Support for mothers, fathers and families after perinatal death
Open accessAbstract
BACKGROUND: Provision of an empathetic, sensitive, caring environment and strategies to support mothers, fathers and their families experiencing perinatal death are now an accepted part of maternity services in many countries. Interventions such as psychological support or counselling, or both, have been suggested to improve outcomes for parents and families after perinatal death. OBJECTIVES: To assess the effect of any form of intervention (i.e. medical, nursing, midwifery, social work, psychology, counselling or community-based) on parents and families who experience perinatal death. SEARCH METHODS: We searched the Cochrane Pregnancy and Childbirth Group's Trials Register (28 January 2013) and article bibliographies. SELECTION CRITERIA: Randomised trials of any form of support aimed at encouraging acceptance of loss, bereavement counselling, or specialised psychotherapy or counselling for mothers, fathers and families experiencing perinatal death. DATA COLLECTION AND ANALYSIS: Two review authors independently assessed eligibility of trials. MAIN RESULTS: No trials were included. AUTHORS' CONCLUSIONS: Primary healthcare interventions and a strong family and social support network are invaluable to parents and families around the time a baby dies. However, due to the lack of high-quality randomised trials conducted in this area, the true benefits of currently existing interventions aimed at providing support for mothers, fathers and families experiencing perinatal death is unclear. Further, the currently available evidence around the potential detrimental effects of some interventions (e.g. seeing and holding a deceased baby) remains inconclusive at this point in time. However, some well-designed descriptive studies have shown that, under the right circumstances and guided by compassionate, sensitive, experienced staff, parents' experiences of seeing and holding their deceased baby is often very positive. The sensitive nature of this topic and small sample sizes, make it difficult to develop rigorous clinical trials. Hence, other research designs may further inform practice in this area. Where justified, methodologically rigorous trials are needed. However, methodologically rigorous trials should be considered comparing different approaches to support.
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Despite shifting recommendations or lack of empirical evidence, hospital perinatal bereavement guidelines in Western cultures typically involve interdisciplinary support (social workers, chaplains, nurses), encouraging parents to choose to see and hold their baby, build attachment, and make meaning by keeping mementos.
“However, despite shifting recommendations or lack of empirical evidence, hospital perinatal bereavement guidelines in Western cultures typically involve interdisciplinary support (social workers, chaplains, nurses), encouraging parents to choose to see and hold their baby, build attachment, and make meaning by keeping mementos.28–30”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
Split into 2 atoms — 1 confirmed, 1 partially supported, 0 disputed, 0 misattributed, 0 unverifiable. Expand the claim to see per-atom verdicts.
Experimental — accuracy not yet measuredFifty reports pertaining to good communication reported parents' mental health outcomes to include coping, depression, anxiety, emotional distress, frustration, and anger.
“Fifty reports pertaining to good communication reported parents’ mental health outcomes to include coping, depression, anxiety, emotional distress, frustration, and anger.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
The Relationships section links communication between bereaved partners with grief reactions and discusses depression and anxiety; Primary outcomes also lists depressed mood and anxiety. The copy does not report fifty studies of good communication or present the claimed list of coping, emotional distress, frustration, and anger as their mental-health outcomes. The indexed passages provide no page numbers. (LLM, conf=0.84)
Experimental — accuracy not yet measuredThe use of sedation or tranquilizers was identified in older literature, although this practice was also identified in a few more recent sources.
“The use of sedation or tranquilizers was identified in older literature, although this practice was also identified in a few more recent sources.”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [28]
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Constructions of Death and Loss: A Personal and Professional Evolution
Neimeyer, R. (2012) · doi:10.1002/9780470743577.ch19 · Cited by 11 · see citing works
Reorientation of care in the NICU: A Muslim perspective
Gatrad, A. R., Muhammad, B. J., & Sheikh, A. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.024 · Cited by 10 · see citing works
Gold, K. J., Schwenk, T. L., & Johnson, T. R. B. (2008) · Journal of Women s Health · doi:10.1089/jwh.2008.0868 · Cited by 8 · see citing works
Reorientation of care in the NICU: A Jewish perspective
Shinwell, E. S., & Shinwell, A. R. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.025 · Cited by 7 · see citing works
Baker, A. M., & Crandall, L. (2009) · Forensic Science Medicine and Pathology · doi:10.1007/s12024-009-9123-7 · Cited by 6 · see citing works
Reorientation of care in the NICU: A United States perspective
McGraw, M. P., & Perlman, J. M. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.022 · Cited by 5 · see citing works
Ethical dimensions of non-aggressive fetal management: A Muslim perspective
Husain, F. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.021 · Cited by 5 · cited 1× · see citing works
“Seminars in Fetal and Neonatal Medicine (October 2008) published a series of discussion papers on cultural perspectives of care in foetal and neonatal medicine, (Evans 2008; Gatrad 2008; Husain 2008; Laing 2008; McGraw 2008; Nelson 2008; Rennie 2008; Shinwell 2008; Steer 2008; Vaughan 2008; Williams 2008).”
