Facing the Unknown: Intolerance of Uncertainty in Children with Autism Spectrum Disorder
Open accessAbstract
Background: Anxiety is a common problem for children with autism spectrum disorder (ASD). Recent research indicates that intolerance of uncertainty (IU) may be an important aspect of anxiety for this population. IU is the belief that uncertainty is upsetting, and not knowing what is going to happen is negative. There is little known about the phenomenology of IU in children with ASD. We therefore present data from parent focus groups exploring this concept in children with ASD. Methods: Participants were asked to differentiate IU from dislike of change and fear, and to discuss examples of IU and the strategies they use to manage it. Their experiences of IU and strategies are presented. Results: IU was evident across novel and familiar situations and parents used a variety of strategies to manage IU. Their experiences of IU and strategies used are presented. Conclusions: Participants were able to identify and provide examples of IU suggesting that it is a recognizable construct among children with ASD.
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Parents of children with ASD differentiate intolerance of uncertainty from dislike of change and from fear.
“Parents differentiated IU from dislike of change and from fear, discussed examples of IU and its impact on their children”
Parents of children with ASD suggest that intolerance of uncertainty is a recognisable and important construct associated with anxiety distinguishable from but related to features of ASD.
“and suggested that IU is a recognisable and important construct associated with anxiety distinguishable from but related to features of ASD.”
Hodgson et al. (2017) found parents differentiated IU from dislike of change and from fear, and suggested IU is a recognisable and important construct associated with anxiety that is distinguishable from but related to features of ASD.
“Hodgsonet al. (2017) undertook focus groups with parents of autistic young people exploring the concept of IU. Parents differentiated IU from dislike of change and from fear, discussed examples of IU and its impact on their children, and suggested that IU is a recognisable and important construct associated with anxiety that is distinguishable from but related to features of ASD.”
From Towards a Treatment for Intolerance of Uncertainty for Autistic Adults: A Single Case Experimental Design Study. (2018) · cites this paper as Hodgson et al. 2017
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Kozunova, G. L., Novikov, A. Y., Stroganova, T. A., & Chernyshev, B. (2022) · Clinical Psychology and Special Education · doi:10.17759/cpse.2022110402
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Stress, anxiety, and Steampunk Art in autistic adolescents and young adults
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- Authors
- Hodgson, A. R., Freeston, M. H., Honey, E., & Rodgers, J.
- Affiliations
- Newcastle University (GB)
- Cumbria Northumberland Tyne and Wear NHS Foundation Trust (GB)
- Corresponding author
- Hodgson, Anna R.
- Venue
- Journal of Applied Research in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2016-02-12
- Volume
- 30
- Issue
- 2
- Pages
- 336-344
- ISSN
- 0952-9608 (ISSN-L)
- 1360-2322
- 1468-3148
- OpenAlex
- W2263505560
- Cited by
- 81
- References
- 37
- Citations by year
- 2026: 5 · 2025: 10 · 2024: 11 · 2023: 11 · 2022: 6 · 2021: 5 · 2020: 9 · 2019: 7 · 2018: 6 · 2017: 8 · 2016: 3
- FWCI
- 5.09
- Type
- journal article
- Language
- en
- Open access
- green
- doi.org
- Locations
- Journal of Applied Research in Intellectual Disabilities (publishedVersion)
- PubMed (publishedVersion)
- Newcastle University ePrints (Newcastle Univesity)
- Funders
- Children's Foundation
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
- Keywords
- intolerance of uncertainty, autism spectrum disorder, children, anxiety, parental attitudes, coping strategies, fear, phenomenology
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