Participation in psychosocial oncology and quality-of-life research: A systematic review

Wakefield, Claire E; Fardell, Joanna E; Doolan, Emma L; Aaronson, Neil K; Jacobsen, Paul B; Cohn, Richard J; King, Madeleine

doi:10.1016/s1470-2045(17)30100-6

Cited by 89Survey Methodology and NonresponseEthics in Clinical ResearchCancer survivorship and care

Participation in psychosocial oncology and quality-of-life research: A systematic review

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Wakefield, Claire E, Fardell, Joanna E, Doolan, Emma L, Aaronson, Neil K, Jacobsen, Paul B, Cohn, Richard J, King, Madeleine·2017·The Lancet Oncology

DOI 10.1016/s1470-2045(17)30100-6

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Abstract

Quality-of-life and psychosocial oncology studies that have low participation might have less precision, less statistical power, and can have non-response bias. In this systematic Review, we searched MEDLINE, Embase, and PsycInfo, for paediatric studies published in 2010-15 and adults studies published 2014-15. Studies were eligible if they were original studies published in a peer-reviewed journal; recruited children (aged 0-18 years at diagnosis) with cancer or their parents, or adult patients with cancer; and assessed psychosocial outcomes, including quality of life, depression, anxiety, wellbeing, distress, coping, or adjustment as a primary or secondary outcome. We assessed participation reporting quality, calculated percentages of participation achieved, and measured the influence of study design and participant characteristics. We reviewed 311 studies including a total of 87 240 adults, children, and parents. Mean participation across studies was more than 70% (paediatric participation was 72% and adult participation was 74%). Many studies did not report data essential for the assessment of participation, especially for non-respondents. Studies using a longitudinal cohort design had higher participation than randomised trials. In paediatric studies, recruitment of participants at diagnosis, face to face, and with the use of short questionnaires yielded higher participation. Other study design characteristics (method of data collection, who enrolled the participants, and incentives) and patient characteristics (cancer type, patient or parent age, and sex) did not affect participation in either paediatric or adult studies. Researchers can use these data to improve reporting quality and make evidence-based choices to maximise participation in future studies.

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Long-term health-related quality of life in young childhood cancer survivors and their parents
Fardell, J. E., Wakefield, C. E., De Abreu Lourenco, R., Signorelli, C., McCarthy, M., McLoone, J., Osborn, M., Gabriel, M., Anazodo, A., Alvaro, F., et al. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.29398 · Cited by 61 · see citing works
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Parent-targeted home-based interventions for increasing fruit and vegetable intake in children: a systematic review and meta-analysis
Touyz, L. M., Wakefield, C. E., Grech, A. M., Quinn, V. F., Costa, D. S. J., Zhang, F. F., Cohn, R. J., Sajeev, M. F., & Cohen, J. E. (2017) · Nutrition Reviews · doi:10.1093/nutrit/nux066 · Cited by 53 · see citing works
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Gender‐specific differences in parental health‐related quality of life in childhood cancer
Rensen, N., Steur, L. M. H., Schepers, S. A., Merks, J. H. M., Moll, A. C., Kaspers, G. J. L., Grootenhuis, M. A., & van Litsenburg, R. R. L. (2019) · Pediatric Blood & Cancer · doi:10.1002/pbc.27728 · Cited by 48 · see citing works
eHealth cognitive rehabilitation for brain tumor patients: results of a randomized controlled trial
van der Linden, S. D., Rutten, G.-J. M., Dirven, L., TAPHOORN, M. J. B., Satoer, D., Dirven, C. M. F., Sitskoorn, M. M., & Gehring, K. (2021) · Journal of Neuro-Oncology · doi:10.1007/s11060-021-03828-1 · Cited by 47 · see citing works
“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer‐related genetic testing in childhood
McGill, B. C., Wakefield, C. E., Vetsch, J., Lim, Q., Warby, M., Metcalfe, A., Byrne, J. A., Cohn, R. J., & Tucker, K. (2019) · Pediatric Blood & Cancer · doi:10.1002/pbc.27762 · Cited by 46 · see citing works