BackgroundWhen newborns die: do we practice what we preach?
Ransohoff-Adler, M., & Cs, B. (1989) · PubMed · Cited by 4 · see citing works
Psychosocial care of mothers after stillbirth
Ambuehl, E. (2002) · The Lancet · doi:10.1016/s0140-6736(02)11535-2 · Cited by 4 · cited 1× · see citing works
“The study by Hughes and colleagues has been heavily criticised by both bereaved parents and researchers who feel that the translation of the study results to all women should be made with caution due to issues with cohort representation, small sample size and the lack of detail provided around how women were presented…”
BackgroundKersting, A., Kroker, K., & Steinhard, J. (2006) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2005.10.220 · Cited by 4 · see citing works
Psychosocial care of mothers after stillbirth
Matthews, M., & Kohner, N. (2002) · The Lancet · doi:10.1016/s0140-6736(02)11532-7 · Cited by 4 · see citing works
United States law and managing the terminally ill fetus and newborn
Nelson, L. J. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.03.008 · Cited by 3 · see citing works
Psychosocial care of mothers after stillbirth
Brooks, D. (2002) · The Lancet · doi:10.1016/s0140-6736(02)11536-4 · Cited by 3 · see citing works
Palliative Versorgung bei Früh- und Reifgeborenen mit sehr ungünstiger Prognose
Schulze, A., & Wermuth, I. (2007) · Zeitschrift für Geburtshilfe und Neonatologie · doi:10.1055/s-2005-836629 · Cited by 2 · see citing works
Ethical dimensions of non-aggressive fetal management: A UK perspective
Steer, P. J. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.019 · Cited by 2 · cited 1× · see citing works
“Seminars in Fetal and Neonatal Medicine (October 2008) published a series of discussion papers on cultural perspectives of care in foetal and neonatal medicine, (Evans 2008; Gatrad 2008; Husain 2008; Laing 2008; McGraw 2008; Nelson 2008; Rennie 2008; Shinwell 2008; Steer 2008; Vaughan 2008; Williams 2008).”
BackgroundSpending cuts start to surface
Walker, C. (2010) · Nursing Children and Young People · doi:10.7748/paed.22.6.5.s1 · Cited by 2 · see citing works
NICE set to change its advice on holding stillborn babies
(2010) · Nursing Children and Young People · doi:10.7748/paed.22.2.5.s8 · Cited by 2 · see citing works
Psychosocial care of mothers after stillbirth
McCabe, A. (2002) · The Lancet · doi:10.1016/s0140-6736(02)11533-9 · Cited by 2 · see citing works
Ethical dimensions of non-aggressive fetal management: An Australian perspective
Vaughan, J. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.020 · Cited by 1 · cited 1× · see citing works
“Seminars in Fetal and Neonatal Medicine (October 2008) published a series of discussion papers on cultural perspectives of care in foetal and neonatal medicine, (Evans 2008; Gatrad 2008; Husain 2008; Laing 2008; McGraw 2008; Nelson 2008; Rennie 2008; Shinwell 2008; Steer 2008; Vaughan 2008; Williams 2008).”
BackgroundReorientation of care in the NICU – An Australian perspective
Evans, N. (2008) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2008.04.023 · Cited by 1 · cited 1× · see citing works
“Seminars in Fetal and Neonatal Medicine (October 2008) published a series of discussion papers on cultural perspectives of care in foetal and neonatal medicine, (Evans 2008; Gatrad 2008; Husain 2008; Laing 2008; McGraw 2008; Nelson 2008; Rennie 2008; Shinwell 2008; Steer 2008; Vaughan 2008; Williams 2008).”
