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History of the Rochester Epidemiology Project
Abstract
The Rochester Epidemiology Project is a unique medical records-linkage system that encompasses the care delivered to residents of Rochester and Olmsted County, Minnesota. It is the creation of Dr. Leonard T. Kurland, who envisioned the population-based data resource that would result from combining the clinical documentation developed by the Mayo Clinic with that obtained by other community providers, most notably the Olmsted Medical Group and its affiliated Olmsted Community Hospital. Kurland built on the Mayo unit medical record system that was designed by Dr. Henry S. Plummer in 1907 and on the medical and surgical indexing systems introduced by Dr. Joseph Berkson in 1935. By affording access to details of the medical care given to local residents, the Rochester Epidemiology Project is able to provide accurate incidence data for almost any serious condition and to support population-based analytic studies of disease causes and outcomes. Thus, epidemiologic studies of a wide array of disorders have been possible and have culminated in almost 900 publications since the system was organized in 1966. Olmsted County is one of the few places in the world where the occurrence and natural history of diseases can be accurately described and analyzed in a defined population for a half century or more.
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“The Olmsted County, Minnesota, population comprises ~120,000 individuals, of which 89% are white; sociodemographically, this community resembles the US white population.”
From Psychosocial Distress and Somatic Symptoms in Community Subjects With Irritable Bowel Syndrome: A Psychological Component Is the Rule (2009) · cites this paper as [24]
In the citing paper
“During any given 4-year period, more than 95% of the local residents will have had at least one local health-care contact (24).”
From Psychosocial Distress and Somatic Symptoms in Community Subjects With Irritable Bowel Syndrome: A Psychological Component Is the Rule (2009) · cites this paper as [24]
In the citing paper
“Therefore, the Rochester Epidemiology Project records linkage system provides essentially an enumeration of the population from which samples can be collected (24).”
From Psychosocial Distress and Somatic Symptoms in Community Subjects With Irritable Bowel Syndrome: A Psychological Component Is the Rule (2009) · cites this paper as [24]
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Self-citationLeft atrial volume as an index ofleft atrial size: a population-based study
Pritchett, A. M., Jacobsen, S. J., Mahoney, D. W., Rodeheffer, R. J., Bailey, K. R., & Redfield, M. M. (2003) · Journal of the American College of Cardiology · doi:10.1016/s0735-1097(02)02981-9 · Cited by 583
Jung, H., Choung, R. S., Locke, G. R., Schleck, C. D., Zinsmeister, A. R., Szarka, L. A., Mullan, B., & Talley, N. J. (2009) · Gastroenterology · doi:10.1053/j.gastro.2008.12.047 · Cited by 571
Incidence of Basal Cell and Squamous Cell Carcinomas in a Population Younger Than 40 Years
Christenson, L. J. (2005) · JAMA · doi:10.1001/jama.294.6.681 · Cited by 574
The Epidemiology of Venous Thromboembolism in the Community
Mohr, D. C., Petterson, T. M., Lohse, C. M., O’Fallon, W. M., Melton, L. J., Heit, J. A., & Silverstein, M. D. (2001) · Thrombosis and Haemostasis · doi:10.1055/s-0037-1616243 · Cited by 567
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Predictors of infection in rheumatoid arthritis
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Survival patterns after oophorectomy in premenopausal women: a population-based cohort study
Rocca, W. A., Grossardt, B. R., de Andrade, M., Malkasian, G. D., & Melton, L. J. (2006) · The Lancet Oncology · doi:10.1016/s1470-2045(06)70869-5 · Cited by 548
Self-citationHeart Failure and Death After Myocardial Infarction in the Community
Bursi, F., Enriquez-Sarano, M. L., Nkomo, V. T., Jacobsen, S. J., Weston, S. A., Meverden, R. A., & Roger, V. L. (2005) · Circulation · doi:10.1161/01.cir.0000151097.30779.04 · Cited by 536
Improved Prognosis of Thoracic Aortic Aneurysms
Clouse, W. D., Hallett, J. W., Schaff, H. V., Gayari, M. M., Ilstrup, D. M., & Melton, L. J. (1998) · JAMA · doi:10.1001/jama.280.22.1926 · Cited by 532
Self-citationParkinson’s disease and parkinsonism in a longitudinal study: Two-fold higher incidence in men
