Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics
Abstract
Although the concept of quality of life has increasingly been used in the field of intellectual disabilities over the past three decades, the factors contributing to quality of life of persons with autism spectrum disorder (ASD) have received relatively little attention. In this study, disability and support characteristics associated with variations in the level of quality of life among adults with ASD are identified, using self-report measures. Fifty-eight high-functioning adults with ASD participated in the study. The results of a multiple linear regression analysis reveal that support characteristics are related to quality of life in adults with ASD, whereas disability characteristics are not. The R2 effect size (0.620) is large and significant. The results reinforce the significance of an available supportive social network, the importance of a substantial needs assessment and effective professional support.
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The empirical literature associates autism with poor outcomes and low wellbeing.
“On the face of it, this may seem supported by the empirical literature, in which autism is associated with poor outcomes (Howlin, 2000) and low wellbeing (Renty & Roeyers, 2006).”
From Neurodiversity, epistemic injustice, and the good human life (2022) · cites this paper as Renty & Roeyers, 2006
Many autistic adults have difficulties with their physical, emotional and material wellbeing, which can require ongoing support.
“Many also have difficulties with their physical, emotional and material wellbeing, which can require ongoing support (Billstedt et al. 2011;Bishop-Fitzpatrick et al. 2016;Renty and Roeyers 2006).”
From Childhood Executive Function Predicts Later Autistic Features and Adaptive Behavior in Young Autistic People: a 12-Year Prospective Study (2019) · cites this paper as Renty and Roeyers 2006
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Renty, J., & Roeyers, H. (2006) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0268-x · Cited by 74 · see citing works
Self-citationSocial support and links to quality of life among middle-aged and older autistic adults
Charlton, R. A., McQuaid, G. A., & Wallace, G. L. (2022) · Autism · doi:10.1177/13623613221081917 · Cited by 75 · see citing works
Anxiety moderates the influence of ASD severity on quality of life in adults with ASD
Smith, I. C., Ollendick, T. H., & White, S. W. (2019) · Research in Autism · doi:10.1016/j.rasd.2019.03.001 · Cited by 73 · see citing works
Knüppel, A., Telléus, G. K., Jakobsen, H., & Lauritsen, M. B. (2018) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2018.09.004 · Cited by 71 · see citing works
Mediators of the Link Between Autistic Traits and Relationship Satisfaction in a Non-Clinical Sample
Pollmann, M. M. H., Finkenauer, C., & Begeer, S. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0888-z · Cited by 71 · see citing works
Koch, A. D., Vogel, A., Becker, T. M., Salize, H. J., Voß, E., Werner, A., Arnold, K., & Schützwohl, M. (2015) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2015.07.022 · Cited by 71 · see citing works
Limbers, C. A., Heffer, R. W., & Varni, J. W. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0777-5 · Cited by 69 · see citing works
Dean, E. E., Shogren, K. A., Hagiwara, M., & Wehmeyer, M. L. (2018) · Journal of Vocational Rehabilitation · doi:10.3233/jvr-180950 · Cited by 68 · see citing works
How I See and Feel About Myself: Domain-Specific Self-Concept and Self-Esteem in Autistic Adults
Nguyen, W., Ownsworth, T., Nicol, C., & Zimmerman, D. (2020) · Frontiers in Psychology · doi:10.3389/fpsyg.2020.00913 · Cited by 68 · see citing works
Youth With Autism Spectrum Disorders
Clark, B. G., Magill‐Evans, J., & Koning, C. (2014) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357614522289 · Cited by 68 · see citing works
Patel, A. D., Arya, A., Agarwal, V., Gupta, P. K., & Agarwal, M. (2022) · Asian Journal of Psychiatry · doi:10.1016/j.ajp.2022.103030 · Cited by 66 · see citing works
Coleman-Smith, R., Smith, R. S., Milne, E., & Thompson, A. R. (2020) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-019-04296-3 · Cited by 71 · see citing works
Vogeley, K. T., Kirchner, J. C., Gawronski, A., van Elst, L. T., & Dziobek, I. (2013) · European Archives of Psychiatry and Clinical Neuroscience · doi:10.1007/s00406-013-0455-7 · Cited by 66 · see citing works
Qualidade de vida dos cuidadores de crianças com transtorno do espectro autístico
Barbosa, M. R. P., & Fernandes, F. D. M. (2009) · Revista da Sociedade Brasileira de Fonoaudiologia · doi:10.1590/s1516-80342009000400009 · Cited by 59 · see citing works
Pantazakos, T., & Vanaken, G.-J. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.1225152 · Cited by 59 · see citing works
“In contrast to claims grounded in a medical model of disability, preliminary evidence points to a correlation between the wellbeing of autistic individuals and the perceived quality of support and the degree of social acceptance (Renty and Roeyers, 2006; Milton and Sims, 2016).”
