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Cited by 665Psychometric Methodologies and TestingHealth Systems, Economic Evaluations, Quality of LifeHealth Education and Validation

PROMIS® Adult Health Profiles: Efficient Short-Form Measures of Seven Health Domains

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Cella, David, Choi, Seung W., Condon, David M., Schalet, Ben, Hays, Ron D., Rothrock, Nan E., Yount, Susan, Cook, Karon F. +7 more·2019·Value in Health
DOI 10.1016/j.jval.2019.02.004PMC PMC7201383
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Abstract

Background There is a need for valid self-report measures of core health-related quality of life (HRQoL) domains. Objective To derive brief, reliable and valid health profile measures from the Patient Reported Outcomes Measurement Information System® (PROMIS®) item banks. Methods Literature review, investigator consensus process, item response theory (IRT) analysis, and expert review of scaling results from multiple PROMIS data sets. We developed 3 profile measures ranging in length from 29 to 57 questions. These profiles assess important HRQoL domains with highly informative subsets of items from respective item banks and yield reliable information across mild-to-severe levels of HRQoL experiences. Each instrument assesses the domains of pain interference, fatigue, depression, anxiety, sleep disturbance, physical function, and social function using 4-, 6-, and 8-item short forms for each domain, and an average pain intensity domain score, using a 0-10 numeric rating scale. Results With few exceptions, all domain short forms within the profile measures were highly reliable across at least 3 standard deviation (30 T-score) units and were strongly correlated with the full bank scores. Construct validity with ratings of general health and quality of life was demonstrated. Information to inform statistical power for clinical and general population samples is also provided. Conclusions Although these profile measures have been used widely, with summary scoring routines published, description of their development, reliability, and initial validity has not been published until this article. Further evaluation of these measures and clinical applications are encouraged.

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  • Scales with four, six, and eight items (short forms) were developed from item banks using item response theory and validated in general and chronic illness populations.

    “Scales with four, six, and eight items (short forms) were developed from item banks using item response theory and validated in general and chronic illness populations [28, 29].”

    From Feasibility and Acceptability of an Abbreviated, Four-Week Mindfulness Program for Chronic Pain Management. (2020) · cites this paper as [29]

    The Methods and Results section describes selecting 4-, 6-, and 8-item short forms from IRT-calibrated PROMIS item banks, and the Discussion reports evidence of construct validity. The analyses used a general-population dataset, however; the paper models performance in clinical samples rather than reporting validation of these short forms in chronic-illness populations. No page numbers are available in our copy. (LLM, conf=0.85)

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  • The PROMIS Pain Intensity 1A Short form, PROMIS Pain Intensity 3A Short form, PROMIS Pain Interference 8A Short form, and PROMIS Emotional Distress-Anxiety 8A Short form employ a fixed low number of questions that are highly reliable when compared with their respective domain's full item bank.

    “The PROMIS Pain Intensity 1A Short form, PROMIS Pain Intensity 3A Short form, PROMIS Pain Interference 8A Short form, and PROMIS Emotional Distress-Anxiety 8A Short form all employ a fixed low number of questions that are highly reliable when compared with their respective domain’s full item bank, making them excellent tools for both patients and clinicians [9,10].”

    From Acceptance and Commitment Therapy Delivered via a Mobile Phone Messaging Robot to Decrease Postoperative Opioid Use in Patients With Orthopedic Trauma: Randomized Controlled Trial (Preprint) (2020) · cites this paper as [10]

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Research works printed but not linked: 7

  1. [1]Ahmed S, Berzon RA, Revicki DA, The use of patient-reported outcomes (PRO) within comparative effectiveness research: implications for clinical practice and health care policy. Med Care. 2012; 50(12): 1060– 1070. 22922434
  2. [6]Cella D, Yount S, Rothrock N, The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH roadmap cooperative group during its first two years. Med Care. 2007; 45(5 Suppl 1): S3– S11. PMC2829758 17443116
  3. [8]Reeve BB, Hays RD, Bjorner JB, Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care. 2007; 45(5 Suppl 1): S22– S31. 17443115
  4. [19]Cella D PROMIS 1 Wave 1. 2015 http://hdl.handle.net/1902.1/21134.
  5. [29]Segawa E, Schalet BD, Cella D. Understanding the difference between CATs and short-forms: a practical examination of the PROMIS Profiles and CAT item banks (under review).
  6. [38]Katz P, Pedro S, Michaud K. Performance of the PROMIS 29-item profile in rheumatoid arthritis, osteoarthritis, fibromyalgia, and systemic lupus erythematosus. Arthritis Care Res. 2017; 69: 1312– 1321. 28029753
  7. [40]Witter JP. The promise of patient-reported outcomes measurement information system—turning theory into reality: a uniform approach to patient-reported outcomes across rheumatic diseases. Rheum Dis Clin North Am. 2016; 42(2): 377– 394. 27133496

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Authors
Cella, D., Choi, S. W., Condon, D. M., Schalet, B., Hays, R. D., Rothrock, N. E., Yount, S., Cook, K. F., Gershon, R. C., Amtmann, D., DeWalt, D. A., Pilkonis, P. A., Stone, A. A., Weinfurt, K., & Reeve, B. B.
Affiliations
  • Northwestern University (US)
  • The University of Texas at Austin (US)
  • University of Oregon (US)
  • University of California, Los Angeles (US)
  • University of Washington (US)
  • University of North Carolina at Chapel Hill (US)
  • University of Pittsburgh (US)
  • University of Southern California (US)
  • Duke University (US)
Corresponding author
Cella, David
ORCID
Venue
Value in Health
Publisher
Elsevier BV
Published
2019-05
Volume
22
Issue
5
Pages
537-544
ISSN
1098-3015 (ISSN-L)
DOI
10.1016/j.jval.2019.02.004
PMC
PMC7201383
OpenAlex
W2945481435
Cited by
665
References
32
Citations by year
2026: 77 · 2025: 128 · 2024: 146 · 2023: 104 · 2022: 87 · 2021: 84 · 2020: 33 · 2019: 5
FWCI
37.39
Type
journal article
Language
en
Open access
Licence
Locations
  • Value in Health (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
  • eScholarship (California Digital Library) (submittedVersion)
Funders
National Institutes of Health (U01AR052177, U54AR057951, U2CCA186878)
Topics
  • Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
  • Social Sciences › Education › Health Education and Validation
Keywords
PROMIS, health-related quality of life, item bank, pain interference, fatigue, depression, anxiety, sleep disorders, physical function, social function, pain intensity, self-report measures, construct validity, reliability statistics, statistical power
MeSH terms
Patient Reported Outcome Measures, Adult, Anxiety, Depression, Fatigue, Female, Humans, Male, Pain, Quality of Life, Surveys and Questionnaires, Sleep, Reproducibility of Results, Self Report

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