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Fear of Recurrence in Young Adult Cancer Patients—A Network Analysis
Richter, D., Clever, K., Mehnert, A., & Schönfelder, A. (2022) · Cancers · doi:10.3390/cancers14092092 · Cited by 42 · see citing works
Childhood cancer survivorship: barriers and preferences
Signorelli, C., Wakefield, C. E., McLoone, J. K., Fardell, J. E., Jones, J. M., Turpin, K. H., Emery, J. D., Michel, G., Downie, P., Skeen, J., et al. (2019) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2019-002001 · Cited by 38 · see citing works
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Cancer patients’ participation and commitment to psychological interventions: a scoping review
Savioni, L., Triberti, S., Durosini, I., Sebri, V., & Pravettoni, G. (2021) · Psychology and Health · doi:10.1080/08870446.2021.1916494 · Cited by 38 · see citing works
Are digital psychological interventions for psychological distress and quality of life in cancer patients effective? A systematic review and network meta-analysis
Zhang, T., Ren, Z., Wakefield, C. E., Hui, B. P. H., Akechi, T., Shi, C., Du, X., Chen, W., Lai, L., Zhao, C., et al. (2024) · Clinical Psychology Review · doi:10.1016/j.cpr.2024.102520 · Cited by 41 · see citing works
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Illness unpredictability and psychosocial adjustment of adolescent and young adults impacted by parental cancer: the mediating role of unmet needs
Landi, G., Düzen, A., Patterson, P., McDonald, F. E. J., Crocetti, E., Grandi, S., & Tossani, E. (2021) · Supportive Care in Cancer · doi:10.1007/s00520-021-06379-3 · Cited by 35 · see citing works
The Use of Activity Trackers in Interventions for Childhood Cancer Patients and Survivors: A Systematic Review
Ha, L., Mizrahi, D., Wakefield, C. E., Cohn, R. J., Simar, D., & Signorelli, C. (2020) · Journal of Adolescent and Young Adult Oncology · doi:10.1089/jayao.2020.0099 · Cited by 33 · see citing works
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The feasibility of web surveys for obtaining patient-reported outcomes from cancer survivors: a randomized experiment comparing survey modes and brochure enclosures
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Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future
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Strategies for Successful Recruitment and Retention of Parents in Pediatric Psychosocial eHealth Interventions: A Qualitative Study in Pediatric Oncology
Canter, K. S., Vega, G., Ramirez, A. P., Deatrick, J. A., & Kazak, A. E. (2020) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsaa013 · Cited by 25 · see citing works
Quality of life in caregivers of a child with a developmental and epileptic encephalopathy
Robertson, E. G., Kelada, L., Best, S., Goranitis, I., Pierce, K., CoGENeS Group, Bye, A., & Palmer, E. E. (2023) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.15695 · Cited by 24 · see citing works
Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer
Robertson, E. G., Wakefield, C. E., Cohn, R. J., Battisti, R. A., Donoghoe, M. W., Ziegler, D. S., Fardell, J. E., Mitchell, R., & O'Brien, T. A. (2019) · Psycho-Oncology · doi:10.1002/pon.5109 · Cited by 25 · see citing works
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How Parents of Childhood Cancer Survivors Perceive Support From Their Extended Families
Kelada, L., Wakefield, C. E., Carlson, L., Hetherington, K., McGill, B. C., McCarthy, M., Miles, G. C. P., Cohn, R. J., & Sansom‐Daly, U. M. (2019) · Journal of Child and Family Studies · doi:10.1007/s10826-019-01394-9 · Cited by 24 · see citing works
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Efficacy of Op Koers Online, an online group intervention for parents of children with cancer: Results of a randomized controlled trial
Joosten, M. M. H., Maurice‐Stam, H., van Gorp, M., Beek, L. R., Holten, D. S., Scholten, L., & Grootenhuis, M. A. (2024) · Psycho-Oncology · doi:10.1002/pon.6284 · Cited by 23 · see citing works
Effects of digital psychological interventions on physical symptoms in cancer patients: A systematic review and meta-analysis
