Cited by 1,541Mental Health and Patient InvolvementMedical Practices and RehabilitationPsychiatric care and mental health services

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Recovery: the lived experience of rehabilitation

Deegan, Patricia E.·1988·Psychosocial Rehabilitation Journal

DOI 10.1037/h0099565

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Management of persons with co-occurring severe mental illness and substance use disorder: program implications.
Drake, R. E., Mueser, K. T., & Brunette, M. F. (2007) · PubMed Central · Cited by 108
Recovering from Illness or Recovering your Life? Implications of Clinical Versus Social Models of Recovery from Mental Health Problems for Employment Support Services
Secker, J., Membrey, H., Grove, B., & Seebohm, P. (2002) · Disability & Society · doi:10.1080/09687590220140340 · Cited by 108
The relationship between clinical and recovery dimensions of outcome in mental health
Macpherson, R., Pesola, F., Leamy, M. C., Bird, V., Boutillier, C. L., Williams, J., & Slade, M. (2015) · Schizophrenia Research · doi:10.1016/j.schres.2015.10.031 · Cited by 115
“Dealing with stigma (Deegan, 1988) and the development of selfconfidence and hope (Corrigan andWatson, 2006) are critical elements of the process.”
Socioeconomic Stratification and Mental Disorder
Eaton, W. W., Muntaner, C., & Sapag, J. C. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.016 · Cited by 109
Facilitators and barriers in dual recovery: a literature review of first-person perspectives
Ness, O., Borg, M., & Davidson, L. (2014) · Advances in Dual Diagnosis · doi:10.1108/add-02-2014-0007 · Cited by 118
“For example, if a person asks for medication, the person needs to make an informed decision that leads to the best treatment outcomes (Drake and Deegan, 2009; Deegan et al., 2008). As Drake and Deegan (2009) claims: “The decision to risk metabolic syndrome, tardive dyskinesia, or reduced sex drive in exchange for symp…”
BackgroundMethod
Rethinking Disability and What To Do About It: Disability Studies and Its Implications for Occupational Therapy
Kielhofner, G. (2005) · American Journal of Occupational Therapy · doi:10.5014/ajot.59.5.487 · Cited by 107
“Disability scholars underscore that achieving a positive life as a disabled person has little to do with living a life that is normative or dictated by one particular set of values (Deegan, 1991).”
Oil and Water or Oil and Vinegar? Evidence-Based Medicine Meets Recovery
Davidson, L., Drake, R. E., Schmutte, T. J., Dinzeo, T. J., & Andrés-Hyman, R. C. (2009) · Community Mental Health Journal · doi:10.1007/s10597-009-9228-1 · Cited by 114
The Development of Recovery Competencies for In-patient Mental Health Providers Working with People with Serious Mental Illness
Chen, S., Krupa, T. M., Lysaght, R. M., McCay, E. A., & Piat, M. (2011) · Administration and Policy in Mental Health and Mental Health Services Research · doi:10.1007/s10488-011-0380-x · Cited by 114
“A person in recovery is viewed as increasingly developing control, self-management, personal responsibility, capacity to change, quality of life, productivity, meaningful engagement, and support networks (Corrigan et al. 1999; Davidson et al. 2005; Deegan 1988; Jacobson 2001; Liberman et al. 2002; Mead and Copeland 20…”
Background
Conceptualising Recovery in Mental Health Rehabilitation
Lloyd, C., Waghorn, G., & Williams, P. L. (2008) · British Journal of Occupational Therapy · doi:10.1177/030802260807100804 · Cited by 105
“Deegan (1988) defined recovery as both a process and an outcome:”
Improving Acute Psychiatric Hospital Services According to Inpatient Experiences. A User-Led Piece of Research as a Means to Empowerment
Walsh, J., & Boyle, J. (2009) · Issues in Mental Health Nursing · doi:10.1080/01612840802500733 · Cited by 131
The journey of recovery and empowerment embraced by nature — clients’ perspectives on nature-based rehabilitation in relation to the role of the natural environment
Pálsdóttir, A., Persson, D., Persson, B., & Grahn, P. (2014) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph110707094 · Cited by 104
“Recovery is regarded as highly individual and unique process [20,21].”
Background
A Randomized Controlled Trial of the Effectiveness of a Modified Recovery Workbook Program: Preliminary Findings
Barbic, S. P., Krupa, T. M., & Armstrong, I. T. (2009) · Psychiatric Services · doi:10.1176/appi.ps.60.4.491 · Cited by 103
“, who defined it as the ways in which people with mental illness develop new meaning and purpose in life beyond the challenges posed by the illness (1).”
