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Helping caregivers of persons with dementia: which interventions work and how large are their effects?
Open accessAbstract
BACKGROUND: In recent years, many different forms of interventions for caregivers of people with dementia have been developed. However, their results have been, in part, inconclusive. METHODS: Meta-analysis was used to integrate the results of 127 intervention studies with dementia caregivers published or presented between 1982 and 2005. RESULTS: Interventions had, on average, significant but small effects on burden, depression, subjective well-being, ability/knowledge and symptoms of care recipient. Only multicomponent interventions reduced the risk for institutionalization. Psychoeducational interventions that require active participation of caregivers had the broadest effects. Effects of cognitive-behavioral therapy, support, counseling, daycare, training of care recipient, and multicomponent interventions were domain specific. The effect sizes varied by study characteristics, such as caregiver gender and year of publication. CONCLUSIONS: Because most interventions have domain-specific outcomes, clinicians must tailor interventions according to the specific needs of the individual caregivers. Although more recent interventions showed stronger effects, there is room for further improvements in interventions.
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“Interventions that require active participation of caregivers have the greatest effect.15”
From Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial (2013) · cites this paper as [15]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
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“Multi-component psychotherapeutic interventions, such as cognitive-behavioral therapy (CBT), have proven moderately effective in targeting caregiver distress and adaptive coping [17, 18].”
From Feasibility and acceptability of an acceptance and commitment therapy intervention for caregivers of adults with Alzheimer’s disease and related dementias (2021) · cites this paper as [18]
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“First, the existing research on dementia carers is still largely focused on treating depression and burden and this trend has not changed substantially since earlier systematic reviews (Gallagher-Thompson and Coon, 2007; Pinquart and Sörensen, 2006).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“This meta-analysis integrated the results of 127 carer intervention studies published between 1982 and 2005 and demonstrated that interventions had, on average, significant but small immediate effects on carer outcomes such as burden, depression, and QoL.”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
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“Second, QoL measures have been used more frequently in psychoeducation-skill building interventions compared to the early review (Pinquart and Sörensen, 2006).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
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“Third, the largest effect sizes were found for CBT based psychotherapeutic interventions, supporting previous findings (Elvish et al. , 2013; Pinquart and Sörensen, 2006).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
Experimental — accuracy not yet measuredThe source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
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“Thus, a limited number of sessions or lack of followup or booster sessions may be one of the principal causes for not finding positive outcomes after the treatment (Pinquart & Sörensen, 2006).”
From Pilot study of a psychotherapeutic intervention for reducing guilt feelings in highly distressed dementia family caregivers (Innovative practice). (2021) · cites this paper as Pinquart & Sörensen, 2006
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“Results demonstrated no significant effect on depression and QoL which contradict the findings from the previous review (Pinquart and Sörensen, 2006).”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
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“The main limitation of this study was the inclusion of both randomised and non-randomised trials and the authors have concluded that nonrandomised studies may have overestimated the efficacy of interventions.”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Pinquart and Sörensen, 2006
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Citations
Cites
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BackgroundDementia Caregiver Intervention Research
Schulz, R., O'Brien, A., Czaja, S. J., Ory, M. G., Norris, R., Martire, L. M., Belle, S. H., Burgio, L., Gitlin, L. N., Coon, D. W., et al. (2002) · The Gerontologist · doi:10.1093/geront/42.5.589 · Cited by 421
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“Previous meta-analyses reported inconsistent findings as to whether the study quality does (Acton and Kang, 2001) or does not (Brodaty et al., 2003) influence intervention effects.”
BackgroundResultInfluentialPsychosocial interventions for caregivers of people with dementia: A systematic review
Cooke, D. D., McNally, L., Mulligan, K., Harrison, M. J., & Newman, S. P. (2001) · Aging & Mental Health · doi:10.1080/713650019 · Cited by 277
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Cited by
Sorted by citations
Items 301–400 of 830
Assessing and helping carers of older people
Cameron, I. D., Aggar, C., Robinson, L. A., & Kurrle, S. E. (2011) · BMJ · doi:10.1136/bmj.d5202 · Cited by 27
Bartels, S. L., van Knippenberg, R. J. M., Köhler, S., Ponds, R. W., Myin-Germeys, I., Verhey, F. R. J., & de Vugt, M. E. (2020) · Aging & Mental Health · doi:10.1080/13607863.2019.1647130 · Cited by 25
“Pinquart and S€orensen (2006) observed that the effect-sizes of carer interventions are usually small and fewer significant effects appear at followup.”
