Stress in UK Families Conducting Intensive Home-Based Behavioral Intervention for Their Young Child with Autism

Hastings, Richard P.; Johnson, Emma

doi:10.1023/a:1010799320795

Cited by 356Family and Disability Support ResearchAutism Spectrum Disorder ResearchBehavioral and Psychological Studies

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Stress in UK Families Conducting Intensive Home-Based Behavioral Intervention for Their Young Child with Autism

Hastings, Richard P., Johnson, Emma·2001·Journal of Autism and Developmental Disorders

DOI 10.1023/a:1010799320795

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Abstract

There is increasing international interest in intensive home-based behavioral intervention for children with autism. In the present study, 141 UK parents conducting such interventions completed a questionnaire addressing issues of stress, coping, and support. Regression analyses showed that parents' stress levels were predicted mainly by psychological rather than demographic variables. In particular, adaptive coping strategies, informal social support sources, and beliefs about the efficacy of the intervention were associated with lower reported stress and higher levels of autism symptomatology were associated with higher reported stress. There was also evidence that the use of Passive Appraisal coping and beliefs about the efficacy of the interventions moderated the effects of autism symptomatology on parents' pessimism. Implications of these findings for future research and for the support of families engaged in intensive home-based behavioral intervention are discussed.

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Many studies show that coping strategies, social support, and parenting effectiveness are psychological factors that affect parental stress levels.
“Many studies show that coping strategies, social support, and parenting effectiveness are psychological factors that affect parental stress levels [39].”
From The effect of acceptance and commitment therapy for improving psychological well‐being in parents of individuals with autism spectrum disorders: A randomized controlled trial (2021) · cites this paper as [39]