Background
Recovery as perceived by people with schizophrenia, family members and health professionals: A grounded theory
Noiseux, S., & Ricard, N. (2007) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2007.07.008 · Cited by 109
Consumer-Run Service Participation, Recovery of Social Functioning, and the Mediating Role of Psychological Factors
Yanos, P. T., Primavera, L. H., & Knight, E. L. (2001) · Psychiatric Services · doi:10.1176/appi.ps.52.4.493 · Cited by 104
Shared decision-making interventions for people with mental health conditions
Aoki, Y., Yaju, Y., Utsumi, T., Sanyaolu, L. N., Storm, M., Takaesu, Y., Watanabe, K., Watanabe, N., Duncan, E., & Edwards, A. (2022) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd007297.pub3 · Cited by 114
How should we measure addiction recovery? Analysis of service provider perspectives using online Delphi groups
Neale, J., Finch, E., Marsden, J., Mitcheson, L., Rose, D. S., Strang, J., Tompkins, C. N. E., Wheeler, C., & Wykes, T. (2014) · Drugs Education Prevention and Policy · doi:10.3109/09687637.2014.918089 · Cited by 101
Working on the edge: the meaning of work for people recovering from severe mental distress in Norway
Borg, M., & Kristiansen, K. (2008) · Disability & Society · doi:10.1080/09687590802177072 · Cited by 100
“Particularly, the importance of active agency and shaping one’s own life typically receives little more than a token place in the world of formalised help services (Deegan 1988; Boevink 2006; Borg and Kristiansen 2004; Roets et al. 2007).”
Background
Illness ManageMent and RecoveRy
Gingerich, S. L., & Mueser, K. T. (2005) · Cited by 100
The impact of mental health recovery narratives on recipients experiencing mental health problems: Qualitative analysis and change model
Rennick‐Egglestone, S., Ramsay, A., McGranahan, R., Llewellyn‐Beardsley, J., Hui, A., Pollock, K., Repper, J., Yeo, C. F., Ng, F., Roe, J., et al. (2019) · PLoS ONE · doi:10.1371/journal.pone.0226201 · Cited by 99
“Receiving a recovery narrative with elements that resonate with personal experience can provide personal inspiration [30], increase empathy and understanding [37], validate difficult personal experiences [38], or provide alternative forms of companionship at times of social isolation [39].”
Background
The feasibility and acceptability of a brief Acceptance and Commitment Therapy (ACT) group intervention for people with psychosis: The ‘ACT for Life’ study
Johns, L. C., Oliver, J. E., Khondoker, M., Byrne, M., Jolley, S., Wykes, T., Joseph, C., Butler, L., Craig, T., & Morris, E. M. J. (2016) · Journal of Behavior Therapy and Experimental Psychiatry · doi:10.1016/j.jbtep.2015.10.001 · Cited by 97
“…of recovery from severe mental illness (de ﬁ ned as “ living a satisfying, hopeful and contributing life even with limitations caused by the illness ” , Anthony, 1993; and “ having a sense of purpose and direction ” , Deegan, 1988), and therefore well-suited for people with psychosis.”
Background
Recovery: A common vision for the fields of mental health and addictions.
Gagne, C., White, W. L., & Anthony, W. A. (2007) · Psychiatric Rehabilitation Journal · doi:10.2975/31.1.2007.32.37 · Cited by 98
Managing the contradictions : Recovery from severe mental disorders
Topor, A. (2001) · DiVA (Stockholm University) · Cited by 96
A New Normal: Integrating Lived Experience Into Scientific Data Syntheses
Beames, J. R., Kikas, K., O'Gradey-Lee, M., Gale, N., Werner-Seidler, A., Boydell, K. M., & Hudson, J. L. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.763005 · Cited by 99
Developing the evidence base for peer-led services: Changes among participants following Wellness Recovery Action Planning (WRAP) education in two statewide initiatives.
Cook, J. Α., Copeland, M. E., Corey, L. J., Buffington, E., Jonikas, J. A., Curtis, L. C., Grey, D. D., & Nichols, W. H. (2010) · Psychiatric Rehabilitation Journal · doi:10.2975/34.2.2010.113.120 · Cited by 96
Recovery in England: Transforming statutory services?
