Psychosocial intervention programs for parents of children with cancer: A systematic review and critical comparison of programs’ models and development
Abstract
Intervention programs have been developed to help parents cope with their child's cancer. Despite some studies reporting a high level of evidence, it is unclear how these programs build on each other. Appraising models of change is critical to advance scientific knowledge and provide evidence-based interventions. This review aims to identify existing programs, explicitly formulate their underlying models, evaluate how they translate into concrete activities, as well as identify and discuss their development process. Eleven programs based on models of change from cognitive-behavioral, systemic and counselling theories were identified. Many models included a sound theoretical framework, targeted outcomes, as well as implementation strategies. In most cases, preliminary development studies were conducted, but details were rarely provided on how development stages informed the redesign of intervention programs. Acceptability and treatment fidelity were not available for one-third of the programs. Future reports should document the development and design redesign stages prior to conducting efficacy trials, as this step would provide crucial details to critically appraise programs.
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Many interventions have not been evaluated with rigorous research designs in pediatric oncology.
“However, few interventions have implemented evidence-based treatments [31,32] and many have not been evaluated with rigorous research designs in pediatric oncology [7,24,25,27].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [25]
Psychological interventions can be effective for parents of children with cancer and other serious illnesses, yielding small-moderate improvements in QOL, anxiety, and other outcomes.
“Psychological interventions can be effective for parents of children with cancer and other serious illnesses [22,23], yielding small–moderate improvements in QOL, anxiety, and other outcomes [23,24,25,26,27,28,29].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [25]
With the exception of the eSCCIP, most interventions are implemented face-to-face, limiting benefits to rural-remote families.
“With the exception of the eSCCIP [23], most interventions are also implemented face-to-face, limiting benefits to rural-remote families [7,25,27,33].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [25]
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“With the exception of the eSCCIP [23], most interventions are also implemented face-to-face, limiting benefits to rural-remote families [7,25,27,33].”
BackgroundOgez, D., Péloquin, K., Bertout, L., Bourque, C.-J., Curnier, D., Drouin, S., Laverdière, C., Marcil, V., Aramideh, J., Ribeiro, R., et al. (2021) · Cogent Medicine · doi:10.1080/2331205x.2021.1944476 · Cited by 8 · see citing works
Self-citation¿Cuál es la evidencia actual sobre cuidadores familiares de niños con cáncer?: Una revisión umbrella
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- Authors
- Ogez, D., Péloquin, K., Bertout, L., Bourque, C.-J., Curnier, D., Drouin, S., Laverdière, C., Marcil, V., Ribeiro, R., Callaci, M., Rondeau, E., Sinnett, D., & Sultan, S.
- Affiliations
- Centre Hospitalier Universitaire Sainte-Justine (CA)
- Université de Montréal (CA)
- Corresponding author
- Ogez, David
- ORCID
- Venue
- Journal of Clinical Psychology in Medical Settings
- Published
- 2019-02-26
- Volume
- 26
- Issue
- 4
- Pages
- 550-574
- ISSN
- 1068-9583 (ISSN-L)
- 1573-3572
- OpenAlex
- W2917193374
- Cited by
- 35
- References
- 76
- Citations by year
- 2026: 4 · 2025: 5 · 2024: 4 · 2023: 7 · 2022: 5 · 2021: 6 · 2020: 1 · 2019: 3
- FWCI
- 0.80
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Clinical Psychology in Medical Settings (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Fonds de Recherche du Québec - Santé
- Charles Bruneau Cancer Center Foundation
- CHU Sainte-Justine Foundation
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- psychosocial interventions, parents of children with cancer, childhood cancer, change models, intervention development, cognitive behavioral therapy, systemic therapy, counseling, program acceptability, intervention fidelity
- MeSH terms
- Psychological Distress, Adaptation, Psychological, Child, Counseling, Female, Humans, Male, Neoplasms, Parents, Stress, Psychological, Program Evaluation, Cognitive Behavioral Therapy, Program Development
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