BackgroundTranslational Research on Caregiving
Wethington, E., & Burgio, L. D. (2015) · Elsevier eBooks · doi:10.1016/b978-0-12-417046-9.00011-8 · Cited by 26
Houtven, C. H. V., Miller, K. E. M., O'Brien, E. C., Wolff, J. L., Lindquist, J. H., Kabat, M., Campbell-Kotler, M., Henius, J., & Voils, C. I. (2017) · Medical Care Research and Review · doi:10.1177/1077558717747985 · Cited by 26
“The CESD-10 has been used in many studies of caregivers, primarily in dementia caregivers, and appears sensitive to changes in caregiver depressive symptoms after intervention (Pinquart & Sörensen, 2006).”
Visa, B., & Harvey, C. A. (2018) · Health & Social Care in the Community · doi:10.1111/hsc.12689 · Cited by 26
“In addition, interventions that focus on sup‐ porting carers of people with other chronic illnesses such as can‐ cer and dementia have been found to be beneficial (Harding, List, Epiphaniou, & Jones, 2012; Martin‐Carrasco et al., 2009; Pinquart & Sorensen, 2006).”
BackgroundDavies, N., Hopwood, J., Walker, N., Ross, J., Iliffe, S., Walters, K. R., & Rait, G. (2019) · BMC Palliative Care · doi:10.1186/s12904-019-0455-0 · Cited by 26
Introducing case management for people with dementia in primary care: a mixed-methods study
Iliffe, S., Robinson, L. A., Bamford, C. H., Waugh, A., Fox, C., Livingston, G., Manthorpe, J., Brown, P., Stephens, B., Brittain, K., et al. (2014) · British Journal of General Practice · doi:10.3399/bjgp14x682333 · Cited by 26
Cognitive stimulation by caregivers for people with dementia
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Pihet, S., & Kipfer, S. (2018) · BMC Geriatrics · doi:10.1186/s12877-018-0896-y · Cited by 25
Wang, S., Bressington, D. T., Leung, A. Y. M., Davidson, P. M., & Cheung, D. S. K. (2020) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2020.103643 · Cited by 35
Chamine, I., Amen, A. M., Ellingson, R. M., & Oken, B. (2011) · International Psychogeriatrics · doi:10.1017/s1041610211001414 · Cited by 25
“…modest effect sizes on stress-related outcomes and also suggested there might be a room for improvement in the quality of interventions as well as in the quality of evaluations (Acton and Kang, 2001, Brodaty et al., 2003, Pinquart and Sorensen, 2006, Thompson et al., 2007, Smits et al., 2007).”
BackgroundQualidade de vida em cuidadores de idosos portadores de demência de Alzheimer
de Paula, J. D. A., Roque, F. P., & de Araújo, F. S. (2008) · Jornal Brasileiro de Psiquiatria · doi:10.1590/s0047-20852008000400011 · Cited by 25
Effect of Second-Generation Antipsychotics on Caregiver Burden in Alzheimer’s Disease
Mohamed, S., Rosenheck, R. A., Lyketsos, C. G., Kaczynski, R., Sultzer, D. L., & Schneider, L. S. S. (2011) · The Journal of Clinical Psychiatry · doi:10.4088/jcp.10m06574 · Cited by 26
The effect on caregiver burden of a problem-based home visiting programme for frail older people
Melis, R. J. F., van Eijken, M. I. J., van Achterberg, T., Teerenstra, S., Vernooij-Dassen, M. J. F. J., van de Lisdonk, E. H., & Rikkert, M. G. M. O. (2009) · Age and Ageing · doi:10.1093/ageing/afp101 · Cited by 25
“Many studies have evaluated the effect of interventions primarily aimed at caregivers [7–10].”
BackgroundRand, S. E., Malley, J., & Forder, J. (2018) · Health & Social Care in the Community · doi:10.1111/hsc.12634 · Cited by 25
Tele.TAnDem Increases the Psychosocial Resource Utilization of Dementia Caregivers
Töpfer, N. F., & Wilz, G. (2018) · GeroPsych · doi:10.1024/1662-9647/a000197 · Cited by 25
“Although the effect sizes were small, they are nevertheless noteworthy and consistent with the results of a meta-analysis of caregiver interventions (Pinquart & Sörensen, 2006).”
MethodResultCaregiver psychoeducation for schizophrenia: Is gender important?
McWilliams, S., Hill, S., Mannion, N., Kinsella, A., & O’Callaghan, E. (2007) · European Psychiatry · doi:10.1016/j.eurpsy.2006.10.009 · Cited by 25
“One meta-analysis showed female caregiver gender to influence effect size in studies of knowledge-based caregiver interventions for dementia [24].”