Perkins, R. E., & Slade, M. (2012) · International Review of Psychiatry · doi:10.3109/09540261.2011.645025 · Cited by 110
“They experience themselves as recovering a new sense of self and of purpose within and beyond the limits of the disability ’ (Deegan, 1988, p. 11).”
BackgroundMethod
The recovery vision for mental health services and research: A British perspective.
Turner-Crowson, J., & Wallcraft, J. (2002) · Psychiatric Rehabilitation Journal · doi:10.1037/h0095018 · Cited by 95
Reliability and validity of the Japanese version of the Recovery Assessment Scale (RAS) for people with chronic mental illness: scale development
Chiba, R., Miyamoto, Y., & Kawakami, N. (2010) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2009.07.006 · Cited by 97
“Mental health recovery is a concept that emerged in the 1980s through published accounts of the struggles of people with severe and chronic mental illness and their journeys to rebuild their lives (Deegan, 1988; Lovejoy, 1982).”
Background
A phenomenological study of occupational engagement in recovery from mental illness
Sutton, D. J., Hocking, C. S., & Smythe, L. A. (2012) · Canadian Journal of Occupational Therapy · doi:10.2182/cjot.2012.79.3.3 · Cited by 95
“The process may involve great anguish and a search for meaning, but it can also lead to self-discovery, self-renewal, and transformation (Deegan, 1988).”
Background
Recovery Principles and Evidence-Based Practice: Essential Ingredients of Service Improvement
Torrey, W., Rapp, C., Tosh, L. V., McNabb, C. A., & Ralph, R. O. (2005) · Community mental health journal · doi:10.1007/s10597-005-2608-2 · Cited by 79
“While there are no universally recognized definitions of recovery, for the purpose of this paper, the following from Patricia Deegan (1988) will be used: ‘‘Recovery is a process, a way of life, an attitude, and a way of approaching the day’s challenges.”
Method
The Lost Social Context of Recovery Psychiatrization of a Social Process
Topor, A., Bøe, T. D., & Larsen, I. B. (2022) · Frontiers in Sociology · doi:10.3389/fsoc.2022.832201 · Cited by 109
“About the person’s development of different ways to deal with their environment, their families, friends, professionals, and the vicissitudes of everyday life and of what was and often still are considered as symptoms (Deegan, 1988; Romme and Escher, 1989; Davidson et al., 2006; Topor et al., 2016b).”
Background
Complete mental health recovery: bridging mental illness with positive mental health
Provencher, H. L., & Keyes, C. L. M. (2011) · Journal of Public Mental Health · doi:10.1108/17465721111134556 · Cited by 110
From “Double Trouble” to “Dual Recovery”: Integrating Models of Recovery in Addiction and Mental Health
Davidson, L., Andrés-Hyman, R. C., Bedregal, L. E., Tondora, J., Frey, J., & Kirk, T. A. (2008) · Journal of Dual Diagnosis · doi:10.1080/15504260802072396 · Cited by 103
“With the dawning of the contemporary “recovery movement” in both mental health and addiction over the preceding decade (Anthony, 1993; Deegan, 1988a, 1988b, 1992; Jacobson & Curtis, 2000; Jacobson & Greenley, 2001; White, 2005; White, Boyle, & Loveland, 2004),these views began shifting considerably.”
Background
“You've got to have a positive state of mind”: An interpretative phenomenological analysis of hope and first episode psychosis
Perry, B. M., Taylor, D., & Shaw, S. (2007) · Journal of Mental Health · doi:10.1080/09638230701496360 · Cited by 93
“The need for hope dominates service users’ accounts of their recovery from mental health difficulties (Deegan, 1988; Leete, 1989; Tooth, 1997; Weingarten, 1994b).”
BackgroundInfluential
Recovery Vision as a Service Improvement Guide for Community Mental Health Center Providers
Torrey, W. C., & Wyzik, P. F. (2000) · Community Mental Health Journal · doi:10.1023/a:1001802612944 · Cited by 93
What does recovery mean for me? Perspectives of Canadian mental health consumers
Piat, M., Sabetti, J., Couture, A., Sylvestre, J., Provencher, H., Botschner, J., & Stayner, D. (2009) · Psychiatric Rehabilitation Journal · doi:10.2975/32.3.2009.199.207 · Cited by 92
Development of a framework for recovery in older people with mental disorder
Daley, S., Newton, D., Slade, M., Murray, J., & Banerjee, S. (2013) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.3855 · Cited by 92
“Support was derived from existing long-term relationships as opposed to peer support from others with lived experience of mental illness, representing a significant difference in the sources and utilisation of support by older people compared with working age adults (Leete, 1989; Deegan, 1996; Repper and Carter, 2010).”