Zhang, T., Wakefield, C. E., Ren, Z., Chen, W., Du, X., Shi, C., Lai, L., Zhao, C., Gao, Y., Chen, Z., et al. (2023) · General Hospital Psychiatry · doi:10.1016/j.genhosppsych.2023.05.016 · Cited by 22 · see citing works
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Poor diet quality and adverse eating behaviors in young survivors of childhood cancer
Fleming, C., Murphy‐Alford, A. J., Cohen, J. E., Fleming, M. R., Wakefield, C. E., & Naumann, F. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.29408 · Cited by 21 · see citing works
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“I need to know if I’m going to die young”: Adolescent and young adult experiences of genetic testing for Li–Fraumeni syndrome
Shepherd, R. F., Werner‐Lin, A., Keogh, L. A., Delatycki, M. B., & Forrest, L. E. (2020) · Journal of Psychosocial Oncology · doi:10.1080/07347332.2020.1768199 · Cited by 21 · see citing works
The role of Connected Health technologies in supporting families affected by paediatric cancer: A systematic review
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Recruiting cancer survivors into research studies using online methods: a secondary analysis from an international cancer survivorship cohort study
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Risk of positive selection bias in longitudinal surveys among cancer survivors: Lessons learnt from the national Norwegian Testicular Cancer Survivor Study
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Factors associated with unwillingness to seek professional help for depression: a web-based survey
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Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives
Wakefield, C. E., Hetherington, K., Robertson, E. G., Donoghoe, M. W., Hunter, J. D., Vetsch, J., Marron, J. M., Tucker, K., Marshall, G. M., Broom, A. F., et al. (2023) · British Journal of Cancer · doi:10.1038/s41416-023-02429-1 · Cited by 18 · see citing works
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The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment
Robertson, E. G., Wakefield, C. E., Cohn, R. J., O'Brien, T., Ziegler, D. S., & Fardell, J. E. (2018) · JMIR Research Protocols · doi:10.2196/resprot.9258 · Cited by 17 · see citing works
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Understanding the Experience of Cancer Survivorship Among Pediatric and Adolescent Cancer Survivors and Their Parents Through Camera Lenses: A Photovoice Study
Wong, C. L., Li, H., Leung, A. W. K., Chan, C. W. H., & Cheung, Y. T. (2024) · Psycho-Oncology · doi:10.1002/pon.9306 · Cited by 17 · see citing works
Predictors of Response Outcomes for Research Recruitment Through a Central Cancer Registry: Evidence From 17 Recruitment Efforts for Population-Based Studies.
Millar, M. M., Kinney, A., Camp, N., Cannon-Albright, L., Hashibe, M., Penson, D., Kirchhoff, A. C., Neklason, D. W., Gilsenan, A., Dieck, G., et al. (2019) · American Journal of Epidemiology · doi:10.1093/aje/kwz011 · Cited by 16 · see citing works
Childhood cancer survivors report preferring lifestyle interventions delivered in person rather than online: An adolescent and parent perspective
Touyz, L. M., Cohen, J. E., Cohn, R. J., Garnett, S. P., Anazodo, A. C., Gohil, P., Grech, A. M., Ng, A., & Wakefield, C. E. (2019) · Pediatric Blood & Cancer · doi:10.1002/pbc.27922 · Cited by 17 · see citing works
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Psychosomatic Disorders in Patients with Gastrointestinal Diseases: Single-Center Cross-Sectional Study of 1186 Inpatients
Feng, L., Li, Z., Gu, X., Jiang, J., & Liu, X. (2021) · Gastroenterology Research and Practice · doi:10.1155/2021/6637084 · Cited by 16 · see citing works
Genetic Testing in the Pediatric Nephrology Clinic: Understanding Families' Experiences
Nevin, S. M., McLoone, J. K., Wakefield, C. E., Kennedy, S., & McCarthy, H. J. (2020) · Journal of Pediatric Genetics · doi:10.1055/s-0040-1721439 · Cited by 16 · see citing works
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Depression treatment research in people with cancer does not reflect cancer prevalence: findings from a systematic review
Bravery, B. D., Loughnan, S. A., & Murphy, M. (2020) · Evidence-Based Mental Health · doi:10.1136/ebmental-2020-300145 · Cited by 16 · see citing works
