The DOI matches its Crossref record; 1 of the 1 references it cites were found in a registry or an index.
A Critical Appraisal of the Quality of Quality-of-Life Measurements
Abstract
OBJECTIVE: To evaluate how well quality of life is being measured in the medical literature and to offer a new approach to the measurement. DATA SOURCES: Original English-language articles having the term "quality of life" in their titles were identified from a recent Quality-of-Life Bibliography and from two MEDLINE searches. Articles were eligible for review only if they described or used one or more "quality-of-life" instruments. STUDY SELECTION: Twenty-five articles were randomly selected from each of the three data sources. DATA EXTRACTION: Each article was reviewed for its compliance with two sets of criteria having several components, which are cited under "Data Synthesis." DATA SYNTHESIS: (1) Investigators conceptually defined quality of life in only 11 (15%) of the 75 articles; identified the targeted domains in only 35 (47%); gave reasons for selecting the chosen quality-of-life instruments in only 27 (36%); and aggregated their results into a composite quality-of-life score in only 27 (38%) of 71 eligible articles. (2) No article distinguished "overall" quality of life from health-related quality of life; patients were invited to give their own separate rating for quality of life in only 13 articles (17%); and among 71 eligible articles, patients were asked to supplement the stipulated items with personal responses in only nine (13%) and to rate the importance of individual items in only six (8.5%). CONCLUSIONS: Because quality of life is a uniquely personal perception, denoting the way that individual patients feel about their health status and/or nonmedical aspects of their lives, most measurements of quality of life in the medical literature seem to aim at the wrong target. Quality of life can be suitably measured only by determining the opinions of patients and by supplementing (or replacing) the instruments developed by "experts."
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
A quantitative approach to perceived health status: a validation study
Hunt, S. M., McKenna, S. P., McEwen, J., Backett, E. M., Williams, J., & Papp, E. (1980) · Journal of Epidemiology and Community Health · doi:10.1136/jech.34.4.281 · Cited by 924
Cited by
The WHO-5 well-being index: A systematic review of the literature
Topp, C. W., Østergaard, S. D., Søndergaard, S., & Bech, P. (2015) · Psychotherapy and Psychosomatics · doi:10.1159/000376585 · Cited by 4,708
Core outcome measures for chronic pain clinical trials: IMMPACT recommendations
Dworkin, R. H., Turk, D. C., Farrar, J. T., Haythornthwaite, J. A., Jensen, M. P., Katz, N. P., Kerns, R. D., Stucki, G., Allen, R. R., Bellamy, N., et al. (2005) · Pain · doi:10.1016/j.pain.2004.09.012 · Cited by 3,732
Allergic Rhinitis and Its Impact on Asthma
Bousquet, J., van Cauwenberge, P., & Khaltaev, N. (2001) · Journal of Allergy and Clinical Immunology · doi:10.1067/mai.2001.118891 · Cited by 3,588
Core outcome domains for chronic pain clinical trials: IMMPACT recommendations
Turk, D. C., Dworkin, R. H., Allen, R. R., Bellamy, N., Brandenburg, N., Carr, D. B., Cleeland, C., Dionne, R., Farrar, J. T., Galer, B. S., et al. (2003) · Pain · doi:10.1016/j.pain.2003.08.001 · Cited by 3,510
The PedsQL™: Measurement Model for the Pediatric Quality of Life Inventory
Varni, J. W., Seid, M., & Rode, C. A. (1999) · Medical Care · doi:10.1097/00005650-199902000-00003 · Cited by 3,291
Evaluating patient-based outcome measures for use in clinical trials.
Fitzpatrick, Davey, Buxton, & Jones (1998) · Health Technology Assessment · doi:10.3310/hta2140 · Cited by 1,715
Health, Health-Related Quality of Life, and Quality of Life: What is the Difference?