Result
Moving forward: negotiating self and external circumstances in recovery
Ochocka, J., Nelson, G., & Janzen, R. (2005) · Psychiatric Rehabilitation Journal · doi:10.2975/28.2005.315.322 · Cited by 92
Adjusting the focus of mental health nursing: Incorporating service users' experiences of recovery
Repper, J. (2000) · Journal of Mental Health · doi:10.1080/jmh.9.6.575.587 · Cited by 94
The lived experience of art making as a companion to the mental health recovery process
Lith, T. V., Fenner, P., & Schofield, M. J. (2010) · Disability and Rehabilitation · doi:10.3109/09638288.2010.505998 · Cited by 122
“As consumer-activist Deegan [7,8] asserts, it involved acknowledging and confronting issues that had previously been denied or ignored.”
Background
Engagement and retention in services among formerly homeless adults with co-occurring mental illness and substance abuse: Voices from the margins.
Padgett, D. K., Henwood, B. F., Abrams, C. B., & Davis, A. C. (2008) · Psychiatric Rehabilitation Journal · doi:10.2975/31.3.2008.226.233 · Cited by 88
The Personal Meaning of Recovery Among Individuals Treated for a First Episode of Psychosis
Windell, D., Norman, R. M. G., & MALLA, A. K. (2012) · Psychiatric Services · doi:10.1176/appi.ps.201100424 · Cited by 98
“In contrast to the consumer literature, which asserts that recovery from serious mental illness does not require remission of symptoms or other deficits (39), only three (10%) of our participants explicitly indicated that elimination of psychotic symptoms was not required for recovery.”
Emotional stages: Consumers and family members recovering from the trauma of mental illness.
Baxter, E. A., & Diehl, S. M. (1998) · Psychiatric Rehabilitation Journal · doi:10.1037/h0095289 · Cited by 94
‘To be treated as a human’: Using co‐production to explore experts by experience involvement in mental health nursing education – The COMMUNE project
Horgan, A. M., Manning, F., Bocking, J., Happell, B., Lahti, M., Doody, R., Griffin, M., Bradley, S. K., Russell, S., Bjornsson, E., et al. (2018) · International Journal of Mental Health Nursing · doi:10.1111/inm.12435 · Cited by 88
“Deegan (1988) describes the role of hope among service users as a ‘matter of life and death’ Similarly, participants in this research sought an individual approach from nurses which fostered hope and capitalized on their abilities and potential as opposed to narrowly focusing on their limitations.”
Background
Beyond the service paradigm: The impact and implications of consumer/survivor initiatives.
Trainor, J. N., Shepherd, M., Boydell, K., Leff, A., & Crawford, E. S. (1997) · Psychiatric Rehabilitation Journal · doi:10.1037/h0095328 · Cited by 88
A Little Goes a Long Way: The Impact of Distal Social Support on Community Integration and Recovery of Individuals with Psychiatric Disabilities
Townley, G., Miller, H. “., & Kloos, B. (2013) · American Journal of Community Psychology · doi:10.1007/s10464-013-9578-2 · Cited by 87
“Recovery is a dynamic process that encompasses holistic, consumer-based principles of wellbeing, adaptive functioning, hope, autonomy, purpose, and transcending one’s limitations (Deegan 1988).”
Background
Strengths-based approach for mental health recovery.
Xie, H. (2013) · Europe PMC (PubMed Central) · Cited by 85
Supported Education for Adults with Psychiatric Disabilities: An Innovation for Social Work and Psychosocial Rehabilitation Practice
Mowbray, C. T., Collins, M. E., Bellamy, C. D., Megivern, D., Bybee, D., & Szilvagyi, S. (2005) · Social Work · doi:10.1093/sw/50.1.7 · Cited by 86
Lessons learned in developing community mental health care in North America
Drake, R. E., & Latimer, E. A. (2012) · World Psychiatry · doi:10.1016/j.wpsyc.2012.01.007 · Cited by 84
“One seminal paper described recovery as “the lived experience of rehabilitation” (22).”