Background
Flagged first, then by citations
1 of the 117 references couldn’t be matched to a known paper.
Research works printed but not linked: 6
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Stillbirths: economic and psychosocial consequences
Heazell, A. E. P., Siassakos, D., Blencowe, H., Burden, C., Bhutta, Z. A., Cacciatore, J., Dang, N., Das, J., Flenady, V., Gold, K. J., et al. (2016) · The Lancet · doi:10.1016/s0140-6736(15)00836-3 · Cited by 792 · see citing works
Self-citationDelayed vs early umbilical cord clamping for preterm infants: a systematic review and meta-analysis
Fogarty, M., Osborn, D. A., Askie, L. M., Seidler, A. L., Hunter, K. E., Lui, K., Simes, R. J., & Tarnow‐Mordi, W. (2017) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2017.10.231 · Cited by 524 · see citing works
Ellis, A., Chebsey, C., Storey, C., Bradley, S., Jackson, S., Flenady, V., Heazell, A., & Siassakos, D. (2016) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-016-0806-2 · Cited by 322 · see citing works
“A Cochrane review concluded there was insufficient evidence from randomised controlled trials to indicate whether or not there is benefit from interventions for families after perinatal loss [26].”
BackgroundSelf-citationObst, K. L., Due, C., Oxlad, M., & Middleton, P. (2020) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-019-2677-9 · Cited by 222 · see citing works
Das, J. K., Kumar, R., Salam, R. A., Lassi, Z. S., & Bhutta, Z. A. (2014) · Reproductive Health · doi:10.1186/1742-4755-11-s2-s4 · Cited by 179 · see citing works
“A review evaluating the impact of supportive interventions for mothers, fathers or families after perinatal death did not find any study for inclusion [43].”
Hospital-based bereavement services following the death of a child: A mixed study review
Donovan, L., Wakefield, C. E., Russell, V., & Cohn, R. J. (2014) · Palliative Medicine · doi:10.1177/0269216314556851 · Cited by 151 · see citing works
Meeting the needs of parents after a stillbirth or neonatal death
Flenady, V., Boyle, F. M., Koopmans, L., Wilson, P. A., Stones, W. R., & Cacciatore, J. (2014) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.13009 · Cited by 136 · see citing works
Self-citationThe impact of stillbirth on bereaved parents: A qualitative study
Nuzum, D., Meaney, S., & O’Donoghue, K. (2018) · PLoS ONE · doi:10.1371/journal.pone.0191635 · Cited by 127 · see citing works
Côté‐Arsenault, D., & Denney‐Koelsch, E. M. (2016) · Social Science & Medicine · doi:10.1016/j.socscimed.2016.02.033 · Cited by 115 · see citing works
Maternal morbidity: Neglected dimension of safe motherhood in the developing world
Hardee, K., Gay, J., & Blanc, A. K. (2012) · Global Public Health · doi:10.1080/17441692.2012.668919 · Cited by 114 · see citing works
The impact of stillbirth on consultant obstetrician gynaecologists: a qualitative study
Nuzum, D., Meaney, S., & O'Donoghue, K. (2014) · BJOG: An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.12695 · Cited by 113 · see citing works
Infertility and Perinatal Loss: When the Bough Breaks
Bhat, A., & Byatt, N. (2016) · Current Psychiatry Reports · doi:10.1007/s11920-016-0663-8 · Cited by 106 · see citing works
Interventions for bereaved parents following a child’s death: A systematic review
Endo, K., Yonemoto, N., & Yamada, M. (2015) · Palliative Medicine · doi:10.1177/0269216315576674 · Cited by 94 · see citing works
Clinical practice guidelines for perinatal bereavement care — an overview
Boyle, F. M., Horey, D., Middleton, P. F., & Flenady, V. (2020) · Women and Birth · doi:10.1016/j.wombi.2019.01.008 · Cited by 90 · see citing works
Self-citationThe psychological, social, and economic impact of stillbirth on families
Murphy, S., & Cacciatore, J. (2017) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2017.02.002 · Cited by 82 · see citing works
“, in 2013 [40] found no clinical trials that assessed different types of bereavement support for families, while Horey et al.”
