Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of “terminal” anorexia nervosa

Sharpe, Sam L.; Adams, Marissa; Smith, Emil K.; Urban, Bek; Silverstein, Scout

doi:10.1186/s40337-023-00791-2

Cited by 29Eating Disorders and BehaviorsChild Nutrition and Feeding IssuesPersonality Disorders and Psychopathology

Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of “terminal” anorexia nervosa

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Sharpe, Sam L., Adams, Marissa, Smith, Emil K., Urban, Bek, Silverstein, Scout·2023·Journal of Eating Disorders

DOI 10.1186/s40337-023-00791-2PMC PMC10152768

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Abstract

Informed by our lived experiences with eating disorders, our work providing direct support to communities underserved by existing healthcare structures, and our commitment to social justice, we are deeply troubled by several aspects of the proposed characteristics for "terminal" anorexia nervosa outlined by Gaudiani et al. in Journal of Eating Disorders (10:23, 2022). We have identified two substantial areas of concern in the proposed characteristics provided by Gaudiani et al. and the subsequent publication by Yager et al. (10:123, 2022). First, the original article and the subsequent publication fail to adequately address the widespread inaccessibility of eating disorder treatment, the lack of parameters for what constitutes "high quality care", and the prevalence of trauma experienced in treatment settings for those who do access treatment. Second, the characteristics proposed for "terminal" anorexia nervosa are constructed largely based on subjective and inconsistent valuations of suffering which build on and contribute to harmful and inaccurate eating disorder stereotypes. Overall, we believe these proposed characteristics in their current form stand to detract from, rather than assist, the ability of patients and providers to make informed, compassionate, and patient-centered decisions about safety and autonomy both for individuals with enduring eating disorders and for individuals with more recently diagnosed eating disorders.