Baldereschi, M., Di Carlo, A., Rocca, W. A., Vanni, P., Maggi, S., Perissinotto, E., Grigoletto, F., Amaducci, L., & Inzitari, D. (2000) · Neurology · doi:10.1212/wnl.55.9.1358 · Cited by 526
Prevalence and Prognostic Significance of Heart Failure Stages
Ammar, K. A., Jacobsen, S. J., Mahoney, D. W., Kors, J. A., Redfield, M. M., Burnett, J. C. J., & Rodeheffer, R. J. (2007) · Circulation · doi:10.1161/circulationaha.106.666818 · Cited by 530
Risk factors associated with symptoms of gastroesophageal reflux
Locke, G. R., Talley, N. J., Fett, S. L., Zinsmeister, A. R., & Melton, L. J. (1999) · The American Journal of Medicine · doi:10.1016/s0002-9343(99)00121-7 · Cited by 522
Self-citationSurvival in rheumatoid arthritis: A population‐based analysis of trends over 40 years
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Incidence and distribution of parkinsonism in Olmsted County, Minnesota, 1976–1990
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Incidence, Prevalence, and Clinical Course of Idiopathic Pulmonary Fibrosis
Pérez, E. R. F., Daniels, C. E., Sauver, J. L. S., Hartman, T. E., Bartholmai, B. J., Yi, E. S., Ryu, J. H., & Schroeder, D. R. (2009) · CHEST Journal · doi:10.1378/chest.09-1002 · Cited by 508
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Vertebral Fractures Predict Subsequent Fractures
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Self-citationJess, T., Loftus, E. V., Velayos, F. S., Harmsen, W. S., Zinsmeister, A. R., Smyrk, T. C., Schleck, C. D., Tremaine, W. J., Melton, L. J., Munkholm, P. S., et al. (2006) · Gastroenterology · doi:10.1053/j.gastro.2005.12.037 · Cited by 493
Self-citationEpidemiology of Eosinophilic Esophagitis Over Three Decades in Olmsted County, Minnesota
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Ulcerative colitis in Olmsted County, Minnesota, 1940–1993: incidence, prevalence, and survival
Loftus, E. V., Silverstein, M. D., Sandborn, W. J., Tremaine, W. J., Harmsen, W. S., & Zinsmeister, A. R. (2000) · Gut · doi:10.1136/gut.46.3.336 · Cited by 492
Probability of Pancreatic Cancer Following Diabetes: A Population-Based Study
Chari, S. T., Leibson, C. L., Rabe, K. G., Ransom, J., de Andrade, M., & Petersen, G. M. (2005) · Gastroenterology · doi:10.1053/j.gastro.2005.05.007 · Cited by 603
The risk of congestive heart failure in rheumatoid arthritis: A population‐based study over 46 years
Nicola, P., Kremers, H. M., Roger, V. L., Jacobsen, S. J., Crowson, C. S., Ballman, K. V., & Gabriel, S. E. (2005) · Arthritis & Rheumatism · doi:10.1002/art.20855 · Cited by 484
Increased cardiovascular mortality after early bilateral oophorectomy
Rivera, C. M., Grossardt, B. R., Rhodes, D. J., Brown, R. D., Roger, V. L., Melton, L. J., & Rocca, W. A. (2009) · Menopause · doi:10.1097/gme.0b013e31818888f7 · Cited by 481
Self-citationIncidence of Childhood Distal Forearm Fractures Over 30 Years
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Self-citationFrom, A. M., Scott, C. G., & Chen, H. H. (2010) · Journal of the American College of Cardiology · doi:10.1016/j.jacc.2009.12.003 · Cited by 469
Doran, M. F., Pond, G. R., Crowson, C. S., O’Fallon, W. M., & Gabriel, S. E. (2002) · Arthritis & Rheumatism · doi:10.1002/art.509 · Cited by 468
Hospitalizations After Heart Failure Diagnosis
Dunlay, S. M., Redfield, M. M., Weston, S. A., Therneau, T. M., Long, K. H., Shah, N. D., & Roger, V. L. (2009) · Journal of the American College of Cardiology · doi:10.1016/j.jacc.2009.08.019 · Cited by 470
Metadata
- Authors
- Melton, L. J.
- Affiliations
- Mayo Clinic (US)
- Corresponding author
- Melton, L. Joseph
- Venue
- Mayo Clinic Proceedings
- Publisher
- Elsevier BV
- Published
- 1996-03
- Volume
- 71
- Issue
- 3
- Pages
- 266-274
- ISSN
- 0025-6196 (ISSN-L)
- OpenAlex
- W2137393443
- Cited by
- 1,443
- References
- 30
- Citations by year
- 2026: 6 · 2025: 7 · 2024: 15 · 2023: 10 · 2022: 22 · 2021: 35 · 2020: 27 · 2019: 18 · 2018: 30 · 2017: 26 · 2016: 44 · 2015: 35 · 2014: 43 · 2013: 80 · 2012: 89
- FWCI
- 121.36
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Mayo Clinic Proceedings (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Health Sciences › Medicine › Epidemiology › Historical and modern epidemiology studies
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Keywords
- Rochester Epidemiology Project, medical record linkage, Olmsted County, Minnesota, disease incidence, natural history of disease
- MeSH terms
- Epidemiology, Humans, Medical Record Linkage, Minnesota, History, 20th Century
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