Befriending carers of people with dementia: randomised controlled trial
Open accessAbstract
OBJECTIVE: To evaluate the effectiveness of a voluntary sector based befriending scheme in improving psychological wellbeing and quality of life for family carers of people with dementia. DESIGN: Single blind randomised controlled trial. SETTING: Community settings in East Anglia and London. PARTICIPANTS: 236 family carers of people with primary progressive dementia. INTERVENTION: Contact with a befriender facilitator and offer of match with a trained lay volunteer befriender compared with no befriender facilitator contact; all participants continued to receive "usual care." MAIN OUTCOME MEASURES: Carers' mood (hospital anxiety and depression scale-depression) and health related quality of life (EuroQoL) at 15 months post-randomisation. RESULTS: The intention to treat analysis showed no benefit for the intervention "access to a befriender facilitator" on the primary outcome measure or on any of the secondary outcome measures. CONCLUSIONS: In common with many carers' services, befriending schemes are not taken up by all carers, and providing access to a befriending scheme is not effective in improving wellbeing. Trial registration Current CONTROLLED TRIALS: ISRCTN08130075.
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A befriending programme delivered by former carers was ineffective in reducing the carers' anxiety or depression.
“A befriending programme delivered by former carers was ineffective in reducing the carers’ anxiety or depression.9”
From Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial (2013) · cites this paper as [9]
The Results report no significant benefit for depression or any secondary outcome; the End points section identifies anxiety as a secondary outcome (pages unavailable in our copy). But the Intervention and control conditions section describes the befrienders as trained lay volunteers, not former carers, so that description is unsupported. The trial assessed access to befriending, which not all intervention carers took up. (LLM, conf=0.85)
Experimental — accuracy not yet measuredOther recent psychosocial interventions have been ineffective for both carer psychological symptoms and quality of life.
“Other recent psychosocial interventions have been, in contrast, ineffective for both carer psychological symptoms and quality of life”
From Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial (2013) · cites this paper as [9]
The Conclusion reports that access to a befriender facilitator did not improve carers’ wellbeing or health-related quality of life. This supports the claim for the befriending intervention studied, but not its broader implication that multiple recent psychosocial interventions were ineffective on both outcomes. (LLM, conf=0.84)
Experimental — accuracy not yet measuredA recent unstructured, non-manual-based befriending programme delivered by ex-carers was ineffective in reducing anxiety or depression.
“a recent unstructured, non-manual-based befriending programme delivered by ex-carers was ineffective in reducing anxiety or depression.24”
The earliest study of the three used trained ex-carers in a voluntary sector befriending intervention and was not taken up by many carers.
“The earliest study of the three used trained ex-carers in a voluntary sector befriending intervention and was not taken up by many carers.24”
Recent RCTs of psychosocial interventions in Europe using different models have been ineffective in terms of carer psychological symptoms and QoL.
“Recent RCTs of psychosocial interventions in Europe (UK, Denmark and Norway) using different models have been ineffective in terms of carer psychological symptoms and QoL”
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- Authors
- Charlesworth, G., Shepstone, L., Wilson, E., Reynolds, S., Mugford, M., Price, D., Harvey, I., & Poland, F.
- Affiliations
- North East London NHS Foundation Trust (GB)
- University of East Anglia (GB)
- University of Aberdeen (GB)
- Corresponding author
- Charlesworth, Georgina
- Venue
- BMJ
- Publisher
- BMJ
- Published
- 2008-05-27
- Volume
- 336
- Issue
- 7656
- Pages
- 1295-1297
- ISSN
- 1756-1833 (ISSN-L)
- 0959-8138
- PMC
- PMC2413394
- OpenAlex
- W1995749825
- Cited by
- 77
- References
- 22
- Citations by year
- 2026: 1 · 2024: 1 · 2023: 2 · 2022: 5 · 2021: 3 · 2020: 5 · 2019: 5 · 2018: 5 · 2017: 10 · 2016: 3 · 2015: 4 · 2014: 5 · 2013: 6 · 2012: 5
- FWCI
- 3.97
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- BMJ (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- CentAUR (University of Reading) (submittedVersion)
- UCL Discovery (University College London) (submittedVersion)
- HighWire Press Open Archive (submittedVersion)
- UEA Digital Repository (University of East Anglia) (submittedVersion)
- Funders
- Alzheimer's Society
- National Institute for Health and Care Research (99/34/07)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, family caregivers, psychological well-being, depression, anxiety, health-related quality of life, caregiver support
- MeSH terms
- Adult, Aged, Aged, 80 and over, Dementia, Female, Humans, Male, Middle Aged, Quality of Life, Social Support, Caregivers, Friends
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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