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Diagnostic and Statistical Manual of Mental Disorders
American Psychiatric Association (2022) · doi:10.1176/appi.books.9780890425787 · Cited by 23,476 · see citing works
Joint international consensus statement for ending stigma of obesity
Rubino, F., Puhl, R. M., Cummings, D. E., Eckel, R. H., Ryan, D. H., Mechanick, J. I., Nadglowski, J., Ramos Salas, X., Schauer, P. R., Twenefour, D., et al. (2020) · Nature Medicine · doi:10.1038/s41591-020-0803-x · Cited by 1,152 · see citing works
Prevalence, incidence, impairment, and course of the proposed DSM-5 eating disorder diagnoses in an 8-year prospective community study of young women
Stice, E., Marti, C. N., & Rohde, P. (2013) · Journal of Abnormal Psychology · doi:10.1037/a0030679 · Cited by 822 · see citing works
New Evidence Regarding Racial And Ethnic Disparities In Mental Health: Policy Implications
McGuire, T. G., & Miranda, J. (2008) · Health Affairs · doi:10.1377/hlthaff.27.2.393 · Cited by 734 · see citing works
Diagnostic Crossover in Anorexia Nervosa and Bulimia Nervosa: Implications for DSM-V
Eddy, K. T., Dorer, D. J., Franko, D. L., Tahilani, K., Thompson-Brenner, H., & Herzog, D. B. (2008) · American Journal of Psychiatry · doi:10.1176/appi.ajp.2007.07060951 · Cited by 535 · see citing works
Recovery from anorexia nervosa and bulimia nervosa at 22-year follow-up
Eddy, K. T., Tabri, N., Thomas, J. J., Murray, H. B., Keshaviah, A., Hastings, E., Edkins, K., Krishna, M., Herzog, D. B., Keel, P. K., et al. (2017) · The Journal of Clinical Psychiatry · doi:10.4088/jcp.15m10393 · Cited by 535 · see citing works
Eating disorder NOS (EDNOS): an example of the troublesome “not otherwise specified” (NOS) category in DSM-IV.
Fairburn, C. G., & Bohn, K. (2005) · Behaviour Research and Therapy · doi:10.1016/j.brat.2004.06.011 · Cited by 496 · see citing works
Medical complications of anorexia nervosa and bulimia
Westmoreland, P., Krantz, M. J., & Mehler, P. S. (2016) · The American Journal of Medicine · doi:10.1016/j.amjmed.2015.06.031 · Cited by 467 · see citing works
Addressing critical gaps in the treatment of eating disorders
Kazdin, A. E., Fitzsimmons‐Craft, E. E., & Wilfley, D. E. (2017) · International Journal of Eating Disorders · doi:10.1002/eat.22670 · Cited by 389 · see citing works
Symptom fluctuation in eating disorders: correlates of diagnostic crossover
Tozzi, F., Thornton, L. M., Klump, K. L., Fichter, M. M., Halmi, K. A., Kaplan, A. S., Strober, M., Woodside, D. B., Crow, S., Mitchell, J., et al. (2005) · American Journal of Psychiatry · doi:10.1176/appi.ajp.162.4.732 · Cited by 317 · see citing works
Long‐term outcome of anorexia nervosa: Results from a large clinical longitudinal study
Fichter, M. M., Quadflieg, N., Crosby, R. D., & Koch, S. (2017) · International Journal of Eating Disorders · doi:10.1002/eat.22736 · Cited by 292 · see citing works
‘I Am Not The Doctor For You’: Physicians’ Attitudes About Caring For People With Disabilities
Lagu, T. C., Haywood, C., Reimold, K. E., DeJong, C., Sterling, R. W., & Iezzoni, L. I. (2022) · Health Affairs · doi:10.1377/hlthaff.2022.00475 · Cited by 229 · see citing works
Reckoning with histories of medical racism and violence in the USA
Nuriddin, A., Mooney, G., & White, A. I. R. (2020) · The Lancet · doi:10.1016/s0140-6736(20)32032-8 · Cited by 219 · see citing works
Cognitive Interpersonal Model for Anorexia Nervosa Revisited: The Perpetuating Factors that Contribute to the Development of the Severe and Enduring Illness
Treasure, J. L., Willmott, D., Ambwani, S., Cardi, V., Bryan, D. C., Rowlands, K., & Schmidt, U. H. (2020) · Journal of Clinical Medicine · doi:10.3390/jcm9030630 · Cited by 212 · see citing works
Prevalence of a History of Overweight and Obesity in Adolescents With Restrictive Eating Disorders
Lebow, J. R., Sim, L. A., & Kransdorf, L. N. (2014) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2014.06.005 · Cited by 211 · see citing works
Weight bias among professionals treating eating disorders: Attitudes about treatment and perceived patient outcomes
Puhl, R. M., Latner, J. D., King, K. M., & Luedicke, J. (2013) · International Journal of Eating Disorders · doi:10.1002/eat.22186 · Cited by 189 · see citing works