BackgroundEsezobor, C. I., Solarin, A. U., & Olagunju, A. T. (2020) · Canadian Journal of Kidney Health and Disease · doi:10.1177/2054358119898016 · Cited by 24
Hansen, N. H., Bjerrekær, L., Pallesen, K. J., Juul, L., & Fjorback, L. O. (2022) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2022.949066 · Cited by 30
“For instance, psychoeducational interventions are characterized by having a structured program toward providing information about the care-receivers’ disease and how to respond effectively to the illness-related problems, with support being secondary to the educational component (8, 17).”
BackgroundMethodResultInfluentialGranbo, R., Boulton, E., Saltvedt, I. T., Helbostad, J. L., & Taraldsen, K. (2019) · BMC Geriatrics · doi:10.1186/s12877-019-1090-6 · Cited by 24
Wiegelmann, H., Wolf‐Ostermann, K., Brannath, W., Arzideh, F., Dreyer, J., Thyrian, J. R., Schirra-Weirich, L., & Verhaert, L.-M. (2021) · BMC Health Services Research · doi:10.1186/s12913-021-06708-6 · Cited by 23
Losada, A., Márquez‐González, M., Romero‐Moreno, R., López, J., Fernández-Fernández, V., & Nogales‐González, C. (2015) · Clínica y Salud · doi:10.1016/j.clysa.2015.02.001 · Cited by 23
Vandepitte, S., Noortgate, N. V. D., Putman, K. D., Verhaeghe, S. T. L., & Annemans, L. (2016) · BMC Geriatrics · doi:10.1186/s12877-016-0373-4 · Cited by 23
Mårtensson, E., Blomberg, O., Pettman, D., Sörensdotter, R., von Essén, L., & Woodford, J. (2020) · BMJ Open · doi:10.1136/bmjopen-2019-036402 · Cited by 22
The Norwegian dementia plan 2015—‘making most of the good days’
Engedal, K. (2010) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2601 · Cited by 22
“Several educational programmes for carers have shown favourable results for patients and carers (Mittelman et al., 1993; Pinquart and Sorensen, 2006; Ulstein et al., 2007).”
Backgroundvan Knippenberg, R. J. M., de Vugt, M. E., Ponds, R., Myin‐Germeys, I., & Verhey, F. R. J. (2016) · BMC Psychiatry · doi:10.1186/s12888-016-0834-5 · Cited by 24
“Both are known to be important aspects of effective caregiver support interventions [14].”
BackgroundMethodDing, R., Dardas, A. Z., Wang, L., & Williams, A. (2020) · Journal of Occupational and Environmental Medicine · doi:10.1097/jom.0000000000001980 · Cited by 22
“Generally, carer interventions tend to produce modest but positive effects.(37,38) This is largely theorized to be the result of the multidimensional and complicated nature of carer burden.”
BackgroundDonath, C., Luttenberger, K., Graessel, E., Scheel, J., Pendergrass, A., & Behrndt, E.-M. (2019) · BMC Geriatrics · doi:10.1186/s12877-019-1207-y · Cited by 23
Graessel, E., Luttenberger, K., Bleich, S., Adabbo, R., & Donath, C. (2010) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2010.04.001 · Cited by 22
“The optimization of support includes the search for effective support methods (Pinquart and Sörensen, 2006; Gallagher-Thompson and Coon, 2007; Thompson et al., 2007), and for concepts to improve the quality of helpful services.”
MethodOlesen, L. K., la Cour, K., With, H., Mahoney, A., & Handberg, C. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-07986-4 · Cited by 22
“Our study also adds to the success of complimenting group-based peer support with psycho-educational interventions [50].”
BackgroundUnmet Service Needs: A Comparison Between Dementia and Non-Dementia Caregivers
Li, H. (2012) · Home Health Care Services Quarterly · doi:10.1080/01621424.2011.641921 · Cited by 20
“Studies have shown that interventions addressing the needs of both caregivers and care receivers are more effective than those with a narrower focus ( Schulz & Martire, 2004 ; Pinquart & Sorensen, 2006 ).”
BackgroundBerwig, M., Dichter, M., Albers, B., Wermke, K., Trutschel, D., Seismann-Petersen, S., & Halek, M. (2017) · BMC Health Services Research · doi:10.1186/s12913-017-2231-2 · Cited by 21
“70) for SWB in support groups but only measured in one single trial [6].”