BackgroundSelf-citationFollow-up for improving psychological well being for women after a miscarriage
Murphy, F., Lipp, A., & Powles, D. L. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd008679.pub2 · Cited by 80 · see citing works
Perinatal bereavement: a principle-based concept analysis
Fenstermacher, K., & Hupcey, J. E. (2013) · Journal of Advanced Nursing · doi:10.1111/jan.12119 · Cited by 79 · see citing works
“Grief is a symptom of bereavement (Flenady & Wilson 2008), but not the only response to bereavement (Kastenbaum 2007).”
BackgroundCaring for parents at the time of stillbirth: How can we do better?
O’Connell, O., Meaney, S., & O’Donoghue, K. (2016) · Women and Birth · doi:10.1016/j.wombi.2016.01.003 · Cited by 79 · see citing works
Parents’ concerns about future pregnancy after stillbirth: a qualitative study
Meaney, S., Everard, C. M., Gallagher, S., & O'Donoghue, K. (2017) · Health Expectations · doi:10.1111/hex.12480 · Cited by 77 · see citing works
Late intrauterine fetal death and stillbirth
Pundir, J., & Coomarasamy, A. (2016) · Cambridge University Press eBooks · doi:10.1017/cbo9781107338876.006 · Cited by 77 · see citing works
“This appears to be much more likely if professional support is not given,(146) but there is a paucity of evidence from randomised trials that address the benefits and pitfalls of psychological interventions after perinatal death.(147)”
BackgroundAustralian men's experiences of support following pregnancy loss: A qualitative study
Obst, K. L., & Due, C. (2019) · Midwifery · doi:10.1016/j.midw.2018.11.013 · Cited by 71 · see citing works
Kingdon, C., Givens, J. L., O'Donnell, E., & Turner, M. (2015) · Birth · doi:10.1111/birt.12176 · Cited by 69 · see citing works
Caring for families experiencing stillbirth: evidence-based guidance for maternity care providers
Peters, M. D. J., Lisy, K., Riitano, D., Jordan, Z., & Aromataris, E. (2015) · Women and Birth · doi:10.1016/j.wombi.2015.07.003 · Cited by 69 · see citing works
Meredith, P., Wilson, T., Branjerdporn, G., Strong, J., & Desha, L. (2017) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-016-1200-9 · Cited by 68 · see citing works
“In addition, support from significant others may be perceived as inadequate or limited, leading to potential isolation [15].”
BackgroundResultSelf-citationBakhbakhi, D., Burden, C., Storey, C., & Siassakos, D. (2017) · Seminars in Fetal and Neonatal Medicine · doi:10.1016/j.siny.2017.02.008 · Cited by 66 · see citing works
Parents' experiences about support following stillbirth and neonatal death
Camacho Ávila, M., Fernández Medina, I. M., Jiménez-López, F. R., Granero-Molina, J., Hernández-Padilla, J. M., Hernández Sánchez, E., & Fernández-Sola, C. (2020) · Advances in Neonatal Care · doi:10.1097/anc.0000000000000703 · Cited by 63 · see citing works
Australian heterosexual women’s experiences of healthcare provision following a pregnancy loss
Due, C., Obst, K., Riggs, D. W., & Collins, C. (2018) · Women and Birth · doi:10.1016/j.wombi.2017.11.002 · Cited by 61 · see citing works
Camacho-Ávila, M., Fernández-Sola, C., Jiménez-López, F. R., Granero-Molina, J., Fernández-Medina, I. M., Martínez-Artero, L., & Hernández-Padilla, J. M. (2019) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-019-2666-z · Cited by 61 · see citing works
Losing Thomas & Ella: A Father’s Story (A Research Comic)
Weaver‐Hightower, M. B. (2015) · Journal of Medical Humanities · doi:10.1007/s10912-015-9359-z · Cited by 58 · see citing works
“…the literature on fathers and perinatal bereavement (see Aho et al. 2006, 2009; Badenhorst et al. 2006; Cacciatore et al. 2008; Cook 1988; Dilts 2001; Flenady and Wilson 2008; McGreal et al. 1997; O’Neill 1998; Stinson et al. 1992; Vance et al. 1995, 2002; WeaverHightower 2012; Zeanah et al. 1995).”
BackgroundWaltzing Matilda: An Autoethnography of a Father’s Stillbirth
Weaver-Hightower, M. B. (2012) · Journal of Contemporary Ethnography · doi:10.1177/0891241611429302 · Cited by 57 · see citing works
“Practitioner research on men’s grief has been scant (Aho et al. 2011; Flenady and Wilson 2008).”