Background
Place First, Then Train: An Alternative to the Medical Model of Psychiatric Rehabilitation
Corrigan, P. W., & McCracken, S. G. (2005) · Social Work · doi:10.1093/sw/50.1.31 · Cited by 84
Recovery: what mental health nurses and service users say about the concept of recovery
Aston, V., & Coffey, M. (2011) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2011.01776.x · Cited by 88
Recovery from Borderline Personality Disorder: A Systematic Review of the Perspectives of Consumers, Clinicians, Family and Carers
Ng, F., Bourke, M. E., & Grenyer, B. F. S. (2016) · PLoS ONE · doi:10.1371/journal.pone.0160515 · Cited by 96
“This is a unique finding as previous research examining recovery in other mental illnesses has readily used the term to describe the consumer experience[61, 62].”
Result
Coping with hallucinated voices in schizophrenia: A review of self-initiated strategies and therapeutic interventions
Farhall, J., Greenwood, K. M., & Jackson, H. J. (2007) · Clinical Psychology Review · doi:10.1016/j.cpr.2006.12.002 · Cited by 118
The recovery model and anorexia nervosa
Dawson, L., Rhodes, P., & Touyz, S. (2014) · Australian & New Zealand Journal of Psychiatry · doi:10.1177/0004867414539398 · Cited by 81
“In particular, personal accounts of recovery, that emphasised hope and empowerment, began to be published by sufferers themselves (e.g. Deegan, 1988).”
Background
What Do Service Users with Bipolar Disorder Want from a Web‐Based Self‐Management Intervention? A Qualitative Focus Group Study
Todd, N. J., Jones, S. H., & Lobban, F. A. (2013) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.1804 · Cited by 73
Meaning in life, insight and self-stigma among people with severe mental illness
Ehrlich-Ben Or, S., Hasson-Ohayon, I., Feingold, D., Vahab, K., Amiaz, R., Weiser, M., & Lysaker, P. H. (2013) · Comprehensive Psychiatry · doi:10.1016/j.comppsych.2012.07.011 · Cited by 81
“Recapturing the sense that one's life has meaning has been described as an essential element in the process of recovery from severe mental illness (SMI) [1-3].”
Background
One size fits all: or horses for courses? Recovery-based care in specialist mental health services
Turton, P., Demetriou, A., Boland, W., Gillard, S., Kavuma, M., Mezey, G., Mountford, V. A., Turner, K. J., White, S. J., Zadeh, E., et al. (2009) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-009-0174-6 · Cited by 79
“The ‘recovery approach’ [1, 2, 13, 31] to the management of severe mental health problems originated with the Mental Health Consumer/Survivor Movement [11] but is now recognised as a service-user led approach that has become a guiding vision of service provision amongst many practitioners, researchers, and policy make…”
Background
Mental health recovery: A review of the peer-reviewed published literature
Jacob, S., Munro, I., Taylor, B. J., & Griffiths, D. (2015) · Collegian Journal of the Royal College of Nursing Australia · doi:10.1016/j.colegn.2015.08.001 · Cited by 77
“Mental health recovery has been defined by service providers and consumers in various ways (Anthony, 1993; Davidson, 2003; Deegan, 1988; Lloyd, Waghorn, & Williams, 2008; Piat et al., 2009; Ridgeway, 2001; Schrank & Slade, 2007; Slade, 2009; Slade, Amering, & Oades, 2008).”
Background
Strategies that foster empowerment
Dickerson, F. (1998) · Cognitive and Behavioral Practice · doi:10.1016/s1077-7229(98)80010-2 · Cited by 78
The Tidal Commitments: extending the value base of mental health recovery
Buchanan‐Barker, P., & Barker, P. (2008) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/j.1365-2850.2007.01209.x · Cited by 87
Client-Centred Care Means that I am a Valued Human Being
Corring, D., & Cook, J. V. (1999) · Canadian Journal of Occupational Therapy · doi:10.1177/000841749906600203 · Cited by 78
Mental Illness and the Criminal Justice System
Hiday, V. A., & Burns, P. J. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.029 · Cited by 79
The Importance of Hope in Coping with Severe Acquired Disability
Dorsett, P. (2010) · Australian Social Work · doi:10.1080/03124070903464293 · Cited by 77
“(Deegan, 1988; Farran et al., 1995) Palliative care Knowing that one is dying but hoping to live are not incompatible.”
