · Journal of Affective Disorders · doi:10.1016/j.jad.2025.119792 · Cited by 3 · see citing works
Stigma Towards Depression in Rural Ireland: A Qualitative Exploration
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- Authors
- McNair, B. G., Highet, N. J., & Hickie, I. B.
- Affiliations
- Beyondblue (AU)
- Venue
- Medical Journal of Australia
- Publisher
- Wiley
- Published
- 2002-05
- Volume
- 176
- Issue
- 10
- Pages
- S69-76
- ISSN
- 0025-729X (ISSN-L)
- 1326-5377
- OpenAlex
- W98913420
- Cited by
- 125
- References
- 12
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 2 · 2022: 6 · 2020: 4 · 2019: 3 · 2018: 3 · 2017: 6 · 2016: 10 · 2015: 3 · 2014: 11 · 2013: 10 · 2012: 9
- FWCI
- 13.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- Locations
- The Medical Journal of Australia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Social Psychology › Mental Health Treatment and Access
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Psychology › Clinical Psychology › Psychology and Mental Health
- Keywords
- depression, lived experience, stigma, barriers to social participation, employment, health care access, primary care, clinician attitudes, non-pharmacological care, self-care, caregivers, community meetings
- MeSH terms
- Attitude to Health, Australia, Depressive Disorder, Female, Humans, Male, Mental Health Services, Prejudice, Focus Groups
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