The moderator-mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations
Baron, R. M., & Kenny, D. A. (1986) · Journal of Personality and Social Psychology · doi:10.1037/0022-3514.51.6.1173 · Cited by 91,532
Multiple regression: testing and interpreting interactions
(1992) · Choice Reviews Online · doi:10.5860/choice.29-3352 · Cited by 36,647
“Stress: appraisal and coping,”
Folkman, S. (2013) · Encyclopedia of Behavioral Medicine · doi:10.1007/978-1-4419-1005-9_215 · Cited by 27,833
Untitled work
(1991) · Cited by 7,187
Resilience in the Face of Adversity
Rutter, M. L. (1985) · The British Journal of Psychiatry · doi:10.1192/bjp.147.6.598 · Cited by 3,679
Behavioral treatment and normal educational and intellectual functioning in young autistic children.
Lovaas, O. I. (1987) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.55.1.3 · Cited by 3,288
The Family Stress Process
McCubbin, H. I., & Patterson, J. M. (1983) · Marriage & Family Review · doi:10.1300/j002v06n01_02 · Cited by 1,512
Long-term outcome for children with autism who received early intensive behavioral treatment.
McEachin, J. J., Smith, T. H., & Lövaas, O. I. (1993) · PubMed · Cited by 1,089
BEHAVIOR CHECKLIST FOR IDENTIFYING SEVERELY HANDICAPPED INDIVIDUALS WITH HIGH LEVELS OF AUTISTIC BEHAVIOR
Krug, D. A., Arick, J. R., & Almond, P. (1980) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.1980.tb01797.x · Cited by 903
Effects of Pediatric Chronic Physical Disorders on Child and Family Adjustment
Wallander, J. L., & Varni, J. W. (1998) · Journal of Child Psychology and Psychiatry · doi:10.1111/1469-7610.00302 · Cited by 716
Home-Based Behavioral Treatment of Young Children with Autism
Sheinkopf, S. J., & Siegel, B. (1998) · Journal of Autism and Developmental Disorders · doi:10.1023/a:1026054701472 · Cited by 416
Untitled work
(1983) · PubMed · Cited by 377
Infantile Autism Reviewed: A Decade of Research
DeMyer, M. K., Hingtgen, J. N., & Jackson, R. (1981) · Schizophrenia Bulletin · doi:10.1093/schbul/7.3.388 · Cited by 375
Resources and Strategies: How Parents Cope with the Care of a Disabled Child
Beresford, B. (1994) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.1994.tb01136.x · Cited by 326
Consistent stress profiles in mothers of children with autism
Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilhelm, H., Dunlap, G., Robbins, F. R., & Plienis, A. J. (1992) · Journal of Autism and Developmental Disorders · doi:10.1007/bf01058151 · Cited by 300
The Murdoch Early Intervention Program After 2 Years
Birnbrauer, J. S., & Leach, D. J. (1993) · Behaviour Change · doi:10.1017/s0813483900005556 · Cited by 283
Parental Stress, Care Demands, and Use of Support Services for School-Age Children with Disabilities and Behavior Problems
Floyd, F. J., & Gallagher, E. M. (1997) · Family Relations · doi:10.2307/585096 · Cited by 269
An evaluation of the autism behavior checklist
Volkmar, F. R., Cicchetti, D. V., Dykens, E., Sparrow, S. S., Leckman, J. F., & Cohen, D. J. (1988) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02211820 · Cited by 260
Assessing Child Symptom Severity and Stress in Parents of Autistic Children
Konstantareas, M. M., & Homatidis, S. (1989) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.1989.tb00259.x · Cited by 251
Outcome of early intervention for children with autism
Smith, T. H. (1999) · Clinical Psychology Science and Practice · doi:10.1093/clipsy.6.1.33 · Cited by 249
Parent and professional evaluations of family stress associated with characteristics of autism
Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987) · Journal of Autism and Developmental Disorders · doi:10.1007/bf01486971 · Cited by 233
Family Support Scale: Reliability and Validity
Dunst, C. J., Jenkins, V., & Trivette, C. M. (1984) · Cited by 207
F-COPES: Family Crisis Oriented Personal Evaluation Scales
McCubbin, H. I., Larsen, A. D., & Olson, D. H. (1985) · Cited by 196
Family Characteristics, Family Training, and the Progress of Young Children with Autism
Robbins, F. R., Dunlap, G., & Plienis, A. J. (1991) · Journal of Early Intervention · doi:10.1177/105381519101500206 · Cited by 166
Stress, Appraisal, and Coping in Mothers of Disabled and Nondisabled Children
Miller, A. C., Gordon, R. M., Daniele, R. J., & Diller, L. (1992) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/17.5.587 · Cited by 156
Relation of behavioral treatment to "normal functioning": Comment on Lovaas.
Schopler, E., Short, A. B., & Mesibov, G. B. (1989) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.57.1.162 · Cited by 142
A comparison and evaluation of three commonly used autism scales
Sevin, J. A., Matson, J. L., Coe, D. A., Fee, V. E., & Sevin, B. M. (1991) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02206868 · Cited by 124
Predictors of Stress in Parents of Developmentally Disabled Children
McKlnney, B., & Peterson, R. A. (1987) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/12.1.133 · Cited by 119
Maternal depressive symptoms in autism: Response to psychoeducational intervention.
Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993) · Rehabilitation Psychology · doi:10.1037/h0080290 · Cited by 118
Hardiness and social support as predictors of psychological discomfort in mothers of children with autism
Gill, M. J., & Harris, S. L. (1991) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02206867 · Cited by 107
Family functioning, social support and depression after traumatic brain injury
Leach, L. R., Frank, R. G., Bouman, D. E., & Farmer, J. E. (1994) · Brain Injury · doi:10.3109/02699059409151012 · Cited by 105
Relation of behavioral treatment to "normal functioning": Comment on Lovaas.
Schopler, E., Short, A. D., & Mesibov, G. B. (1989) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.57.1.162 · Cited by 99
Relations among maternal stress, cognitive development, and early intervention in middle- and low-SES infants with developmental disabilities.
Brinker, R., Seifer, R., & Sameroff, A. J. (1994) · PubMed · Cited by 96
Autistic Recovery? An Analysis and Critique of the Empirical Evidence on the Early Intervention Project
Gresham, F. M., & MacMillan, D. L. (1997) · Behavioral Disorders · doi:10.1177/019874299702200402 · Cited by 88
A closer look at the Autism Behavior Checklist: Discriminant validity and factor structure
Wadden, N. P., Bryson, S. E., & Rodger, R. S. (1991) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02206875 · Cited by 88
Family Stress and Child Competence: The Effects of Early Intervention for Families with Deaf Infants
Greenberg, M. T. (1983) · American annals of the deaf · doi:10.1353/aad.1983.a506522 · Cited by 73
Clarifying comments on the young autism study: Reply to Schopler, Short, and Mesibov.
Lövaas, O. I., Smith, T. H., & McEachin, J. J. (1989) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.57.1.165 · Cited by 65
Brief report: Stress, social support, and respite care use in families with autistic children
Factor, D. C., Perry, A., & Freeman, N. L. (1990) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02206863 · Cited by 54
Clarifying comments on the young autism study: Reply to Schopler, Short, and Mesibov.
Lövaas, O. I., Smith, T. H., & McEachin, J. J. (1989) · Journal of Consulting and Clinical Psychology · doi:10.1037/0022-006x.57.1.165 · Cited by 41
The UCLA Young Autism Project: A Reply to Gresham and MacMillan
Smith, T. H., & Lövaas, O. I. (1997) · Behavioral Disorders · doi:10.1177/019874299702200404 · Cited by 40
Treatment Outcome Is Encouraging.
Mesibov, G. B. (1993) · American Journal on Mental Retardation · Cited by 30
Replication and extension of behavioral treatment of autistic disorder.
Kazdin, A. E. (1993) · American Journal on Mental Retardation · Cited by 25
Coping resources of parents of developmentally handicapped children living in rural communities
Minnes, P., McShane, J., Forkes, S., Green, S., Clement, B., & Card, L. (1989) · Journal of Intellectual & Developmental Disability · doi:10.1080/07263868900033571 · Cited by 16
The Development of an Effective Applied Behavioral Analysis Program for a Young Child with Autism
Cattell-Gordon, D., & Cattell-Gordon, D. C. (1998) · Infants & Young Children · doi:10.1097/00001163-199801000-00011 · Cited by 7
The Development of an Effective Applied Behavioral Analysis Program for a Young Child with Autism
Cattell-Gordon, D., & Cattell-Gordon, D. C. (1998) · Infants & Young Children · doi:10.1097/00001163-199810030-00011 · Cited by 6
Disaggregating Parental Depression and Family Stress in Assessing Families of Children With Developmental Disabilities: A Multisample Analysis
Glidden, L. M., & Floyd, F. J. (1997) · American Journal on Mental Retardation · doi:10.1352/0895-8017(1997)102