Background
The Role of Self–efficacy in Recovery from Serious Psychiatric Disabilities: A Qualitative Study with Fifteen Psychiatric Survivors
Mancini, M. A. (2007) · Qualitative Social Work · doi:10.1177/1473325007074166 · Cited by 84
“…with serious psychiatric disabilities such as schizophrenia are able to recover and live satisfying and productive lives in the community (Anthony, 1993; Anthony et al., 2002; Deegan, 1988; deGirolamo, 1996; Harding et al., 1987a,b; US Department of Health and Human Services [USDHHS], 1999).”
BackgroundResultInfluential
The stigma of identifying as having a lived experience runs before me: challenges for lived experience roles
Byrne, L., Roper, C., Happell, B., & Reid‐Searl, K. (2016) · Journal of Mental Health · doi:10.1080/09638237.2016.1244715 · Cited by 77
Hope, quality of life, and symptom severity in individuals with schizophrenia.
Landeen, J., Pawlick, J., Woodside, H., Kirkpatrick, H., & Byrne, C. (2000) · Psychiatric Rehabilitation Journal · doi:10.1037/h0095142 · Cited by 77
Psychological Approaches to Mental Illness
Peterson, C. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.008 · Cited by 77
Religious Coping Styles and Recovery from Serious Mental Illnesses
Yangarber-Hicks, N. (2004) · Journal of Psychology and Theology · doi:10.1177/009164710403200403 · Cited by 75
“Relatedly, Deegan (1988) viewed recovery as the lived experience of individuals as they accept and overcome the challenge of their illness.”
Background
Creative writing in recovery from severe mental illness
King, R., Neilsen, P., & White, E. (2012) · International Journal of Mental Health Nursing · doi:10.1111/j.1447-0349.2012.00891.x · Cited by 78
Positioning Psychiatric and Mental Health Nursing as a Transformative Force in Health Care
Gabrielsson, S., Tuvesson, H., Gustin, L. W., & Jormfeldt, H. (2020) · Issues in Mental Health Nursing · doi:10.1080/01612840.2020.1756009 · Cited by 97
Effect of Wellness Recovery Action Plan (WRAP) participation on psychiatric symptoms, sense of hope, and recovery.
Fukui, S., Starnino, V. R., Mariscal, E. S., Davidson, L. J., Cook, K., Rapp, C. A., & Gowdy, E. A. (2011) · Psychiatric Rehabilitation Journal · doi:10.2975/34.3.2011.214.222 · Cited by 75
Discovering Hope for Recovery
Allott, P., Loganathan, L., & Fulford, K. W. M. (2002) · Canadian Journal of Community Mental Health · doi:10.7870/cjcmh-2002-0014 · Cited by 79
Qualitative Studies of Recovery: What Can We Learn From the Person?
Davidson, L., Sells, D., Songster, S., & O’Connell, M. J. (2005) · American Psychological Association eBooks · doi:10.1037/10848-007 · Cited by 77
Recovery After Psychosis: Qualitative Study of Service User Experiences of Lived Experience Videos on a Recovery-Oriented Website
Williams, A., Fossey, E., Farhall, J., Foley, F., & Thomas, N. (2018) · JMIR Mental Health · doi:10.2196/mental.9934 · Cited by 76
Self-Determination Among Mental Health Consumers/Survivors
Cook, J. Α., & Jonikas, J. A. (2002) · Journal of Disability Policy Studies · doi:10.1177/10442073020130020401 · Cited by 74
Se rétablir de troubles psychiatriques : un changement de regard sur le devenir des personnes
Pachoud, B. (2012) · L information psychiatrique · doi:10.1684/ipe.2012.0914 · Cited by 83
“Cela renvoie en amont aux conditions de ce pouvoir ’agir : le respect d’un principe d’autodétermination, et des acultés d’autoévaluation de ses capacités [28], tel que « le entiment d’efficacité personnelle » [6, 10] ; mais aussi des onditions environnementales favorables – , l’attitude de ’entourage en particulier.”
Background
A Narrative Framework for Understanding Experiences of People With Severe Mental Illnesses
Kirkpatrick, H. (2008) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2007.12.002 · Cited by 70
“Reading an article by Patricia Deegan (1988) in 1990 had a transformative impact on my colleagues' practice and mine.”