Psychosocial aftercare of adolescent and young adult cancer survivors in Germany: Awareness, utilisation, satisfaction and associated factors
Sender, A., Friedrich, M., Leuteritz, K., Stuckenberg, E., Richter, D., Stöbel‐Richter, Y., Lordick, F., & Geue, K. (2021) · Psycho-Oncology · doi:10.1002/pon.5678 · Cited by 17 · see citing works
The reciprocal relationship between daily fatigue and catastrophizing following cancer treatment: Affect and physical activity as potential mediators
Müller, F., Stephenson, E., DeLongis, A., Smink, A., van Ginkel, R. J., Tuinman, M. A., & Hagedoorn, M. (2017) · Psycho-Oncology · doi:10.1002/pon.4574 · Cited by 15 · see citing works
Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study
van Driessche, A., Beernaert, K., Deliëns, L., Kars, M. C., Lyon, M. E., Barrera, M. E., Dussel, V., Bidstrup, P. E., Rosenberg, A. R., Akard, T. F., et al. (2023) · European Journal of Pediatrics · doi:10.1007/s00431-023-05139-1 · Cited by 13 · see citing works
Patterns and drivers of health care use in long-term childhood cancer survivors: A systematic review
van Breeschoten, J., Lourenço, R. D. A., Signorelli, C., Haas, M. R., Cohn, R. J., Wakefield, C. E., & Fardell, J. E. (2017) · Critical Reviews in Oncology/Hematology · doi:10.1016/j.critrevonc.2017.10.004 · Cited by 13 · see citing works
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A cost‐effective approach to increasing participation in patient‐reported outcomes research in cancer: A randomized trial of video invitations
Signorelli, C., Wakefield, C. E., McLoone, J. K., Mateos, M. K., Aaronson, N. K., Lavoipierre, A., Cohn, R. J., & The ANZCHOG Survivorship Study Group (2020) · International Journal of Cancer · doi:10.1002/ijc.33244 · Cited by 13 · see citing works
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A structured Review of Quality of Life in Advanced and High-Risk Cutaneous Squamous Cell Carcinoma Shows the Need for More Studies and Better Measures
Starkings, R., Shilling, V. M., Jenkins, V. A., & Fallowfield, L. J. (2021) · Skin Health and Disease · doi:10.1002/ski2.39 · Cited by 12 · see citing works
Evaluation of an In-Hospital Recreation Room for Hospitalised Children and Their Families
Kelada, L., Wakefield, C. E., Graves, S. D., Treadgold, C., Dumlao, G., Schaffer, M., & O'Brien, T. A. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.05.017 · Cited by 11 · see citing works
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Relationship between survivorship care plans and unmet information needs, quality of life, satisfaction with care, and propensity to engage with, and attend, follow‐up care
Hill, R., Mercieca‐Bebber, R., Fardell, J. E., Wakefield, C. E., Signorelli, C., Webber, K., Cohn, R. J., & ANZCHOG Study Group (2023) · Cancer · doi:10.1002/cncr.34984 · Cited by 11 · see citing works
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An Evaluation of By My Side: Peer Support in Written Form is Acceptable and Useful for Parents Bereaved by Childhood Cancer
Raharjo, C. V., Hetherington, K., Donovan, L., Fardell, J. E., Russell, V., Cohn, R. J., Morgan, N. L., Siddiqui, J., & Wakefield, C. E. (2020) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2020.01.013 · Cited by 11 · see citing works
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“Somewhere to turn to with my questions”: A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy
Robertson, E. G., Roberts, N., Marne, F. A. L., Beavis, E., Macintosh, R., Kelada, L., Best, S., Goranitis, I., Pierce, K., Gill, D. S., et al. (2023) · European Journal of Paediatric Neurology · doi:10.1016/j.ejpn.2023.09.010 · Cited by 11 · see citing works
‘Why us?’ Causal attributions of childhood cancer survivors, survivors’ parents and community comparisons - a mixed methods analysis
Vetsch, J., Wakefield, C. E., Doolan, E. L., Signorelli, C., McGill, B. C., Moore, L., Techakesari, P., Pieters, R., Patenaude, A. F., McCarthy, M., et al. (2019) · Acta Oncologica · doi:10.1080/0284186x.2018.1532600 · Cited by 11 · see citing works
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Something’s got to give: Time-cost trade-offs in site-specific research approval can negatively impact patient recruitment in multi-institutional studies
