Systematic review of services providing information and/or advice to people with dementia and/or their caregivers

Corbett, Anne; Stevens, Jennifer; Aarsland, Dag; Day, Sarah; Moniz‐Cook, Esme; Woods, Robert; Brooker, Dawn; Ballard, Clive

doi:10.1002/gps.2762

Cited by 88Dementia and Cognitive Impairment ResearchNursing care and researchPalliative Care and End-of-Life Issues

Systematic review of services providing information and/or advice to people with dementia and/or their caregivers

Corbett, Anne, Stevens, Jennifer, Aarsland, Dag, Day, Sarah, Moniz‐Cook, Esme, Woods, Robert, Brooker, Dawn, Ballard, Clive·2012·International Journal of Geriatric Psychiatry

DOI 10.1002/gps.2762

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Abstract

BACKGROUND: Information is a key part of service provision to people with dementia and their carers, but there is no systematic review of the evidence. This study aimed to determine whether information services confer significant benefit for quality of life, neuropsychiatric symptoms and carer burden. METHOD: A systematic review of intervention studies in people with dementia was carried out, focussing predominantly on the provision of information and/or advice. RESULTS: Thirteen randomised controlled trials were identified. Two of the three studies measuring quality of life indicated benefit. Significant benefits were also evident for neuropsychiatric symptoms (points difference, -1.48; confidence interval, -2.11 to 0.86), but not carer burden. Most interventions included other key elements such as skills training, telephone support and direct help to navigate the medical and care system. CONCLUSION: There is some support for the value of information services, but studies are needed to determine the specific elements that are effective.

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Previous studies of information and advice to people with dementia and their families have suggested that this can improve the patient's QoL but not the carer's psychological symptoms, and an intervention targeted at the carer may not help the person with dementia to the same extent.
“Previous studies of information and advice to people with dementia and their families have suggested this can improve the patient's QoL but not the carer's psychological symptoms and an intervention which is targeted at the carer may not help the person with dementia to the same extent.55”
From START (STrAtegies for RelaTives) study: a pragmatic randomised controlled trial to determine the clinical effectiveness and cost-effectiveness of a manual-based coping strategy programme in promoting the mental health of carers of people with dementia (2014) · cites this paper as [55]

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Authors: Corbett, A., Stevens, J., Aarsland, D., Day, S., Moniz‐Cook, E., Woods, R., Brooker, D., & Ballard, C.
Affiliations: Alzheimer's Society (GB)
King's College London (GB)
Stavanger University Hospital (NO)
Hull York Medical School (Hull University) Institute of Rehabilitation Hull UK
Dementia Services Development Centre Wales Bangor University Bangor UK
University of Worcester (GB)
Corresponding author: Ballard, Clive
ORCID: Corbett, Anne
Aarsland, Dag
Brooker, Dawn
Ballard, Clive
Venue: International Journal of Geriatric Psychiatry
Publisher: Wiley
Published: 2011-10-28
Volume: 27
Issue: 6
Pages: 628-636
ISSN: 0885-6230 (ISSN-L)
1099-1166
DOI: 10.1002/gps.2762
OpenAlex: W1861106557
Cited by: 87
References: 25
Citations by year: 2026: 1 · 2025: 2 · 2024: 2 · 2023: 4 · 2022: 2 · 2021: 1 · 2020: 10 · 2019: 9 · 2018: 9 · 2017: 10 · 2016: 10 · 2015: 5 · 2014: 12 · 2013: 9
FWCI: 0.92
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: International Journal of Geriatric Psychiatry (publishedVersion)
PubMed (publishedVersion)
Research Portal (King's College London) (submittedVersion)
Funders: Alzheimer Society
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Health Professions › Pharmacy › Nursing care and research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords: dementia, information services, advice services, caregivers, quality of life, neuropsychiatric symptoms, caregiver burden, telephone support, skills training, care navigation
MeSH terms: Counseling, Dementia, Humans, Patient Education as Topic, Quality of Life, Social Support, Randomized Controlled Trials as Topic, Caregivers, Cost of Illness

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Systematic review of services providing information and/or advice to people with dementia and/or their caregivers

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