Background
The Role of State Mental Health Authorities in Promoting Improved Client Outcomes through Evidence-Based Practice
Rapp, C. A., Bond, G. R., Becker, D. R., Carpinello, S. E., Nikkel, R. E., & Gintoli, G. (2005) · Community Mental Health Journal · doi:10.1007/s10597-005-5008-8 · Cited by 72
Playback theatre and recovery in mental health: Preliminary evidence
Moran, G. S., & Alon, U. S. (2011) · The Arts in Psychotherapy · doi:10.1016/j.aip.2011.09.002 · Cited by 71
“From this perspective, recovery is not a medically mediated prognosis but rather involves a highly subjective and individual process that includes the emergence of a new identity as a result of self-discovery (e.g. Anthony, 1993; Deegan, 1988).”
Background
How People With SCHIZOPHRENIA Build Their HOPE
Kirkpatrick, H., Landeen, J., Woodside, H., & Byrne, C. (2001) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/0279-3695-20010101-13 · Cited by 71
Service providers' experiences and perspectives on recovery-oriented mental health system reform
Piat, M., & Lal, S. (2012) · Psychiatric Rehabilitation Journal · doi:10.2975/35.4.2012.289.296 · Cited by 69
Toward Caring for Oneself in a Life of Intense Ups and Downs: A Reflexive-Collaborative Exploration of Recovery in Bipolar Disorder
Veseth, M., Binder, P.-E., Borg, M., & Davidson, L. (2012) · Qualitative Health Research · doi:10.1177/1049732311411487 · Cited by 69
“Deegan (1988) described this as having a paradoxical effect in which it is through acceptance of what we cannot do that we start discovering what we can actually do.”
Background
Applying a Mental Health Recovery Approach for People from Diverse Backgrounds: The Case of Collectivism and Individualism Paradigms
Tse, S. S.-K., & Ng, R. (2014) · Journal of Psychosocial Rehabilitation and Mental Health · doi:10.1007/s40737-014-0010-5 · Cited by 78
Between Tolerant Containment and Concerted Constraint: Managing Madness for the City and the Privileged Family
Gong, N. (2019) · American Sociological Review · doi:10.1177/0003122419859533 · Cited by 71
“…(Bronson and Berzofsky 2017).2 The 2000s saw a shift toward a “recovery” approach, initially developed by patient activists, which brought renewed commitment to ideals of client independence and the possibility of full recovery from illness (see Davidson, Rakfeldt, and Strauss 2011; Deegan 1988).”
Background
Predicting the Occurrence, Conviction, Distress, and Disruption of Different Delusional Experiences in the Daily Life of People with Schizophrenia
Ben‐Zeev, D., Morris, S. B., Swendsen, J. D., & Granholm, E. L. (2011) · Schizophrenia Bulletin · doi:10.1093/schbul/sbq167 · Cited by 69
Marital Status and Mental Health
Williams, K., Frech, A., & Carlson, D. L. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.020 · Cited by 70
A scale to measure the impact of a schizophrenic illness on an individual's self-concept
McCay, E. A., & Seeman, M. V. (1998) · Archives of Psychiatric Nursing · doi:10.1016/s0883-9417(98)80007-1 · Cited by 69
The personal and vocational impact of training and employing people with psychiatric disabilities as providers.
Hutchinson, D. S., Anthony, W. A., Ashcraft, L., Johnson, E., Dunn, E. C., Lyass, A., & Rogers, E. S. (2006) · Psychiatric Rehabilitation Journal · doi:10.2975/29.2006.205.213 · Cited by 68
A Meta-Analysis of the Efficacy of Case Management for Substance Use Disorders: A Recovery Perspective
Vanderplasschen, W., Rapp, R. C., Maeyer, J. D., & Noortgate, W. V. D. (2019) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2019.00186 · Cited by 68
“Recovery should be regarded as a long process involving several life domains and abstinence is not a necessary, nor a sufficient marker of recovery, as it concerns a personal and experiential journey to life satisfaction and well-being (72).”
Background
The Trauma Recovery Group: A Cognitive-Behavioral Program for Post-Traumatic Stress Disorder in Persons with Severe Mental Illness
Mueser, K. T., Bolton, E. E., Carty, P., Bradley, M. J., Ahlgren, K. F., DiStaso, D. R., Gilbride, A., & Liddell, C. (2007) · Community Mental Health Journal · doi:10.1007/s10597-006-9075-2 · Cited by 69
A Qualitative Investigation of the Relapse Experiences of Women with Bulimia Nervosa
Wasson, D. H. (2003) · Eating Disorders · doi:10.1080/10640260390199271 · Cited by 72
“Recovery from a debilitating disorder such as bulimia nervosa has been characterized as a notably personal experience whereby individuals acquire a sense of hope and control through a long-term, strenuous struggle (Anthony, 1993; Davidson & Strauss, 1992; Deegan, 1988, 1993).”