BackgroundMothers’ perspectives on the perinatal loss of a co-twin: a qualitative study
Richards, J., Graham, R., Embleton, N. D., Campbell, C., & Rankin, J. (2015) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-015-0579-z · Cited by 57 · see citing works
“There is a growing body of literature exploring the emotional impact of perinatal loss [8–13].”
BackgroundScoping Review of Memory Making in Bereavement Care for Parents After the Death of a Newborn
Thornton, R., Nicholson, P., & Harms, L. (2019) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1016/j.jogn.2019.02.001 · Cited by 54 · see citing works
Predicting grief intensity after recent perinatal loss
Hutti, M. H., Myers, J., Hall, L. A., Polivka, B. J., White, S., Hill, J., Kloenne, E., Hayden, J., & Grisanti, M. M. (2017) · Journal of Psychosomatic Research · doi:10.1016/j.jpsychores.2017.07.016 · Cited by 53 · see citing works
“after miscarriage and stillbirth compared couples who have live births [15-17].”
BackgroundInfluentialImpact of COVID-19 on the Perinatal Period Through a Biopsychosocial Systemic Framework
Diamond, R. M., Brown, K. S., & Miranda, J. (2020) · Contemporary Family Therapy · doi:10.1007/s10591-020-09544-8 · Cited by 52 · see citing works
Effects of severe obstetric complications on women’s health and infant mortality in Benin
Filippi, V., Goufodji, S. B., Sismanidis, C., Kanhonou, L., Fottrell, E. F., Ronsmans, C., Alihonou, E., & Patel, V. (2010) · Tropical Medicine & International Health · doi:10.1111/j.1365-3156.2010.02534.x · Cited by 51 · see citing works
Aho, A. L., Tarkka, M., Åstedt-Kurki, P. M., Sorvari, L., & Kaunonen, M. (2011) · Death Studies · doi:10.1080/07481187.2011.553318 · Cited by 53 · see citing works
Parental experience following perinatal death: exploring the issues to make progress
Einaudi, M.-A., Coz, P. L., Malzac, P., Michel, F., D’Ercole, C., & Gire, C. (2010) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2010.04.003 · Cited by 49 · see citing works
Peters, M. D. J., Lisy, K., Riitano, D., Jordan, Z., & Aromataris, E. (2016) · Journal of Perinatology · doi:10.1038/jp.2015.97 · Cited by 45 · see citing works
Lewkowitz, A. K., Rosenbloom, J. I., Keller, M., López, J. D., Macones, G. A., Olsen, M. A., & Cahill, A. G. (2019) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2019.06.027 · Cited by 46 · see citing works
Hennegan, J. M., Henderson, J., & Redshaw, M. (2015) · BMJ Open · doi:10.1136/bmjopen-2015-008616 · Cited by 44 · see citing works
“Completeness and availability of evidence As noted previously, sparse evidence exists for the impact of contact with the stillborn infant on parental outcomes.(14) As stillbirth is a relatively rare event, it is unsurprising that sample sizes were small.”
BackgroundInfluentialHorey, D., Boyle, F. M., Cassidy, J., Cassidy, P. R., Erwich, J. J. H. M., Gold, K. J., Gross, M. M., Heazell, A. E. P., Leisher, S. H., Murphy, M., et al. (2021) · Birth · doi:10.1111/birt.12546 · Cited by 44 · see citing works
Multicultural coping experiences of parents following perinatal loss: A meta‐ethnographic synthesis
Fernández‐Basanta, S., Coronado, C., & Movilla‐Fernández, M. (2019) · Journal of Advanced Nursing · doi:10.1111/jan.14211 · Cited by 42 · see citing works
Wool, C., Repke, J. T., & Woods, A. B. (2016) · The Journal of Maternal-Fetal & Neonatal Medicine · doi:10.1080/14767058.2016.1195362 · Cited by 41 · see citing works
“Evidence suggests women find the experiences of parenting, such as dressing and bathing, and talking to the baby, most valuable in creating a bond [27] and often wish to spend time and hold their infant if stillborn [28].”