Sansom‐Daly, U. M., Evans, H. E., Ellis, S. J., McGill, B. C., Hetherington, K., & Wakefield, C. E. (2017) · Internal Medicine Journal · doi:10.1111/imj.13535 · Cited by 10 · see citing works
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Sexual and reproductive complications and concerns of survivors of childhood, adolescent and adult cancer
Gerstl, B., Signorelli, C., Wakefield, C. E., Deans, R., Vaishnav, T., Johnston, K. A., Neville, K. A., Cohn, R. J., & Anazodo, A. C. (2023) · Journal of Cancer Survivorship · doi:10.1007/s11764-023-01349-6 · Cited by 10 · see citing works
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Occupational adjustments and work ability of young adult cancer survivors: results from the AYA-Leipzig study
Brock, H., Schröter, K., Friedrich, M., Sender, A., Richter, D., Mehnert, A., Geue, K., & Leuteritz, K. (2024) · Journal of Cancer Research and Clinical Oncology · doi:10.1007/s00432-024-06050-4 · Cited by 10 · see citing works
Patient communication and experiences in cancer clinical drug trials: a mixed-method study at a specialist clinical trials unit
Shepherd, R. F., Bradford, A., Lieschke, M., Shackleton, K., & Hyatt, A. (2023) · Trials · doi:10.1186/s13063-023-07284-2 · Cited by 10 · see citing works
The Avatar Acceptability Study: Survivor, Parent and Community Willingness to Use Patient-Derived Xenografts to Personalize Cancer Care
Wakefield, C. E., Doolan, E. L., Fardell, J. E., Signorelli, C., Quinn, V. F., Tucker, K., Patenaude, A. F., Marshall, G. M., Lock, R. B., Georgiou, G., et al. (2018) · EBioMedicine · doi:10.1016/j.ebiom.2018.10.060 · Cited by 10 · see citing works
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Facilitators and barriers to return to work and meet financial needs in parents of children with cancer
Hjelmstedt, S., Forinder, U., Montgomery, S., Norberg, A. L., & Hovén, E. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.29245 · Cited by 9 · see citing works
Reasons for non‐participation in a psychological intervention trial for distress in colorectal cancer survivors
Custers, J. A. E., Döking, S., van der Hoeven, Y. C. W., Thewes, B., Dekker, J., Braamse, A. M. J., & Prins, J. B. (2023) · Psycho-Oncology · doi:10.1002/pon.6100 · Cited by 9 · see citing works
The Impact of the Early COVID-19 Global Pandemic on Children Undergoing Active Cancer Treatment and Their Parents
Tran, A., Hou, S., Forbes, C., Cho, S., Forster, V. J., Stokoe, M., Wakefield, C. E., Wiener, L. S., Heathcote, L. C., Michel, G., et al. (2023) · Current Oncology · doi:10.3390/curroncol30020186 · Cited by 8 · see citing works
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Satisfaction with an Exercise Physiology Consultation After Treatment for Childhood Cancer
Mizrahi, D., Wakefield, C. E., Ha, L., Cohn, R. J., Simar, D., & Fardell, J. E. (2019) · Heart and Mind · doi:10.4103/hm.hm_47_19 · Cited by 8 · see citing works
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The Psychological Impact of Cancer (PIC) Scale: development and comparative psychometric testing against the Mini-MAC Scale in UK and Australian cancer survivors
Hulbert-Williams, N., Hulbert‐Williams, L., Whelen, L., & Mulcare, H. (2019) · Journal of Psychosocial Oncology Research and Practice · doi:10.1097/or9.0000000000000008 · Cited by 8 · see citing works
Exploring childhood cancer survivor, parent, healthcare and community professionals’ experiences of, and priorities for, using digital health to engage in physical activity: a mixed methods study
Ha, L., Nevin, S. M., Wakefield, C. E., Jacovou, J., Mizrahi, D., & Signorelli, C. (2024) · Journal of Cancer Survivorship · doi:10.1007/s11764-024-01560-z · Cited by 7 · see citing works
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‘Like ships in the night’: A qualitative investigation of the impact of childhood cancer on parents’ emotional and sexual intimacy
Chow, W. K., Hetherington, K., McGill, B. C., Sansom‐Daly, U. M., Daly, R., Miles, G. C. P., Cohn, R. J., & Wakefield, C. E. (2022) · Pediatric Blood & Cancer · doi:10.1002/pbc.30015 · Cited by 7 · see citing works
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Associations of daily partner responses with fatigue interference and relationship satisfaction in colorectal cancer patients.