BackgroundInfluentialThe effects of support groups on dementia caregivers: A mixed method study
Küçükgüçlü, Ö., Söylemez, B. A., Yener, G., & Işık, A. T. (2017) · Geriatric Nursing · doi:10.1016/j.gerinurse.2017.07.008 · Cited by 21
Nordheim, J., Häusler, A., Yaşar, S., Suhr, R., Kuhlmey, A., Rapp, M. A., & Gellert, P. R. (2019) · Journal of Alzheimer s Disease · doi:10.3233/jad-180812 · Cited by 22
Au, A. M. L., Lai, D. W. L., Biggs, S. G., Cheng, S., Haapala, I., Chow, A. Y. M., & Gallagher-Thompson, D. E. (2019) · Research on Social Work Practice · doi:10.1177/1049731519864165 · Cited by 24
“Psychosocial interventions for AD caregivers often involve the use of new technology such as smartphones (Gallagher- Thompson & Coon, 2007; Gallagher-Thompson et al., 2012; Pinquart & Sörensen, 2006).”
BackgroundGender differences in patient and caregiver psychoeducation for schizophrenia
Reichhart, T., Pitschel‐Walz, G., Kissling, W., Bäuml, J., Schuster, T., & Rummel‐Kluge, C. (2009) · European Psychiatry · doi:10.1016/j.eurpsy.2009.08.001 · Cited by 21
“For caregivers of individuals with schizophrenia or dementia, it has been reported that females gain significantly more knowledge during psychoeducational programs than males [30,38,55], while another study indicates no gender differences [10].”
BackgroundTeleconferencing as a Source of Social Support for Older Spousal Caregivers
Power, J. M., Wherton, J. P., Prendergast, D. K., & LAWLOR, B. A. (2012) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317512453491 · Cited by 21
“Multiple component approaches are preferable when providing support to vulnerable groups 8,18,19 and Mulli-gan and colleagues 32 listed 15 potential components.”
BackgroundThe impact of caregiving on quality of life in Parkinson's disease: A systematic review
Perepezko, K. M., Hinkle, J. T., Forbes, E. J., Pontone, G. M., Mills, K. A., & Gallo, J. J. (2023) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.5870 · Cited by 20
“Next, we followed a process that has been described in previous reviews to create a “summary of association” score for each theme.24–26 We determined if the association between the caregiver factor within each theme and PD QOL was significant and whether the factors were positively or negatively related to QOL.”
BackgroundInfluentialRibeiro, F. E. D. M., Moreno-Cámara, S., da-Silva-Domingues, H., Moral, P. Á. P., & Casado, R. D. P. (2024) · Healthcare · doi:10.3390/healthcare12151494 · Cited by 34
Preliminary Evidence for the Validity and Reliability of the Caregiver Reaction Scale
O'Malley, K., & Qualls, S. (2017) · Clinical Gerontologist · doi:10.1080/07317115.2016.1198858 · Cited by 20
“…of the CRS contain items commonly identified as part of the caregiver experience, have been recommended for inclusion in comprehensive assessments, and are responsive to intervention (see Belle et al., 2006; Family Caregiver Alliance, 2006; Mosquera et al., 2015; Pinquart & Sörensen, 2006).”
BackgroundLök, N., & Bademli̇, K. (2016) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2016.09.006 · Cited by 21
“Research suggests the need to develop and implement effective intervention strategies for this population (Jensen et al., 2015; Pinquar and Sörensen, 2006).”
BackgroundMethodIntervention Helps Family Caregivers of People With Dementia Attain Own Therapy Goals
Wilz, G., Weise, L., Reiter, C., Reder, M., Machmer, A., & Soellner, R. (2018) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317518769475 · Cited by 20
Characteristics of the skills of caregivers of people with dementia: observational study
Leocadie, M.-C., Morvillers, J., Pautex, S., & Rothan‐Tondeur, M. (2020) · BMC Family Practice · doi:10.1186/s12875-020-01218-6 · Cited by 23
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Resourcefulness Training for Dementia Caregivers
Zauszniewski, J. A., Lekhak, N., Burant, C. J., Underwood, P. W., & Morris, D. L. (2016) · Western Journal of Nursing Research · doi:10.1177/0193945916655798 · Cited by 20
“Active participation in an intervention has been found to decrease caregiver burden and depression, improve caregiver well-being, and decrease behavior problems in care recipients (Pinquart & Sorensen, 2006).”
BackgroundPreliminary Evidence for Effectiveness of Resourcefulness Training in Women Dementia Caregivers.