Eating disorder diagnoses and symptom presentation in transgender youth: A scoping review
Coelho, J. S., Suen, J., Clark, D. B. A., Marshall, S. K., Geller, J., & Lam, P.-Y. (2019) · Current Psychiatry Reports · doi:10.1007/s11920-019-1097-x · Cited by 185 · see citing works
Weight Loss and Illness Severity in Adolescents With Atypical Anorexia Nervosa
Garber, A. K., Cheng, J., Accurso, E. C., Adams, S. H., Buckelew, S. M., Kapphahn, C. J., Kreiter, A. A., Grange, D. L., Machen, V. I., Moscicki, A., et al. (2019) · PEDIATRICS · doi:10.1542/peds.2019-2339 · Cited by 183 · see citing works
A qualitative study of perceived social barriers to care for eating disorders: Perspectives from ethnically diverse health care consumers
Becker, A. E., Arrindell, A. H., Perloe, A., Fay, K., & Striegel‐Moore, R. H. (2009) · International Journal of Eating Disorders · doi:10.1002/eat.20755 · Cited by 180 · see citing works
Minimizing and treating chronicity in the eating disorders: A clinical overview
Wonderlich, S. A., Mitchell, J. E., Crosby, R. D., Myers, T. C., Kadlec, K. M., LaHaise, K., Swan-Kremeier, L. A., Dokken, J., Lange, M., Dinkel, J., et al. (2012) · International Journal of Eating Disorders · doi:10.1002/eat.20978 · Cited by 170 · see citing works
Current eating disorder healthcare services – the perspectives and experiences of individuals with eating disorders, their families and health professionals: systematic review and thematic synthesis
Johns, G., Taylor, B., John, A. M., & Tan, J. O. A. (2019) · BJPsych Open · doi:10.1192/bjo.2019.48 · Cited by 169 · see citing works
Suicide Attempts in Anorexia Nervosa
Bulik, C. M., Thornton, L., Pinheiro, A. P., Plotnicov, K. H., Klump, K. L., Brandt, H., Crawford, S. F., Fichter, M. M., Halmi, K. A., Johnson, C., et al. (2008) · Psychosomatic Medicine · doi:10.1097/psy.0b013e3181646765 · Cited by 168 · see citing works
Using the Autism-Spectrum Quotient to Measure Autistic Traits in Anorexia Nervosa: A Systematic Review and Meta-Analysis
Westwood, H., Eisler, I., Mandy, W., Leppänen, J., Treasure, J. L., & Tchanturia, K. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2641-0 · Cited by 160 · see citing works
Where identities converge: The importance of intersectionality in eating disorders research
Burke, N. L., Schaefer, L. M., Hazzard, V. M., & Rodgers, R. F. (2020) · International Journal of Eating Disorders · doi:10.1002/eat.23371 · Cited by 151 · see citing works
Restrictive eating disorders in higher weight persons: A systematic review of atypical anorexia nervosa prevalence and consecutive admission literature
Harrop, E. N., Mensinger, J. L., Moore, M., & Lindhorst, T. (2021) · International Journal of Eating Disorders · doi:10.1002/eat.23519 · Cited by 148 · see citing works
Severe and enduring anorexia nervosa: Update and observations about the current clinical reality
Wonderlich, S. A., Bulik, C. M., Schmidt, U., Steiger, H., & Hoek, H. W. (2020) · International Journal of Eating Disorders · doi:10.1002/eat.23283 · Cited by 143 · see citing works
<scp>L</scp>abeling and defining severe and enduring anorexia nervosa: A systematic review and critical analysis
Broomfield, C., Stedal, K., Touyz, S., & Rhodes, P. (2017) · International Journal of Eating Disorders · doi:10.1002/eat.22715 · Cited by 126 · see citing works
A systematic review of sociodemographic reporting and representation in eating disorder psychotherapy treatment trials in the United States
Burnette, C. B., Luzier, J. L., Weisenmuller, C. M., & Boutté, R. L. (2022) · International Journal of Eating Disorders · doi:10.1002/eat.23699 · Cited by 120 · see citing works
Examining associations among weight stigma, weight bias internalization, body dissatisfaction, and eating disorder symptoms: Does weight status matter?
Romano, K. A., Heron, K. E., & Henson, J. M. (2021) · Body Image · doi:10.1016/j.bodyim.2021.01.006 · Cited by 112 · see citing works
Transgender Clients’ Experiences of Eating Disorder Treatment
Duffy, M. E., Henkel, K. E., & Earnshaw, V. A. (2016) · Journal of LGBTQ Issues in Counseling · doi:10.1080/15538605.2016.1177806 · Cited by 111 · see citing works
Predictors of Complications in Anorexia Nervosa and Atypical Anorexia Nervosa: Degree of Underweight or Extent and Recency of Weight Loss?