BackgroundDoherty, J., Cullen, S., Casey, B., Lloyd, B., Sheehy, L., Brosnan, M. C., Barry, T., McMahon, A., & Coughlan, B. (2018) · Midwifery · doi:10.1016/j.midw.2018.06.026 · Cited by 42 · see citing works
Thornton, R. L., Nicholson, P., & Harms, L. (2020) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2020.04.006 · Cited by 41 · see citing works
Nursing interventions to facilitate the grieving process after perinatal death: a systematic review
Fernández-Férez, A., Ventura-Miranda, M. I., Camacho-Ávila, M., Fernández-Caballero, A., Granero-Molina, J., Fernández-Medina, I. M., & Requena-Mullor, M. D. M. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18115587 · Cited by 40 · see citing works
“A specific review on this topic (PD) published in 2013 did not find studies of interventions specifically focused on perinatal bereavement [23].”
BackgroundMidwives’ experience of delivery care in late foetal death: a qualitative study
Martínez-Serrano, P., Palmar-Santos, A. M., Solís-Muñoz, M., Álvarez-Plaza, C., & Pedraz-Marcos, A. (2018) · Midwifery · doi:10.1016/j.midw.2018.08.010 · Cited by 39 · see citing works
Pregnancy in Diabetes: challenges and opportunities for improving pregnancy outcomes
Murphy, H. R., Bell, R., Dornhorst, A., Forde, R., & Lewis‐Barned, N. (2018) · Diabetic Medicine · doi:10.1111/dme.13579 · Cited by 37 · see citing works
The experience of mothers and fathers in cases of stillbirth in Spain. A qualitative study
Martínez-Serrano, P., Pedraz-Marcos, A., Solís-Muñoz, M., & Palmar-Santos, A. M. (2019) · Midwifery · doi:10.1016/j.midw.2019.06.013 · Cited by 35 · see citing works
de Castro, M. H. M., Mendonça, C. R., Noll, M. A., Tacon, F. S. D. A., & do Amaral, W. N. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182413143 · Cited by 35 · see citing works
“Deep sadness, depressed mood, irritability, worry, anxiety, and changes in eating and sleeping patterns are considered a part of a normal grief response [10].”
BackgroundRiegel, M., Randall, S., & Buckley, T. A. (2019) · Australian Critical Care · doi:10.1016/j.aucc.2018.12.002 · Cited by 34 · see citing works
Theories of stress and its relationship to health.
Rice, V. H. (2012) · Cited by 34 · see citing works
Holding a stillborn baby: the view from a specialist perinatal bereavement service
Wilson, P. A., Boyle, F. M., & Ware, R. S. (2015) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.12327 · Cited by 25 · see citing works
Being a Parent: Findings from a Grounded Theory of Memory-Making in Neonatal End-of-Life Care
Thornton, R., Nicholson, P., & Harms, L. (2021) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2021.03.013 · Cited by 32 · see citing works
Aiyelaagbe, E., Scott, R. E., Holmes, V., Lane, E., & Heazell, A. E. P. (2017) · Journal of Obstetrics and Gynaecology · doi:10.1080/01443615.2017.1316710 · Cited by 32 · see citing works
“A systematic review did not identify any randomised clinical trials to inform care of bereaved parents and families following perinatal death (Koopmans et al. 2013).”
BackgroundInfluentialCare of late intrauterine fetal death and stillbirth
Burden, C., Merriel, A., Bakhbakhi, D., Heazell, A. E. P., & Siassakos, D. M. (2024) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.17844 · Cited by 34 · see citing works
“…beneficial effects of memory making, such as facilitating grief, 74,192 as opposed to others which have documented more adverse outcomes such as depression and PTSD. 26 In 2013, a Cochrane review concluded that the evidence of the effect of seeing and holding the baby remains inconclusive 193 .”
Carrasco, J. A., Abad, M. L., Padilla-Ruiz, M., & Morales‐Gil, I. M. (2019) · Journal of Clinical Nursing · doi:10.1111/jocn.15162 · Cited by 32 · see citing works
Supporting parents following pregnancy loss: a cross-sectional study of telephone peer supporters
Boyle, F. M., Mutch, A. J., Barber, E. A., Carroll, C., & Dean, J. H. (2015) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-015-0713-y · Cited by 28 · see citing works
“Growing evidence exists for the benefits of peer support [26] but, like other types of support interventions following perinatal loss, rigorous evaluations of the contribution of peer support to psychological outcomes following the death of a baby are scarce [27].”