Zauszniewski, J. A., Lekhak, N., Burant, C. J., Variath, M., & Morris, D. L. (2016) · PubMed · Cited by 20
Positive Aspects of Caregiving Questionnaire
Abdollahpour, I., Nedjat, S., Noroozıan, M., Salimi, Y., & Majdzadeh, R. (2017) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/0891988716686831 · Cited by 20
“Similarly, former studies have reported some aspects of positive caregiving including dependency feeling, fulfillment, meaningful life, enhanced family relationship, and companionship along with satisfaction.(17,19,20,25) As evidence has consistently shown, reducing caregiver burden is not the only strategy for enhanc…”
BackgroundFamily Caregiving for Cognitively or Physically Frail Older Adults
Knight, B. G., & Losada, A. (2010) · Elsevier eBooks · doi:10.1016/b978-0-12-380882-0.00023-1 · Cited by 20
Passoni, S., Curinga, T., Toraldo, A., Berlingeri, M., Fernández, I., & Bottini, G. (2018) · Frontiers in Psychology · doi:10.3389/fpsyg.2018.00967 · Cited by 20
“…caregivers’ distress include pharmacotherapy and psychosocial interventions such as psychotherapy (cognitive-behavioral in focus, e.g., Passoni et al., 2014) and psycho-educational programs (Pinquart and Sorensen, 2006; Cooper et al., 2007; Gallagher-Thompson and Coon, 2007; Elvish et al., 2012).”
BackgroundShaw, C. A., Williams, K. N., Lee, R. H., & Coleman, C. (2020) · Research in Nursing & Health · doi:10.1002/nur.22076 · Cited by 20
A Customized Intervention for Dementia Caregivers: A Quasi-Experimental Design
Wawrziczny, É., Larochette, C., Papo, D., Constant, E., Ducharme, F., Kergoat, M., Pasquier, F., & Antoine, P. (2018) · Journal of Aging and Health · doi:10.1177/0898264318770056 · Cited by 20
Widening the net: exploring social determinants of burden of informal carers
Gresswell, I., Lally, L., Adamis, D., & McCarthy, G. M. (2017) · Irish Journal of Psychological Medicine · doi:10.1017/ipm.2017.36 · Cited by 19
“…(Black & Almeida, 2004), lack of social support (Gaugler et al. 2008), the level of self-efficacy of the carer (Gilliam & Steffen, 2006) as well as sociodemographic factors (Luchesi et al. 2016) including the age of the carer (Pinquart & Sörensen, 2006), gender and country (Prince et al. 2012).”
BackgroundGossink, F. T., Pijnenburg, Y. A. L., Scheltens, P., Pera, A., Kleverwal, R., Korten, N. C. M., Stek, M. L., Dröes, R., & Dols, A. (2018) · Psychogeriatrics · doi:10.1111/psyg.12351 · Cited by 23
Support groups for carers of a person with dementia who lives at home: A focused ethnographic study
Lauritzen, J., Bjerrum, M. B., Pedersen, P. U., & Sørensen, E. E. (2019) · Journal of Advanced Nursing · doi:10.1111/jan.14151 · Cited by 19
“All rights reserved. carers, with little evidence that carer interactions in support groups can alleviate stress and burden or increase carer well-being (Chu et al., 2011; Dam, de Vugt, Klinkenberg, Verhey, & van Boxtel, 2016; Pinquart & Sörensen, 2006).”
BackgroundBehavioural activation for family dementia caregivers: A systematic review and meta-analysis
Xu, X., Kwan, R. Y. C., & Leung, A. Y. M. (2020) · Geriatric Nursing · doi:10.1016/j.gerinurse.2020.02.003 · Cited by 19
Rutkowski, R. A., Ponnala, S., Younan, L., Weiler, D. T., Gilmore‐Bykovskyi, A. L., & Werner, N. E. (2020) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2020.104341 · Cited by 19
Intellectual disability and care during travel
Gillovic, B., McIntosh, A. J., Cockburn‐Wootten, C., & Darcy, S. (2023) · Annals of Tourism Research · doi:10.1016/j.annals.2023.103694 · Cited by 19
Beneficial Care Approaches in Specialized Daycare Units for Persons With Dementia
Gústafsdóttir, M. (2011) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317511402315 · Cited by 19
“Available community services are seen as valuable means of helping old people to continue living in their own homes despite varying degrees of disability, and to delay their need for residential care.(1) Daycare for the elderly has recently received increased attention both in public and in professional debate, as an…”
BackgroundProfessional discipline and support recommendations for family caregivers of persons with dementia
Gaugler, J. E., Westra, B. L., & Kane, R. L. (2016) · International Psychogeriatrics · doi:10.1017/s1041610215002318 · Cited by 19
“These intervention types broadly align with previous classifications of dementia caregiver interventions (Pinquart and Sörensen, 2006; Gitlin and Hodgson, 2015).”