Müller, F., Tuinman, M. A., Stephenson, E., Smink, A., DeLongis, A., & Hagedoorn, M. (2018) · Health Psychology · doi:10.1037/hea0000664 · Cited by 6 · see citing works
A Decision Aid for Nutrition Support is Acceptable in the Pediatric Hospital Setting
Buchhorn-White, J., Robertson, E. G., Wakefield, C. E., & Cohen, J. E. (2020) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.08.013 · Cited by 6 · see citing works
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Effects on patient-reported outcomes of “Screening of Distress and Referral Need” implemented in Dutch oncology practice
van Nuenen, F. M., Donofrio, S. M., Tuinman, M. A., van de Wiel, H. B. M., & Hoekstra‐Weebers, J. E. H. M. (2019) · Supportive Care in Cancer · doi:10.1007/s00520-019-05140-1 · Cited by 4 · see citing works
The feasibility and acceptability of collecting psychosocial outcome measures embedded within a precision medicine trial for childhood cancer
Robertson, E. G., Hetherington, K., Daly, R., Donoghoe, M. W., Handelsman, N., Ziegler, D. S., & Wakefield, C. E. (2024) · Cancer Medicine · doi:10.1002/cam4.7339 · Cited by 4 · see citing works
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Evaluating process and effectiveness of a low-intensity CBT intervention for women with gynaecological cancer (the EPELIT Trial)
Hulbert-Williams, N., Hulbert‐Williams, L., Flynn, R. J., Pendrous, R., MacDonald-Smith, C., Mullard, A. P., Swash, B., Evans, G., & Price, A. C. (2021) · AMRC Open Research · doi:10.12688/amrcopenres.12971.1 · Cited by 3 · see citing works
Poor diet quality and adverse eating behaviours in young survivors of childhood cancerPreprint
Fleming, C., Murphy‐Alford, A. J., Cohen, J. E., Fleming, M., Wakefield, C. E., & Naumann, F. (2021) · doi:10.22541/au.161107475.55687074/v1 · Cited by 2 · see citing works
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Health service and medication use of parents of childhood cancer survivors: a controlled comparison study
Hsu, J. O., Sansom‐Daly, U. M., Hetherington, K., Ellis, S. J., Donoghoe, M. W., Cohn, R. J., Tusie, A. Z., & Wakefield, C. E. (2021) · Acta Oncologica · doi:10.1080/0284186x.2021.1955968 · Cited by 1 · see citing works
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A two-institution pilot study on the psychological burden and distress of parents caring for children with shunted hydrocephalus
Knerlich‐Lukoschus, F., Cohrs, G., Mehdorn, H. M., Synowitz, M., Messing‐Jünger, M., & Goebel, S. (2024) · Journal of Neurosurgery Pediatrics · doi:10.3171/2024.8.peds2443 · Cited by 1 · see citing works
Whatever It Takes: Parents' Perspectives of Patient-Derived Xenograft Mouse Models for Poor Prognosis Childhood Cancer
Robertson, E. G., Hetherington, K., Hunter, J. D., McGillycuddy, M., Venkatesha, V., Lau, L. M. S., Khuong-Quang, D.-A., Ziegler, D. S., & Wakefield, C. E. (2025) · JCO Precision Oncology · doi:10.1200/po-24-00840 · Cited by 1 · see citing works
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Factors influencing participation rates in clinical late‐effect studies of childhood cancer survivors
Helligsoe, A. S. L., Henriksen, L. T., Kenborg, L., Dehlendorff, C., Winther, J. F., & Hasle, H. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.29098 · Cited by 1 · see citing works
Vaccine beliefs, adverse effects, and quality of life in patients with cancer undergoing routine COVID-19 vaccinationPreprint
Body, A. L., Donoghoe, M. W., Lal, L., Wakefield, C. E., Ahern, E. S., Anazodo, A. C., Fuentes-Bolanos, N., Padhye, B. D., Downie, P., Opat, S., et al. (2024) · medRxiv · doi:10.1101/2024.06.02.24308345 · Cited by 1 · see citing works