Whitelaw, M., Lee, K. J., Gilbertson, H., & Sawyer, S. M. (2018) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2018.08.019 · Cited by 109 · see citing works
‘It’s not that they don’t want to access the support . . . it’s the impact of the autism’ : The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals
Babb, C., Brede, J., Jones, C. R. G., Elliott, M., Zanker, C. L., Tchanturia, K., Serpell, L., Mandy, W., & Fox, J. R. E. (2021) · Autism · doi:10.1177/1362361321991257 · Cited by 105 · see citing works
Excess mortality associated with eating disorders: population-based cohort study
Iwajomo, T., Bondy, S. J., de Oliveira, C., Colton, P., Trottier, K., & Kurdyak, P. A. (2020) · The British Journal of Psychiatry · doi:10.1192/bjp.2020.197 · Cited by 104 · see citing works
Defining “significant weight loss” in atypical anorexia nervosa
Forney, K. J., Brown, T. A., Holland‐Carter, L., Kennedy, G. A., & Keel, P. K. (2017) · International Journal of Eating Disorders · doi:10.1002/eat.22717 · Cited by 103 · see citing works
First do no harm: Iatrogenic Maintaining Factors in Anorexia Nervosa
Treasure, J. L., Crane, A., McKnight, R. F., Buchanan, E. M., & Wolfe, M. (2011) · European Eating Disorders Review · doi:10.1002/erv.1056 · Cited by 100 · see citing works
Treatment of Patients With Anorexia Nervosa in the US—A Crisis in Care
Kaye, W. H., & Bulik, C. M. (2021) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2020.4796 · Cited by 92 · see citing works
Terminal anorexia nervosa: three cases and proposed clinical characteristics
Gaudiani, J. L., Bogetz, A., & Yager, J. (2022) · Journal of Eating Disorders · doi:10.1186/s40337-022-00548-3 · Cited by 82 · see citing works
A network approach can improve eating disorder conceptualization and treatment
Levinson, C. A., Cusack, C. E., Brown, M. L., & Smith, A. R. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-022-00062-y · Cited by 73 · see citing works
Disparities in disordered eating between gender minority and cisgender adolescents
Roberts, S. R., Salk, R. H., Thoma, B. C., Romito, M., Levine, M. D., & Choukas‐Bradley, S. (2021) · International Journal of Eating Disorders · doi:10.1002/eat.23494 · Cited by 72 · see citing works
Wasted: A Memoir of Anorexia and Bulimia
Miller, D. (1999) · Psychiatric Services · doi:10.1176/ps.50.4.574 · Cited by 71 · see citing works
The three-legged stool of evidence-based practice in eating disorder treatment: research, clinical, and patient perspectives
Peterson, C. B., Becker, C. B., Treasure, J. L., Shafran, R., & Bryant‐Waugh, R. (2016) · BMC Medicine · doi:10.1186/s12916-016-0615-5 · Cited by 71 · see citing works
Predictors of eating-related psychopathology in transgender and gender nonbinary individuals
Uniacke, B., Glasofer, D. R., Devlin, M. J., Bockting, W. O., & Attia, E. (2021) · Eating Behaviors · doi:10.1016/j.eatbeh.2021.101527 · Cited by 70 · see citing works
The Axes of Access — Improving Care for Patients with Disabilities
Lagu, T. C., Iezzoni, L. I., & Lindenauer, P. K. (2014) · New England Journal of Medicine · doi:10.1056/nejmsb1315940 · Cited by 68 · see citing works
A lived experience response to the proposed diagnosis of terminal anorexia nervosa: learning from iatrogenic harm, ambivalence and enduring hope
Elwyn, R. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-022-00729-0 · Cited by 61 · see citing works
Understanding the ‘Anorexic Voice’ in Anorexia Nervosa
Pugh, M., & Waller, G. (2016) · Clinical Psychology & Psychotherapy · doi:10.1002/cpp.2034 · Cited by 58 · see citing works
Exploring the experience of being viewed as “not sick enough”: a qualitative study of women recovered from anorexia nervosa or atypical anorexia nervosa
Eiring, K., Hage, T. W., & Reas, D. L. (2021) · Journal of Eating Disorders · doi:10.1186/s40337-021-00495-5 · Cited by 57 · see citing works
What accounts for the high mortality of anorexia nervosa?
Mehler, P. S., Watters, A., Joiner, T. E., & Krantz, M. J. (2022) · International Journal of Eating Disorders · doi:10.1002/eat.23664 · Cited by 57 · see citing works
Untreatable or unable to treat? Creating more effective and accessible treatment for long-standing and severe eating disorders