Karimi, M., & Brazier, J. (2016) · PharmacoEconomics · doi:10.1007/s40273-016-0389-9 · Cited by 1,646
Miilunpalo, S., Vuori, I., Oja, P., Pasanen, M., & Urponen, H. (1997) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(97)00045-0 · Cited by 1,473
Validation of an instrument to measure voice-related quality of life (V-RQOL)
Hogikyan, N. D., & Sethuraman, G. (1999) · Journal of Voice · doi:10.1016/s0892-1997(99)80010-1 · Cited by 1,143
A systematic review of quality of life research in medicine and health sciences
the LIVSFORSK network, Haraldstad, K., Wahl, A., Andenæs, R., Andersen, J. R., Andersen, M. H., Beisland, E., Borge, C. R., Engebretsen, E., Eisemann, M., et al. (2019) · Quality of Life Research · doi:10.1007/s11136-019-02214-9 · Cited by 1,011
Quality-of-life outcomes in men treated for localized prostate cancer
Litwin, M. S., Hays, R. D., Fink, A., Ganz, P. A., Leake, B., Leach, G. E., & Brook, R. H. (1995) · JAMA · doi:10.1001/jama.1995.03520260051032 · Cited by 1,020
Assessing Psychiatric Impairment in Primary Care with the Sheehan Disability Scale
Leon, A. C., Olfson, M., Portera, L., Farber, L., & Sheehan, D. V. (1997) · The International Journal of Psychiatry in Medicine · doi:10.2190/t8em-c8yh-373n-1uwd · Cited by 987
Multimorbidity and quality of life in primary care: a systematic review
Fortin, M., Lapointe, L., Hudon, C., Vanasse, A., Ntetu, A. L., & Maltais, D. (2004) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-2-51 · Cited by 963
Quality of Life in Individuals With Anxiety Disorders
Mendlowicz, M. V., & Stein, M. B. (2000) · American Journal of Psychiatry · doi:10.1176/appi.ajp.157.5.669 · Cited by 955
Quality-of-life measures in chronic diseases of childhood
Eiser, C., & Morse, R. (2001) · Health Technology Assessment · doi:10.3310/hta5040 · Cited by 872
Rhinosinusitis: Establishing definitions for clinical research and patient care
Meltzer, E. O., Hamilos, D. L., Hadley, J. A., Lanza, D. C., Marple, B. F., Nicklas, R. A., Bachert, C., Baraniuk, J., Baroody, F. M., Benninger, M. S., et al. (2004) · Journal of Allergy and Clinical Immunology · doi:10.1016/j.jaci.2004.09.029 · Cited by 854
Quality of life in the anxiety disorders: a meta-analytic review
Olatunji, B. O., Cisler, J. M., & Tolin, D. F. (2007) · Clinical Psychology Review · doi:10.1016/j.cpr.2007.01.015 · Cited by 808
Measurement of the quality of life in cancer survivors
Ferrell, B. R., Hassey Dow, K., & Grant, M. (1995) · Quality of Life Research · doi:10.1007/bf00634747 · Cited by 689
Schron, E. B., Exner, D. V., Yao, Q., Jenkins, L. S., Steinberg, J. S., Cook, J. R., Kutalek, S. P., Friedman, P. L., Bubien, R. S., Page, R. L., et al. (2002) · Circulation · doi:10.1161/hc0502.103330 · Cited by 624
Insomnia and health-related quality of life
Kyle, S. D., Morgan, K., & Espie, C. A. (2010) · Sleep Medicine Reviews · doi:10.1016/j.smrv.2009.07.004 · Cited by 520
Investigating quality of life and health-related quality of life in infertility: a systematic review
Chachamovich, J. R., Chachamovich, E., Ezer, H., Fleck, M. P., Knauth, D., & Passos, E. P. (2010) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/0167482x.2010.481337 · Cited by 372
Understanding the Relevance of Measured Change Through Studies of Responsiveness
Beaton, D. E. (2000) · Spine · doi:10.1097/00007632-200012150-00015 · Cited by 344
Frost, M. H. (2000) · JAMA · doi:10.1001/jama.284.3.319 · Cited by 325
Nijboer (2010) · Frontiers in Neuroscience · doi:10.3389/fnins.2010.00055 · Cited by 323
Henrich, G., & Herschbach, P. (2000) · European Journal of Psychological Assessment · doi:10.1027//1015-5759.16.3.150 · Cited by 321
Quality of life impairment in generalized anxiety disorder, social phobia, and panic disorder
Barrera, T. L., & Norton, P. J. (2009) · Journal of Anxiety Disorders · doi:10.1016/j.janxdis.2009.07.011 · Cited by 308
Quality-of-Life Changes in Patients with Thyroid Cancer After Withdrawal of Thyroid Hormone Therapy