BackgroundResultThe coping experiences of spouses of persons with dementia
Myhre, J., Tonga, J. B., Ulstein, I. D., Høye, S., & Kvaal, K. S. (2017) · Journal of Clinical Nursing · doi:10.1111/jocn.14047 · Cited by 19
Donath, C., Winkler, A., & Graessel, E. (2009) · International Psychogeriatrics · doi:10.1017/s1041610209009193 · Cited by 19
Leven, N. V., de Lange, J., Prick, A.-E. J. C., & Pot, A. M. (2016) · Dementia · doi:10.1177/1471301216662378 · Cited by 19
“Dementia reduces the quality of life of people with dementia and their informal caregivers (CGs) (Pinquart & Sorensen, 2006; von Kutzleben, Schmid, Halek, Holle, & Bartholomeyczik, 2012; Zwaanswijk, Peeters, van Beek, Meerveld, & Francke, 2013).”
Losada‐Baltar, A., González, M. M., Peñacoba, C., Gallagher-Thompson, D. E., & Knight, B. G. (2007) · Psicología conductual = behavioral psychology: Revista internacional de psicología clínica y de la salud · Cited by 19
Interventions Effective in Decreasing Burden in Caregivers of Persons with Dementia: A Meta-Analysis
Rodríguez-Alcázar, F. J., Juárez‐Vela, R., González, J. L. S., & Martín‐Vallejo, J. (2024) · Nursing Reports · doi:10.3390/nursrep14020071 · Cited by 24
“On the other hand, the presence of nurses is identified as a moderating variable that will help in future studies to detect other factors that influence the improvement in the results of the interventions.”
BackgroundZegwaard, M. I., Aartsen, M., Grypdonck, M. H. F., & Cuijpers, P. J. (2017) · BMC Psychiatry · doi:10.1186/s12888-017-1209-2 · Cited by 18
“Still the outcomes vary from significant effects on caregiver burden, well-being, and increased knowledge to no effects on depression or patient symptoms [17, 20] and limited effects on the risk of hospitalisation [21].”
BackgroundRosney, D. M., Noe, M. F., & Horvath, P. J. (2017) · Journal of Caring Sciences · doi:10.15171/jcs.2017.019 · Cited by 20
Information and support interventions for informal caregivers of people with dementia
Nelis, S. M., Quinn, C., & Clare, L. (2007) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006440 · Cited by 18
Harkin, D. J., O'Connor, C. M. C., Birch, M., & Poulos, C. J. (2020) · Health & Social Care in the Community · doi:10.1111/hsc.12916 · Cited by 17
“While there have been longstanding calls for improvement in the quality and evaluation of interventions targeting dementia dyads (Pinquart & Sörensen, 2006; Van't Leven et al., 2013; Zarit, Bangerter, Liu, & Rovine, 2017), recent review studies offer different conclusions on the effectiveness of…”
BackgroundCuidadores familiares de idosos com doença de Alzheimer em uma intervenção psicoeducacional
Lopes, L. D. O., & Cachioni, M. (2013) · Revista Brasileira de Geriatria e Gerontologia · doi:10.1590/s1809-98232013000300004 · Cited by 17
Zhang, N., Kaizar, E. E., Narad, M. E., Kurowski, B. G., Yeates, K. O., Taylor, H. G., & Wade, S. L. (2018) · Journal of Neurotrauma · doi:10.1089/neu.2018.5885 · Cited by 20
“The CES-D has been used successfully across wide age ranges,(30) and is sensitive to changes in depressive symptoms after intervention.(31)”
MethodGonzález–Fraile, E., Domínguez-Panchón, A. I., Berzosa-Grande, P., Costas-González, A. B., Jiménez, I. G., Rufino-Ventura, D., Aparicio, J. I. L., & Martı́n-Carrasco, M. (2019) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2019.103458 · Cited by 20
Wilz, G., & Fink-Heitz, M. G. (2008) · The Gerontologist · doi:10.1093/geront/48.1.115 · Cited by 17
“Pinquart and Sorensen (2006) concluded that effects of respite interventions on caregiver burden, depression, and subjective well-being were small but significant.”
BackgroundBEHAVIORAL AND PSYCHOSOCIAL INTERVENTIONS FOR FAMILY CAREGIVERS
Zarit, S. H., & Femia, E. E. (2008) · Journal of Social Work Education · doi:10.5175/jswe.2008.773247711 · Cited by 17
Akşin, O. Z., Bılgıç, B., Güner, P., Güneş, E. D., Kuşçu, K., Örmeci, E. L., Sayın, S., & Eser, H. Y. (2023) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2023.1208594 · Cited by 15
“In addition to the physical load in terms of hours of care provided, dementia caregivers experience the cognitive decline of loved ones, and this is a source of psychological distress for them (7).”
