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Barriers to Healthcare for Persons with Autism: A Systematic Review of the Literature and Development of A Taxonomy
Abstract
Purpose: This review aimed to 1) synthesize extant research on barriers to healthcare access experienced by persons with autism, their caregivers, and health-care providers; and 2) present a taxonomy of barriers to physical healthcare for individuals with autism.Method: Systematic searches were conducted in five electronic databases. Methodological rigor was assessed using the Quality Assessment Tool for Studies with Diverse Designs. Thematic analysis was used to classify barriers and to develop a taxonomy.Results: In total, 31 articles were included in the review. The resulting taxonomy consisted of four themes: 1) Challenges Associated with Autism-related Characteristics; 2) Health-care Provider-based Issues; 3) Healthcare System Issues; and 4) Patient-related factors.Conclusions: Barriers to healthcare access for persons with autism are prevalent and occur at the patient, provider, and system levels. The taxonomy developed may facilitate measurement of barriers within health-care facilities and prompt identification of areas where interventions are warranted to improve care.
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“Well-described difficulties accessing healthcare for autistic people include patient-provider communication challenges, sensory difficulties, and systemic factors such as resource and time constraints (Mason et al, 2019; Walsh et al, 2020).”
From Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings (2023) · cites this paper as Walsh et al, 2020
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Doherty, M., McCowan, S., & Shaw, S. C. (2023) · British Journal of Hospital Medicine · doi:10.12968/hmed.2023.0006 · Cited by 188
“Well-described difficulties accessing healthcare for autistic people include patient–provider communication challenges, sensory difficulties, and systemic factors such as resource and time constraints (Mason et al, 2019; Walsh et al, 2020).”
BackgroundBrice, S., Rodgers, J., Ingham, B., Mason, D., Wilson, C., Freeston, M. H., Couteur, A. S. L., & Parr, J. R. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-043336 · Cited by 80
Metadata
- Authors
- Walsh, C., Lydon, S., O’Dowd, E., & O’Connor, P.
- Affiliations
- Ollscoil na Gaillimhe – University of Galway (IE)
- National University of Ireland Galway, Galway, Ireland
- Corresponding author
- Walsh, Chloe
- Venue
- Developmental Neurorehabilitation
- Publisher
- Informa UK Limited
- Published
- 2020-02-06
- Volume
- 23
- Issue
- 7
- Pages
- 413-430
- ISSN
- 1363-8491 (ISSN-L)
- 1751-8423
- 1751-8431
- OpenAlex
- W3004472967
- Cited by
- 107
- References
- 104
- Citations by year
- 2026: 24 · 2025: 24 · 2024: 21 · 2023: 14 · 2022: 14 · 2021: 9 · 2020: 1
- FWCI
- 1.28
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Developmental Neurorehabilitation (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Irish Research Council for the Humanities and Social Sciences (GOIPG/2017/1356)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, barriers to health care access, health care access, caregivers, healthcare workers, patient factors
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