Background
Awareness of Stigma Among Persons With Schizophrenia
JENKINS, J. H., & Carpenter-Song, E. A. (2009) · The Journal of Nervous and Mental Disease · doi:10.1097/nmd.0b013e3181aad5e9 · Cited by 67
“Aside from the literature constituted by memoirs of individuals living with mental illness (Deegan, 1988; Gallo, 1994), there has also been a slowly accumulating literature that has incorporated first-person perspectives on psychiatric stigma.”
Background
Struggling and enduring with God, religious support, and recovery from severe mental illness
Webb, M., Charbonneau, A. M., McCann, R. A., & Gayle, K. R. (2011) · Journal of Clinical Psychology · doi:10.1002/jclp.20838 · Cited by 72
Evaluation of the Two-Way Communication Checklist as a clinical intervention
van Os, J., Altamura, A. C., Bobes, J., Gerlach, J., Hellewell, J. S. E., Kasper, S. F., Naber, D., & Robert, P. H. (2003) · The British Journal of Psychiatry · doi:10.1192/bjp.184.1.79 · Cited by 67
Behind the Rhetoric: Mental Health Recovery in Ontario
Poole, J. M., & Durbin, J. (2012) · Canadian Journal of Community Mental Health · doi:10.7870/cjcmh-2012-0017 · Cited by 67
PSYCHOLOGICAL AND SOCIAL ASPECTS OF PSYCHIATRIC DISABILITY
Spaniol, L., Gagne, C., & Koehler, M. (1997) · Cited by 66
Three-year outcomes of long-term patients with co-occurring bipolar and substance use disorders
Drake, R. E., Xie, H., McHugo, G. J., & Shumway, M. (2004) · Biological Psychiatry · doi:10.1016/j.biopsych.2004.08.020 · Cited by 66
Implementing recovery: an analysis of the key technologies in Scotland
Smith‐Merry, J., Freeman, R., & Sturdy, S. (2011) · International Journal of Mental Health Systems · doi:10.1186/1752-4458-5-11 · Cited by 66
“On the contrary, contemporary American definitions of recovery had much in common with how recovery was represented in New Zealand and Scotland [3] - a situation that one of our respondents attributed to the rapid circulation of a small number of influential texts by authors such as William Anthony [21] and Patricia D…”
Result
The use of metaphor for understanding and managing psychotic experiences: A systematic review
Mould, T. J., Oades, L. G., & Crowe, T. P. (2010) · Journal of Mental Health · doi:10.3109/09638231003728091 · Cited by 70
“For example, both Deegan (1988, 1997) and Frese (1993) published a list of elements or themes of coping and recovery for people with psychotic disorders based on their personal experiences of what has been helpful and harmful in their recovery journeys.”
Recovery
Ralph, R. O. (2000) · Psychiatric Rehabilitation Skills · doi:10.1080/10973430008408634 · Cited by 65
An Occupational Perspective of the Recovery Journey in Mental Health
Kelly, M., Lamont, S., & Brunero, S. (2010) · British Journal of Occupational Therapy · doi:10.4276/030802210x12682330090532 · Cited by 64
“A seminal paper by Deegan (1988), in North America, distinguished between recovery and rehabilitation and argued that consumers are not An occupational perspective of the recovery journey in mental health”
Background

Authors: Deegan, P. E.
Corresponding author: Deegan, Patricia E.
ORCID: Deegan, Patricia E.
Venue: Psychosocial Rehabilitation Journal
Publisher: American Psychological Association (APA)
Published: 1988-04
Volume: 11
Issue: 4
Pages: 11-19
ISSN: 0147-5622 (ISSN-L)
DOI: 10.1037/h0099565
OpenAlex: W2331066491
Cited by: 1,541
References: 2
Citations by year: 2026: 36 · 2025: 43 · 2024: 52 · 2023: 47 · 2022: 61 · 2021: 71 · 2020: 70 · 2019: 80 · 2018: 57 · 2017: 92 · 2016: 65 · 2015: 80 · 2014: 81 · 2013: 62 · 2012: 84
FWCI: 6.46
Type: journal article
Language: en
Open access: closed
Locations: Psychosocial Rehabilitation Journal (publishedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
Keywords: recovery, lived experience, psychosocial rehabilitation, mental health recovery

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