"I am just terrified of my future" Epistemic Violence in Disability Related Technology Research

Ymous, Anon; Spiel, Katta; Keyes, Os; Williams, Rua M.; Good, Judith; Hornecker, Eva; Bennett, Cynthia L.

doi:10.1145/3334480.3381828

Cited by 164Disability Rights and RepresentationFeminist Epistemology and Gender StudiesDigital Accessibility for Disabilities

"I am just terrified of my future" Epistemic Violence in Disability Related Technology Research

Ymous, Anon, Spiel, Katta, Keyes, Os, Williams, Rua M., Good, Judith, Hornecker, Eva, Bennett, Cynthia L.·2020·Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems

DOI 10.1145/3334480.3381828

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Abstract

Technology for disabled people is often developed by non-disabled populations, producing an environment where the perspectives of disabled researchers - particularly when they clash with normative ways of approaching accessible technology - are denigrated, dismissed or treated as invalid. This epistemic violence has manifest material consequences for our lives as disabled researchers engaging with work on our own states of being. Through a series of vignettes, we illustrate our experiences and the associated pain that comes with such engagement as well as the consequences of pervasive dehumanization of ourselves through existing works. Our aim is to identify the epistemic injustice disabled people experience within HCI, to question the epistemological base of knowledge production leading to said injustice and to take ownership of a narrative that all too often is created without our participation.

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Ignoring the long-tail communication patterns and needs reflects a broader pattern of epistemic injustice in AI.
“Ignoring the long-tail communication patterns and needs thus reflects a broader pattern of epistemic injustice in AI [2, 111].”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [111]
Existing work often overlooks the expertise of disabled people, with many studies consulting parents, caregivers, or doctors instead of individuals, perpetuating the medical model of disability.
“HCI scholars note that existing work often overlooks the expertise of disabled people, with many studies consulting parents, caregivers, or doctors instead of individuals, perpetuating the medical model of disability [66].”
From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [66]

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Authors: Ymous, A., Spiel, K., Keyes, O., Williams, R. M., Good, J., Hornecker, E., & Bennett, C. L.
Affiliations: University of Somewhere, Too Many Places, Denmark
University of Vienna (AT)
University of Washington (US)
University of Florida, Gainesville, FL, USA
University of Sussex (GB)
Bauhaus-Universität Weimar (DE)
Carnegie Mellon University (US)
ORCID: Spiel, Katta
Keyes, Os
Good, Judith
Hornecker, Eva
Bennett, Cynthia L.
Venue: Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems
Publisher: ACM
Published: 2020-04-25
Pages: 1-16
DOI: 10.1145/3334480.3381828
OpenAlex: W3030028481
Cited by: 160
References: 42
Citations by year: 2026: 25 · 2025: 28 · 2024: 25 · 2023: 27 · 2022: 21 · 2021: 30 · 2020: 4
FWCI: 21.26
Type: conference paper
Language: en
Open access: closed
Licence: www.acm.org/publications/policies/copyright_policy#Background (vor)
Locations: CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) (publishedVersion)
Funders: Microsoft (Ada Lovelace Fellowship)
Topics: Social Sciences › Safety Research › Disability Rights and Representation
Social Sciences › Sociology and Political Science › Feminist Epistemology and Gender Studies
Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
Keywords: epistemic violence, epistemic injustice, disabled researchers, accessible technology, disability studies, human-computer interaction, dehumanization, knowledge production, researcher participation

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"I am just terrified of my future" Epistemic Violence in Disability Related Technology Research

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