DOW, K. H., FERRELL, B. R., & ANELLO, C. (1997) · Thyroid · doi:10.1089/thy.1997.7.613 · Cited by 289
Quality of life in ALS depends on factors other than strength and physical function
Simmons, Z., Bremer, B. A., Robbins, R. A., Walsh, S. M., & Fischer, S. (2000) · Neurology · doi:10.1212/wnl.55.3.388 · Cited by 279
Correlates of suffering in amyotrophic lateral sclerosis
Ganzini, L., Johnston, W. S., & Hoffman, W. F. (1999) · Neurology · doi:10.1212/wnl.52.7.1434 · Cited by 250
Lochner, C., Mogotsi, M., du Toit, P. L., Kaminer, D., Niehaus, D. J., & Stein, D. J. (2003) · Psychopathology · doi:10.1159/000073451 · Cited by 221
Empirically Supported Treatment: Recommendations for a New Model
Tolin, D. F., McKay, D., Forman, E. M., Klonsky, E. D., & Thombs, B. D. (2015) · Clinical Psychology: Science and Practice · doi:10.1111/cpsp.12122 · Cited by 219
Patient-reported outcomes in randomized clinical trials: development of ISOQOL reporting standards
Brundage, M., Blazeby, J., Revicki, D., Bass, B., de Vet, H., Duffy, H., Efficace, F., King, M., Lam, C. L. K., Moher, D., et al. (2013) · Quality of Life Research · doi:10.1007/s11136-012-0252-1 · Cited by 207
Nyström, E., Sjöström, M., Stenlund, H., & Samuelsson, E. (2015) · Neurourology and Urodynamics · doi:10.1002/nau.22657 · Cited by 189
Gold, S. M., Heesen, C., Schulz, H., Guder, U., Mönch, A., Gbadamosi, J., Buhmann, C., & Schulz, K. H. (2001) · Multiple Sclerosis Journal · doi:10.1177/135245850100700208 · Cited by 183
Effects of depressive symptoms on health-related quality of life in asthma patients
Mancuso, C. A., Peterson, M. G. E., & Charlson, M. E. (2000) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.2000.07006.x · Cited by 176
Montazeri, A., Harirchi, I., Vahdani, M., Khaleghi, F., Jarvandi, S., Ebrahimi, M., & Haji-Mahmoodi, M. (1999) · Supportive Care in Cancer · doi:10.1007/s005200050300 · Cited by 176
Coping and Psychosocial Adaptation: Longitudinal Effects Over Time and Stages in Breast Cancer
Heim, E., Valach, L., & Schaffner, L. (1997) · Psychosomatic Medicine · doi:10.1097/00006842-199707000-00011 · Cited by 175
Patient reported outcomes: looking beyond the label claim
Doward, L. C., Gnanasakthy, A., & Baker, M. G. (2010) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-8-89 · Cited by 162
Barendse, S., Singh, H., Frier, B. M., & Speight, J. (2012) · Diabetic Medicine · doi:10.1111/j.1464-5491.2011.03416.x · Cited by 161
Neudert, C., Wasner, M., & Borasio, G. D. (2001) · Journal of the Neurological Sciences · doi:10.1016/s0022-510x(01)00612-8 · Cited by 157
Gylfadottir, S. S., Christensen, D. H., Nicolaisen, S. K., Andersen, H., Callaghan, B. C., Itani, M., Khan, K. S., Kristensen, A. G., Nielsen, J. S., Sindrup, S. H., et al. (2020) · Pain · doi:10.1097/j.pain.0000000000001744 · Cited by 151
Effect of onychomycosis on quality of life
Drake, L. A., Scher, R. K., Smith, E. B., Faich, G. A., Smith, S. L., Hong, J. J., & Stiller, M. J. (1998) · Journal of the American Academy of Dermatology · doi:10.1016/s0190-9622(98)70199-9 · Cited by 146
Validation and normative data of health status measures in older people: the Islington study
Pettit, T., Livingston, G., Manela, M., Kitchen, G., Katona, C., & Bowling, A. (2001) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.479 · Cited by 130
The impact of newly diagnosed chronic paediatric conditions on parental quality of life
Goldbeck, L. (2006) · Quality of Life Research · doi:10.1007/s11136-006-0068-y · Cited by 123
Caregiving and care receiving among a technologically dependent heart failure population
Scott, L. D. (2000) · Advances in Nursing Science · doi:10.1097/00012272-200012000-00008 · Cited by 114
Statin‐Associated Muscle‐Related Adverse Effects: A Case Series of 354 Patients
Cham, S., Evans, M. A., Denenberg, J. O., & Golomb, B. A. (2010) · Pharmacotherapy: The Journal of Human Pharmacology and Drug Therapy · doi:10.1592/phco.30.6.541 · Cited by 114