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The Physical Activity, Sedentary Behaviour, Functional Status, and Quality of Life of Colorectal Cancer patients within Six Months after Curative Treatment
Cabilan, C. J. (1905) · Queensland University of Technology · doi:10.5204/thesis.eprints.128073
Too stressed for tests? Challenges of diagnosing psychological distress in pediatric cancer patients and survivors
Schultz, K. R. (2019) · Pediatric Hematology and Oncology · doi:10.1080/08880018.2019.1632398
La búsqueda de asilo en el Reino Unido: las perspectivas de las lesbianas
Bennett, C. L., & Thomas, F. (2013) · RUA, Repositorio Institucional de la Universidad de Alicante (Universidad de Alicante)
How Many Patients Do We Need? Predictors of Consent to Participate in Clinical Research Studies in Orthopaedic Trauma
Wally, M. K., Seymour, R. B., Roomian, T. C., Churchill, C., Haines, N. M., Hsu, J. R., Bosse, M. J., Karunakar, M. A., & (EMIT), A. E.-B. M. I. &. T. C. (2023) · Journal of Orthopaedic Trauma · doi:10.1097/bot.0000000000002538
Fathers' Experience of Their Child's Paediatric Brain Tumour
Labrell, F., Hassler, C., Dufour, C., Grill, J., & Câmara‐Costa, H. (2024) · Cancer Reports · doi:10.1002/cnr2.70061
An intervention for Fear of Progression in Childhood Cancer Patients and their Parents: Results of a Pilot Randomized TrialPreprint
Herrmann, J., Kern, L., Santel, A., Kulisch, L. K., Hoffmann, R., Engelhardt-Lohrke, C., Herzog, K., Chen, C. I.-U., Christiansen, H., & Schepper, F. (2025) · Research Square · doi:10.21203/rs.3.rs-4501631/v3
An intervention for Fear of Progression in Childhood Cancer Patients and their Parents: Results of a Pilot Randomized TrialPreprint
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“I don’t think I even thought of myself” A mixed-methods study of family experiences of trio germline whole genome sequencing in newly diagnosed childhood cancer
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Authors: Wakefield, C. E., Fardell, J. E., Doolan, E. L., Aaronson, N. K., Jacobsen, P. B., Cohn, R. J., & King, M.
Affiliations: UNSW Sydney (AU)
The Netherlands Cancer Institute (NL)
Moffitt Cancer Center (US)
The University of Sydney (AU)
Corresponding author: Wakefield, Claire E
ORCID: Wakefield, Claire E
Fardell, Joanna E
Aaronson, Neil K
Jacobsen, Paul B
Cohn, Richard J
King, Madeleine
Venue: The Lancet Oncology
Publisher: Elsevier BV
Published: 2017-03
Volume: 18
Issue: 3
Pages: e153-e165
ISSN: 1470-2045 (ISSN-L)
DOI: 10.1016/s1470-2045(17)30100-6
OpenAlex: W2593891789
Cited by: 89
References: 79
Citations by year: 2026: 8 · 2025: 3 · 2024: 9 · 2023: 11 · 2022: 2 · 2021: 16 · 2020: 11 · 2019: 16 · 2018: 6 · 2017: 5 · 2013: 1
FWCI: 3.17
Type: journal article
Language: en
Open access: green
hdl.handle.net
Licence: cc-by-nc-nd
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
www.elsevier.com/legal/tdmrep-license (tdm)
Locations: The Lancet Oncology (publishedVersion)
PubMed (publishedVersion)
UvA-DARE (University of Amsterdam) (submittedVersion)
UNSWorks (University of New South Wales, Sydney, Australia) (submittedVersion, cc-by-nc-nd)
Data Archiving and Networked Services (DANS) (submittedVersion)
Topics: Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords: participant recruitment, study participation rates, psycho-oncology, quality of life, cancer patients, childhood cancer, nonresponse bias, reporting quality, research design, recruitment incentives
MeSH terms: Adult, Anxiety Disorders, Depressive Disorder, Humans, Neoplasms, Patient Participation, Quality of Life, Biomedical Research

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