Parental depression and diabetes-specific distress after the onset of type 1 diabetes in children
Open accessAbstract
OBJECTIVE: To examine trajectories of two types of type 1 diabetes (T1D) specific distress (i.e., daily T1D management and worries about the future and long-term complications) and the moderating role of parental depression in parents of children newly diagnosed with T1D. METHOD: A total of 126 families of 5- to 9-year-olds with new-onset T1D enrolled in the study. One-hundred twenty-five families completed study measures at baseline, 102 at 6-month follow-up, and 89 at 12-month follow-up. Parents completed measures of depression and T1D-specific distress concerning daily T1D management and worries about the future and long-term complications at baseline and at 6- and 12-month follow-ups. We used multilevel modeling to examine 12-month trajectories of daily and long-term T1D-specific distress and to examine if parental depression modified these trajectories. RESULTS: Results showed a significant reduction in daily T1D-specific distress from baseline to 6-month follow-up and maintenance of daily T1D-specific distress from 6- to 12-month follow-up. The significant interaction of baseline parental depression and time indicated that parents with depressive symptoms had a smaller reduction in daily T1D-specific distress from baseline to 6-month follow-up compared to parents without depressive symptoms. Findings for long-term T1D-specific distress indicated that parents with depressive symptoms reported higher distress across all assessment points, with peak long-term T1D-specific distress for parents with depressive symptoms occurring at 6-month follow-up. CONCLUSION: Many parents experienced significant T1D-specific distress for a period of time following their child's initial diagnosis and this distress appears to be exacerbated by parental depressive symptoms. (PsycINFO Database Record (c) 2019 APA, all rights reserved).
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Between 20-33% of parents of school-age youth with type 1 diabetes endorse diabetes distress.
“despite recent data suggesting between 20–33% of parents of school-age youth with type 1 diabetes endorse diabetes distress [4, 5].”
From A nonrandomized pilot of a group, video-based telehealth intervention to reduce diabetes distress in parents of youth with type 1 diabetes mellitus (2022) · cites this paper as [5]
Diabetes distress can include diabetes-specific behavioral symptoms that can directly relate to higher glucose levels and increase the risk for future health complications.
“Diabetes distress can also include diabetes-specific behavioral symptoms such as suboptimal treatment engagement or maladaptive coping strategies (e.g., guessing an insulin dose to avoid checking glucose) that can directly relate to higher glucose levels and increase the risk for future health complications [3–5].”
From A nonrandomized pilot of a group, video-based telehealth intervention to reduce diabetes distress in parents of youth with type 1 diabetes mellitus (2022) · cites this paper as [5]
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Diabetes Distress in Caregivers of Young Children With Type 1 Diabetes Mellitus
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- Authors
- Noser, A. E., Dai, H., Marker, A. M., Raymond, J. K., Majidi, S., Clements, M. A., Stanek, K. R., & Patton, S. R.
- Affiliations
- University of Kansas (US)
- Children's Mercy Hospital (US)
- Children's Hospital Los Angeles (US)
- University of Colorado Anschutz (US)
- University of Kansas Medical Center (US)
- ORCID
- Venue
- Health Psychology
- Published
- 2019-02
- Volume
- 38
- Issue
- 2
- Pages
- 103-112
- ISSN
- 0278-6133 (ISSN-L)
- 1930-7810
- PMC
- PMC6407701
- OpenAlex
- W2905906007
- Cited by
- 57
- References
- 44
- Citations by year
- 2026: 6 · 2025: 7 · 2024: 9 · 2023: 6 · 2022: 9 · 2021: 9 · 2020: 9 · 2019: 2
- FWCI
- 3.98
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Locations
- Health Psychology (publishedVersion, other-oa)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institutes of Health (R01-DK100779)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Research
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Diabetes and associated disorders
- Keywords
- type 1 diabetes, parental depression, pediatric diabetes, newly diagnosed diabetes, late complications, parental worry, distress trajectories
- MeSH terms
- Adult, Child, Child, Preschool, Depression, Diabetes Mellitus, Type 1, Female, Humans, Male, Parents
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