Flagged first, then by citations

Research works printed but not linked: 3

Anderson, S. R., Avery, D. L., DiPietro, E. K., Edwards, G. L., & Christian, W. P. (1987). Intensive home-based intervention with autistic children. Education and Treatment of Children, 10, 352-366.
McConachie, H., & Waring, M. (1997). Child Psychology Portfolio: Parental Coping and Support. Windsor, UK: NFER-Nelson.
Smith, T., Eikeseth, S., Klevstrand, M., & Lovaas, O. I. (1997). Intensive behavioral treatment for preschoolers with severe mental retardation and pervasive developmental disorder. American Journal on Mental Retardation, 102, 238-249. · DOI · Paper page

Sorted by citations

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Davis, N. O., & Carter, A. S. (2008) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-007-0512-z · Cited by 1,212
The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders
Lecavalier, L., Leone, S., & Wiltz, J. (2006) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2005.00732.x · Cited by 1,163
Parent and family impact of autism spectrum disorders: a review and proposed model for intervention evaluation
Karst, J. S., & Van Hecke, A. V. (2012) · Clinical Child and Family Psychology Review · doi:10.1007/s10567-012-0119-6 · Cited by 977
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Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism
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“Parents of children with ASD are faced with numerous potential challenges and daily stressors associated with parenting a child with ASD including child behavior problems [2,8–10] and lower levels of social reciprocity and social communication [3,11,12].”
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Untitled work
(2002) · doi:10.1352/0047-6765(2002)040
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Self-citation
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Authors: Hastings, R. P., & Johnson, E.
Affiliations: University of Southampton (GB)
ORCID: Hastings, Richard P.
Johnson, Emma
Venue: Journal of Autism and Developmental Disorders
Publisher: Springer Science and Business Media LLC
Published: 2001-06
Volume: 31
Issue: 3
Pages: 327-336
ISSN: 0162-3257 (ISSN-L)
1573-3432
DOI: 10.1023/a:1010799320795
OpenAlex: W2156366978
Cited by: 356
References: 46
Citations by year: 2026: 4 · 2025: 10 · 2024: 10 · 2023: 10 · 2022: 8 · 2021: 14 · 2020: 10 · 2019: 21 · 2018: 18 · 2017: 24 · 2016: 19 · 2015: 24 · 2014: 23 · 2013: 24 · 2012: 22
FWCI: 5.76
Type: journal article
Language: en
Open access: closed
Licence: www.springernature.com/gp/researchers/text-and-data-mining (tdm)
www.springernature.com/gp/researchers/text-and-data-mining (vor)
Locations: Journal of Autism and Developmental Disorders (publishedVersion)
PubMed (publishedVersion)
Explore Bristol Research (publishedVersion)
ePrints Soton (University of Southampton) (submittedVersion)
University of Birmingham Research Portal (University of Birmingham) (submittedVersion)
Bristol Research (University of Bristol) (submittedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
Keywords: parental stress, autism spectrum disorder, young children, coping strategies, social support, autism symptomatology, pessimism, family support
MeSH terms: Adaptation, Psychological, Adult, Autistic Disorder, Behavior Therapy, Child, Child Behavior Disorders, Family, Female, United Kingdom, Home Care Services, Humans, Male, Parents, Surveys and Questionnaires, Social Support, Stress, Psychological

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Stress in UK Families Conducting Intensive Home-Based Behavioral Intervention for Their Young Child with Autism

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