Downs, J., Ayton, A., Collins, L., Baker, S., Missen, H., & Ibrahim, A. (2023) · The Lancet Psychiatry · doi:10.1016/s2215-0366(22)00400-x · Cited by 51 · see citing works
Exploring Relationships Between Autism Spectrum Disorder Symptoms and Eating Disorder Symptoms in Adults With Anorexia Nervosa: A Network Approach
Kerr‐Gaffney, J., Halls, D., Harrison, A., & Tchanturia, K. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.00401 · Cited by 50 · see citing works
Genetic Association of Recovery from Eating Disorders: The Role of GABA Receptor SNPs
Bloss, C. S., Berrettini, W. H., Bergen, A. W., Magistretti, P. J., Duvvuri, V., Strober, M. A., Brandt, H., Crawford, S. F., Crow, S. J., Fichter, M. M., et al. (2011) · Neuropsychopharmacology · doi:10.1038/npp.2011.108 · Cited by 44 · see citing works
Eighteen-month Course and Outcome of Adolescent Restrictive Eating Disorders: Persistence, Crossover, and Recovery
Breithaupt, L. E., Kahn, D. L., Slattery, M. J., Plessow, F., Mancuso, C., Izquierdo, A. M., Dreier, M. J., Becker, K. R., Franko, D. L., Thomas, J. J., et al. (2022) · Journal of Clinical Child & Adolescent Psychology · doi:10.1080/15374416.2022.2034634 · Cited by 43 · see citing works
Investigation of factors associated to crossover from anorexia nervosa restricting type (ANR) and anorexia nervosa binge-purging type (ANBP) to bulimia nervosa and comparison of bulimia nervosa patients with or without previous ANR or ANBP
Monteleone, P., Genio, M. D., Monteleone, A. M., Filippo, C. D., & Maj, M. (2010) · Comprehensive Psychiatry · doi:10.1016/j.comppsych.2010.05.002 · Cited by 41 · see citing works
Prevention and Early Identification of Eating Disorders
Attia, E., & Guarda, Á. S. (2022) · JAMA · doi:10.1001/jama.2022.2458 · Cited by 41 · see citing works
Marketing residential treatment programs for eating disorders: a call for transparency
Attia, E., Blackwood, K. L., Guarda, A. S., Marcus, M. D., & Rothman, D. J. (2016) · Psychiatric Services · doi:10.1176/appi.ps.201500338 · Cited by 39 · see citing works
Involuntary Treatment of Patients With Life-Threatening Anorexia Nervosa.
Westmoreland, P., Johnson, C., Stafford, M. K., Martínez, R., & Mehler, P. S. (2017) · PubMed · Cited by 38 · see citing works
Moderators of treatment outcomes in a partial hospitalization and intensive outpatient program for eating disorders
Hayes, N. A., Welty, L. J., Slesinger, N. C., & Washburn, J. J. (2018) · Eating Disorders · doi:10.1080/10640266.2018.1512302 · Cited by 38 · see citing works
Harm minimization in severe and enduring anorexia nervosa
Russell, J., Mulvey, B., Bennett, H., Donnelly, B., & Frig, E. (2019) · International Review of Psychiatry · doi:10.1080/09540261.2019.1601073 · Cited by 37 · see citing works
Autistic women’s experiences of self-compassion after receiving their diagnosis in adulthood
Wilson, R. B., Thompson, A. R., Rowse, G., Smith, R. S., Dugdale, A.-S., & Freeth, M. (2022) · Autism · doi:10.1177/13623613221136752 · Cited by 35 · see citing works
Who do you think you are? - Personality in eating disordered patients
Levallius, J., Clinton, D. N., Bäckström, M., & Norring, C. E. A. (2015) · Journal of Eating Disorders · doi:10.1186/s40337-015-0042-6 · Cited by 33 · see citing works
Ground zero: Ontology, recognition, and the elusiveness of care in American eating disorders treatment
Lester, R. J. (2016) · Transcultural Psychiatry · doi:10.1177/1363461516674874 · Cited by 33 · see citing works
“If she had broken her leg she would not have waited in agony for 9 months”: Caregiver's experiences of eating disorder treatment
Robinson, I., Stoyel, H., & Robinson, P. H. (2020) · European Eating Disorders Review · doi:10.1002/erv.2780 · Cited by 33 · see citing works
Terminal anorexia nervosa is a dangerous term: it cannot, and should not, be defined
Guarda, A. S., Hanson, A., Mehler, P., & Westmoreland, P. (2022) · Journal of Eating Disorders · doi:10.1186/s40337-022-00599-6 · Cited by 32 · see citing works
Being and doing anorexia nervosa: An autoethnography of diagnostic identity and performance of illness
O’Connell, L. (2021) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/13634593211017190 · Cited by 30 · see citing works