BackgroundBentley, T. G. K., Castillo, D., Sadeghi, N., Piber, D., Carroll, J., Olmstead, R. E., & Irwin, M. R. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-07619-w · Cited by 17
“Over 120 intervention trials have been conducted in AD caregivers, yet no prior study has targeted insomnia disorder in this population [2, 5, 19], even though insomnia can be effectively treated.”
BackgroundForstmeier, S. (2014) · Springer eBooks · doi:10.1007/978-3-642-54723-2_11 · Cited by 16
NHG-Standaard Dementie (derde herziening)+
van Charante, E. P. M., Perry, M., Vernooij-Dassen, M. J. F. J., Boswijk, D., Stoffels, J., Achthoven, L., & Luning-Koster, M. N. (2012) · Cited by 16
Lin, A. C., Vranceanu, A., Guanci, M. M., Salgueiro, D., Rosand, J. M., & Zale, E. L. (2019) · Neurocritical Care · doi:10.1007/s12028-019-00772-x · Cited by 16
Fields, N. L., Xu, L., Richardson, V., Parekh, R., Ivey, D. L., & Calhoun, M. (2019) · Dementia · doi:10.1177/1471301219871192 · Cited by 16
“…interventions for ADRD caregivers are structured programs and/or presentations about dementia, resources, and services (Gaugler & Burgio, 2016; Pinquart & S€orensen, 2006) that are professionally delivered in individual or group-based formats (Beinart, Weinman, Wade, & Brady, 2012; Hepburn,…”
BackgroundBjørge, H., Kvaal, K. S., & Ulstein, I. D. (2019) · BMC Health Services Research · doi:10.1186/s12913-019-4551-x · Cited by 17
“Multicomponent interventions that include the person with dementia seem to be the most beneficial [25, 27–31] and may reduce the risk of early institutionalization [27].”
BackgroundTeles, S., Ferreira, A., & Paúl, C. (2020) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2020.104289 · Cited by 18
Psychosocial Effects of COVID-19 Measures on (Pre-)Dementia Patients During Second Lockdown
Bakker, E. D., van Maurik, I. S., Mank, A., Zwan, M. D., Waterink, L., van den Buuse, S., van den Broeke, J. R., Gillissen, F., van de Beek, M., Lemstra, E., et al. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-215342 · Cited by 16
“Previous studies show that well organized health care and support systems, like day care and case management, are essential to keep behavioral symptoms at minimum and decrease caregiver burden [28–30].”
Optimizing Patient and Family Involvement in Geriatric Home Care
Wolff, J. L., ROTER, D. L., Given, B. A., & Gitlin, L. N. (2009) · Journal for Healthcare Quality · doi:10.1111/j.1945-1474.2009.00016.x · Cited by 17
“Family caregivers’ perceived preparedness to provide health-related assistance appears to be amenable to improvement through interventions (Pinquart & Sorensen, 2006; Sorensen et al., 2002).”
BackgroundBoots, L. M. M., de Vugt, M. E., Kempen, G. I. J. M., & Verhey, F. R. J. (2016) · Trials · doi:10.1186/s13063-016-1351-z · Cited by 18
“The CES-D is sensitive to changes in caregiver depressive symptoms after intervention [37].”
BackgroundGhatak, R. (2011) · Clinical Gerontologist · doi:10.1080/07317115.2011.539512 · Cited by 16
“As these diseases progress, numerous studies have shown that dementia of any type carries with it a number of physical and psychological burdens on the family members providing the care (Pinquart & Sorensen, 2003; Pinquart & Sorensen, 2006a; Pinquart & Sorensen, 2007).”
Reducing Dementia Grief Through Psychosocial Interventions
Rupp, L., Seidel, K., Penger, S., & Haberstroh, J. (2023) · European Psychologist · doi:10.1027/1016-9040/a000501 · Cited by 21
Ducharme, F. (2014) · Advances in Geriatrics · doi:10.1155/2014/316203 · Cited by 15
“Intervention programs have been designed primarily for persons with extensive caregiving experience and, as previously mentioned, the effects of these programs on QoL are quite modest [15].”