Robinson, S., Kissane, D. W., Brooker, J., Hempton, C., & Burney, S. (2017) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2016.08.013 · Cited by 112
Kjellin (2002) · doi:10.1016/s0160-2527(01)00108-x · Cited by 110
Seeking the Patient's Perspective: A Qualitative Assessment of EuroQol, COOP-WONCA Charts and MYMOP
Paterson, C. (2004) · Quality of Life Research · doi:10.1023/b:qure.0000025586.51955.78 · Cited by 107
A simple instrument for assessing stress in clinical practice
Sonino, N., & Fava, G. A. (1998) · Postgraduate Medical Journal · doi:10.1136/pgmj.74.873.408 · Cited by 104
Quality of Life and Barriers in the Urban Outdoor Environment in Old Age
Rantakokko, M., Iwarsson, S., Kauppinen, M., Leinonen, R., Heikkinen, E., & Rantanen, T. (2010) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2010.03143.x · Cited by 101
Hogikyan, N. D., Wodchis, W. P., Spak, C., & Kileny, P. R. (2001) · Journal of Voice · doi:10.1016/s0892-1997(01)00060-1 · Cited by 97
Mizrahi, M. C., Reicher-Atir, R., Levy, S., Haramati, S., Wengrower, D., Israeli, E., & Goldin, E. (2012) · Psychology & Health · doi:10.1080/08870446.2012.691169 · Cited by 83
Use of the Psychosocial Index: A Sensitive Tool in Research and Practice
Piolanti, A., Offidani, E., Guidi, J., Gostoli, S., Fava, G. A., & Sonino, N. (2016) · Psychotherapy and Psychosomatics · doi:10.1159/000447760 · Cited by 79
The Dynamics of Quality of Life in ALS Patients and Caregivers
Roach, A. R., Averill, A. J., Segerstrom, S. C., & Kasarskis, E. J. (2009) · Annals of Behavioral Medicine · doi:10.1007/s12160-009-9092-9 · Cited by 81
Bernheim, J. L., Theuns, P., Mazaheri, M., Hofmans, J., Fliege, H., & Rose, M. (2006) · Journal of Happiness Studies · doi:10.1007/s10902-005-4755-0 · Cited by 58
The biopsychosocial model and quality of life in persons with active epilepsy
Elliott, J. O., & Richardson, V. E. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.09.035 · Cited by 56
Mattos, P., Louzã, M. R., Palmini, A. L. F., Oliveira, I. R. D., & Rocha, F. L. (2013) · Journal of Attention Disorders · doi:10.1177/1087054711434772 · Cited by 47
Quality of life in children with celiac disease: A paediatric cross-sectional study
Biagetti, C., Gesuita, R., Gatti, S., & Catassi, C. (2015) · Digestive and Liver Disease · doi:10.1016/j.dld.2015.07.009 · Cited by 46
Quality of life in schizophrenia spectrum disorders: Associations with insight and psychopathology
Margariti, M., Ploumpidis, D., Economou, M., Christodoulou, G. N., & Papadimitriou, G. N. (2015) · Psychiatry Research · doi:10.1016/j.psychres.2014.11.016 · Cited by 41
Peters, D. J. (1996) · Disability and Rehabilitation · doi:10.3109/09638289609166320 · Cited by 39
Scholten, C., Weinländer, G., Krainer, M., Frischenschlager, O., & Zielinski, C. C. (2001) · Supportive Care in Cancer · doi:10.1007/s005200000233 · Cited by 31
Assessment of Psychological Well-Being in Psychosomatic Medicine
Rafanelli, C., & Ruini, C. (2012) · Advances in Psychosomatic Medicine · doi:10.1159/000330021 · Cited by 31
Mental Pain Questionnaire: An item response theory analysis
Svicher, A., Romanazzo, S., De Cesaris, F., Benemei, S., Geppetti, P., & Cosci, F. (2019) · Journal of Affective Disorders · doi:10.1016/j.jad.2019.02.030 · Cited by 21
Validez de constructo y confiabilidad del instrumento calidad de vida versión familiar en español
Barrera Ortiz, L., Carrillo González, G. M., Chaparro Díaz, L., Sánchez Herrera, B., Vargas Rosero, E., & Carreño, S. P. (2015) · Enfermería Global · doi:10.6018/eglobal.14.1.185111 · Cited by 16
Metadata
- Authors
- Gill, T. M.
- Venue
- JAMA: The Journal of the American Medical Association
- Publisher
- American Medical Association (AMA)
- Published
- 1994-08-24
- Volume
- 272
- Issue
- 8
- Pages
- 619
- ISSN
- 0002-9955 (ISSN-L)
- 0098-7484
- OpenAlex
- W2031065729
- Cited by
- 2,208
- References
- 1
- FWCI
- 246.20
- Type
- journal article
- Language
- en
- Open access
- closed
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
Data sources
Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.