Weighing in: qualitative explorations of weight restoration as recovery in anorexia nervosa
Barko, E. B., & Moorman, S. M. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-023-00736-9 · Cited by 29 · see citing works
A path to defining excellence in intensive treatment for eating disorders
Guarda, A. S., Wonderlich, S., Kaye, W., & Attia, E. (2018) · International Journal of Eating Disorders · doi:10.1002/eat.22899 · Cited by 28 · see citing works
The Health Care of Adults with Differences in Sex Development or Intersex Traits Is Changing: Time to Prepare Clinicians and Health Systems
Grimstad, F. W., Kremen, J., Streed, C. G., et al. (2021) · LGBT Health · doi:10.1089/lgbt.2021.0018 · Cited by 28 · see citing works
The need for consistent outcome measures in eating disorder treatment programs: A proposal for the field
Attia, E., Marcus, M. D., Walsh, B. T., & Guarda, A. S. (2017) · International Journal of Eating Disorders · doi:10.1002/eat.22665 · Cited by 27 · see citing works
First, do no harm: the proposed definition of “terminal anorexia” is fraught with danger for vulnerable individuals
Riddle, M., O’Melia, A. M., & Bauschka, M. (2022) · Journal of Eating Disorders · doi:10.1186/s40337-022-00605-x · Cited by 25 · see citing works
Insights into the Experiences of Treatment for An Eating Disorder in Men: A Qualitative Study of Autobiographies
Thapliyal, P., Mitchison, D., & Hay, P. (2017) · Behavioral Sciences · doi:10.3390/bs7020038 · Cited by 24 · see citing works
Pride Before a Fall: Shame, Diagnostic Crossover, and Eating Disorders
Mortimer, R. (2019) · Journal of Bioethical Inquiry · doi:10.1007/s11673-019-09923-3 · Cited by 24 · see citing works
A Call to Update Standard of Care for Children With Differences in Sex Development
Mulkey, N., Streed, C. G., & Chubak, B. M. (2021) · The AMA Journal of Ethic · doi:10.1001/amajethics.2021.550 · Cited by 24 · see citing works
Gender-Affirmative Eating Disorder Care: Clinical Considerations for Transgender and Gender Expansive Children and Youth
Geilhufe, B., Tripp, O., Silverstein, S., Birchfield, L., & Raimondo, M. (2021) · Pediatric Annals · doi:10.3928/19382359-20210820-01 · Cited by 24 · see citing works
Self-citation
Eating disorders and palliative care specialists require definitional consensus and clinical guidance regarding terminal anorexia nervosa: addressing concerns and moving forward
Yager, J., Gaudiani, J. L., & Treem, J. (2022) · Journal of Eating Disorders · doi:10.1186/s40337-022-00659-x · Cited by 24 · see citing works
Ethically Challenged
Olson, L. R. (2022) · Johns Hopkins University Press eBooks · doi:10.1353/book.100172 · Cited by 23 · see citing works
“Our daily life was mainly comprised of eating and sitting:” a qualitative analysis of adolescents’ experiences of inpatient eating disorder treatment in China
Wu, Y., & Harrison, A. (2019) · Journal of Eating Disorders · doi:10.1186/s40337-019-0250-6 · Cited by 22 · see citing works
The implementation of large-scale health system reform in identification, access and treatment of eating disorders in Australia
Maguire, S., & Maloney, D. (2021) · Journal of Eating Disorders · doi:10.1186/s40337-021-00476-8 · Cited by 22 · see citing works
How do eating disorder specialist clinicians apply DSM-IV diagnostic criteria in routine clinical practice? Implications for enhancing clinical utility in DSM-5
Thomas, J. J., Delinsky, S. S., Germain, S. A. S., Weigel, T. J., Tangren, C. M., Levendusky, P. G., & Becker, A. E. (2010) · Psychiatry Research · doi:10.1016/j.psychres.2010.05.021 · Cited by 20 · see citing works
Comparing eating disorder treatment outcomes of transgender and nonbinary individuals with cisgender individuals
Riddle, M. C., Robertson, L., Blalock, D. V., Duffy, A., Grange, D. L., Mehler, P. S., Rienecke, R. D., & Joiner, T. E. (2022) · International Journal of Eating Disorders · doi:10.1002/eat.23812 · Cited by 20 · see citing works
An investigation of the joint longitudinal trajectories of low body weight, binge eating, and purging in women with anorexia nervosa and bulimia nervosa
Lavender, J. M., Young, K. P. D., Franko, D. L., Eddy, K. T., Kass, A. E., Sears, M. S., & Herzog, D. B. (2010) · International Journal of Eating Disorders · doi:10.1002/eat.20880 · Cited by 18 · see citing works
