Cited by 18Cancer survivorship and careMobile Health and mHealth ApplicationsDigital Mental Health Interventions

Cancer Patients’ and Survivors’ Perceptions of the Calm App: Cross-Sectional Descriptive Study

Open access
Huberty, Jennifer, Puzia, Megan, Eckert, Ryan, Larkey, Linda·2020·JMIR Cancer

Published version of a preprint

Abstract

Background: There is a need for tools to decrease cancer patients’ and survivors’ long-term symptom burden. Complementary strategies, such as meditation, can accompany pharmacologic therapy to improve symptoms. Although support programs with targeted content have wider reach, higher adherence, and greater impact, there are no consumer-based meditation apps designed specifically for cancer. Objective: This study aimed to gather information to advise the development of a cancer-specific meditation app in a small convenience sample of cancer patients and survivors who currently use the Calm app. Methods: Adult cancer patients and survivors who are Calm users (N=82) were recruited through the Daily Calm Facebook page. Participants completed a Web-based survey related to Calm app use and satisfaction, interest in and ideas for a cancer-specific Calm app, and demographic characteristics. Open-ended responses were inductively coded. Results: Participants were aged between 18 and 72 years (mean 48.60 years, SD 15.20), mostly female (77/82, 94%), white (65/79, 82%), and non-Hispanic (70/75, 93%), and reported using Calm at least 5 times per week (49/82, 60%). Although rates of satisfaction with current Calm components were high (between 65/82, 79% and 51/81, 63%), only 49% (40/82) of participants used guided meditations that they felt specifically helped with their cancer-related symptoms and survivorship, and 40% (33/82) would prefer more cancer-related content, with guided meditations for cancer-specific anxieties (eg, fear of recurrence; n=15) and coping with strong emotions (n=12) being the most common suggestions. A majority of participants (51/82, 62%) reported that they would be interested in becoming a member of a Calm cancer community (eg, in-app discussion boards: 41/46, 89%; and social media communities: 35/42, 83%). Almost half of the participants (37/82, 45%) reported that they would benefit from features that tracked symptoms in concurrence with app usage, but respondents were divided on whether this information should be shared with health care providers through the app (49/82, 60% would share). Conclusions: Responses suggest ways in which the current Calm app could be adapted to better fit cancer patients’ and survivors’ needs and preferences, including adding cancer-specific content, increasing the amount of content focusing on coping with strong emotions, developing communities for Calm users who are cancer patients and survivors, and including features that track cancer-related symptoms. Given differences in opinions about which features were desirable or would be useful, there is a clear need for future cancer-specific apps to be customizable (eg, ability to turn different features on or off). Although future research should address these topics in larger, more diverse samples, these data will serve as a starting point for the development of cancer-specific meditation apps and provide a framework for evaluating their effects.

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  • Some studies have shown evidence supporting the effect of m-Health on different fields of health.

    “Some studies have shown evidence supporting the effect of m-Health on different fields of health [33–35].”

    From Efficacy of a web application for stress management among Iranian college students during COVID-19 outbreak: a study protocol for randomized controlled trials (2020) · cites this paper as [35]

    The Discussion (Principal Findings; page unavailable) reports a review finding some promise for mHealth apps in weight loss, stress reduction, and quality of life. That supports evidence across several health outcomes, but the finding concerns breast cancer survivorship and is presented as preliminary, not as an established effect across different fields of health. (LLM, conf=0.82)

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  1. [33]Gethin R The Foundations of Buddhism 1998 Oxford, United Kingdom Oxford University Press

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Authors
Huberty, J., Puzia, M., Eckert, R., & Larkey, L.
Affiliations
  • Arizona State University (US)
  • Mays Cancer Center at UT Health San Antonio (US)
Corresponding author
Huberty, Jennifer
Venue
JMIR Cancer
Published
2020-02-10
Volume
6
Issue
1
Pages
e16926
ISSN
2369-1999 (ISSN-L)
OpenAlex
W2995726863
Cited by
18
References
58
Citations by year
2024: 1 · 2023: 4 · 2022: 5 · 2021: 6 · 2020: 1 · 2019: 1
FWCI
1.36
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • JMIR Cancer (publishedVersion, cc-by)
  • PubMed Central (publishedVersion, cc-by)
  • PubMed (publishedVersion)
  • DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Topics
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
  • Social Sciences › Psychology › Applied Psychology › Digital Mental Health Interventions
Keywords
cancer patients, cancer survivors, meditation apps, guided meditation, symptom burden, fear of recurrence, online support groups, symptom monitoring, digital health interventions, complementary therapy, mindfulness apps

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