BackgroundPredicting Need for Follow-Up Due to Severe Anxiety and Depression Symptoms After Perinatal Loss
Hutti, M. H., Myers, J. A., Hall, L. A., Polivka, B. J., White, S., Hill, J., Grisanti, M., Hayden, J., & Kloenne, E. (2018) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1016/j.jogn.2018.01.003 · Cited by 29 · see citing works
“These negative psychological symptoms may be associated with CG after perinatal loss (Heazell et al., 2016; Koopmans et al., 2013; Ogwulu et al., 2015).”
BackgroundInfluentialIntrapartum fetal death and doctors: a qualitative exploration
McNamara, K., Meaney, S., & O'Donoghue, K. (2018) · Acta Obstetricia et Gynecologica Scandinavica · doi:10.1111/aogs.13354 · Cited by 31 · see citing works
Roberts, L. R., Nick, J. M., Sarpy, N. L., Peters, J., & Tamares, S. (2024) · JBI Evidence Synthesis · doi:10.11124/jbies-23-00149 · Cited by 27 · see citing works
A survey of the experiences of families with bereavement support services following a perinatal loss
Inati, V., Matić, M., Phillips, C. B., Maconachie, N., Vanderhook, F., & Kent, A. L. (2017) · Australian and New Zealand Journal of Obstetrics and Gynaecology · doi:10.1111/ajo.12661 · Cited by 27 · see citing works
Fernández-Basanta, S., Coronado, C., Bondas, T., & Movilla-Fernández, M.-J. (2021) · Midwifery · doi:10.1016/j.midw.2020.102863 · Cited by 27 · see citing works
Support for young black urban women after perinatal loss
Fenstermacher, K. H., & Hupcey, J. E. (2019) · MCN The American Journal of Maternal/Child Nursing · doi:10.1097/nmc.0000000000000485 · Cited by 26 · see citing works
In the hospital there are no care guidelines’: experiences and practices in perinatal loss in Spain
Fernández‐Alcántara, M., Schul‐Martin, L., García Caro, M. P., Montoya‐Juárez, R., Pérez‐Marfil, M. N., & Zech, E. (2020) · Scandinavian Journal of Caring Sciences · doi:10.1111/scs.12816 · Cited by 26 · see citing works
Nikkola, I., Kaunonen, M., & Aho, A. L. (2013) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2012.04247.x · Cited by 25 · see citing works
Impact of a Neonatal-Bereavement-Support DVD on Parental Grief: A Randomized Controlled Trial
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BackgroundCOMUNICAÇÃO DA NOTÍCIA DE MORTE E SUPORTE AO LUTO DE MULHERES QUE PERDERAM FILHOS RECÉM-NASCIDOS
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BackgroundA qualitative study of bereaved parents and healthcare professionals on perinatal loss
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- Authors
- Koopmans, L., Wilson, T., Cacciatore, J., & Flenady, V.
- Affiliations
- Mater Health Services (AU)
- Mater Mothers' Hospital (AU)
- Arizona State University (US)
- Venue
- Cochrane Database of Systematic Reviews
- Publisher
- Wiley
- Published
- 2013-06-19
- Volume
- 2013
- Issue
- 6
- Pages
- CD000452-CD000452
- ISSN
- 1361-6137 (ISSN-L)
- 1465-1858
- PMC
- PMC7086381
- OpenAlex
- W1902716212
- Cited by
- 216
- References
- 117
- Citations by year
- 2026: 7 · 2025: 13 · 2024: 9 · 2023: 27 · 2022: 12 · 2021: 20 · 2020: 14 · 2019: 13 · 2018: 17 · 2017: 19 · 2016: 15 · 2015: 19 · 2014: 13 · 2013: 3 · 2012: 5
- FWCI
- 2.46
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Cochrane Database of Systematic Reviews (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute for Health and Care Research (10/4001/02, SRP/10/4001/02)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Health Sciences › Health Professions › General Health Professions › Maternal and Neonatal Healthcare
- Keywords
- perinatal death, parental bereavement, psychological support, counseling, psychotherapy, family support, acceptance of loss, obstetric care, social support networks
- MeSH terms
- Bereavement, Counseling, Death, Humans, Infant, Newborn, Life Change Events, Nuclear Family, Social Support
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