Eating Disorders
Mehler, P. S. (2022) · Johns Hopkins University Press eBooks · doi:10.56021/9781421443591 · Cited by 18 · see citing works
Distinct and Untamed: Articulating Bulimic Identities
Eli, K. (2018) · Culture, Medicine, and Psychiatry · doi:10.1007/s11013-017-9545-8 · Cited by 17 · see citing works
Why Do Women with Eating Disorders Decline Treatment? A Qualitative Study of Barriers to Specialized Eating Disorder Treatment
Andersen, S. T., Linkhorst, T., Gildberg, F. A., & Sjögren, M. (2021) · Nutrients · doi:10.3390/nu13114033 · Cited by 17 · see citing works
To the limit of extreme malnutrition
Frølich, J., Palm, C. V. B., & Støving, R. K. (2016) · Nutrition · doi:10.1016/j.nut.2015.08.024 · Cited by 16 · see citing works
The Boundaries of a Good Anorexic: Exploring Pro-Anorexia on the Internet and in the Clinic
Lavis, A. (2011) · Goldsmiths Research Online · Cited by 15 · see citing works
Caring for individuals with Type 1 Diabetes Mellitus who restrict and omit insulin for weight control: Evidence-based guidance for healthcare professionals
Goddard, G., & Oxlad, M. (2022) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2022.109783 · Cited by 15 · see citing works
Emergency room presentations of people with anorexia nervosa
Mehler, P. S., Anderson, K., Bauschka, M., Cost, J., & Farooq, A. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-023-00742-x · Cited by 15 · see citing works
Medicine as constraint: Assessing the barriers to gender-affirming care
Kumar, A., Amakiri, U. O., & Safer, J. D. (2022) · Cell Reports Medicine · doi:10.1016/j.xcrm.2022.100517 · Cited by 13 · see citing works
Anorexia’s failed little sisters: reflections on researching bulimia as a former bulimic
Frey, I. (2020) · Social Theory & Health · doi:10.1057/s41285-019-00100-5 · Cited by 12 · see citing works
Responding to “Terminal anorexia nervosa: three cases and proposed clinical characteristics”
Mack, R. A., & Stanton, C. E. (2022) · Journal of Eating Disorders · doi:10.1186/s40337-022-00612-y · Cited by 12 · see citing works
Anorexia: the great taboo
Bryant, E. (2021) · The Lancet Psychiatry · doi:10.1016/s2215-0366(21)00362-x · Cited by 11 · see citing works
A desire for anorexia
Lavis, A. (2016) · Medicine Anthropology Theory · doi:10.17157/mat.3.1.258 · Cited by 10 · see citing works
Mortality in extremely low BMI anorexia nervosa patients – implications of gastrointestinal and endocrine system dysfunction
Suszko, M., Sobocki, J., & Imieliński, C. (2022) · Psychiatria Polska · doi:10.12740/pp/126233 · Cited by 10 · see citing works
Simple or complex? A case study of physical and mental health co-morbidity
Bennett, S. D., Heyman, I., Varadkar, S., Coughtrey, A. E., & Shafran, R. (2017) · The Cognitive Behaviour Therapist · doi:10.1017/s1754470x1700006x · Cited by 6 · see citing works
The legacy of hope summit: a consensus-based initiative and report on eating disorders in the U.S. and recommendations for the path forward
Blackwell, D., Becker, C. B., Bermudez, O. B., Berrett, M. E., Brooks, G. E., Bunnell, D. W., Cabrera, D., Costin, C., Hemendinger, N., Johnson, C., et al. (2021) · Journal of Eating Disorders · doi:10.1186/s40337-021-00501-w · Cited by 6 · see citing works
Binge‐eating disorder with and without lifetime anorexia nervosa: A comparison of sociodemographic and clinical features
Pawar, P. S., Thornton, L. M., Flatt, R. E., Sanzari, C. M., Carrino, E. A., Tregarthen, J., Argue, S., Bulik, C. M., & Watson, H. J. (2022) · International Journal of Eating Disorders · doi:10.1002/eat.23858 · Cited by 5 · see citing works
Terminal Anorexia Is Dangerous Justification for Aid in Dying
Westmoreland, P., Mehler, P. S., & Brandt, H. (2022) · Psychiatric News · doi:10.1176/appi.pn.2022.11.9.4 · Cited by 4 · see citing works
We are only at the tip of the iceberg: A commentary on higher levels of care for anorexia nervosa
Chen, E. Y., & Kaye, W. H. (2018) · Clinical Psychology Science and Practice · doi:10.1111/cpsp.12225 · Cited by 3 · see citing works
We are only at the tip of the iceberg: A commentary on higher levels of care for anorexia nervosa.
Chen, E. Y., & Kaye, W. H. (2018) · Clinical Psychology Science and Practice · doi:10.1037/h0101750 · Cited by 2 · see citing works