BackgroundBailey, J., Kingston, P., Alford, S., Taylor, L., & Tolhurst, E. (2016) · Dementia · doi:10.1177/1471301215626851 · Cited by 15
Fernández‐Calvo, B., Contador, I., Campos, F. R., Carvalho, V. Â. M. D. L. E., da Silva, J. C., & Alves, N. T. (2016) · Estudos de Psicologia (Natal) · doi:10.5935/1678-4669.20160013 · Cited by 16
“Pinquart and Sörensen (2006) conducted a metaanalysis in which they showed that the interventions mentioned above were effective.”
MethodBustillo, M. L., Gómez, M. L. N., & Guillén, A. I. (2018) · Clínica y Salud · doi:10.5093/clysa2018a13 · Cited by 18
Mittelman, M. S. (2012) · Caregiving · doi:10.1007/978-1-4614-5335-2_2 · Cited by 16
González, F. L. V., Otero, P., María, L., Blanco, V., & Ángela, T. (2010) · Clínica y Salud · doi:10.5093/cl2010v21n1a6 · Cited by 15
Saks, K., Tiit, E., Verbeek, H., Raamat, K., Armolik, A., Leibur, J., Meyer, G., Zabalegui, A., Leino‐Kilpi, H., Karlsson, S., et al. (2014) · Journal of Advanced Nursing · doi:10.1111/jan.12544 · Cited by 16
Rodríguez-Gonzalo, A., García-Martí, C., Ocaña-Colorado, A., de Micheo, M. J. B., & Morel-Fernández, S. (2015) · BMC Nursing · doi:10.1186/s12912-015-0055-0 · Cited by 15
Dahlrup, B., Nordell, E., Elmståhl, S., & Andrén, S. (2010) · Clinical Interventions in Aging · doi:10.2147/cia.s14237 · Cited by 15
van den Dungen, P., van Charante, E. P. M., van de Ven, P. M., van Marwijk, H., van der Horst, H. E., & van Hout, H. P. J. (2016) · PLoS ONE · doi:10.1371/journal.pone.0156958 · Cited by 17
“Moreover, despite the lack of a cure for dementia, persons with dementia and their caregivers may benefit from several interventions: psychoeducation has positive short- and long-term effects on the wellbeing of both [29].”
BackgroundGalvin, J. E., Tolea, M. I., George, N. R., & Wingbermuehle, C. (2014) · Clinical Interventions in Aging · doi:10.2147/cia.s60838 · Cited by 15
Mindfulness-based stress reduction for family carers of people with dementia
Liu, Z., Sun, Y., & Zhong, B. (2017) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd012791 · Cited by 15
Risch, A. K., Lechner-Meichsner, F., & Wilz, G. (2025) · Clinical Gerontologist · doi:10.1080/07317115.2024.2393307 · Cited by 14
Mårtensson, E., Coumoundouros, C., Sörensdotter, R., von Essén, L., & Woodford, J. (2022) · Journal of Affective Disorders · doi:10.1016/j.jad.2022.09.093 · Cited by 19
“Interventions including ‘passive ’ psychoeducation (e.g. information via leaflets, e-mails or websites) or education about depression or intervention content were not deemed multicomponent (Donker et al., 2009; Pinquart and S ¨ orensen, 2006).”
Metadata
- Authors
- Pinquart, M., & Sorensen, S.
- Affiliations
- Friedrich Schiller University Jena (DE)
- ORCID
- Pinquart, Martin
- Venue
- International Psychogeriatrics
- Publisher
- Elsevier BV
- Published
- 2006-12
- Volume
- 18
- Issue
- 4
- Pages
- 577-595
- ISSN
- 1041-6102 (ISSN-L)
- OpenAlex
- W2156427212
- Semantic Scholar
- dc598aa805fe13c96759fc70022c5cc76107f5b3
- Cited by
- 827
- References
- 26
- Citations by year
- 2026: 9 · 2025: 19 · 2024: 33 · 2023: 34 · 2022: 40 · 2021: 29 · 2020: 62 · 2019: 58 · 2018: 54 · 2017: 62 · 2016: 76 · 2015: 55 · 2014: 62 · 2013: 46 · 2012: 38
- FWCI
- 16.61
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Psychogeriatrics (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Funders
- National Institute on Aging (K01AG022072)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia caregivers, caregiver interventions, caregiver burden, caregiver depression, subjective well-being, multicomponent intervention, psychoeducational intervention, cognitive behavioral therapy, institutionalization risk, caregiver education, caregiver support
- MeSH terms
- Aged, Aged, 80 and over, Alzheimer Disease, Combined Modality Therapy, Counseling, Depression, Female, Humans, Institutionalization, Male, Middle Aged, Outcome and Process Assessment, Health Care, Quality of Life, Respite Care, Social Support, Cognitive Behavioral Therapy, Caregivers, Cost of Illness, Case Management
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