ResultSandercock, R., Lamarche, E. M., Klinger, M. R., & Klinger, L. G. (2020) · Autism · doi:10.1177/1362361320942981 · Cited by 60 · see citing works
Autism and the U.K. Secondary School Experience
Dillon, G., Underwood, J., & Freemantle, L. J. (2014) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357614539833 · Cited by 58 · see citing works
Oakley, B. F. M., Loth, E., & Murphy, D. (2021) · International Review of Psychiatry · doi:10.1080/09540261.2021.1872506 · Cited by 59 · see citing works
Objective and subjective quality of life in adults with autism spectrum disorders in southern Spain
Saldaña, D., Álvarez, R. M., Lobatón, S., Lopez, A. M., Moreno, M., & Rojano, M. Á. (2009) · Autism · doi:10.1177/1362361309103792 · Cited by 57 · see citing works
Gal, E., Landes, E., & Katz, N. (2014) · Research in Autism · doi:10.1016/j.rasd.2014.10.011 · Cited by 55 · see citing works
Health-Related Quality of Life in Children and Adolescents with Autism Spectrum Disorder
Kamp‐Becker, I., Schröder, J., Muehlan, H., Remschmidt, H., Becker, K., & Bachmann, C. (2011) · Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie · doi:10.1024/1422-4917/a000098 · Cited by 55 · see citing works
The Theory of Intersectionality: A New Lens for Understanding the Barriers Faced by Autistic Women
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Senland, A. K., & Higgins‐D'Alessandro, A. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2849-7 · Cited by 48 · see citing works
A systematic review of romantic relationship initiation and maintenance factors in autism
Yew, R. Y., Samuel, P., Hooley, M., Mesibov, G. B., & Stokes, M. A. (2021) · Personal Relationships · doi:10.1111/pere.12397 · Cited by 48 · see citing works
Scheeren, A. M., Buil, J. M., Howlin, P., Bartels, M., & Begeer, S. (2021) · Autism · doi:10.1177/13623613211027673 · Cited by 47 · see citing works
Neurodiversity, Advocacy, Anti-Therapy
Chapman, R., & Bovell, V. (2022) · Autism and child psychopathology series · doi:10.1007/978-3-030-88538-0_67 · Cited by 48 · see citing works
A meta regression analysis of quality of life correlates in adults with ASD
Kim, S. Y., & Bottema‐Beutel, K. (2019) · Research in Autism · doi:10.1016/j.rasd.2018.11.004 · Cited by 47 · see citing works
When is a good outcome actually good?
Taylor, J. L. (2017) · Autism · doi:10.1177/1362361317728821 · Cited by 48 · see citing works
Köse, S., Erermiş, S., Ozturk, O., Özbaran, B., Demiral, N., Bildik, T., & Aydın, C. (2012) · Research in Autism · doi:10.1016/j.rasd.2012.09.009 · Cited by 46 · see citing works
Quality of Life of Taiwanese Adults with Autism Spectrum Disorder
Lin, L. (2014) · PLoS ONE · doi:10.1371/journal.pone.0109567 · Cited by 46 · see citing works
Wright, S. D., Wright, S. D., Brooks, D., D’Astous, V., & Grandin, T. (2013) · Autism Insights · doi:10.4137/aui.s11072 · Cited by 45 · see citing works
Social Skills Training for Adolescents and Adults with Autism Spectrum Disorder
Laugeson, E. A., & Ellingsen, R. W. (2014) · Springer eBooks · doi:10.1007/978-1-4939-0506-5_4 · Cited by 45 · see citing works
Scattoni, M. L., Micai, M., Ciaramella, A., Salvitti, T., Fulceri, F., Fatta, L. M., Poustka, L., Diehm, R., Iskrov, G. G., Stefanov, R. S., et al. (2021) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-021-04873-5 · Cited by 46 · see citing works
- Authors
- Renty, J. O., & Roeyers, H.
- Affiliations
- Ghent University (BE)
- ORCID
- Roeyers, Herbert
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2006-09
- Volume
- 10
- Issue
- 5
- Pages
- 511-524
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2126485481
- Cited by
- 302
- References
- 46
- Citations by year
- 2026: 10 · 2025: 10 · 2024: 11 · 2023: 13 · 2022: 24 · 2021: 17 · 2020: 17 · 2019: 23 · 2018: 16 · 2017: 34 · 2016: 17 · 2015: 18 · 2014: 27 · 2013: 14 · 2012: 9
- FWCI
- 2.92
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Universiteit Gent
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Keywords
- quality of life, autism spectrum disorder, high-functioning adults, social support networks, disability characteristics, needs assessment, professional support, intellectual disability
- MeSH terms
- Adolescent, Adult, Autistic Disorder, Demography, Disability Evaluation, Female, Humans, Male, Middle Aged, Predictive Value of Tests, Quality of Life, Severity of Illness Index, Social Support, Wechsler Scales
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