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Research works printed but not linked: 2

[61]Mehler PS Andersen AE Eating disorders: a comprehensive guide to medical care and complications 2022 4 Baltimore Johns Hopkins University Press 50 54
[64]Gaudiani JL. Sick enough: a guide to the medical complications of eating disorders. New York: Routledge; 2019. p. 4, 10, 97, 179, 185.

Sorted by citations

Assisted death in eating disorders: a systematic review of cases and clinical rationales
Roff, C., & Cook-Cottone, C. (2024) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2024.1431771 · Cited by 16 · see citing works
The importance of terminology, lived experience inclusion and scientific discussion regarding end-of-life care in anorexia nervosa: a response to Gaudiani et al
Phillipou, A. (2023) · Journal of Eating Disorders · doi:10.1186/s40337-023-00872-2 · Cited by 12 · see citing works

Authors: Sharpe, S. L., Adams, M., Smith, E. K., Urban, B., & Silverstein, S.
Corresponding author: Sharpe, Sam L.
ORCID: Sharpe, Sam L.
Adams, Marissa
Smith, Emil K.
Urban, Bek
Silverstein, Scout
Venue: Journal of Eating Disorders
Publisher: Springer Science and Business Media LLC
Published: 2023-05-02
Volume: 11
Issue: 1
Pages: 66-66
ISSN: 2050-2974 (ISSN-L)
DOI: 10.1186/s40337-023-00791-2
PMC: PMC10152768
OpenAlex: W4367834073
Cited by: 29
References: 98
Citations by year: 2026: 12 · 2025: 6 · 2024: 9 · 2023: 2
FWCI: 8.43
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0 (tdm)
creativecommons.org/licenses/by/4.0 (vor)
Locations: Journal of Eating Disorders (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Topics: Social Sciences › Psychology › Clinical Psychology › Eating Disorders and Behaviors
Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Social Sciences › Psychology › Clinical Psychology › Personality Disorders and Psychopathology
Keywords: anorexia nervosa, health disparities, suffering, quality of care, patient autonomy, social justice, lived experience, treatment safety

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Inaccessibility of care and inequitable conceptions of suffering: a collective response to the construction of “terminal” anorexia nervosa

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